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  1. Replies
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    I can identify with the relief obtained from a...

    I can identify with the relief obtained from a heating pad. Having "said" that, when I was in the ER because of a stroke my neuro told me that although it may feel good, heat can make the headache...
  2. Thread: A Question

    by suse
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    A Question

    What's the difference between a ruptured aneurysm and a stroke? (I've never understood *ack)

    Thanks,
    suse
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    Wheelchairs

    Thanks for posting Christina. I'm another one who used one while I was in rehab, and for about a month after I went home. I gained new insight as to what it meant for places to be "Handicap...
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    alex I didn't know that!! (They stick it to you...

    alex I didn't know that!! (They stick it to you one way or another!) *ack

    suse *bunch
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    I have a ?? for y'all; being a stroke survivor...

    I have a ?? for y'all; being a stroke survivor I've never understood how someone can have a ruptured aneurysm and NOT have a stroke; can someone explain please?
    Thanks,
    suse *ack
  6. Thread: Somebody help

    by suse
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    Hi Chris, I had my gallbladder out in 2000, and...

    Hi Chris,
    I had my gallbladder out in 2000, and though not as frequent as it used to be I still get right upper quadrant pain episodes that can bring me to my knees. The surgeon thought that I...
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    Bedside Manner

    Having worked in the medical field most of my life. I've found that unfortunately doctors are like everyone else; some are great, and some - not so much.
    When I was in the hospital following my...
  8. Thread: Eating Disorders

    by suse
    Replies
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    7,560

    scales

    Hi again!!
    I've been in Vermont now since 1977; my mom, little brother and I moved here from Montreal. (I'm not from there either; born in New York City, my dad was in the airlines and made the...
  9. Kids will probably hate this; I think it's...

    Kids will probably hate this; I think it's marvelous!!

    suse
  10. Thread: Eating Disorders

    by suse
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    7,560

    Thanks Jo

    I think about you too Jo.
    I'm baking cookies again this morning for my hubby's work place. Cookie dough is a MAJOR weakness for me, but I'm less apt to indulge when someone else is around, and...
  11. Thread: Hi everyone !!

    by suse
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    Hi!

    I visited the chat room daily in the late 90's, it was good for me to connect with others when my life was in such bad shape. My nickname is the same; I recognize MountainMan and Jim, others not so...
  12. Thread: tinnuitis

    by suse
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    Tinnitus

    Hi,
    I've had mine since having a stroke. I also have a moderate hearing loss that I think increases as time progresses. I think I was "lucky" to have gotten used to it very quickly. The sound is...
  13. Thread: Old newbie

    by suse
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    wb

    Hey Linda welcome back!
    I started here in the later 90's and was absent for years too. The chat room is gone; nobody seemed to use it so......

    Nice to have you back,
    suse *bunch
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    Could this be a form of CPS??

    It certainly doesn't feel like the familiar burning, aching I've had for years. The pain is in the outside of both upper arms between my shoulders and my elbows. It's intermittent; I'll be pain-free...
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    mass hysteria??

    I've seen some of these girls on the news. It's been said that the school has been cleared by the health department AND the school itself. But I agree, one Neurologist?? This doesn't make sense to...
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    Is there any physical disability that prevents...

    Is there any physical disability that prevents you from getting out of bed when you think you hear something?
    There have been times for me that I think I may be heading down the same road; mine is...
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    Interesting; the majority of my waking headaches...

    Interesting; the majority of my waking headaches will go away once I get out of bed. (How do you know when your CSF level is elevated?)

    suse *forgetmenot
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    Hi, That's a new one for me; I've heard of...

    Hi,
    That's a new one for me; I've heard of people who don't "feel right" having all four working limbs, and will actually fake a loss of a leg, etc. (I can't remember what it's called.)

    suse...
  19. Hi guys, I've been having them on and off since...

    Hi guys,
    I've been having them on and off since my stroke. It's my understanding that they're not painful. (At least everything I've read about them has had that info.) I guess more reading by...
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    Thanks Mike! suse*forgetmenot

    Thanks Mike!

    suse*forgetmenot
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    Hi Roxie, Sorry you guys are going through that....

    Hi Roxie,
    Sorry you guys are going through that. Can she not eat because she get's a reaction from certain foods? Is there some way to make sure that the dye is the culprit and not a coincidence? ...
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    Welcome back! suse *forgetmenot

    Welcome back!

    suse *forgetmenot
  23. Replies
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    Well put! I'm not a fibro patient, but chronic...

    Well put! I'm not a fibro patient, but chronic pain is a way of life for me. Articles like these burn my butt too because a lot of people take them as scripture.

    suse *forgetmenot
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    They all are wonderful!! My husband and I...

    They all are wonderful!!
    My husband and I rescued a female yellow lab from a horrendous life, to find that she was 20 pounds underweight and pregnant. She gave birth to seven beautiful, shiny and...
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    Another trip to the doctor?

    I would have though that when I had my stroke, and for many years after I frequented doctors, that my visits to them would have been finished a long time ago. No such luck! *ack
    I was diagnosed...
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    VERY good point, Jo!! It's as if our government...

    VERY good point, Jo!! It's as if our government is running a major ponzi scheme on us!

    suse *ack
  27. Thread: Eating Disorders

    by suse
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    Hi Mary I've had one type of ED or another on...

    Hi Mary
    I've had one type of ED or another on and off for 30 years. It stunk when I started, and it still stinks; For a few years I seemed ok; when I think about it the only time my ED was...
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    Sounds great to me Jo!! (YUM) suse *veryhappy

    Sounds great to me Jo!! (YUM)

    suse *veryhappy
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    Leo, with all the pain you were in, (Hopefully...

    Leo, with all the pain you were in, (Hopefully that's passed) that you could write something so entertaining says a lot about you!! Up until my stroke I worked within the medical profession, and...
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    Thanks Jo. I haven't been to my doc yet; I...

    Thanks Jo. I haven't been to my doc yet; I haven't been able to drive since my stroke, so I have to arrange for transportation. Crappy time of year too; my balance is already compromised, and...
  31. Thread: Eating Disorders

    by suse
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    Thanks Jo, that means a lot! ((((Jo)))) I've...

    Thanks Jo, that means a lot! ((((Jo))))

    I've been struggling the last few days. My husband usually gives his supervisors gifts, (Booze) and the one guy that doesn't drink happens to like a...
  32. Thread: Eating Disorders

    by suse
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    I've noticed that there hasn't been any activity...

    I've noticed that there hasn't been any activity lately; if my last posting offended anyone it certainly wasn't my intent.

    Have a decent holiday folks!
    suse *forgetmenot
  33. The amount of money for anything billed to the...

    The amount of money for anything billed to the insurance company can be outrageous!! I messed up my ankle a while back, and my insurance co. was billed almost $800.00 for an aircast that was listed...
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    I almost choked when I saw this advertisement!!...

    I almost choked when I saw this advertisement!! *ack

    http://www.youtube.com/watch?v=JDyOD1C67J0

    suse *forgetmenot
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    Does this sound like fibro?

    I guess I'm gathering some info to take to my PMD, and this is the best way I can think of.
    I've had pain on and off in my upper arm areas for years. It's now waking me up at night and now it's my...
  36. Thread: Eating Disorders

    by suse
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    7,560

    Jo, It's not that unusual to not see negative...

    Jo,
    It's not that unusual to not see negative behaviors in our children; one of the best ways to deal with that behavior is to focus on yourself. By changing your own behavior, and leading by...
  37. Thread: Eating Disorders

    by suse
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    7,560

    Hi Christina, What kinds of foods are you...

    Hi Christina,
    What kinds of foods are you eating? (I'm not a nutritionist) There are lots of foods that can cause bloating and all sorts of digestive troubles. I had to stop soy, and some milk...
  38. Thread: Eating Disorders

    by suse
    Replies
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    7,560

    A LOT of men, regardless of how they look, think...

    A LOT of men, regardless of how they look, think they're just a sit-up or two away from nailing Cindy Crawford. It's one of the "good ole boys" double standard. I've become rather indifferent about...
  39. Thread: Eating Disorders

    by suse
    Replies
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    7,560

    I made it home!! Tail wags a-plenty was my...

    I made it home!! Tail wags a-plenty was my four-legged greeting! *biggrin
    (Thanks for the big hug Jo!)
    The older I get the more thankful I am to live in New England, and not somewhere where sizes...
  40. Thread: Eating Disorders

    by suse
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    7,560

    Jo, I didn't mean to offend you; I'm sorry. A...

    Jo, I didn't mean to offend you; I'm sorry. A few people I know have taken it and not liked the side effects at all; sleep trouble, weight gain, etc. Maybe my fear is high because of my screwed up...
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    FYI

    If you get A LOT of catalogues as I do, here's a website that can stop them. (It can be rather labor intensive if you want to do it for free, but there's a way not to) The site is:
    ...
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    Christmas

    Wouldn't that be awesome? My husband usually gets the mail, and I received 17 catalogues one day; it's become ridiculous!! *ack

    suse *bunch
  43. Thread: Eating Disorders

    by suse
    Replies
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    7,560

    Me again

    One scare about Lung CA and that was it for me; I had already quit too!! It was a horrible time; the CA scare, my younger brother leaving for Iraq - it was awful. The only person I told about the...
  44. Thread: Eating Disorders

    by suse
    Replies
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    7,560

    :)

    Psych meds are notorious for weight gain; I'm on one also.
    The stroke messed with my feeling full when I eat. The problem being I DON'T unless I get uncomfortable, and that is definitely a trigger...
  45. tic chick - GREAT answer!!!! suse *bunch

    tic chick - GREAT answer!!!!

    suse *bunch
  46. metabolize, etc.

    Regulations, regulations, regulations. It's people who abuse drugs, and have drug-seeking behavior that screw things up for the rest of us; make us go through hoops for medication that I know I'd...
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    !!

    My ex's son had testicular cancer; GREAT answer Swanton Bomb!!

    suse *bunch
  48. Thread: Eating Disorders

    by suse
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    7,560

    Ulcers etc..

    Hi again,
    I had an "EGD" done a few years back, (At least I thing it's EGD; maybe it's "EDG" *rolleyes ) anyway, it's a scope down the throat and into the stomach. It showed "moderate" irritation;...
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    ??

    Hi Christina,
    I guess I don't understand. Under your name it reads, "distinguished commuity member"; am I missing something?

    suse *bunch
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    My words exactly!! suse *bunch

    My words exactly!!

    suse *bunch
  51. Thread: Eating Disorders

    by suse
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    7,560

    It is a sad thing; they're terrible! I'm now 51...

    It is a sad thing; they're terrible! I'm now 51 and have struggled with what's known as "Purging Disorder" on and off for 30 years. (It's similar to bulimia but they're isn't any binging) I'm an...
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    Yeah, I remember; when one's on a fixed income...

    Yeah, I remember; when one's on a fixed income doing "more" with "less" becomes the norm. Now that we're supposed to be getting a raise, my electric company is planning on a rate increase in...
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    I know; my electric company wants to raise rates...

    I know; my electric company wants to raise rates in January!

    suse *ack
  54. Thread: What can I do?

    by suse
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    The whole "worst headache..." scenario is a good...

    The whole "worst headache..." scenario is a good one! Are you able to change neurologists?? (I called my neuro's office and got the name of a headache specialist. You'd be surprised at how much...
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    I know - FINALLY!!! I've heard 3.4%. (If...

    I know - FINALLY!!! I've heard 3.4%. (If Congress had to live on what we do, I'm sure it'd be a lot more!!!!)

    suse *hugs
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    Many! :o suse

    Many! :o

    suse
  57. Replies
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    Hi, I used to get one in the back; it had me...

    Hi,
    I used to get one in the back; it had me whimpering it was so painful. As it turned out, that's where my neuros think I had my stroke. I haven't had pain there since, and that was back in '96....
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    Hi, Yeah; I did see a headache neuro quite a few...

    Hi,
    Yeah; I did see a headache neuro quite a few years ago. He suggested I keep a headache diary for a few months, (Which I did) and migraines were diagnosed; he prescribed Amerge and Axalt which...
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    Waking Headaches Anyone?

    They bite for sure! I usually awake from a dream only to have a "pounder" above and behind my right eye; always the same place; and it lasts for about three days. I make sure I'm hydrated, then the...
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    brain rehab

    Mary,
    That sounds just awful!! My opinion - get at least one more opinion/consult with a doc NOT affiliated with the guy you went to. It might be good to have two (2) copies of questions you want...
  61. Thread: I Need Adviice

    by suse
    Replies
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    DJD

    Hi Diane.
    DJD = Degenerative Joint Disease (Basically it's osteoarthritis)
    Thanks everybody!
    suse *hug
  62. Thread: I Need Adviice

    by suse
    Replies
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    2,496

    I Need Adviice

    I was diagnosed with DJD of my Lumbar spine approximately 20 years ago. I've had pain off and on for years; a few days ago it became constant, and pretty bad. I found some stretching exercises...
  63. Replies
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    It works just fine now Mary; thanks! (Super...

    It works just fine now Mary; thanks! (Super site!!)

    suse *hug
  64. Replies
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    Hi Mary, I've tried the link twice, and I come...

    Hi Mary,
    I've tried the link twice, and I come up with an Internet site called "Blackbaud." (Is there another way to get there?)
    Thanks,
    suse
  65. Thread: I Need Adviice

    by suse
    Replies
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    1,475

    Nevermid

    I found it! *rolleyes
  66. Thread: I Need Adviice

    by suse
    Replies
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    1,475

    I Need Adviice

    Hi,
    I changed my "skin" mistakenly to "mobile", and now the place at the bottom disappeared, and I don't know how to change back. (I made it here by going to the front/home page.) HELP!!!! *ack
    ...
  67. Thread: hello

    by suse
    Replies
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    I'm not sure if you need to register for the...

    I'm not sure if you need to register for the chatroom or not. (My memory stinks*rolleyes )

    suse :)
  68. Thread: hello

    by suse
    Replies
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    4,957

    Me too!! Do you ever try the chatroom? suse :o

    Me too!! Do you ever try the chatroom?

    suse :o
  69. Thread: My Avatar??

    by suse
    Replies
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    1,926

    Avatar ??

    thank you!!
  70. Thread: My Avatar??

    by suse
    Replies
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    Views
    1,926

    My Avatar??

    Hi,
    Love the new site; I am confused though - where'd my avatar go?

    suse*confused
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