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    :) I called again today and asked who I complain...

    :) I called again today and asked who I complain to about their service. They connected me to the head of nursing. I told her I was fed up with them not doing the PT visits I am entitled to. No...
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    :) Andy managed to get the ink cartridge in my...

    :) Andy managed to get the ink cartridge in my printer but still it won't print. One light keeps flashing red. I will have to find the book and see if I can fix it.

    I am sending the letter to...
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    :) Cherie could you get a silver generator and...

    :) Cherie could you get a silver generator and add silver water to your regimen. That is how I avoided a UTI when I had the catheter for four months. Luckily it is an antibiotic that has not been...
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    :) I just typed a letter to the insurance company...

    :) I just typed a letter to the insurance company about the money I paid. Asking for a refund of the difference. I went to print it to go with the receipts and my printer won't print. The...
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    :) Cherie glad David is working out well. Also...

    :) Cherie glad David is working out well. Also that your problems are being addressed.

    Virginia my van is under the carport in the shade, so it does not get real hot. When I parked at Publix I...
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    :) Cherie I hope you get better soon. I hate...

    :) Cherie I hope you get better soon. I hate feeling lousy.

    Yesterday I called the insurance company. My upfront money is $6700, I told them I had paid $7305. for aides and could send them...
  7. Thread: Politics

    by Jeanie Z
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    :) Let's all pray he does not get reelected. ...

    :) Let's all pray he does not get reelected. Jeanie :)
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    :) Speaking of kittens, Andy had to put one of...

    :) Speaking of kittens, Andy had to put one of his feral cats down yesterday. His tongue swelled up and he had shots, etc. but it only went down some and the cancer became visible. He was 15 years...
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    :) My PT came and I am having a MS day. I could...

    :) My PT came and I am having a MS day. I could barely do any of the walker exercises and not all at one time. Friday I will be evaluated again and discharged. PT says I can go on Medicare part B...
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    :) Happy Birthday Virginia! I looked at my...

    :) Happy Birthday Virginia! I looked at my calendar and saw it was your birthday so I signed on. I discovered today is Wednesday and I thought it was Tuesday. I am sorry my wish is late. I am...
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    :) Glad you can get the IVIG at the hospital. ...

    :) Glad you can get the IVIG at the hospital.

    Went to see surgeon today and he is pleased with my progress. I return in 3 months.

    Jim put my flag up outside and took me to the doctor.

    I did...
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    :) Agate those look like Cypress trees. My mango...

    :) Agate those look like Cypress trees. My mango tree is starting to drop the mangoes. Andy is cutting them up and putting them in ziplock bags in the freezer.

    When we were at Publix Andy had me...
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    :) I did go to lunch with Andy, really nice...

    :) I did go to lunch with Andy, really nice outing. Then to Publix and found some other diapers and pads I will try. Very tired so headed for a nap. Hi everyone. Jeanie :)
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    :) My dear friend Bill who took care of my...

    :) My dear friend Bill who took care of my brother when he was dying and who took care of my Mother until her death now has dementia. About two months ago he fell and broke his hip and has been in...
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    :) I asked the aide I had to come help me for a...

    :) I asked the aide I had to come help me for a few hours today. She helped me get in the shower and I shampooed my head. She helped me out and it felt good to be clean. She is mopping my floors...
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    :) Hello everyone. I am okay, just tired. Glad...

    :) Hello everyone. I am okay, just tired. Glad all are okay. Jeanie :)
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    :) Virginia I am tired. It is a MS tired because...

    :) Virginia I am tired. It is a MS tired because I can hardly move.

    Heading for a nap. Jeanie :)
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    :) I enjoyed the bird photos/ I am sorry y'all...

    :) I enjoyed the bird photos/ I am sorry y'all are having earthquakes. I experienced a 5.8 on the 13th floor of the Beverly Wiltshire hotel about 3 in the morning. I was asleep on my stomach and...
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    [FONT=Arial Black]:) Expecting an aide to help me...

    [FONT=Arial Black]:) Expecting an aide to help me bathe. First shower I will have had. I have gotten very good at bathing with a pan of water. I want to shampoo my hair for sure.

    Went to Jim's...
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    :) Dressed and waiting for Andy. I am looking...

    :) Dressed and waiting for Andy. I am looking forward to going out. I have been staying up more during the day.

    I hope everyone has a good 4th. Poor Lacy has already not liked the fireworks. ...
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    :) Happy Anniversary Nuthatch! Andy's birthday...

    :) Happy Anniversary Nuthatch! Andy's birthday is the 5th. We will all be at Jim's tomorrow for a cookout and will have a cake for Andy.

    Last night my neighbor brought over BBQ ribs and baked...
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    :) Nuthatch when I had optic neuritis I lost the...

    :) Nuthatch when I had optic neuritis I lost the middle of my vision in both eyes. On the perifery I had vision but if I turned my eyes to that the black hole moved there. I have a lesion on my...
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    :) Hi everyone. The farmer's market sounds nice....

    :) Hi everyone. The farmer's market sounds nice. I too would not do well in the Sun. Andy has been doing my grocery shopping and everything he buys is the top brand. A few items I wish I had...
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    :) Up to the bathroom at 11 PM, 2 AM, 3 AM, 5 AM...

    :) Up to the bathroom at 11 PM, 2 AM, 3 AM, 5 AM and 7 AM. Not much sleep. Had difficulty only once going back to bed but did not fall.

    Nice not to have the catheter around my leg and the bag. ...
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    :) All I do on my cell is call if I need road...

    :) All I do on my cell is call if I need road service, otherwise it is turned off.

    I removed the catheter at 3 PM yesterday. I wind up in the bathroom about every two hours. So far ok.
    ...
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    :) PT today and I could not do the exercises as...

    :) PT today and I could not do the exercises as well as before. Also I managed a few baby steps with the walker, but my legs and arms were shaking the whole time. I am not happy with weak days, but...
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    :) Thanks for updating us. Jeanie:)

    :) Thanks for updating us. Jeanie:)
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    :) Virginia sorry about your ex. Nuthatch please...

    :) Virginia sorry about your ex. Nuthatch please check in if you can. Jeanie:)
  29. Thread: Peg

    by Jeanie Z
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    :) I received a really thoughtful and sweet note...

    :) I received a really thoughtful and sweet note from Joe thanking me and he praised Peg in it. Jeanie :)
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    :) Thank you Cherie for reminding me about the...

    :) Thank you Cherie for reminding me about the catheter clamping. I just put a clamp on it.

    I am so annoyed with robo calls. I get several a day on my landline and I am on the do not call list. ...
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    :) The male nurse who treats my wound kissed me...

    :) The male nurse who treats my wound kissed me on the forehead today?!? I don't believe he is trying for a date. I intend to make sure he is not thinking that. I do not want any relationship at...
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    :) Well Palm Beach County has had several days...

    :) Well Palm Beach County has had several days where the feel like temp is between 105 & 110. My Andy works outside in it. I am staying in the AC.

    Yesterday the wound care nurse evaluated my...
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    :) No call from the PT evaluator yet. Also when...

    :) No call from the PT evaluator yet. Also when I called them they are sending a different nurse to check my wound to see how much longer I need wound care.

    I was running my iLife robot vacuum...
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    :) Hi everyone. I took 12 small steps with the...

    :) Hi everyone. I took 12 small steps with the walker. Even though the doctor ordered 6 weeks of 3xweek PT and I only had two weeks I have to be evaluated again on Monday. Also my insurance called...
  35. :) Ann you are in my prayers. Good luck. Jeanie...

    :) Ann you are in my prayers. Good luck. Jeanie :)
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    :) Hi everyone. Just reading and saying hello. ...

    :) Hi everyone. Just reading and saying hello. Jeanie :)
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    :) Andy is here mowing the yard. I am mainly...

    :) Andy is here mowing the yard. I am mainly resting today. Having some lousy MS days so I need to rest. I am not great at listening to my body. Jeanie:)
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    :) I wish I were getting IVIG again. I had it...

    :) I wish I were getting IVIG again. I had it years ago when I had silicone poisoning from the reconstruction after cancer. It made me feel a lot better.

    Yesterday I stood for one minute and ten...
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    Been there, done that !

    Been there, done that !
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    :) Agate I have reachers in every room. The...

    :) Agate I have reachers in every room. The coffee can was too high and too wide for the reacher.

    I had coffee this morning. I am taking it easy today. The wound care nurse and PT will be here...
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    :) First day on my own yesterday. I did ok. Had...

    :) First day on my own yesterday. I did ok. Had wound care nurse and PT. I stood for 1 minute 6 seconds.

    Made meals but coffee was left on a high shelf so no coffee. When Andy comes to do...
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    :) Virginia my nail lady wanted me to meet one of...

    :) Virginia my nail lady wanted me to meet one of her male clients awhile back. I allowed her to give him my phone number, but he never called and I was not planning to meet him.

    PT came...
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    :) I am using my big van scooter which has a soft...

    :) I am using my big van scooter which has a soft seat. I alternate between bed and the scooter. I can make sandwiches, etc.

    Cherie i will call the MSF, thanks. I am tired a lot yet and so I...
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    :) I'm glad to see Sarah go. Trump will find...

    :) I'm glad to see Sarah go. Trump will find another parrot.

    Most of the exercises I need help with but some I do. I am being super careful as I do not want another fall. My legs are slowly...
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    :) I have a really good PT man. We did a lot of...

    :) I have a really good PT man. We did a lot of exercises and I stood up 3 times with the walker for 30 seconds. He will be back Friday and Saturday.

    I discovered tonight I can't keep the aide...
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    :) Thanks all. I have the PT coming at 4 PM...

    :) Thanks all. I have the PT coming at 4 PM today. I threatened to change medical companies. I am headed in to nap now. Jeanie :)
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    :) Temp here feels like 103. I am of course...

    :) Temp here feels like 103. I am of course indoors.

    I am frustrated with the medical service. Last Monday the surgeon faxed the PT order. I have had NO PT for over a week now. I called but...
  48. :) Hi welcome back. Jeanie :)

    :) Hi welcome back. Jeanie :)
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    :) Mark glad to see you post. I am on LDN for 20...

    :) Mark glad to see you post. I am on LDN for 20 years now. I recently fell and am recuperating from a shattered fibula and surgery with a huge long pin, 5 screws and a plate. I live alone and...
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    :) Virginia I am sorry you lost your friend. ...

    :) Virginia I am sorry you lost your friend.

    Jim brought Lacy home today. She is happily lying on the bed. I am changing the aides hours from 8 to 8 to 9 to 6. Jeanie :)
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    :) Happy 51st Anniversary! Jeanie :)*heart

    :) Happy 51st Anniversary! Jeanie :)*heart
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    :) I can now put weight on my left leg with the...

    :) I can now put weight on my left leg with the boot. The boot is heavy and bulky and I will see how that goes. Jeanie:)
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    :) I can use the big scooter from my van as it...

    :) I can use the big scooter from my van as it has a nice cushion. I can get to the computer but can't stay long yet. I will post after doctor visit today. Jeanie :)
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    :) I too drink diet cola. However I drink Publix...

    :) I too drink diet cola. However I drink Publix caffeine free diet cola which has no aspartame. That is the bad ingredient. Jeanie :)
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    :) Just checking in. See the surgeon this...

    :) Just checking in. See the surgeon this afternoon. Nice post about Tula. Had an email from Tammy R. and she is surprised this board is still active. Maybe she will come on again. Jeanie :)
  56. :) Happy Anniversary!! Today is the first day of...

    :) Happy Anniversary!! Today is the first day of hurricane season too. Jeanie :)
  57. Thread: Peg

    by Jeanie Z
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    :) Just had an email from Maggie May and Pam...

    :) Just had an email from Maggie May and Pam Seibert died. Jeanie :)
  58. Thread: Peg

    by Jeanie Z
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    :) The email came back undeliverable to Suzanne,...

    :) The email came back undeliverable to Suzanne, Kim W, Patty K, Mmeyer, Charlie, Janet L, LaCeli, Marla, Euphonia. Jeanie :)
  59. Thread: Peg

    by Jeanie Z
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    :) Agate I probably mis heard the street name. ...

    :) Agate I probably mis heard the street name. My hearing is bad. I sent a card. Joe called me with the address.

    I knew Laurel F., Gail K.,Steve L., Charlie P., Janet L. Pam., Patty K., Deege,...
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    :) I read page 1 and this page. I made it in...

    :) I read page 1 and this page. I made it in here on the small scooter but very uncomfortable to sit this long. I am doing okay. I can swivel on my good foot and get on the bedside commode. I...
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    :) I had to have Andy come this morning to help...

    :) I had to have Andy come this morning to help the aide get me up. I am too weak to get up by myself or even with just the aide. Andy is going grocery shopping for me and when he returns he will...
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    I'm home but exhausted and much weaker than I...

    I'm home but exhausted and much weaker than I thought I would be. It will be days before I can sit at the computer again. I cannot thank Agate enough for all she did to help me kn[B]ow how y'all...
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    :) I increased vitamin D3 and C. Adele Davis...

    :) I increased vitamin D3 and C. Adele Davis says to take 4000 daily of C to stop a cold. I've had the cold over a month so it is worth a shot. The LDN was a refill I got at a different pharmacy...
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    :) No PT yet. I will call the doctor Monday and...

    :) No PT yet. I will call the doctor Monday and see if there is any progress. Andy came and I asked him to trim my toenails. I hated asking but I just can't do it well. He did a good job on them....
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    :) I am housebound by lack of energy. I did go...

    :) I am housebound by lack of energy. I did go to Jim's today. My ex is here and Torre cooked dinner and took it to Jim's since I can't get up the stairs to her condo. The food was very good and I...
  66. Thread: Jim's Update

    by Jeanie Z
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    :) Prayers continue and I send a virtual hug for...

    :) Prayers continue and I send a virtual hug for you, Jim and Jon. Jeanie :)*hug
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    :) Glad you are back Parsi and congratulations to...

    :) Glad you are back Parsi and congratulations to your hubby. Jeanie :)
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    :) Happy Belated Valentine's Day to all. I got a...

    :) Happy Belated Valentine's Day to all. I got a beautiful card and flowers from Andy. From Jim also a beautiful card. From my new friend Liz I got two hair bows for my ponytail and a balloon. ...
  69. Thread: Jim's Update

    by Jeanie Z
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    :) I do not want to seem like a broken record but...

    :) I do not want to seem like a broken record but I truly believe LDN will kill the cancer cells. If Jim can't have optivo now maybe Dr. K will Rx LDN. LDN info at www.lowdosenaltrexone.org and...
  70. :) Happy Birthday Linda! I hope you have a...

    :) Happy Birthday Linda! I hope you have a wonderful day & year. Jeanie :)
    *birthday*birthday*birthday*birthday*birthday
  71. Replies
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    :) Happy Birthday Parsi! I hope you have a...

    :) Happy Birthday Parsi! I hope you have a wonderful day & year. Jeanie :)
    *birthday*birthday*birthday*birthday*birthday
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    :) I see my doctor on the 17th and I am going to...

    :) I see my doctor on the 17th and I am going to ask for home PT. I do not know if my insurance covers it, but if it doesn't I still need to do it if I have to pay. I am so afraid of falling I...
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    :) Had the paramedics last night and the night...

    :) Had the paramedics last night and the night before. My legs are really weak and like Suseq says it may be from disuse. The paramedics called Andy and he came over. He got the bedside commode...
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    :) Happy Birthday Cat! I hope you have a great...

    :) Happy Birthday Cat! I hope you have a great day & year. Jeanie :)
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    :) Happy Birthday Sunshine! I hope you have a...

    :) Happy Birthday Sunshine! I hope you have a great day & year. Jeanie :)
    *birthday*birthday*birthday*birthday*birthday
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