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  1. Israel is responsible for a lot of medical...

    Israel is responsible for a lot of medical advancements, including Copaxone.
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    I get Rituxan twice a year. One dose each time....

    I get Rituxan twice a year. One dose each time. When I first started, I received two doses two weeks apart, two times a year.
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    I have not heard of Herpeeze, but my doctor Rx...

    I have not heard of Herpeeze, but my doctor Rx for Valtrex for shingles. I had it about 2 or 3 years ago and still have post-herpetic pain. It was a really horrible experience, very painful and...
  4. Thread: RIP Catdancer

    by Ikoiko
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    10,624

    R.I.P. Cat, Respectfully, Ikoiko.

    R.I.P. Cat, Respectfully, Ikoiko.
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    Hi Linda, I was out all day. I am not too...

    Hi Linda, I was out all day. I am not too familiar with BIDMC's West Campus and Farr building, but I hope your husband got to the correct place with ease. Best to you both.
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    Boy, a lot of assumptions being made about me. ...

    Boy, a lot of assumptions being made about me. Who said I am having a rough time? I don't care what anyone else posts about themselves. Peace
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    On another MS forum, a physician with MS used to...

    On another MS forum, a physician with MS used to post about her disabilities, and I was one degree of separation away from her, as well. It was sort of easy to tell where she worked from her posts. ...
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    I didn't mean to chase Cherie away. I was just...

    I didn't mean to chase Cherie away. I was just reminding her that this was a public forum, after she said that she did not want to share certain information with her real life community. Peace
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    I absolutely take pills that have been dropped on...

    I absolutely take pills that have been dropped on the floor, especially if they are expensive or hard to get.
  10. Thread: August chitchat

    by Ikoiko
    Replies
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    9,453

    I hear you.

    I hear you.
  11. Linda, haha about the aptly named Farr building....

    Linda, haha about the aptly named Farr building. Best to you both.
  12. Thread: August chitchat

    by Ikoiko
    Replies
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    9,453

    P.P.S. When Agate said I did something like this...

    P.P.S. When Agate said I did something like this before, perhaps she is referring to the time someone posted some very personal news about another member that she had not herself chosen to share.
  13. Thread: August chitchat

    by Ikoiko
    Replies
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    9,453

    P.S. I did read the previous posts about most...

    P.S. I did read the previous posts about most guests being bots.
  14. Thread: August chitchat

    by Ikoiko
    Replies
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    9,453

    I am not trying to cause trouble. I am trying to...

    I am not trying to cause trouble. I am trying to PROTECT. This forum is very PUBLIC!
  15. Thread: August chitchat

    by Ikoiko
    Replies
    288
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    9,453

    P.S. There are 196 guests reading right now.

    P.S. There are 196 guests reading right now.
  16. Thread: August chitchat

    by Ikoiko
    Replies
    288
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    9,453

    It did not make ME uncomfortable, I am just...

    It did not make ME uncomfortable, I am just letting you know that more people read here than you think. I do know that you meant your physical communty, church, social and so forth, as you mentioned...
  17. Have them drop you at the front door for the...

    Have them drop you at the front door for the Shapiro Building at 98 Binney Street. That is the lobby. On your left (about 20-30 feet) you will find the elevators to the next level lobby. Go up one...
  18. Thread: August chitchat

    by Ikoiko
    Replies
    288
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    9,453

    I have been a member here since before the forum...

    I have been a member here since before the forum was moderated. Those were the wild west days. I don't post much, but read every day.
  19. Thread: Going to Mayo

    by Ikoiko
    Replies
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    I am a big fan of academic medicine. They are a...

    I am a big fan of academic medicine. They are a lot more aggressive about diagnosis and treatment.
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    To whoever said the Olympics is only on one...

    To whoever said the Olympics is only on one channel, it is actually on at least 4 channels: NBC, NBCSN, CNBC, and The Olympic Channel. You can watch most of the day.
  21. Bookfairy: I am on Rituxan at no out of pocket...

    Bookfairy: I am on Rituxan at no out of pocket expense to me, since it is given in a hospital IV clinic. The same was true when I was on Tysabri. I have Medicare and BCBS.
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    FYI, Bookfairy: I get Rituxan infusions in a...

    FYI, Bookfairy: I get Rituxan infusions in a hospital clinic. I Have zero copay due to the fact that the drug is given in a hospital. I have Medicare, plus BCBS.
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    I see Jacob Sloane, MD, PhD at Beth Israel...

    I see Jacob Sloane, MD, PhD at Beth Israel Deaconess Medical Center in Boston. He said that Rituxan gets into the brain and spinal cord better at the higher dose. I just started the 1000 mg dose...
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    I see you are in MA. I go to Beth Israel in...

    I see you are in MA. I go to Beth Israel in Boston. I get 1000mg in one dose instead of splitting it into two 500mg doses. My neuro said that there is evidence that it works better this way.
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    The great thing about Rituxan, besides its...

    The great thing about Rituxan, besides its efficacy, is no side effects.
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    I would say that I see no improvement on Rituxan,...

    I would say that I see no improvement on Rituxan, but my MRIs are stable. I have been on it about two years. It beats having to have more frequent treatments, such as Avonex and Tysabri. Oh, and I...
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    My Rituxan dosing has switched to one infusion...

    My Rituxan dosing has switched to one infusion every six months. It used to be a set of two infusions every six months.
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    The MS Center at Beth Israel Deconess Medical...

    The MS Center at Beth Israel Deconess Medical Center in Boston administers both Ocrevus and Rituxan.
  29. Thread: I start IVIG

    by Ikoiko
    Replies
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    21,039

    Sally, ambulance transport to a doctor's...

    Sally, ambulance transport to a doctor's appointment can be arranged. I had to do it once after surgery. I also see it all the time when I am at the hospital for my various doctors' appointments.
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    I love the RIDE! It is a blessing to me.

    I love the RIDE! It is a blessing to me.
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    The MS drugs have been a blessing to me!

    The MS drugs have been a blessing to me!
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    There is no age limit on taking MS drugs! ...

    There is no age limit on taking MS drugs!

    Edited to say: MS drugs
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    Jeanie, best to you and David!

    Jeanie, best to you and David!
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    Best healing to Gary!

    Best healing to Gary!
  35. My best to Joy for a speedy recovery.

    My best to Joy for a speedy recovery.
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    My best to Joy!

    My best to Joy!
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    This is a public forum. People of all races and...

    This is a public forum. People of all races and nationalities read and post here. Bigotry does not belong here.
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    Thanks for posting these WONDERFUL sites!!!

    Thanks for posting these WONDERFUL sites!!!
  39. Ann, I am in your area and use The Ride. It is...

    Ann, I am in your area and use The Ride. It is an absolute blessing to me.
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    Some service organization in Los Alamos used to...

    Some service organization in Los Alamos used to provide volunteer drivers to medical appointments. I think it was the Lions Club, but I am not sure. My friend used to do this a few years ago.
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    Gary, my symptoms are nothing like yours. My BP...

    Gary, my symptoms are nothing like yours. My BP is low/normal. I like steroids, they help calm my symptoms down. I need them for relapses about once a year: IV 1000 grams/day for 3 days, no oral...
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    What were your friend's symptoms? How is she...

    What were your friend's symptoms? How is she doing now? Is she expected to recover much? What was her treatment for PML?
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    What were your friend's symptoms? How is she...

    What were your friend's symptoms? How is she doing now. Is she expected to recover much? What was her treatment for PML?
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