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    Oh, Rose. Oh, Rose. I wish I could be there to...

    Oh, Rose. Oh, Rose. I wish I could be there to rush over and give you a hug too. Of course you are where you need to be, doing what you need to do. And I am so glad that Jon is doing better. May it...
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    Hi Rose, What a beautiful description of Michael...

    Hi Rose, What a beautiful description of Michael and the daily legacy that is his gift to you.

    We have been at the hospital (well, we ARE at the hospital) with Nick. He had a pain and fever...
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    Hi Rose and everyone, I just wanted to read...

    Hi Rose and everyone,
    I just wanted to read your updates and give one of my own. We brought Nick home from the hospital this morning. Poor Nick had a rotten day with nausea and swelling of his arms...
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    Hi guys, we are in the Toronto airport waiting...

    Hi guys, we are in the Toronto airport waiting for our final Ottawa flight. Nick had dye in his tube today and a series of xrays. Early in the afternoon, it looked like he would need surgery but by...
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    Hi Rose and Mary Grace, I haven't seen Bohemian...

    Hi Rose and Mary Grace, I haven't seen Bohemian Rhapsody or A Star is Born - gosh we never get to the movies and Canadian netflix doesn't have the newer movies like the US one does. I am writing this...
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    Hi Rose, Here's a study comparing gentian violet...

    Hi Rose, Here's a study comparing gentian violet to oral nystatin - there isn't a massive difference in outcomes, so gentian violet would definitely be worth a try....
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    Rose, Nick had thrush when he was small and we...

    Rose, Nick had thrush when he was small and we used Gentian Violet which helped a lot.
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    Hi dear Rose, I'm so glad that Jon is doing...

    Hi dear Rose,
    I'm so glad that Jon is doing better! What a mystery that man is. And I'm so glad that the wound care nurse is going to get involved. It sounds like your nursing supports are terrific...
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    I echo Mary Grace and Ann's messages, Rose! Jon...

    I echo Mary Grace and Ann's messages, Rose! Jon is the ultimate mystery guy and no one, but NO ONE can understand your daily life except for you and other Moms like myself who have an inkling. I...
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    Hi Rose, Happy New Year! I'm so glad that Jon...

    Hi Rose,
    Happy New Year! I'm so glad that Jon seems to be doing better and you are learning to get the most out of your Roomba - all these things are critical in the life of a full-time caregiver!...
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    PS: I can't figure out the photo attaching...

    PS: I can't figure out the photo attaching widget, obvs! LOL - I have no idea why the photo appears 3x when it took so long to load! LOL
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    5113 Hi Rose, I'm so glad that your dinner...

    5113
    Hi Rose,
    I'm so glad that your dinner turned out - it sounds delicious! We had a fantastic time skating in the forest - except for the one little detail that my brother in law Frank fell and...
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    Merry Christmas and good luck Jim at the scan!...

    Merry Christmas and good luck Jim at the scan! Sending healing vibes for lower 'scanxiety'. We are going skating today - there is a place near us where you can skate on paths through the forest - it...
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    Yum, dinner sounds delicious! I'm sorry that...

    Yum, dinner sounds delicious! I'm sorry that Jim's prostate is causing him problems, especially lack of sleep! Is he using a portable urinal so at least he doesn't have to get up? He could empty it...
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    WOW, now that is the best Christmas present EVER,...

    WOW, now that is the best Christmas present EVER, Rose! I pray that Jon (and you and Jim of course) have dodged yet another bullet with the sheer force of your love and tenacity. Not to mention your...
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    Thank you for the update, Rose. Hoping and...

    Thank you for the update, Rose. Hoping and praying right along with you. I hope you hear back from the nurse today. As you would say, I send you LOVE and LIGHT and lots of it. xox
    Donna
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    My dearest Rose. Maybe the nutritionist can...

    My dearest Rose. Maybe the nutritionist can suggest a higher calorie formula? I know you've tried everything over Jon's lifetime, but I don't know... maybe there's something new on the market - a...
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    Yes, we loved it, but that was such a long time...

    Yes, we loved it, but that was such a long time ago and of course everything is changed now. We did have exams every month and a fluency test at the end which Jim and I both passed with no problem....
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    Hi Funnylegs4! It's so cool that you have an...

    Hi Funnylegs4!
    It's so cool that you have an interest in learning russian. My husband and I studied for a year 8 hours a day plus 3 hours of homework every night. It was intense but it's what the...
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    Hi Rose, I am so happy that Jon is feeling...

    Hi Rose, I am so happy that Jon is feeling better! I believe you will receive something in the post from me today. Merry Christmas, old friend xoxo Donna
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    My dear Rose, I am just going to write you a...

    My dear Rose,
    I am just going to write you a longer email but I wanted to say here that I am SO HAPPY about Jon's new mattress! Hallelujah - this is a real blessing. And I'm happy too that you had...
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    I didn't know that you were born in Russia! My...

    I didn't know that you were born in Russia! My husband Jim is a retired Canadian diplomat and Moscow was our first posting (1978-80). What year were you born? I wonder if I was in the country! LOL We...
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    Oh my goodness, Rose! I am just reading this...

    Oh my goodness, Rose! I am just reading this horrendous saga now, sitting at the airport in Ottawa waiting to go to Dayton. Nick has the same mattress and we just had to replace it about 3 weeks ago...
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    Hi Rose and everyone, I'm so sorry to hear of...

    Hi Rose and everyone,
    I'm so sorry to hear of Jon's pain. It's a hard hard time in your house, Rose. I pray for you and the guys every day - I've been trying to think of any assistive devices that...
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    Hi Rose! I'm so glad that you are away from the...

    Hi Rose! I'm so glad that you are away from the fires (but 60 miles is still too close for comfort)! And I'm glad that Jon got turned, but alarmed by his wounds. Poor Jon and poor you and Jim - of...
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    Hi Rose, I am so glad that Jon is feeling better!...

    Hi Rose, I am so glad that Jon is feeling better! And I hope you had some sleep my dear. I am worried about the fires in CA - I hope you are no where near them! I tried to figure out via a google...
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    Hi Rose, How is Jon? Is he still seizure free? I...

    Hi Rose, How is Jon? Is he still seizure free? I hope so! I am thinking of you ALL THE TIME - are you near the fires? Gosh, the fires are just devastating! Sending love and prayers, xoxo Donna
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    Happy Birthday Jon! 5082 I'm so glad you got to...

    Happy Birthday Jon! 5082 I'm so glad you got to hang out with your best friend and boy, do you ever get the Royal treatment from your parents - and so you should! Lots of love from up north in Canada...
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    Oh Rose, Well, I will start from the beginning....

    Oh Rose, Well, I will start from the beginning. I'm glad that Jon's temp is down! And of course, his wrists need to be restrained to give his catheter and his stoma a chance to heal - and they will...
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    Oh Rose, I was so sad and worried to read your...

    Oh Rose, I was so sad and worried to read your post. I'm so sorry that poor Jon is having such a terrible time with seizures and that you are too! I hope and pray that you get (funded) non-generic...
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    Just checking in to see how it's going at the...

    Just checking in to see how it's going at the Hacienda - thinking of you all! xox
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    Oh, Rose. I say again that I wish I lived closer....

    Oh, Rose. I say again that I wish I lived closer. Forgive me if I've shared this before, but it seems like it echoes your experience so closely. This is from a Mom in Austin, TX, Diane. Diane cares...
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    Hello dear Rose, One step at a time. And...

    Hello dear Rose,
    One step at a time. And consider what options there may be with John's family. Consider how live in help might work combined with shift nursing (could you live at John's if his...
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    Hi Dear Rose, I sent you an email today! love...

    Hi Dear Rose,
    I sent you an email today! love and hope that all in the Hacienda are having a GOOD night! xo Donna
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    How is Jon today, Rose? Sending love from my...

    How is Jon today, Rose? Sending love from my house to yours! xox
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    Oh Rose, why can't ANYTHING be easy just for once...

    Oh Rose, why can't ANYTHING be easy just for once - like an order for a trache change or a 100ml bottle of sterile water?!!! Oy, it's all so exhausting. My dear, here's a lovely film of an 88 year...
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    Hi Rose, I'm glad the photos of Daisy came...

    Hi Rose,
    I'm glad the photos of Daisy came through! And I'm so sorry that you have to endure this crap with IHSS. None of the home care programs in the US or Canada (or the UK either) are designed...
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    Oh, crap. Well Rose, I am 100% positive that this...

    Oh, crap. Well Rose, I am 100% positive that this guy does not have another case in his 400 like you/Jon/Jim. He doesn't have a clue. I often wonder why we are punished for doing the right thing and...
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    My dearest Rose, has the baclofen worked? It's a...

    My dearest Rose, has the baclofen worked? It's a drug that Nick cannot live without - I hope Jon has no side effects! Nick has never had side effects - it has been his life saver. There are some...
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    Hallelujah Rose!!!!! I'm so relieved to hear that...

    Hallelujah Rose!!!!! I'm so relieved to hear that the trache and catheter got changed without trauma. What a blessing. And that Jim is doing so well this week. Yay!!! You taking a day off today is...
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    Praying praying praying for a new trache and...

    Praying praying praying for a new trache and catheter! It was such a long time ago we used silver nitrate, Rose, I can't remember if we needed a prescription, but you could call your pharmacist and...
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    Hi Rose, thank you for your emailed response -...

    Hi Rose, thank you for your emailed response - I'll answer here and get back into the habit of checking in with my dear friends at CN2. In our experience, silver nitrate is fine in small doses -...
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    Hello dear Rose and dear friends, old and new....

    Hello dear Rose and dear friends, old and new. Rose, I wanted to check in to see any latest news on Jon's trache - hoping for the best and praying. Rose, I was thinking that maybe silver nitrate...
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