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  1. Replies
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    ((((Rose & Jim)))) I read your email last...

    ((((Rose & Jim))))

    I read your email last night and my heart aches for you. I am so sorry for the loss of Jon. I am thinking of you and Jim and praying that loving memories of Jon bring you both...
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    Hello! Thank you everyone for all the prayers...

    Hello!

    Thank you everyone for all the prayers and well wishes! :) We came home Friday afternoon...I was surprised that we got to leave so soon! I would have been fine with one more day, but...
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    Hi! I do use the hospital wifi, it is free...

    Hi!

    I do use the hospital wifi, it is free throughout the hospital, but I download my email on my laptop, not thru gmail or other online ones...somehow it knows I am not on my home provider when...
  4. Hello! I LOVE the new show Speechless! I am...

    Hello!

    I LOVE the new show Speechless! I am late chiming in to the thread but do have a few comments!

    I have been enjoying the show and had looked forward to watching it with my kids....BUT I...
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    Caitlin foot surgery!

    Hello everyone!

    Long time, no post! Sorry! It has been really crazy at my house now that the boys are older and in so many activities. Not all the same which makes it even harder. Driving the...
  6. Replies
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    Hi Rose! I just read your email and wanted to...

    Hi Rose!

    I just read your email and wanted to reply, but can't since we're at the hospital still. For some reason, I can receive but not send email when I am here. Well, I could send if I use...
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    Hello! (((CPchick))) Glad the new job & city...

    Hello!

    (((CPchick))) Glad the new job & city are going well! Love seeing your pictures on fb! :)

    (((Rose))) Wow, 42 hours....I would have collapsed! Glad it wasn't the flu or anything...
  8. Thread: Kathleen

    by andromeda31
    Replies
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    3,537

    Hi! So glad Kathleen's surgery went well! Her...

    Hi!

    So glad Kathleen's surgery went well! Her cast looks huge! So glad she is able to manage it well! Sending prayers that there are no complications and her healing continues to go well!! Did...
  9. Replies
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    Happy fall! I had started a big long post...

    Happy fall!

    I had started a big long post for an update, but it disappeared suddenly so I have to start all over! Anyway, things have been really busy here since school started up. Brandon is...
  10. Thread: pre-op

    by andromeda31
    Replies
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    2,910

    Hi! Thinking of you & Kathleen today and...

    Hi!

    Thinking of you & Kathleen today and hoping all went well with her surgery! Sounds like they were very thorough with her pre-op checkups! Glad you were able to get a fun weekend in before...
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    Welcome Julie! My daughter has a VA-shunt...

    Welcome Julie!

    My daughter has a VA-shunt also. Last revision was in 2011 but she had a rough few years prior to that. I know how it is when the doctors keep dismissing your concerns. Like Rose...
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    Hi- Thinking of you and praying things get...

    Hi-

    Thinking of you and praying things get better and that all of you can get some good rest! ((((hugs))))

    Lisa O.
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    Hi! Just checking in quick before I go to bed....

    Hi!

    Just checking in quick before I go to bed. Glad you are all still at home and that things are getting better! Thinking of you and sending prayers! We took Caitlin to church today...she made...
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    Hi! Oh my! So glad you have a generator, but...

    Hi!

    Oh my! So glad you have a generator, but poor Jim having to haul it around the house in the hot weather!

    Hopefully a little extra Depakote will help Jon stabilize. Wow, 22 is low! ...
  15. Thread: senior

    by andromeda31
    Replies
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    Hi! OMG, a senior! Her picture turned out...

    Hi!

    OMG, a senior! Her picture turned out great, such a lovely smile! :)

    Hope she has a wonderful year at school!

    Lisa O.
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    Hi! CONGRATULATIONS ERIN!!! I am so happy...

    Hi!

    CONGRATULATIONS ERIN!!! I am so happy that you got the job!

    Things are good here, just busy with back to school stuff this week. We had registration day on Tuesday and Logan's teacher...
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    Hi! Glad to hear things have turned around for...

    Hi!

    Glad to hear things have turned around for Jon! How was the culture result? Hope they didn't have to change up the meds. Glad to hear they have asked the PT to come back and I pray that it...
  18. Thread: surgery

    by andromeda31
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    Hi! Wow! That will be a busy day! We did...

    Hi!

    Wow! That will be a busy day! We did Caitlin's pre-op like that too though (5 in one day)...I actually liked that better than having separate appointments & trips. Are you far away from...
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    Good luck Erin! I hope you get the job!! :) ...

    Good luck Erin! I hope you get the job!! :)

    Lisa O.
  20. Thread: surgery

    by andromeda31
    Replies
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    Hi! Hope all the pre-op appointments go...

    Hi!

    Hope all the pre-op appointments go smoothly. I am sure that surgery date will come up fast! BTW, I really love that hair washing thing I bought, I can't say enough good things about it!
    ...
  21. I am still in shock and am so saddened by her...

    I am still in shock and am so saddened by her loss....sending love & prayers to the Sheppard family....

    Lisa O.
  22. Replies
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    Hi Rose, I've been thinking of you all...

    Hi Rose,

    I've been thinking of you all day....hope the transfer to the hospital went okay for Jon and that he has avoided the ICU. You & Jim provide the best care for Jon and I hope the hospital...
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    Hi! Thank you for the prayers ladies! *hsmile...

    Hi!

    Thank you for the prayers ladies! *hsmile We're home!

    Here is a cut/paste from fb:
    ****************************************

    Stay 2, Day 4: Going home! Caitlin had a good night last...
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    Hi! I usually put a little more of the medical...

    Hi!

    I usually put a little more of the medical details when I write here than what I share on fb...don't want to scare my mom & Brian's mom! :)

    I took the photo with my ipod. I didn't want...
  25. Replies
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    End of Summer CN Updates!

    Hi!

    Well, one bad with starting a new thread, I can't go back and read what I already shared so here goes....out of laziness, I am cut/pasting my fb updates...

    Mary Grace...I know I had...
  26. Replies
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    Hi! Sorry to hear Jon is having a rough...

    Hi!

    Sorry to hear Jon is having a rough patch...(((hugs))) That third spacing you described sounds really scary! Yes, I would choose wet pad over aspirating vomit any day! Though I appreciate...
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    Hi! Glad to hear she won't have to have...

    Hi!

    Glad to hear she won't have to have additional surgeries! Keeping her strong & healthy before the surgery is a good goal...that is what I did with Caitlin for the spine fusion. I told our PT...
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    Hi! Yes, I wasn't expecting to see that much...

    Hi!

    Yes, I wasn't expecting to see that much on it! The first change has more of that clear fluid discharge and I only took pictures just because I was hoping to see it decline in amount! Good...
  29. Replies
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    Hi! Today was a good day! (mostly!) Caitlin...

    Hi!

    Today was a good day! (mostly!) Caitlin is back to herself and showing her personality...very talkative and self-advocating a LOT! I think I would be though too if I were stuck in bed all...
  30. Replies
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    Hi! I've been curious about adding spinach or...

    Hi!

    I've been curious about adding spinach or kale to a smoothie but haven't tried it out yet. For some reason, I just fear it would be chunky...I am kind of picky and I blend them until they are...
  31. Replies
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    Hi! I did the dressing change this morning and...

    Hi!

    I did the dressing change this morning and it went really well! I used your suggestion of music, Rose...it helped a lot! I already had a playlist on my ipod called "Caitlin slow songs" that...
  32. Replies
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    Hello! Just thought I would post a quick...

    Hello!

    Just thought I would post a quick update during the commercial (I am watching the debate...I need a good laugh!). Today was so busy! Caitlin woke up at 4am, I gave her some valium since...
  33. Replies
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    Hello! We are HOME! :) Boy it sure feels...

    Hello!

    We are HOME! :) Boy it sure feels great! I also am so glad that they boys are up north...I didn't even think about having a quiet house for Caitlin when she came home, but this has...
  34. Replies
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    Hello! Things are going great today! Her...

    Hello!

    Things are going great today! Her color is much better and so were her numbers. They were not all the way to normal but pretty close so she doesn't need more blood. I will have to give a...
  35. Replies
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    Hi! Just a cut & paste of my fb evening...

    Hi!

    Just a cut & paste of my fb evening update...today wore me out!

    Day 4, Evening update: Super busy day today! I wish I had my good camera since I am currently looking at the most gorgeous...
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    Hi! I think her hemoglobin is low because they...

    Hi!

    I think her hemoglobin is low because they lose a lot of blood during the surgery. They said they actually try to capture most of it and put it back in but that sometimes kids need a...
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    Hi! We've been trying out different pillow...

    Hi!

    We've been trying out different pillow arrangements and they got a heating pad to put on it to relax it which helped a little bit. Today was a good day, the PT came and stretched it out,...
  38. Replies
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    Hi! I finally had a chance to look up Mexican...

    Hi!

    I finally had a chance to look up Mexican palm trees....they are weeds where you live? I can remember when my sister lived in Houston, it was neat to see the palm trees in people's yards...
  39. Replies
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    Hi Rose! She threw up a few more times, but is...

    Hi Rose!

    She threw up a few more times, but is resting now. I brushed her teeth and that seemed to calm her down. She keeps asking for water but the nurse nor I wish to give her anything until...
  40. Replies
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    Hello! Just had to come and update....things...

    Hello!

    Just had to come and update....things are going great! Much better than I had thought in my head....since I only got 2.5 hrs of sleep last night and could use a nap, I am going to copy &...
  41. Replies
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    Thank you! *heart Just finishing up my packing...

    Thank you! *heart Just finishing up my packing now and had to take a quick break!

    Yes, my laptop plays dvds...we have a tiny portable dvd player but it is really hard to see the screen and my...
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    Hi! Yes, it actually feels weird to have so...

    Hi!

    Yes, it actually feels weird to have so much time to prepare for this surgery. Most often, Caitlin's surgeries were emergencies. I will have my laptop along so I will be able to update. ...
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    Hello! Sorry to hear that you have been so...

    Hello!

    Sorry to hear that you have been so stressed Rose...(((hugs))) I hope that the humidity is better now for you. I can't imagine having so much go wrong and then to be hot on top of all...
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    ooh, I forgot, if you are worried about washing...

    ooh, I forgot, if you are worried about washing after surgery....this is what I ordered from amazon for Caitlin. ...
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    Wow, sounds fascinating how they can do so much...

    Wow, sounds fascinating how they can do so much with technology! I agree though, I would be overwhelmed also. Sounds like a major decision for the surgery. How heavy is Kathleen? Would insurance...
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    Hi! Just have to put up pics of Caitlin's...

    Hi!

    Just have to put up pics of Caitlin's new haircut! I don't normally ever go this short, but it is in preparation for the surgery since I won't be able to wash it for 2 weeks after. I did...
  47. Replies
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    Happy anniversary Rose & Jim! So glad to...

    Happy anniversary Rose & Jim!

    So glad to hear Jim is cancer free! And also that you have some Plan B set up in case anything should go wrong ever. Hopefully you will never need to put that...
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    Hi, Were you supposed to mail it in? I've...

    Hi,

    Were you supposed to mail it in? I've never sent ours in late so I can't say for sure. Every other year or so, we get a home visit and then we keep the papers and just give them to the home...
  49. can they identify the exact bacteria so they can...

    can they identify the exact bacteria so they can give him a drug that will go after it completely? I feel bad that you are not able to get proper rest....hope you are able to get a little break...
  50. ((((Tamie)))) Sorry to hear Tyler is not well....

    ((((Tamie))))

    Sorry to hear Tyler is not well. Caitlin has always had terrible constipation. She has been on miralax for a long time now, since about 2008 or 9 if I remember right. That was...
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    Hi Rose! Thank you for the update! I have...

    Hi Rose!

    Thank you for the update! I have been thinking of you and wondering if something bad was going on. Sorry to hear that Jim is still having a rough time. Wow, that is unbelievable that...
  52. Replies
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    (((Rose))) Sorry to hear Jim is not getting...

    (((Rose)))

    Sorry to hear Jim is not getting better....did he have a reaction to the shot? :(

    I took Caitlin in to the doctor on Tuesday last week since she fell asleep at her morning PT...
  53. Thread: Diapering

    by andromeda31
    Replies
    2
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    2,220

    Hi! I did a trial of liners when we switched...

    Hi!

    I did a trial of liners when we switched from regular baby diapers to the "medical" youth sizes. After we found the right youth size, I decided it worked great even without a liner so I...
  54. Thread: Diapering

    by andromeda31
    Replies
    2
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    2,220

    Diapering

    Hello!

    I figured I would give this a separate post since it is just a single question. For all her life, when we had to change Caitlin's diaper, we put the new one underneath her first (learned...
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    Hi! I am so glad to hear Jim is doing better! ...

    Hi!

    I am so glad to hear Jim is doing better! I think that is a "man" thing to keep their health woes to themselves. I know Brian is that way too. Good idea to make him take his vitamin at the...
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    Hi! Oh that sucks about the termites Rose! I...

    Hi!

    Oh that sucks about the termites Rose! I was wondering if you had the oil treatment done yet and how it worked. As if you really need to have that extra work on top of all that you & Jim...
  57. Thread: BCH

    by andromeda31
    Replies
    3
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    2,237

    Hi Mary Grace! That sounds like a great day! ...

    Hi Mary Grace!

    That sounds like a great day! That is neat to be able to run into a doctor who has played an important part in Kathleen's life, he looks like a kind person from the picture...great...
  58. Replies
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    (((Rose))) Sending prayers for Jim's exam to...

    (((Rose)))

    Sending prayers for Jim's exam to go well for him! Sorry to hear you have crappy new neighbors. That sucks that they are not considerate about noise. I actually found out that our...
  59. Replies
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    Hi! Now it is letting me, here we go! I...

    Hi!

    Now it is letting me, here we go! I cropped my face out since Brian took the picture and captured all 3 of my chins, lol! There were 9 puppies in the litter and they had just opened their...
  60. Replies
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    Hello! It sure has been awhile. Of course, I...

    Hello!

    It sure has been awhile. Of course, I have been dealing with sick people all this time, myself included. It is just unbelievable....we came home from the hospital that Tuesday and the...
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    Hi! Yes, beautiful words Rose! I hope you had...

    Hi!

    Yes, beautiful words Rose! I hope you had a nice Mother's Day! *hsmile

    Lisa O.
  62. Replies
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    Congratulations funnylegs4! That is exciting...

    Congratulations funnylegs4! That is exciting news!

    Well, I was feeling less stress until Monday....I ended up taking Caitlin to the ER for seizures out of control. I did have an appointment...
  63. Replies
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    Hi again! I did find a video on youtube that...

    Hi again!

    I did find a video on youtube that had highlights from the concert....just to give you an idea how wild and crazy it was! https://www.youtube.com/watch?v=nj5q3_EHGRM

    Brandon was...
  64. Replies
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    Hello! Just finished catching up on what I...

    Hello!

    Just finished catching up on what I missed here while I've been away. :) Silly me, I thought after Easter that my schedule would lighten up. Ha ha! Right now I am waiting for Tyler's...
  65. Replies
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    Happy Easter!

    Hi!

    Wishing everyone a Happy Easter! *bunny2

    Another jam-packed few weeks for me, all good things. Kids have had spring break, though our district only gets wed, thurs, fri & Monday. That is...
  66. Thread: burnt out!

    by andromeda31
    Replies
    17
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    5,220

    Hi! Trying to go to bed early but failing. :)...

    Hi!

    Trying to go to bed early but failing. :) I loved seeing palm trees when I visited my sister when she lived in Houston. Don't have those here! I would trade mud for a palm tree right now. ...
  67. Congratulations Erin!! I can still remember when...

    Congratulations Erin!! I can still remember when you were in high school (now I feel old!). So proud of you for working so hard and wow, Honors too, that is awesome! I hope you get to take a trip...
  68. Hi Donna! Glad you had a great trip and are...

    Hi Donna!

    Glad you had a great trip and are back home safely! I would definitely be up for a retreat there someday, it is fun to see your pictures on fb....the island is beautiful!! Glad Nick is...
  69. Thread: burnt out!

    by andromeda31
    Replies
    17
    Views
    5,220

    Hi! When I spoke with the lady with CP that is...

    Hi!

    When I spoke with the lady with CP that is from my area, she said there were many really good CBRFs (community based res facilities-group homes) around here. That was nice to hear from...
  70. Thread: burnt out!

    by andromeda31
    Replies
    17
    Views
    5,220

    Hi! It is hard to say goodbye to things our...

    Hi!

    It is hard to say goodbye to things our kids can't use anymore....I can totally relate! For me, it is toys that she will never play with. Still have a bin of Barbie stuff in her closet and...
  71. Thread: update

    by andromeda31
    Replies
    2
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    1,946

    Hi! Glad to hear you have an understanding...

    Hi!

    Glad to hear you have an understanding doctor to work with! Hope the changes you make will lead to stronger bones!!

    Lisa O.
  72. Thread: burnt out!

    by andromeda31
    Replies
    17
    Views
    5,220

    Thanks ladies! :smile: The band letter &...

    Thanks ladies! :smile:

    The band letter & medals will go into a box. I still have shelf down in the basement that has high school stuff (yearbooks, scrapbooks, etc) so it will go in with that, to...
  73. Replies
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    Happy 18th Birthday Kathleen!! What a...

    Happy 18th Birthday Kathleen!!

    What a fabulous idea for a party! I love the smiles on her face!! The birthday cookies are so cute!! How fun to surprise her like that! :)

    Wishing...
  74. Thread: burnt out!

    by andromeda31
    Replies
    17
    Views
    5,220

    Hi! The funny thing is we don't even have the...

    Hi!

    The funny thing is we don't even have the kids in a lot of stuff, I try to keep them all to one sport at a time. I was kind of glad Tyler didn't want to wrestle anymore or we would have boys...
  75. Thread: burnt out!

    by andromeda31
    Replies
    17
    Views
    5,220

    Hello again! One fun thing I have been doing...

    Hello again!

    One fun thing I have been doing is the 40 days 'decrapify'! http://www.whitehouseblackshutters.com/40-bags-in-40-days-2015/ I just really liked the word 'decrapify'....it really...
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