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  1. Replies
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    Hi Mark I know it has been forever just know...

    Hi Mark
    I know it has been forever just know that doesn't mean that you have not been in my thoughts ..My absence is due to most days not being able to put two thoughts together then typing them...
  2. Thread: Roll Call

    by suede
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    Hi !! Sorry for being gone so long miss you all.....

    Hi !! Sorry for being gone so long miss you all..

    I was on some time ago and told Mark I had a story to tell and never came back sorry. This has been a bad year for me.

    On Jan. 10, 2013 I was...
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    Mark Hope the flare up has settled down and...

    Mark

    Hope the flare up has settled down and you are feeling much better now.. It seems to always shock even after all these years to be sailing along with life accepting my disabilities then bamm...
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    Diandra I hope your Christmas was as special as...

    Diandra
    I hope your Christmas was as special as I have found you to be over the years.

    May this New Year be good one for us all..

    Love to you and the many friends I have found here.

    Linda
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    David Sorry for all you have been through here...

    David

    Sorry for all you have been through here lately and for the loss of your father.

    I want to say though that you are fortunate to have had such a wonderful man as a father and I am sure it...
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    Diandra My heart goes out to you and the...

    Diandra

    My heart goes out to you and the thousands and thousands that have been effected by this storm. My husband and I have friends and family in Ocean City, Md. thank God as far as we know all...
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    Eva your post sound like I could have written it...

    Eva your post sound like I could have written it word for word, it took me awhile to understand it wasn't menapause causing all these problems.

    I have yet to find anything that helps and like you...
  8. Thread: One common theme

    by suede
    Replies
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    3,717

    Steve, I agree with you if we don't stand up for...

    Steve, I agree with you if we don't stand up for ourselves no one else will that is a proven. This also goes with our treatment from Dr's and their office employees.


    Diandra, I had this happen...
  9. Marmar Thankful to hear that you have come...

    Marmar

    Thankful to hear that you have come through this terriffing storm with out any major problems.

    My heart and prayers go out to the millions that have been effected by sandy.

    I lived...
  10. Thread: chest pain

    by suede
    Replies
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    Alex sorry to hear of your chest pain and your...

    Alex sorry to hear of your chest pain and your dental problems, I can realte to both better then I care to admit !!!

    You really need to get the chest pain ck'ed out soon it isn't nothing to mess...
  11. Replies
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    First hi to all I have been a long time member of...

    First hi to all I have been a long time member of BT also though for the last couple of years I haven't been here much (sorry).

    Lee I'm not sure in what state you live in and which Cleveland...
  12. Replies
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    Reba and All, I also live in IN. I have been a...

    Reba and All,

    I also live in IN. I have been a CP patient for many years now. Some time ago my son was in an accident that damaged his back and has been dealing with CP for several years now, he...
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    Diandra Hi !! I was on Lyrica for a short time...

    Diandra Hi !!

    I was on Lyrica for a short time when it first came out however I didn't stay on it long it worked great for the nerve pain I had to many bad side effects though.. I ended up going...
  14. Replies
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    MacDelta Welcome to becoming a member of BT...

    MacDelta

    Welcome to becoming a member of BT hope you enjoy and get as much out of it as many of us have over the years .

    Having said that you have followed BT for some time then you are most...
  15. Replies
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    4,223

    My brain doesn't absorb very well any more after...

    My brain doesn't absorb very well any more after all these years of pain.

    My intake on this study is it seems to be saying that people with emotional problems are going to react worse to pain then...
  16. Replies
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    9,506

    Hi All Just popping in to say hi !! I...

    Hi All

    Just popping in to say hi !!

    I find it remarkable how all our lives are so much alike, I have to wonder how that would be if we didn't all suffer from CP !

    Not to just mention all...
  17. Replies
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    Thank you all, For your kind quick replies,...

    Thank you all,

    For your kind quick replies, times like this I know what I miss by not coming here more often..

    One thing is that I just feel so lazy, on days when my pain is pretty well under...
  18. Replies
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    9,506

    Hi Everyone!! Once again it has been a long...

    Hi Everyone!!

    Once again it has been a long time between my post. Sorry it's not that I have forgotten any of you or that I don't care as that is not the case.
    Pretty much it is what you are...
  19. Replies
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    Hi Diandra, Thanks so much for asking.. However...

    Hi Diandra,
    Thanks so much for asking.. However I gave up on it I couldn't stand the feelings I had on it.

    Right now I am only taking the MsContin for my pain and went on wellbutrin for the...
  20. I am so happy for you that you can end this one...

    I am so happy for you that you can end this one battle !! Congrats girl..

    Much love and many hugs,
    Linda
  21. Replies
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    Donna, As the others have said congratulations...

    Donna,

    As the others have said congratulations on the job and I am sure you have got your work more then cut out for you I wish you the best of luck in your forth coming venture.

    Linda
  22. Hi Wendy, I am one that had the SCS implant...

    Hi Wendy,

    I am one that had the SCS implant and Mark hit it head on the companies are of course going to rave and the Dr's only know what they are told by the companies and the patients they have...
  23. Jacquie Hi I am happy to see Tom is home and...

    Jacquie

    Hi I am happy to see Tom is home and doing better I am sure it is a lot on you though no matter how glad you are to have him home..

    Like you my Dr. never came out and told my I have FM...
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    Burr, nice to meet you and Hi to everyone.. I...

    Burr, nice to meet you and Hi to everyone..

    I hope to become more active on the boards here I have been trying hard to live in a normal world that I just don't fit in to anymore and it is high...
  25. Replies
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    Hi All, Thought I would update on the Savella....

    Hi All,

    Thought I would update on the Savella.

    Have been on it for a couple of weeks now and it is seeming to help with the nerve pain thus far, only more time will tell about that though.
    ...
  26. Replies
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    Hi All, I haven't been able to look around...

    Hi All,

    I haven't been able to look around since all has changed here so I don't know what is available from the past so I figured this one always is nice to have, hope it is able to help.

    I...
  27. Replies
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    4,884

    I haven't ssen the show but I know what you mean...

    I haven't ssen the show but I know what you mean about watching with a smile on your face..

    There wasn't much else you could have done for "Hummy" and that was good of you. Hopefully he got a good...
  28. Replies
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    Oh you have so got that right I had to go pick my...

    Oh you have so got that right I had to go pick my granddaughter up yesterday and coming back there was this little bitty dog running down the midle of the road, I turned on my flashers and followed...
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    Buttons, I know it wasn't an easy choice to...

    Buttons,

    I know it wasn't an easy choice to make, I'm sure it was the right one though for all concerned.

    My suede is starting to really show his age and I just couldn't put him through it, I...
  30. Replies
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    It's a hard decision to make.. I have been...

    It's a hard decision to make..

    I have been wanting to foster dogs a lot here lately, I think because I have found that I like dogs so much more then most people. I have 2 of my own as it is they...
  31. Replies
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    4,548

    Melanie, I am so sorry your having all these...

    Melanie,

    I am so sorry your having all these problems from the surgery. I pray that you are able to get this all taken care of soon and begin healing.

    Mark,

    Amitriptyline is what has...
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    Patty, I can surely relate to what your going...

    Patty,

    I can surely relate to what your going through.

    I have been on the same meds and dosage for about 5 years or longer, I was put on cymbalta for nerve pain and also depression due to the...
  33. Replies
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    I think that is great that your doing this, I got...

    I think that is great that your doing this, I got our oldest and biggest dog from the shelter. the other one my son got from I believe an abusive owner.

    I don't know what I would do without them...
  34. Replies
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    Alex, If you haven't see I apologized to you...

    Alex,

    If you haven't see I apologized to you on that thread.

    I have never intentionally posted to hurt someones feeling or anger them We all know life is hard enough.

    What I said...
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    Hi Steve, Strange I started to post about this...

    Hi Steve,

    Strange I started to post about this today, I read about it sometime ago and thought what a great idea it would be.

    When I read about it they were talking about doing this as a way to...
  36. Replies
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    4,209

    Living with chronic pain

    This isn't exactly the one I was looking for but a good one.
    Linda

    Having chronic pain means many changes and a lot of them are invisible. Unlike having cancer or being hurt in an accident, most...
  37. Replies
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    Tips For Dealing With People In Pain

    I thought I would post t his as we have the new forum and I always thought this was a good list to have for us to give to others,
    I also am looking for my document "LIVING WITH CHRONIC PAIN", if I...
  38. It's a shame that there is so many CP patients...

    It's a shame that there is so many CP patients and besides living with this everyday of our lives we are faced getting up everyday and wondering if this will be the day the rug will be pulled out...
  39. Thread: Long Time

    by suede
    Replies
    3
    Views
    3,466

    Hi Karen I have to say if 80% of the time your...

    Hi Karen

    I have to say if 80% of the time your pain is under control I wouldn't rock the boat and as you said it always an option ..

    I had the SCS for thoracic and lumbar unfortunately I was...
  40. Replies
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    8,711

    Hi Mark, Good to "see" you again.. This is...

    Hi Mark,

    Good to "see" you again..

    This is a very common side effect of "restless leg syndrome", something to think about.

    It could also be the effect of your medication wearing off as it is...
  41. Replies
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    4,548

    Mealnie, Thanks so much for the input. It...

    Mealnie,

    Thanks so much for the input.

    It is one of the medications I never heard of but then as I said I had been pretty stable for some time and hadn't needed to research.

    Lyrica and...
  42. Replies
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    4,548

    Has anyone taken "Savella" ?

    Hi All

    I have been in the process of having to change some meds around to get my nerve pain back under control, I have been on cymbalta for several years and it worked great but I was maxed out...
  43. Replies
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    Di and others So good to see so many familiar...

    Di and others

    So good to see so many familiar names..

    Haven't we all had a lot going on !!

    As everyone I am going through many health issues besides my spinal and nerve damage. I guess I...
  44. Alex. I am sorry if I have offended you it was...

    Alex.

    I am sorry if I have offended you it was not my intent please accept my apology.

    Linda
  45. Alex, I understand what your saying.. I have...

    Alex,
    I understand what your saying..

    I have been a part of BT for a long time also, years ago I used to post all the time this site was the only place I felt comfortable I had shut out what we...
  46. Diandra, Thanks for saying what I could not find...

    Diandra,
    Thanks for saying what I could not find the words to say or if I did not as nice and that isn't how I wish to be..

    Your so right I have been a member of this forum for many years and I'm...
  47. Thread: Yay...

    by suede
    Replies
    11
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    4,707

    At this point I can only say hi to all and hope...

    At this point I can only say hi to all and hope to post soon this all just seems so weird !!
  48. Replies
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    I agree with seeing the neuro. something this...

    I agree with seeing the neuro. something this drastic should not be ignored and always better to err on the side of cation especially when there is so much going on with our bodies.

    The only time...
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