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  1. This sounds very promising, Sunshine. I’m...

    This sounds very promising, Sunshine.

    I’m sorry you’ll have to taper off the baclofen. Can you take something short acting like oxazepam to help? What about tizanidine? In any case, I hope they...
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    Virginia, the other thing Peter was going to do...

    Virginia, the other thing Peter was going to do was sharpen your knives. He also gives shots. Glad you have a rug solution.

    About the squash - I think Linda’s post was about piercings the squash...
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    Regarding the generic, I was to start that in...

    Regarding the generic, I was to start that in four months as my insurance will no longer pay for the Copaxone at all. That leaves the generic and the generic branded as “Glatopia.” My MS Specialist...
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    Hi Agate, I’ve been on Copaxone for years...

    Hi Agate,

    I’ve been on Copaxone for years (after Avonex, Rebif and eventually half-dose Rebif). I think we started on Copaxone around the same time, maybe Electric Joy, too.

    I was on the...
  5. Hi Soul! I’ve never forgotten your risky...

    Hi Soul! I’ve never forgotten your risky maneuver of jumping off a train on the way to a doctor’s visit. That’s you, right?

    I have read Dr Wahl’s book and watched many of her lectures but...
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    Thinking of you Sunshine. ANN

    Thinking of you Sunshine.

    ANN
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    Glad you are feeling better, Virginia. Sorry...

    Glad you are feeling better, Virginia. Sorry about the mishap with your rug.

    ANN
  8. Agate, my thoughts are the same as yours...

    Agate, my thoughts are the same as yours especially regarding Copaxone: it’s an immunomodulator not a suppressant.

    ANN
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    Hi Agate and Linda. Linda, I often think of...

    Hi Agate and Linda.

    Linda, I often think of you humming in the greenhouse.

    Agate, thinking about it, I’m not sure if I get energize by the cooler weather. Hmm. Yes, by AC in hot humid weather...
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    Virginia, I hope you have turned a corner. ...

    Virginia, I hope you have turned a corner. Still, you should consider getting tested for CoVID. I wish you well.

    The squash is a winter squash and can live on your counter - away from apples-...
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    Hi Funnylegs, how was your Thanksgiving? ANN

    Hi Funnylegs, how was your Thanksgiving?

    ANN
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    Linda, Mom had no idea she had these services....

    Linda, Mom had no idea she had these services. She had a Blue Cross insurance through Westinghouse. One year, she was comparing open season plans and found one of those all in one plans that was...
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    “Memories, all alone in the lamplight...” ANN

    “Memories, all alone in the lamplight...”

    ANN
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    Thanksgiving 2020

    What are you doing for thanksgiving this strange year? What’s your menu? What are you thankful for?

    We will have Peter’s mother over. Just the three of us. We’re have pan fried scrod in butter;...
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    My mother’s healthcare team has sent an...

    My mother’s healthcare team has sent an ultrasonographer, nurse practitioner, on-going phlebotomists, and recently a nurse to give her a flu shot. All of this was paid by her insurance + Medicare.
    ...
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    I have not, Agate, but I’m getting my Rx’s...

    I have not, Agate, but I’m getting my Rx’s delivered for free in 1-2 days from our regular CVS (not Caremark). This may be so quick because the post office and our CVS are two blocks apart.

    It’s...
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    Peter will cut that for you, Virginia, while he’s...

    Peter will cut that for you, Virginia, while he’s down their doing your ironing. ;-)

    Cutting the squash, especially the butternut varieties, is hard. I’m glad that Linda posted a solution.

    I’ve...
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    Well done, Virginia. Chocolate for you! Sorry...

    Well done, Virginia. Chocolate for you!

    Sorry about the trouble with your stronger leg.

    ANN
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    That’s a bummer, Sunshine. I know driving would...

    That’s a bummer, Sunshine. I know driving would be another loss to mourn. Maybe wait to make a decision until after baclofen pump evaluation?

    ANN
  20. Sounds like Easter. ANN

    Sounds like Easter.

    ANN
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    My mother-in-law wears her mask like a necklace....

    My mother-in-law wears her mask like a necklace. It’s hopeless.

    ANN
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    Good news that boyfriend is coming, Ikoiko. ...

    Good news that boyfriend is coming, Ikoiko.

    (I learned to spell your name)
    ANN
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    Simple Stuffed Squash ( for Virginia) Pre-heat...

    Simple Stuffed Squash ( for Virginia)

    Pre-heat oven or toaster oven to 350 degrees F

    Squash of your choice such as Delicata, Acorn, or Sweet Dumpling


    Break the stem off and cut the squash...
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    We looked into the recliner that helps get you...

    We looked into the recliner that helps get you upright for my father. The visiting nurse told us that they are really heavy and that depending where you are going to put it you might need to have a...
  25. DAR, I had a U-Step upright walker for a while...

    DAR, I had a U-Step upright walker for a while and Peg had an Up walker. Read about our experiences here:
    ...
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    Virginia, sorry to hear about your fatigue and...

    Virginia, sorry to hear about your fatigue and difficulty walking and I hope you get help with your Rebif copay. This year, of all years, many people need help.

    ANN
  27. Sarah, Can you see a different neurologist....

    Sarah,

    Can you see a different neurologist. Neuros I have seen (not for CSF leak) go over the pictures with you.

    Best to you,
    ANN
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    I love Jamie Oliver. I came across this video...

    I love Jamie Oliver. I came across this video this morning and I love it. It may be more involved than MSers want to do but lots of directions to go in. One caveat, do not cook a whole squash closed....
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    Maybe you are not in the City of Boston? I...

    Maybe you are not in the City of Boston?

    I hope you are well and holding steady. Frigid morning, today.
    ANN
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    Howie, do you have any kind of a cell phone? ...

    Howie, do you have any kind of a cell phone? There is an alarm on them to alert the public to abducted children, need for evacuation and such. Recently they have used it here to convey new rules...
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    Hoping for your “uneventful” infusion with you,...

    Hoping for your “uneventful” infusion with you, Sunshine, a a real boost.

    ANN
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    I’m glad you are treating yourself, Howie. ...

    I’m glad you are treating yourself, Howie.

    Rose, I do not have an official weight loss cause. Unofficially, it seemed to be a gastric motility problem. There was no problem with appetite, thank...
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    You are pretty consistent in trying to walk,...

    You are pretty consistent in trying to walk, Sunshine. One thousand steps that late in the day is an accomplishment for an MSer and you have SPS to boot! Good work!

    ANN
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    Hi Howie. Agate, the vascular surgeon thinks...

    Hi Howie.

    Agate, the vascular surgeon thinks I do not need surgery or even more follow up after one more MRI in 2 years. He is going to “cut me loose” as his patient then.

    All of this has...
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    Virginia and Rose, I am well. Just tired. We...

    Virginia and Rose,

    I am well. Just tired. We took a car ride yesterday and today I had an early appointment for a vascular MRI and then a visit with the surgeon. This was to f/u on a small...
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    Good work, Agate. *hoppinstar *hoppinstar...

    Good work, Agate. *hoppinstar *hoppinstar *hoppinstar *hoppinstar

    ANN
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    This is good news, Sunshine. Is there some kind...

    This is good news, Sunshine. Is there some kind of temporary testing before they implant a pump?

    I’m texting with my 95 year old mom in another state this morning. Such a gift that I have her and...
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    Comfort food recently = Mac and cheese. ANN

    Comfort food recently = Mac and cheese.

    ANN
  39. Hello DAR, it’s good to “see you” and hear that...

    Hello DAR, it’s good to “see you” and hear that you’ve been holding well MS-wise.

    My condolences on losing your family members - especially the sudden death of your sister. Losing my sister (48)...
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    Tomorrow or later, Howie, whenever they are...

    Tomorrow or later, Howie, whenever they are finished counting. An extraordinary number of people voted and many were mail in votes that in some areas could not be counted until after the polls...
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    Virginia, I learned “Rabbit, rabbit” from a Czech...

    Virginia, I learned “Rabbit, rabbit” from a Czech doctor who learned it while training in England. I’d never heard it before.

    ANN
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    I wrote “Good morning” and then erased it. It’s a...

    I wrote “Good morning” and then erased it. It’s a tense day. “Greetings” is closer to what I want to say.

    We bought Greek food, got our bread from the bakery and filled the gas tank on Monday. It...
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    Great news about no spasticity, Sunshine. Fingers...

    Great news about no spasticity, Sunshine. Fingers crossed.

    ANN
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    Good luck with the clonazepam. Interesting that...

    Good luck with the clonazepam. Interesting that your lead for that came from a patient group and not a specialist. It emphasizes the importance of these forums/groups.

    ANN
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    That reminded me of Kentucky’s Frontier Nursing...

    That reminded me of Kentucky’s Frontier Nursing Service:

    https://en.wikipedia.org/wiki/Frontier_Nursing_Service

    ANN
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    Who would think we’d be playing Winston’s “...

    Who would think we’d be playing Winston’s “ December” on Halloween?

    We have had at least four inches of heavy wet snow. More than January through March of 2019.

    I spent this afternoon making...
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    Still snowing at almost noon. The street was...

    Still snowing at almost noon. The street was plowed. I shoveled a strip of brick sidewalk near the feeder and put seed down for the birds. They are putting on quite a show for the cats. And, to...
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    Linda, besides being unpleasant and harming...

    Linda, besides being unpleasant and harming produce, does the cold affect your MS symptoms? I get increased spasms and trigeminal neuralgia. It’s snowing here now on the other side of the state.
    ...
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    They are getting big, Chris. Thank you. ...

    They are getting big, Chris. Thank you.

    “Jimmy” is aa good name for a cat.

    ANN
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    Misdiagnosed? Article by Marc

    I found this very interesting :
    ...
  51. It’s a big step, Sunshine, but it sounds like the...

    It’s a big step, Sunshine, but it sounds like the right step. I know you are very well informed.

    Let us know when you are scheduled.

    Best to you,
    ANN
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    Thank you, Howie. May the force be with you....

    Thank you, Howie.

    May the force be with you. Have a nice cup of “Earl Grey, hot” when you get home. :-)

    ANN
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    Yesterday I had errands to do. My phone says I...

    Yesterday I had errands to do. My phone says I walked 1.4 miles. I think it’s accurate and happy that for now that’s possible. I just can’t count on it or plan for it. I’ll take the gift.

    ANN
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    Virginia - I am here reading several times...

    Virginia - I am here reading several times everyday It’s just that I’ve had a burst of energy and a list of things to do to go with it. Great when energy appears at time it is needed. I’m sorry to...
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    Welcome home Sanjay. I don’t think the...

    Welcome home Sanjay.

    I don’t think the archives go back that far. Some information has been lost but someone may be able to help you via the Wayback Machine.

    Best to you,
    ANN
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    Virginia, we cook most squash the same way. We...

    Virginia, we cook most squash the same way. We cut it in half, Save The Seeds, and stuff the two halves. Usually we use bread crumbs, diced onions and Romano cheese. When we have mushrooms, we add...
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    I’m here. :-) I’ve been planting garlic and...

    I’m here. :-)

    I’ve been planting garlic and putting all of the terracotta pots away. Quite a lot of physical work but it has to get finished this week as it’s going down to 29F Friday or Saturday...
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    Agate, 2285 Steps Wow! ANN

    Agate,

    2285 Steps

    Wow!


    ANN
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    I hope they get information that will steer your...

    I hope they get information that will steer your pulmonary team to some help for you, Sunshine.

    ANN
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    Thank you for calling Jeanie again, Virginia. I...

    Thank you for calling Jeanie again, Virginia. I think about her. It’s very worrisome that she ids not getting out of bed at all. That’s bad.

    I hope she hasn’t given up.

    ANN
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    And I have two black cats! Sam is also mostly...

    And I have two black cats! Sam is also mostly black. :-0

    ANN
  62. Hello Random Thought, Congratulations on...

    Hello Random Thought,

    Congratulations on raising an accomplished, kind human being and on managing your MS at the same time.

    Glad that you stopped by.

    ANN
  63. When I worked for the federal government we got...

    When I worked for the federal government we got pay adjustments based on the cost of living where we lived. Seattle and Boston would get more than Boise, for instance.

    It would be good if SS...
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    Agate, I’m thinking Howie May have named her...

    Agate, I’m thinking Howie May have named her after a Star Trek collective.

    ANN
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    Mom and I loved that book, Agate. Enjoy. ANN

    Mom and I loved that book, Agate. Enjoy.
    ANN
  66. A very Happy Birthday, Ssusan! I hope you are...

    A very Happy Birthday, Ssusan! I hope you are well.

    I love that jar of flowers, Agate.
    ANN
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    I think your pedometers found their food -...

    I think your pedometers found their food - they’re eating your steps!

    We took a walk again yesterday. I really enjoy getting outside. I miss doing the garden.

    ANN
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    Peter would be happy to do your ironing,...

    Peter would be happy to do your ironing, Virginia. He says, “Put it in a flat envelope.” :-)

    And yes, all of that work counts. You will sleep well tonight.

    I don’t do work like that. It’s just...
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    That is correct for this thread as read on my...

    That is correct for this thread as read on my iPhone, ssusan.

    Good to “see” you here.

    ANN
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    Hello, Joy, I’m sorry that TN is acting up for...

    Hello, Joy,

    I’m sorry that TN is acting up for you. Mine is too but is responding to increasing Tegretol and adding nortriptyline at night. For me, I think it is weather changes. This last winter...
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    I took a walk alone yesterday. Usually we walk...

    I took a walk alone yesterday. Usually we walk together but Peter’s schedule didn’t allow for a mid-day break and rain was forecast for after work. I knew I would sleep better if I walked.

    I...
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    Good morning, Brain Talk. :) It’s a crisp,...

    Good morning, Brain Talk. :)

    It’s a crisp, sunny morning in Boston. I’m glad I have the tasks of feeding the birds, filling their water and checking the garden. It spurs me to get dressed and I...
  73. Sorry you have had this hiccup, Agate. I hope you...

    Sorry you have had this hiccup, Agate. I hope you get the company to install it soon.

    ANN
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    Good luck with IVIG today, Sunshine. May the...

    Good luck with IVIG today, Sunshine. May the Force be with you!

    ANN
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    Agate, I hope your trip out went well. I remember...

    Agate, I hope your trip out went well. I remember it always took a really long time for my father’s diabetic shoes to be made and often they had to be returned for adjustments. Good luck to you.
    ...
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