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  1. Very impressive to see a doctor with a...

    Very impressive to see a doctor with a disability. I don't often see many of them. He's good looking too!!! :) I agree patient wishes have to considered because some people just hate the idea of...
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    I think those are both reasonable estimates of...

    I think those are both reasonable estimates of why the systems are occurring. I'm guessing your son can understand you but cannot respond. I read stereotypies can be caused by vision problems or...
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    I had never heard of "Deep Seizures" before in my...

    I had never heard of "Deep Seizures" before in my life before reading your post, but guessed that it meant deep in the brain. This may help https://www.nature.com/articles/nrneurol.2016.121 as it...
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    Disability media representation in India as part...

    Disability media representation in India as part of disability rights in India https://feminisminindia.com/2019/10/03/divya-arora-indias-first-wheelchair-bound-actor-cerebral-palsy/
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    Hi Rose, I completely relate to your...

    Hi Rose, I completely relate to your defensiveness because I had an experience back in February where a guy acted like I knew zero about a complicated process I actually knew a TON about as I deal...
  6. Thanks for the social distancing update. So glad...

    Thanks for the social distancing update. So glad you are all safe! Yes I also think it's unfair for so called "elective" procedures to have been cancelled because a ton of people need their medical...
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    Wow Rose! I'm so glad the clothes will be...

    Wow Rose! I'm so glad the clothes will be donated. I'm so sorry your mind has to be flooded with memories during a pandemic so soon after Jim's death. I agree you can't do this every single day...
  8. So glad to get an update from you. How are you...

    So glad to get an update from you. How are you doing in social distancing?? I'm perfectly healthy. When a woman I worked with epilepsy, was first diagnosed, she showed me youtube videos of people...
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    View Post

    Hi Rose,

    I’m so sorry about the insurance. Thanks so much for the update on your plumbing crisis. The older "Dad" plumber sounds like an absolute sweetheart. I’m glad he hasn’t retired yet! 65...
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    Hi Rose, You're very very welcome!! You are...

    Hi Rose,
    You're very very welcome!! You are extremely smart to get your food and clothes together now in case you need to go to John's house. I always find it so useful to have food that is part of...
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    Hi Rose, I agree that staying with John would...

    Hi Rose,
    I agree that staying with John would be safer. I know some people were successfully able to leave states like FL and stay in hotels to get back to their main home but you are physically...
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    Hi Rose, I'm so so glad John is there with you so...

    Hi Rose, I'm so so glad John is there with you so you don't feel so alone in your grief. Lots of virus innovations even for end of life, wow! I pray for you! Keep in contact with people somehow, cry...
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    Thanks Mary Grace! I'm so so sorry for my delayed...

    Thanks Mary Grace! I'm so so sorry for my delayed reply. I had no internet for a week because my cable company had problems caused by the virus. I'm so glad Kathleen is doing well! That is a relief...
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    COVID19 itself may cause stroke...

    COVID19 itself may cause stroke https://www.cnn.com/2020/04/22/health/strokes-coronavirus-young-adults/index.html?fbclid=IwAR1hgsBneuxKGIESxelMkJkPCoW-muSIHYcFTu8BoUXI4HpLQljEyA9FfiU
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    RIP Jim. His spirit journey has begun. He's not...

    RIP Jim. His spirit journey has begun. He's not far away. Keep us updated on you, PLEASE???!!!
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    I follow Rose's posts but my internet failed...

    I follow Rose's posts but my internet failed because of service problems related to the virus so I appreciate the heads up.

    RIP Jim. I will certainly never forget the amazing Jim and his story. I...
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    Hi Rose, I’M SO SORRY! OMG!!! I’m so so...

    Hi Rose,

    I’M SO SORRY! OMG!!! I’m so so sorry! My deepest apologies for my delay in responding to these posts of Jim’s passing. I’m okay! My internet is finally back after what felt like...
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    Hi Mary Grace, I’m so glad Kathleen is doing...

    Hi Mary Grace,

    I’m so glad Kathleen is doing well and loves her workbook! She sounds like me with academics! :) Yes the idea of any child, especially a child with a disability being separated...
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    $219,000 WOW. That's not right.

    $219,000 WOW. That's not right.
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    Yes Rose, I'm crying and also fuming! Nobody...

    Yes Rose, I'm crying and also fuming! Nobody should be working without gloves and masks now. Especially someone who is disabled and around other high risk populations. I was informed by my teacher...
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    Woman with Cerebral Palsy dies of COVID19 due to...

    Woman with Cerebral Palsy dies of COVID19 due to improper protection...
  22. So true. I love this! I like how he brings up the...

    So true. I love this! I like how he brings up the all important rationing concern. Reminds me of how I just did work online as before and people were freaking out over how different it was for them...
  23. Hi Rose, I saw those ads and as somebody who...

    Hi Rose,
    I saw those ads and as somebody who makes media I felt those ads were bizarre. I certainly wouldn't have made ads like that. Ultimately I think people are smarter than these ads.
  24. It is my understanding Stiff man was the accepted...

    It is my understanding Stiff man was the accepted term at one point. I have an exaggerated startle reflex as part of my Cerebral Palsy. In CP they are trying to figure out if it's a retained Moro...
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    Hi Rose, No worries! To answer your...

    Hi Rose,

    No worries! To answer your questions, yes Apple should totally be able to help you. You may have to order a small white attachment to connect the ethernet to the laptop but it can be...
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    Hi Rose, Thanks for the COVID19 info. Re:...

    Hi Rose,

    Thanks for the COVID19 info. Re: Chicken. Chicken when it is by itself is one of the blandest, easiest meats to have digested which is why vets put dogs on chicken and rice diets when...
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    Hi Rose, I ABSOLUTELY ADORED “A Beautiful Day...

    Hi Rose,

    I ABSOLUTELY ADORED “A Beautiful Day In The Neighborhood” when I saw it in theaters! Fred Rogers has the compassion and patience I wish I had! Watching the film brought back so many...
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    Hi Rose, Thanks for the update! I just saw this...

    Hi Rose,
    Thanks for the update! I just saw this "lockdown" news on TV and immediately thought of you and Jim and your friends. I would think some deliveries will continue. Perhaps just delivered...
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    Hi Rose, Thanks so so much for your concern!...

    Hi Rose,

    Thanks so so much for your concern! I really appreciate it! I think I have been on this forum since 2009 but I’m not even sure anymore LOL. You are right. It depends on the Cerebral...
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    Hi Rose, I’m so sorry if this article scared...

    Hi Rose,

    I’m so sorry if this article scared you for my safety. I’m perfectly healthy aside from the CP itself. It is my understanding that folks with CP are not that super super high risk...
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    Hi Mary Grace, Yes, stroke is one of the risks...

    Hi Mary Grace,
    Yes, stroke is one of the risks so I posted this same link on the stroke forum here. The virus is much more dangerous to my teacher friend with the stroke, as he is somewhat...
  32. Ableist murderer in Japan sentenced to death...

    Ableist murderer in Japan sentenced to death penalty https://www.japantimes.co.jp/news/2020/03/16/national/crime-legal/japan-verdict-sagamihara-murder-disabled/#.XnAzYS2ZNmA May this evil (bleep) rot...
  33. Thanks for the heads up! What do I do if I have...

    Thanks for the heads up! What do I do if I have trouble signing in to the new version of BT??? Let me know???
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    Stroke is major risk for COVID19

    Stroke Survivors at major risk of contracting and having complications of Coronavirus particularly if they are already diabetic...
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    Cerebral Palsy is COVID19 risk

    Cerebral Palsy listed as CDC risk for Coronavirus...
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    Hi Rose, I agree with everything you wrote....

    Hi Rose,

    I agree with everything you wrote. Disney in CA is closed now last time I checked. As for Tom Hanks, I believe one of my local news outlets mentioned that Tom Hanks is immune compromised...
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    My guess is people think we will end up like...

    My guess is people think we will end up like Italy and stuck inside without any way to wipe our bums. Colleges in NYC are shut down now too...
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    Yes this is the story about CUNY and SUNY....

    Yes this is the story about CUNY and SUNY. https://www.nydailynews.com/new-york/education/ny-cuny-suny-classes-coronavirus-20200311-f65rooi5vrflphblcun5y7yuym-story.html All my work is either online...
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    Thanks so much!!! I wear a watch too but use the...

    Thanks so much!!! I wear a watch too but use the time on my phone to reset it. iPads should reset like computers do but I do not own an iPad so I have no idea for sure.
  40. You're very welcome!! Um swallowing issues would...

    You're very welcome!! Um swallowing issues would show up during eating so I don't know why they would say its rare. Does he stutter, stammer, slur words or drool? Those can be signs of physical...
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    On which day? Sunday? Luckily my phone changes...

    On which day? Sunday? Luckily my phone changes automatically so I just re set everything to the time my phone is on LOL.
  42. Sorry it took me so long to respond to this....

    Sorry it took me so long to respond to this. Looks to me like there's something in his field of vision. It looks like what my friend who has a stroke and glaucoma does right before he starts to feel...
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    I had never heard of this film and will recommend...

    I had never heard of this film and will recommend to a friend who loves French movies.
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    I generally think ending political discussion...

    I generally think ending political discussion here is the better option. I think the people who discussed politics here did it very respectfully though so well done to us. My apologies if anything I...
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    The corona Virus spreading made me worry for you...

    The corona Virus spreading made me worry for you and Jim so much too. I would have to basically stay home all the time if it hits here.
  46. Old Neuro is so annoying. So Sorry old Neuro...

    Old Neuro is so annoying. So Sorry old Neuro refuses to explain anything of value. Glad EEG was normal though.
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    I don't mean to scare you but this definitely...

    I don't mean to scare you but this definitely sounds like a nervous system problem, and honestly it sounds like your son may be having strokes or mini strokes. All I could think of when I read this...
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    Awesome! So pretty!!!

    Awesome! So pretty!!!
  49. Hi Lost Parent, How are you? How are the boys?...

    Hi Lost Parent,

    How are you? How are the boys? I’m glad he’s only had one seizure, that seems like a big improvement! The wording of that is extremely confusing. It would seem to me that they mean...
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    BEAUTIFUL! Glad Kathleen had such a blast!

    BEAUTIFUL! Glad Kathleen had such a blast!
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    Happy Valentines Day BT!

    Happy Valentines Day BT!
  52. Replies
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    Thank you so much for your prayers Rose! He's...

    Thank you so much for your prayers Rose! He's doing okay but I'm still paranoid about his health. So sorry for the set back with Jim. Perhaps something about Jon's bed is causing gas. Can Jim sit in...
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    YES! YES! AMEN! I think if simple accommodations...

    YES! YES! AMEN! I think if simple accommodations are made STEM could make such great progress with disabled scientists at the helm. Disabled people are surrounded by STEM our whole lives and in the...
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    Rose, Neat article about the state of Disability...

    Rose,
    Neat article about the state of Disability depiction in movies that just came out...
  55. Replies
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    Hi Rose, Yes the same is true for me with...

    Hi Rose,

    Yes the same is true for me with BMs. I have to eat to “go”. I’m so sorry Jim has a UTI. But so so glad the bed ladder worked out!!! Yay!

    Update on my diabetic friend in case you are...
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    I completely agree on every level! You're very...

    I completely agree on every level! You're very welcome!
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    Hi Rose, I’m so glad the overall depiction of...

    Hi Rose,

    I’m so glad the overall depiction of disability was decent as that is the most important thing at the end of the day. I was so glad to see your opinion. Thank you so much to both you and...
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    Hi Rose, I think moving Jim into Jonathan’s...

    Hi Rose,

    I think moving Jim into Jonathan’s room was absolutely the right thing to do! GREAT THINKING! I’m sure being in Jonathan’s bed will help Jim’s bones and joints and he gets to feel closer...
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    Hi Rose, I'm glad Jim is doing better. Is it...

    Hi Rose,

    I'm glad Jim is doing better. Is it possible to sign Jim up for a wheelchair transport service like we have in my city if Jim ever needs it? Lots of cancer patients use it here. Would...
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    Hi Rose, Huge HAPPY HAPPY BIRTHDAY wishes to...

    Hi Rose,

    Huge HAPPY HAPPY BIRTHDAY wishes to wonderful Jim!!! So glad he got to have this birthday!!! Especially with you! I’m so glad Jim is starting to feel better! You rock Jim!

    Thanks so...
  61. I'm all for new science and technology but this...

    I'm all for new science and technology but this is far from being ready for use.
  62. Replies
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    Hi Rose, I’m so sorry Jim was weak and had so...

    Hi Rose,

    I’m so sorry Jim was weak and had so much anxiety as he left the house but I’m so glad John was there when Jim needed him and that the transfusion appears successful. I’m so sorry the...
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    Hi Rose, So Sorry Jim needs the transfusion....

    Hi Rose,
    So Sorry Jim needs the transfusion. Good luck and my prayers. The thing that I got yelled at for was a schedule thing that they messed up but blamed me for. I removed myself from that...
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    Weed use and stroke risk

    marijuana use and stroke study https://www.yahoo.com/lifestyle/heavy-weed-use-linked-to-higher-risk-of-stroke-in-young-people-says-new-study-005307634.html
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    Thank you so much! It worked!

    Thank you so much! It worked!
  66. Replies
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    The fact that they didn't see the blood result...

    The fact that they didn't see the blood result for an entire week is disturbing. Perhaps the lab made an error and not Dr K himself? That's happened to me. I feel your frustration because I'm in...
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    Ow! That's awful. I had a teacher once with a...

    Ow! That's awful. I had a teacher once with a similar problem. She would have to pull over and throw up on the way home too. She said her horrendous migraines made her more likely to have a stroke...
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    I certainly read your political posts agate. I...

    I certainly read your political posts agate. I just talk about politics so often when I'm NOT online that I may not have anything to add to the discussion because my politics quota in my brain is...
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    Stayed home. Ate lots of food. Found out some of...

    Stayed home. Ate lots of food. Found out some of my friends get hyper when drunk...LOL. Nothing new really. Happy New Year to Everyone at BT!
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    So sorry about the rash Rose! Just wanted to let...

    So sorry about the rash Rose! Just wanted to let you know I told my family about Jonathan and Michael as we were celebrating tonight and they told me to tell you they were sad your precious children...
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    Merry Christmas! My plans are just spend time...

    Merry Christmas! My plans are just spend time with family, open gifts and eat.
  72. Replies
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    Hi Rose, You’re very welcome! Thanks! I’m...

    Hi Rose,

    You’re very welcome! Thanks! I’m sorry you are tired and unable to accomplish what you wanted. Excuse me if we discussed this in the past, but my blind friends use their iPads completely...
  73. Any surgery has risk. Even the most simple one.

    Any surgery has risk. Even the most simple one.
  74. Replies
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    Hi Rose, Thanks! If you ordered John’s gifts...

    Hi Rose,

    Thanks! If you ordered John’s gifts via amazon I think they will get there in the nick of time but I also know that John is the type of friend who wouldn’t care if he got the gift on...
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    You’re welcome! Thanks Rose! For once I’m pretty...

    You’re welcome! Thanks Rose! For once I’m pretty on track with my gifting schedule for Christmas. I usually send gifts late LOL. Thanks so much for answering my question. I was just curious. Just...
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