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  1. Thread: Jim's Journey

    by mg12061
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    409
    Views
    23,478

    Rose, My favorite baking apple is mac's BUT I...

    Rose, My favorite baking apple is mac's BUT I haven met an apple I don't like LOL. Honeycrisp and Fuji are both good choices. I hope it comes out great! I hope Jim likes the Hint. Kathleen hasn't had...
  2. Thread: Night to shine

    by mg12061
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    3
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    145

    Night to shine

    53575357535853595360536153615362. Some pictures from Kathleen’s Night to Shine prom! Another fabulous night of loud music dancing and boys.all her favorite things!
    Mary Grace
  3. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, I'm glad you like my Apple pie recipe. I...

    Rose, I'm glad you like my Apple pie recipe. I have to warn you that I don't have an exact recipe. Something that kind of bothers my husband, he'll ask how long shoud I cook ****** My respons is...
  4. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, So glad you got your TV all hooked up. I'm...

    Rose, So glad you got your TV all hooked up. I'm terrible and can't sleep unless I turn on the TV I know a bad habit but the sounds helps to turn off my mind a little. Glad Jim is wanting to eat...
  5. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, Wow what a huge step! I hope you slept well...

    Rose, Wow what a huge step! I hope you slept well after all that work and emotional stress. Just one more example of putting yourself and your feeling second. You really are a beautiful person and it...
  6. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, I hope all is well... Praying all the...

    Rose, I hope all is well... Praying all the upcoming tests including todays blood draw goes smoothly.

    The news of Kobe's death was such a shock and just so very sad. I agree the more we heard...
  7. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose,Just catching up on posts. Please extend a...

    Rose,Just catching up on posts. Please extend a very happy birthday wishes to Jim!! Sounds like a lovely day! Kathleen LOVES birthday in fact every day here is "someone's birthday" if it's not a...
  8. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, I can't even begin to imagine all that's on...

    Rose, I can't even begin to imagine all that's on your plate. It kinda exhausts me LOL. All the ups and down, hurdles and hoops you jump through, all the unkowns you navigate through, and all the...
  9. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, I haven't posted in a long time but I read...

    Rose, I haven't posted in a long time but I read all your updates. I have to say you are a ROCK! I know at times you think you're not, but when I read your posts I see what you DO! Not what you think...
  10. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, always glad for any good news you can...

    Rose, always glad for any good news you can share. I do read more than respond but I'm always with you and sending prayers and positive thoughts your way. Your life inspires and touches so many...
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    Rose, Sending you love and hugs! Happy Birthday...

    Rose, Sending you love and hugs! Happy Birthday to your angel boys. You have honored their memory in so many ways. Crying in the shower can be very theraputic. I'm so glad you can share pictures...
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    Halloween party

    53195320 last nights Halloween party.so much fun!! MRy Grace
  14. I'm so so sorry for all the struggles you've had...

    I'm so so sorry for all the struggles you've had just getting appropriate care for your son. I think Rose said it all!! Your son really needs a Dr. who Is listening to your concerns and acting...
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    Kathleens update

    Thought I would update with a few pictures. Kathleen has enjoyed the summer and now its already fall. The weather is great warm some days crips some days. She's been very busy concerts (Goo goo...
  17. Thread: Jim's Journey

    by mg12061
    Replies
    409
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    23,478

    Rose, always thinking about you and Jim and...

    Rose, always thinking about you and Jim and prayers for you both. I'm very impressed at your ipad usage! New technology can be so frustrating. I have a very old phone and I'm scared to get a new one...
  18. Hello and welcome to braintalk. I'm so sorry you...

    Hello and welcome to braintalk. I'm so sorry you are feeling so lost and dealing with so much. I'm glad you found the support here. I have a daughter who has Down syndrome and several other health...
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    This made my day! What a lovely picture of your...

    This made my day! What a lovely picture of your boys! I'm quite certain they're your angels watching over you and Jim. Can't believe it's been 5 months. Thanks for sharing with us.

    Mary Grace
  20. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose great idea with the witch hazel. That I...

    Rose great idea with the witch hazel. That I think she'll tolerate. I've put neosporin on it but she will not tolerate a bandaid.
    Mary Grace
  21. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, So glad Jim's blood results were stable for...

    Rose, So glad Jim's blood results were stable for the most part.
    I don't know if it would be any easier but I make a really easy peanut butte cookie for Kathleen. I'm sure you could use any nut...
  22. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, so glad that things seem stable health...

    Rose, so glad that things seem stable health wise. But sorry there continue to be things thrown at you. John is such a gift in your life and it's comforting to know you have someone you can count on....
  23. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, So sorry there's one more battle... You're...

    Rose, So sorry there's one more battle... You're so right if people would "just do their job" and maybe do it with a little pride and respect it would make so many lives easier. We've had an issue...
  24. Thread: Jim's Journey

    by mg12061
    Replies
    409
    Views
    23,478

    Rose, So happy you got the ring and it fit. Happy...

    Rose, So happy you got the ring and it fit. Happy for the blood work results as well. Boy do I wish I could be there having a Stella! Love Stella! The pharmaceutical business is just that a big...
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    Rose, So glad you're safe. As soon as I heard...

    Rose, So glad you're safe. As soon as I heard about the quake I thought of you guys and prayed. I can't imagine how scary it must be.

    I agree about the fireworks. they should not be set off in...
  26. Replies
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    Rose, It always brings a smile to my face to read...

    Rose, It always brings a smile to my face to read some positive news. I'm very sure that all you do is considered a huge gift! Every day that passes with comfort and peace is a gift as well. Many...
  27. Replies
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    Rose, I love reading all your posts. I look...

    Rose, I love reading all your posts. I look forward to it with my morning coffee. It saddens me when the posts contain struggles and setbacks but those are the ones that truely show me your unending...
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    Funnylegs, It made me tear up when I was reading...

    Funnylegs, It made me tear up when I was reading Rose's post. I immediately thought it was BT friends,I don't know why but it just popped into my head as I read it. I remember Roses posts that ended...
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    Rose, What a beautiful post. I'm so glad your...

    Rose, What a beautiful post. I'm so glad your dream was clear to you and gave you the "energy" you need to move forward. You knew it would happen in good time and it did. What a beautiful and...
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    Rose, What a day! So much for your minds and your...

    Rose, What a day! So much for your minds and your bodies all in one day! So many positive things you've done such an amazing job! I'm so thankful that both of you were able to be at the appointment....
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    I follow the child neurology thread but saw the...

    I follow the child neurology thread but saw the mention of gluten here so I came to check it out. My daughter has celiac and has been eating GF for several years. Celiac itself is an autoimmune...
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    I pray that there continues to be good news. It...

    I pray that there continues to be good news. It was good to see even a little positive steps in the right direction. Positive thoughts and many prayers always headed your way.
    Mary Grace
  33. Replies
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    Rose, Thank you for the update. I'm always happy...

    Rose, Thank you for the update. I'm always happy to see even a small positive part to your post. I'm very much a glass half full kind of gal. I suppose it's a bit of a coping mechanism. Sometimes I...
  34. Replies
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    Rose, Thinking of you and Jim always and praying...

    Rose, Thinking of you and Jim always and praying for peace and healing of mind and body. It was good to read some positive news. So glad the bath worked out there's nothing like some hot water and...
  35. Replies
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    Rose, I've been reading your updates often. I...

    Rose, I've been reading your updates often. I just don't always get time to respond. Please know that you are in my daily prayers. So glad Jim's temp was NOT 104 and no ER. If you do go to the ER do...
  36. Replies
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    Rose, So glad things are looking a little better...

    Rose, So glad things are looking a little better for Jim. I love making " frozen banana ice cream" with other fresh berries for Kathleen is delicious. I mentioned in my other post about the awful...
  37. Replies
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    Rose, I wish I could help you! I've read your...

    Rose, I wish I could help you! I've read your last 2 posts and first I have to weigh in about the awful treatment in the nursing home. My mom was in one for a month in February waiting to get...
  38. Replies
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    Rose, keeping the prayers coming for you and Jim....

    Rose, keeping the prayers coming for you and Jim. Thank you for the update. I hope you got at least a little rest before heading back to the hospital.
    Mary Grace
  39. Replies
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    Rose, I'm sorry to hear this. Sending powerful...

    Rose, I'm sorry to hear this. Sending powerful healing prayers your way.
    Mary Grace
  40. Replies
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    OMG Rose I am just now seeing this! My chin about...

    OMG Rose I am just now seeing this! My chin about hit the floor, and then the tears! I just can't tell you how shocked and saddened I am to hear this. I feel like it's just a dream and I'll wake up....
  41. Thread: Jim's Update

    by mg12061
    Replies
    975
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    114,923

    oh Rose I'm so sorry for this tun of events. I've...

    oh Rose I'm so sorry for this tun of events. I've been reading posts but haven't had time to respond. I will keep very strong prayers coming for your family. It must be so hard to be away from Jim...
  42. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    LOL Rose, I didn't need any breaks ! After that...

    LOL Rose, I didn't need any breaks ! After that first sentence I got up topped off my coffee and heated up my lavender neck wrap.
    But it does tire me just reading your post. So much to do but I...
  43. Thread: Jim's Update

    by mg12061
    Replies
    975
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    114,923

    So glad that Jim is on board with the movement...

    So glad that Jim is on board with the movement plan. My daughter teaches Yoga and I've done some yoga classes. I keep saying I"m going to do this on a regular basis (since you can get classes...
  44. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    Rose your movement plan sounds wonderful. Sounds...

    Rose your movement plan sounds wonderful. Sounds relaxing yet productive. I hope it is helpful to you both.
    Mary Grace
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    Oh Donna just reading this! Wow what an ordeal!...

    Oh Donna just reading this! Wow what an ordeal! I'm so so sorry. Sending healing prayers for Nick.
    Mary Grace
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    Donna so sorry to hear this! Sending many prayers...

    Donna so sorry to hear this! Sending many prayers your way.

    Mary Grace
  47. Replies
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    Rose, What beautiful words spreading such a...

    Rose, What beautiful words spreading such a wonderful story. Your devotion, love, compassion, faith, hope, and yes some medical knowledge thrown in there too has brought your family and of course all...
  48. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    OH Rose!! I am so happy to hear this! You must...

    OH Rose!! I am so happy to hear this! You must feel some relief. Given a renewed positive outlook will certainly help you all to continue with great hope and positive thinking. This gives energy and...
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    Donna, So sorry to hear this! I hope things are...

    Donna, So sorry to hear this! I hope things are looking better today! Praying this is easily fixed.
    I will probably rest Bohemian Rhapsody at some point... I saw a Star Is Born in the theater but...
  50. Replies
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    Rose, So glad you were able to see both films. I...

    Rose, So glad you were able to see both films. I haven't seen Bohemian Rhapsody yet. I've seen a lot of clips and thank you for pointing out the really bad prosthetic teeth! Everyone seems to...
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    Funnylegs, That's exactly it "killjoy". I don't...

    Funnylegs, That's exactly it "killjoy". I don't like seeing "inspiration ****", and having participated in this event 2 years in a row it is not that at all. I know it's done with all good intentions...
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    Oh Rose that does sound painful! I pray that you...

    Oh Rose that does sound painful! I pray that you can coordinate everyone and get this under control and healed. I'm guessing that even if Jim wouldn't tell you any ill affects from his overdoing it...
  53. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    Rose, I totally understand your frustration with...

    Rose, I totally understand your frustration with the gown situation. You are right to have these concerns and address it. That said it's not easy to do that with those you love. But I'm certain they...
  54. Replies
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    Thank you everyone! Kathleen LOVES a party of any...

    Thank you everyone! Kathleen LOVES a party of any kind. LOVES music of all kinds. Music has always been her therapy, it pushes her through difficult things and through pain. Her song request was...
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    Kathleen's Night To Shine!

    Kathleen attended the Tim Tebow Night To Shine Prom. It was an amazing night. Red Carpet, Dancing, dinner, Corsage, Limo Ride, pictures, and everyone is crowned King and Queen of the prom at the end...
  56. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    Rose, prayers as always for your family! I'm Jim...

    Rose, prayers as always for your family! I'm Jim is recovering but so sorry for all the discomfort and "damage" to the sight. So sorry they're just not checking the chart thoroughly! It's really...
  57. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    Rose, So many things to worry about! I wish I...

    Rose, So many things to worry about! I wish I could help or even give you a big hug! I hope you feel the prayers coming your way. I don't know much about a marrow test but I was with Kathleen when...
  58. Thread: Callyflower

    by mg12061
    Replies
    27
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    4,981

    So glad you're healing well. I' sure your...

    So glad you're healing well. I' sure your competitive side is helping you along LOL. I have bunions but they're not yet painful. Just annoying when it comes to getting shoes. Kathleen does also hers...
  59. Thread: Callyflower

    by mg12061
    Replies
    27
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    4,981

    cauliflower, What was your surgery for? That's...

    cauliflower, What was your surgery for? That's quite a lot of stitches! I hope the pain is managed well because it looks quite painful. So glad you have those beautiful cat taking care of you! They...
  60. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    Funnylegs, I don't know if it's typical to use...

    Funnylegs, I don't know if it's typical to use the Baclofen for stroke recovery. Kathleen was having awful leg cramps all night long when she laid down to try and sleep. She would just cry and her...
  61. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    funny legs, No one should be left to their own in...

    funny legs, No one should be left to their own in a hospital an advocate is needed. That's why I felt so awful for Rose trying to advocate from a distance!! ! In general Kathleen has gotten good care...
  62. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    Oh Rose just reading all of this is...

    Oh Rose just reading all of this is heartbreaking! I wish I could do something to take away some stress and allow some rest for you! Dealing with Hospital personal is just so exhausting. I think...
  63. Thread: 17 years!

    by mg12061
    Replies
    5
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    1,774

    Funnylegs, I'll definitely check out both of...

    Funnylegs, I'll definitely check out both of those links! Thank you. I'd love to add a post about Kathleen's journey. We always take advantage of educating others about pediatric stroke and moyamoya....
  64. Thread: 17 years!

    by mg12061
    Replies
    5
    Views
    1,774

    A little update for Kathleen... We had a...

    A little update for Kathleen... We had a Shriner's appointment Thursday. We are really going to miss the care we've gotten there. She will age out in March when she turns 22. She had an electronic...
  65. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    Rose so glad this all resolved without extreme...

    Rose so glad this all resolved without extreme measures! I hear you about not wanting to act rashly. Also you've had so much experience and knew exactly what you needed to do first. It's experience...
  66. Thread: 17 years!

    by mg12061
    Replies
    5
    Views
    1,774

    17 years!

    Hard to believe yesterday January 18th marks 17 years since Kathleen's first stroke, she was almost 5 years old. Like most people I could not have conceived the idea that a young child could suffer a...
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    I didn't read the article But Kathleen got Botox...

    I didn't read the article But Kathleen got Botox for several years in her ankle for spasticity from stroke. It worked great for probably 4-5 years (upping the dose just once). Then it stopped working...
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    Glad to hear you've gotten some good input and...

    Glad to hear you've gotten some good input and more nursing support for the wounds. I'm not surprised that the wounds aren't as bad as they could have been, you do such an amazing job keeping...
  69. Replies
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    Funnylegs, I will check with my son about cost of...

    Funnylegs, I will check with my son about cost of the VHS transfer thingy (like my tech language? LOL). I'm pretty sure he did a little research on it.
    Rose, I absolutely believe in the...
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    Funnylegs, So sorry I thought I had responded to...

    Funnylegs, So sorry I thought I had responded to this LOL. Funny you mention the ice pack that's exactly what she asked for to calm her raw nose. I think her sensation changes from time to time....
  71. Replies
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    Wow so much for you to sort out daily! I wish I...

    Wow so much for you to sort out daily! I wish I could help or even had words to make it all easier for you. All I can do is send my warm hugs and prayers your way. I hope all goes smoothly with your...
  72. Thread: Jim's Update

    by mg12061
    Replies
    975
    Views
    114,923

    Rose, I'm so glad to hear some good news. Thank...

    Rose, I'm so glad to hear some good news. Thank you for the little reminder of what the past 2 years journey has been! Amazing what has been your reality for the past couple years on this cancer...
  73. Replies
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    Update from Kathleen

    We had a wonderful Christmas. We had our usual dinner that somehow became our tradition, Eggs and bacon and hash brown potatoes. Xmas Dinner at my sisters house.
    The best thing of all is we finally...
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    Rose, So glad things have gone smoothly, busy but...

    Rose, So glad things have gone smoothly, busy but smoothly... Your Christmas dinner sounds wonderful and leftovers is the best part sometimes. I made a big lasagna to bring to my sisters and we've...
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    Rose thank you always for the healing prayers. I...

    Rose thank you always for the healing prayers. I love the Christmas season, but what I love has nothing to do with gifts or shopping. I love the sounds and sights, the music and beautiful lights and...
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