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    I am reading The Housekeeper and the Professor by...

    I am reading The Housekeeper and the Professor by Yolo Ogawa , to take a break from MIchael Connelly detective series.

    It is a very original and charming book, 177 page in paperback. It sticks...
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    “The vaccines are safe to use with MS medications...

    “The vaccines are safe to use with MS medications
    Continue your disease modifying therapy (DMT) unless you are advised by your MS healthcare provider to stop or delay it. Stopping some DMTs abruptly...
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    Yesterday I walked 1000 steps. Today I swam. I...

    Yesterday I walked 1000 steps.
    Today I swam. I am now prepping for dinner and then rest until 4:20 when teh walking starts again and serving supper.
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    My surgery was cancelled for next week. The doc...

    My surgery was cancelled for next week. The doc wants to see me in his office first. I am very. Very disappointed. I have beeen telling myself maybe by rescheduling, I will avoid getting COVID or...
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    Today I swam 1/2 mile, then organized pills and...

    Today I swam 1/2 mile, then organized pills and resting rest of day as all of the cooking had been done yesterday for today and tomorrow, IVIG day.
    Yesterday I walked 670 steps. My spasticity has...
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    Wall Street Journal is owned by Rupert Murdoch...

    Wall Street Journal is owned by Rupert Murdoch who also owns Fox News, NY Post, the London SUN and many TV stations around the world. He is responsible for Trumpís election and enabling, Brexit, and...
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    1000 steps yesterday.

    1000 steps yesterday.
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    Great job Rose! I hadnít realized that walking had gotten hard for you.
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    I swam this morning , then I cooked dinner, and i...

    I swam this morning , then I cooked dinner, and i had help cleaning up. The rest of the day is rest and self care. After 4:30 pm I will use the rollator as the extra muscle relaxant helps me walk. I...
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    It is a flaw in the design. I stopped buying them...

    It is a flaw in the design. I stopped buying them whenever possible, because many of them have recessed tops, so if the tab breaks, a can opener will not open them. I believe it is the GOYA brand,...
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    https://www.amazon.com/Kuhn-Rikon-Gripper-Opener-W...

    https://www.amazon.com/Kuhn-Rikon-Gripper-Opener-White/dp/B000CO256G/ref=sr_1_1_sspa?crid=27AEBEWYB4EVL&dchild=1&keywords=kuhn+rikon+jar+opener&qid=1609959908&sprefix=Kuhn+Rikon+jar%2Caps%2C185&sr=8-1...
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    That being said, in Florida roaches are part of...

    That being said, in Florida roaches are part of life.
    Is it the big kind r the little kind.Was it one roach, or are there several roaches. Does it move fast, or slow (Slow means it is being poisoned...
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    Thanks for the update Virginia. You can tell...

    Thanks for the update Virginia.

    You can tell Jeanie that my Neurologist, due to MS, told me not to take any live attenuated vaccines. COVID is not one of those. Neither is the flu shot. Please let...
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    The New Testament asks us in Mark 8:36: ďFor what shall it profit a man, if he shall gain the whole world, but lose his soul?Ē

    This starts out the editorial comment by Thomas Friedman of NYT on...
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    Thanks Virginia. I take 8 tabs of zofran daily...

    Thanks Virginia.
    I take 8 tabs of zofran daily plus Gaviscon 4 times a day. I will ask about your SILís meds
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    WOW agate, you are my hero. Yes, I think late...

    WOW agate, you are my hero.

    Yes, I think late in the day walking is because my last muscle relaxant, Klonopin, is given only 2.5 hours after the previous one, rather than the 4 hour gap.
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    Which nausea med did they give her? I battle...

    Which nausea med did they give her? I battle nausea daily and use a couple of things that barely do the trick.
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    I swam today. Will cook and rest of the day rest....

    I swam today. Will cook and rest of the day rest. Yesterday I walked 1200 steps Fromm 4:25 pm until 7:25pm and of that 56 were done to, and from the pool, to the shower and out of shower to my dry...
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    Thatís ALOT of work agate! Talk about Keep On Moving!
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    I swam this morning. And then promptly got a...

    I swam this morning. And then promptly got a spasm in my foot while putting on my sock. I hate this disease. But the swim was nice. It is warm in Florida today :)
    Yesterday I walked 1,000 steps.
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    January 2021: Keep on Moving

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps...
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    IPad does have a ďlibraryĒ, you can download books from it from amazon. You can also download free samples. You can download classics (e.g. Tolstoy, Austen etc etc) for free.
    Like the kindle, you...
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    Maybe she would like to sell her iPad to you?

    Maybe she would like to sell her iPad to you?
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    The apple products sync with each other. If you...

    The apple products sync with each other. If you have an iPhone, your iPad syncs with it. A def advantage. Take a pic with iPhone and it shows up also on your iPad photo bank.
    Same with FaceTime and...
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    Electric blanket?

    Electric blanket?
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    Virginia, You can also get a keyboard for the...

    Virginia,
    You can also get a keyboard for the iPad. Mine is called Kensington. The iPad snaps into the keyboard so it becomes like a mini lap top. You can use it or not use it whoever you wish.For...
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    Today I swam. Resting and getting ready for IVIG...

    Today I swam. Resting and getting ready for IVIG all day tomorrow.
    Got some very hard news today that I canít talk about right now.
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    Oh Virginia, how scary for you to fall. TG that...

    Oh Virginia, how scary for you to fall. TG that there was no bone breakage.
    We cancelled our local paper and only get it digital. Trust me, an iPad is very very easy to learn. You would love it.
    ...
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    How does this look Rose? For shampoo:...

    How does this look Rose? For shampoo:
    https://www.amazon.com/gp/product/B000EHNE0M/ref=ox_sc_act_title_2?smid=A3Q52159CD8EZ&psc=1


    And this for body wash?...
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    My neuro put me on 5000IU daily. He said my blood...

    My neuro put me on 5000IU daily. He said my blood level is within normal limits for non-MSers, but that research shows that MSers need higher blood value.
  31. THis is a fun thread, thanks for starting it...

    THis is a fun thread, thanks for starting it Random Thoughts :)

    I raised hens, goats and a couple of pot bellied pigs in the back yard. Hens and goats are incredibly stupid, especially hens, but...
  32. My family bought me an iPhone and an iWatch. ...

    My family bought me an iPhone and an iWatch.
    With the watch, you dont have to carry your phone with you, you just wear the wrist watch. Its like a miniature computer. You can text on it, dictate...
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    Merry Christmas to all! It is cold in Florida...

    Merry Christmas to all! It is cold in Florida this morning, @45F and it will dip to 39F tonight. So I skipped the swim even though the pool is warm. I donít want to risk spasms from being wet and...
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    Maybe I will try it. My friend who had surgery...

    Maybe I will try it. My friend who had surgery said it got all clumpy in her hair so she nixed it. Maybe it was the method she used?
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    I swam today. IT was cold out, about 58F but the...

    I swam today. IT was cold out, about 58F but the pool was warm. I am resting much of today. My baclofen pump surgery is scheduled for the later part of January.

    I wonít be able to shower for 7...
  36. You and Jim did a great job protecting your boys....

    You and Jim did a great job protecting your boys. Thanks for sharing that.
    I do assert myself, and it doesnít seem to do a lot of good. The changes are temporary.
    I will keep doing that.
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    Thank you for the news about Jeanie Virginia . It...

    Thank you for the news about Jeanie Virginia . It breaks my heart that she is not receiving better care.

    Why is she not being allowed to use a bedside commode. To have to have a catheter in her...
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    Great book by John Barry called The Great...

    Great book by John Barry called The Great Influenza. About the 1918 Spanish Flu (H1N1). I wonder if its based onthe book. Its easy reading and fascinating.
  39. You are lucky. I had to harangue my nurse to...

    You are lucky. I had to harangue my nurse to move the next patient over a couple of more feet at IVIG. And I saw no nurse correct patients who had their mask below their nose.

    I had complained to...
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    I walked 1,000 steps between 4:20pm and 7 Pm....

    I walked 1,000 steps between 4:20pm and 7 Pm. Wheelchair rest of day.
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    I agree onthe listening devices like Alexis. My...

    I agree onthe listening devices like Alexis. My DS loves hers and says, ďI have nothing to hideĒ re being listened to. She clearly has not paid attention to history. Plus its down right creepy...
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    Here is the update on the baclofen pump. Same as...

    Here is the update on the baclofen pump. Same as what I put in the pump thread


    ďMy trial of 50mcg Baclofen inserted into the spinal canal was successful, ie I am a responder. I was in the...
  43. My trial of 50mcg Baclofen inserted into the...

    My trial of 50mcg Baclofen inserted into the spinal canal was successful, ie I am a responder. I was in the outpatient hospital for 6 hours post procedure which was easy procedure as procedures go.
    ...
  44. One thing I learned from being so handicapped is...

    One thing I learned from being so handicapped is that there are no ordinary people. I have had time to chat with otherwise invisible people, the grocer, the downtrodden surfer, pretty much anyone,...
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    I swam today. The rest of today is dedicated to...

    I swam today. The rest of today is dedicated to getting ready with lunches and pills for both IVIG tomorrow and the day long Spinal Tap Trial Thursday. I wonít be here for a couple of days unless I...
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    Okay, here is a copy of Virginiaís activity from the Chit Chat thread. I coped and pasted it here:.

    ďI have still been working along on my carpet. It does look better. I started leaving off the...
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    If all else fails, Virginia Write the post in...

    If all else fails, Virginia

    Write the post in email. Copy it, and then post it in both threads. I will try to copy and paste your post. Too
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    https://pubmed.ncbi.nlm.nih.gov/32982980/ This...

    https://pubmed.ncbi.nlm.nih.gov/32982980/

    This is a case study of someone who developed LAD (a type I diabetes that develops later in life). The patient was successfully treated with oral diabetes...
  49. Thanks Laz!

    Thanks Laz!
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    This is a lot of Keep on Moving Virginia!! MIght...

    This is a lot of Keep on Moving Virginia!! MIght you copy it and paste it into the Keep on Moving thread? Itís more than I can do for sure.
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    Terrific numbers once again agate :) Cheers for...

    Terrific numbers once again agate :) Cheers for you!!

    I swam today, it was the first morning that wasnít below 50F outside so I went for it. Itís the walking on rollator back and forth that is so...
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    Thanks Howie, even though I am deeply allergic to...

    Thanks Howie, even though I am deeply allergic to Cats? Oh I wish I could have a cat, a perfect companion. Fun, many cuddly, but self sufficient when you just canít get up to let them go outside.
    ...
  53. Invisible Illness: Essay from a woman with Stiff Person Syndrome

    https://patientworthy.com/2020/01/29/behind-smile-invisible-illness-awareness-stiff-person-syndrome/

    So easy to relate to this.
  54. Sticky: A great essay on invisible illness, from someone...

    A great essay on invisible illness, from someone who has SPS

    https://patientworthy.com/2020/01/29/behind-smile-invisible-illness-awareness-stiff-person-syndrome/
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    Invisible Illness

    https://patientworthy.com/2020/01/29/behind-smile-invisible-illness-awareness-stiff-person-syndrome/

    It’s from a patient with SPS, but easily applies to MS. #4 Howie references:
    “4. The biggest...
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    Rose, I donít think Gov Newsome meant your kind of situation. You are masked, socially distanced as much as possible, and you are grieving.
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    I recall men using them. Donít know about women. I think theyre no longer in use?
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    Happy Birthday...

    Happy Birthday Howie!!*birthday*boogie*sparkle*felix
  59. Good Advice. I will be seeing the doc next...

    Good Advice. I will be seeing the doc next Thursday for the LP and will ask the drill post surgery when it is done sometime in January.
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    Where was the news source from? I havenít seen that anywhere. There is a lot of misinformation out there Howie.
    And a vaccine is not something you ďbelieve inĒ, there has been a lot of good research...
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    Holy Mackerel! This is dessert, not a dinner dish...

    Holy Mackerel! This is dessert, not a dinner dish with all that sugar and butter. Sure to clog arteries and contribute to Type 2 diabeles if this is part of a typical diet!
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    I swam 1/2mile today, with a brief foot spasm in...

    I swam 1/2mile today, with a brief foot spasm in the middle. Then I rinsed out the clothes and dressed. The tricky parts are the walk to the pool and back to shower, and putting on my sox which...
  63. All good suggestions. My DH will be off for the...

    All good suggestions. My DH will be off for the Trial next week and my housekeeper/friend comes the next day as usual.
    It is the post surgery, likely in mid January where I will need help for...
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    We did buy an electric recliner that stands up up...

    We did buy an electric recliner that stands up up as well. It will be delivered in about 10 days. DH went and tried it out at the store when i was at IVIG and he said he thinks it will be terrific....
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    UPDATE:í
    I met with the doctor who is an anesthesiologist and pain management specialist. He has a very good reputation.
    He explained the process to me.

    He requires a psych eval on anyone he...
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    I swam 1/2 mile today, walked the 51 steps to the...

    I swam 1/2 mile today, walked the 51 steps to the pool stairs and back through the bathroom, and then rolling out the wet clothes to dry after I rinsed them in teh shower. I think the Klonopin is...
  67. It might work for some people with MS.I looke...

    It might work for some people with MS.I looke into it and decided I just couldnít eat that way.

    I do theSwank Diet, it may not help but it canít hurt me and it is closer to my own personal diet...
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    Hi Soul, nice to see you.How have you been doing?

    Hi Soul, nice to see you.How have you been doing?
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    IVIG was uneventful. NIce to be back home. Itís a long time to wear a mask, grateful I donít have to do that everyday.
    BTW SAMS club is selling great masks 12 for $12. They are three ply, fit well,...
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    IVIG all day today

    IVIG all day today
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    Virginia, I am so sorry you were sick. Do you...

    Virginia,
    I am so sorry you were sick. Do you not like your family to know when you are sick? I know I try not to burden my adult kids about it.
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    December 2020:Keep on Moving

    MS creates some real challenges to keep on moving. It helps to inspire each other on how to find ways to move.

    Did you stretch in your bed, swing your arms, roll side to side today? Or perhaps...
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    I too am having enough focus and memory to read....

    I too am having enough focus and memory to read. I just read a page or two. The book has to be terrific for me to do that. And I do skim, but I always used to skim over boring parts.

    I think for...
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    Great numbers agate Virginia, I am wondering...

    Great numbers agate

    Virginia, I am wondering if you are in a flare with that leg weakness?

    I swam this morning. It is due to get very cold at night and I swim at dawn, so I might have to take a...
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    My doctor sent an RN that did a sterile urine...

    My doctor sent an RN that did a sterile urine sample at my home, an ultrasound of the bladder and PT. They als said a phlebotomist can come if I need one. Most docs will do telemedicine right now due...
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