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  1. Replies
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    Ssusan, Sunshine’s post jogged my memory. For...

    Ssusan, Sunshine’s post jogged my memory.

    For blood draw, my mom has “home draw” ordered by her MD and fulfilled by Quest or by the nurse as she still has a nurse every couple of weeks. I know...
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    First link works but second one does not. ANN

    First link works but second one does not.

    ANN
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    Today I had my own burst of energy and happiness....

    Today I had my own burst of energy and happiness. Peter is off tomorrow so we were really enjoying today. We went to our largest area Whole Foods and got a few things, did a good bit of walking and...
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    Great pictures, Jeannie. Sunshine, glad to...

    Great pictures, Jeannie.

    Sunshine, glad to know you want to garden again. It was my therapy this past year.

    You might try a seat on a 5 gallon bucket, like here, where you can have access to...
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    Best wishes, in love and health, Renee. I am...

    Best wishes, in love and health, Renee.

    I am thinking that emus should not be in cages nor in North Carolina. I had to look up their natural habitat: Australia. Emus need a mate, like the rest of...
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    RE: laundry Not every day but three times this...

    RE: laundry
    Not every day but three times this week. We are changing over summer coverlets to warmer blankets. Down quilts in January.

    ANN
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    Hi Renee! How are you and what are you and the...

    Hi Renee! How are you and what are you and the cat up to??

    No snow tonight in the city but maybe Tuesday. It’s going to be in the 50’s tomorrow after this cold night. It’s 27 now.

    Love and...
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    Wow, Virginia, scrubbing tubs and toilets. That’s...

    Wow, Virginia, scrubbing tubs and toilets. That’s hard work. Stars for you. None for Laura.

    I went up two flights of stairs to fetch my MIL, then lunch and then walked around Trader Joe’s. It was...
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    You do get a certain amount based on what is...

    You do get a certain amount based on what is usual for your diagnosis and then, when those are coming to an end, the PT requests more visits from the insurer.

    ANN
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    Glad that it helps, Jingle. It sounds almost like...

    Glad that it helps, Jingle. It sounds almost like something to look forward to, the relief of the pain.

    ANN
  11. Replies
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    ANN has less motor disability - an unfair...

    ANN has less motor disability - an unfair advantage.

    Today I walked a total of six blocks to get some hot black bean soup for lunch. Tasty. And I did stairs for another load of laundry and ran ...
  12. Replies
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    Medicare is supposed to pay for PT for persons w...

    Medicare is supposed to pay for PT for persons w neuro-degenerative diseases to keep us from losing ground. The practice used to be different but there was a class action suit about this in ? 2014....
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    Breezes also trigger TRigeminal Neuralgia. ...

    Breezes also trigger TRigeminal Neuralgia.

    Feel better soon,
    ANN
  14. Replies
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    I walked around a small Target today. ANN

    I walked around a small Target today.

    ANN
  15. Replies
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    I gave Mom two Blackman books and she wasn’t keen...

    I gave Mom two Blackman books and she wasn’t keen on them. I’ll see if I have them.

    ANN
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    So sorry for your very bad day, Alex. I hope...

    So sorry for your very bad day, Alex.

    I hope thinks turn out better than you are thinking.
    ANN
  17. Replies
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    On Monday I walked a museum and came home and did...

    On Monday I walked a museum and came home and did two loads of laundry that included two flights of stairs. I also ran the dishwasher and there is some bend and stretch with putting it all away....
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    Sunshine, I wish you a good infusion with great...

    Sunshine, I wish you a good infusion with great results.

    Virginia, I hope you feel better soon.

    I met my friend Ann at the Isabelle Stewart Gardner Museum on Monday for lunch. She was...
  19. Replies
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    Jingle, that book is also in my pile. My mom...

    Jingle, that book is also in my pile. My mom reads must faster that I do.

    ANN
  20. Replies
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    I over did it on Friday with too much walking,...

    I over did it on Friday with too much walking, laundry and stair climbing.

    Last night I awoke with bad spasms in my left hip. I eventually took a Tizanidine and went back to sleep for a few hours....
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    I’m sorry your jaw is still hurting, Virginia. ...

    I’m sorry your jaw is still hurting, Virginia.

    Good luck tomorrow, Linda. It’s going to be 35 here tonight. And 29, I see, for Amherst Center.
    ANN
  22. Replies
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    That’s a lot of swimming and congrats on the...

    That’s a lot of swimming and congrats on the walking!

    ANN
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    Rose, I am glad that you are safe and the fire is...

    Rose, I am glad that you are safe and the fire is not a current threat. I am also grateful to Nancy! Sleep well tonight.

    Virginia, I am sorry that I made you eat the peanut butter cups. I buy the...
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    I am also a spotted owl. ANN

    I am also a spotted owl.

    ANN
  25. Replies
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    I have, Brain on Fire. It hasn’t made it to the...

    I have, Brain on Fire. It hasn’t made it to the top of my pile yet.

    ANN
  26. Replies
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    I loved Bel Canto, too. Mom and I still talk...

    I loved Bel Canto, too. Mom and I still talk about it and I have Dutch House on her Christmas list.

    ANN
  27. Replies
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    I am very glad to hear from you, Joan. I told...

    I am very glad to hear from you, Joan. I told Peter all about you and that I was worried.

    ANN
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    Thank you, Sunshine. You are brave. When you...

    Thank you, Sunshine. You are brave.

    When you say, 1’45’” walk, are you talking time or distance? Not sure.
    ANN
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    How did you do after the grueling PT? You were...

    How did you do after the grueling PT? You were afraid you’d have more spasms.

    ANN
  30. Replies
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    Too close, for sure, Nuthatch, but the mountain...

    Too close, for sure, Nuthatch, but the mountain lion is beautiful!

    ANN
  31. Replies
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    Please share about pressure on buttocks. Right ...

    Please share about pressure on buttocks. Right side is always hurting me.

    ANN
  32. Replies
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    Sunshine, Agate has a board, MS Speaks. We...

    Sunshine, Agate has a board, MS Speaks.

    We have talked in the past of using it as a “lifeboat” if BT is down for a substantial time.

    ANN
  33. Replies
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    Thank you Joan! Good to hear from you. I...

    Thank you Joan! Good to hear from you.

    I love the pictures of Tula and the interesting places she went. And your husband is mighty handsome.

    What a kind thing (and a good lesson) to have her...
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    Those look very heathy and pretty, Agate. I am...

    Those look very heathy and pretty, Agate.

    I am no good with those.

    Nuthatch, are you all right?
    ANN
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    Rose, I enjoyed your story of your shopper who...

    Rose, I enjoyed your story of your shopper who needs a mother.

    ANN
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    That is very good news, Rose. ANN

    That is very good news, Rose.

    ANN
  37. Replies
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    Best wishes and warm, cheerful thoughts for...

    Best wishes and warm, cheerful thoughts for Virginia. I hope she feels better and able to return soon.

    ANN
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    Oh my, Linda! So glad you are OK and that the...

    Oh my, Linda! So glad you are OK and that the universe was purring along today.

    Best of luck at the market tomorrow. Bring us another story.

    ANN
  39. Replies
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    I hope ativan plan helps. Good luck with PT. ...

    I hope ativan plan helps.

    Good luck with PT.

    ANN
  40. Replies
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    View Post

    Agate, just scrubbing the tub is a feat! You’ll need a heating pad on something after all of this!

    Chocolate for you,
    ANN
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    Fantastic news, Jeanie! You’ve come a long way...

    Fantastic news, Jeanie! You’ve come a long way since that fall. I am happy for you.

    That was a well deserved mushroom burger.
    ANN
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    This is life: moments strung together. Thank...

    This is life: moments strung together.

    Thank you,
    ANN
  43. Replies
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    Hi Agate, I really don’t need the wheelchair....

    Hi Agate,

    I really don’t need the wheelchair. I can still do it all. In fact, as we were deplaning and walking from the gate to get our baggage, I was telling Peter that I am better able to do...
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    We are safely home. I love just being home. :-)...

    We are safely home.
    I love just being home. :-)
    Very tired, though.
    ANN
  45. Replies
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    Good work, Sunshine. Yesterday was cooking...

    Good work, Sunshine.

    Yesterday was cooking and packing and today is airport walking.

    ANN
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    Virginia, I ironed three shirts myself this...

    Virginia, I ironed three shirts myself this morning.

    Sunshine, I hope the memory problems are short lived.
    ANN
  47. Replies
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    Mom and I had the senior flu shot today about ten...

    Mom and I had the senior flu shot today about ten hours ago. We’ve had no problems. Grateful for that.

    ANN
  48. Replies
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    I have not had a problem, Virginia. ANN

    I have not had a problem, Virginia.

    ANN
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    Thank you for this, Parsi. It’s great to see...

    Thank you for this, Parsi. It’s great to see Cat’s beautiful face!

    ANN
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    A very Happy Birthday, Susan! ANN

    A very Happy Birthday, Susan!

    ANN
  51. Replies
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    Best to you today, Sunshine. ANN

    Best to you today, Sunshine.

    ANN
  52. Replies
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    Still at Mom’s. Cool rainy weather here this...

    Still at Mom’s. Cool rainy weather here this week. It was 80 at home today.

    Today was stores and lunch out. Tomorrow is Mom’s cardiologist.
    ANN
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    Good job, Rose. Thanks for the update and bless...

    Good job, Rose. Thanks for the update and bless Jim. I know this was a hard thing for him to do.

    ANN
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    Today was finishing packing and cleaning the last...

    Today was finishing packing and cleaning the last things out of the fridge before our trip. Then our flight which required pulling luggage through two airports. It was an easy trip.

    ANN
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    Hi Howie! I was thinking that you’d like the...

    Hi Howie! I was thinking that you’d like the Asian food and I missed hearing about your grocery trip. Did you stay up all that night the electricity went out?

    ANN
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    Oh, and dinner: A friend invited us to hear...

    Oh, and dinner:

    A friend invited us to hear music at Berklee Performance Center. This is often jazz. It was going to be mainly drumming so I just went for dinner. I took Uber to the Ginger...
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    Virginia, if you sign out and then sign back in...

    Virginia, if you sign out and then sign back in you will get a different view. I don’t know what else to call it. Go all the way to the bottom and hit “view full site.” Find the MS Forum from there....
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    Glad you got that help, Sunshine. I am off to...

    Glad you got that help, Sunshine.

    I am off to dinner on a Friday night. woo hoo!
  59. Replies
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    I see you, Virginia. I hope you are feeling...

    I see you, Virginia. I hope you are feeling better.

    It’s raining and I am doing laundry.

    ANN
  60. Thank you. ANN

    Thank you.

    ANN
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    I hope you had a better night, Sunshine.

    I hope you had a better night, Sunshine.
  62. Replies
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    September 27 was a one year anniversary of the...

    September 27 was a one year anniversary of the strange weight loss illness of last year. Today, I walked up to the center of town and back. I dropped a gardening book off in the free book box,...
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    Virginia, you say, “I didn’t have the leg time”...

    Virginia, you say, “I didn’t have the leg time” and we all know what you mean.

    ANN
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    Hi Sunshine, I hope you get some help. ANN

    Hi Sunshine, I hope you get some help.

    ANN
  65. Replies
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    Good morning, Howie, it’s good to hear from you. ...

    Good morning, Howie, it’s good to hear from you.

    Linda, that sounds like a cold day. It will be 43 here on Fri and Sat night. I have put the hoops on the greenhouse and will have the plastic...
  66. Replies
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    Thank you all. Peter gave me a long stem red...

    Thank you all.

    Peter gave me a long stem red rose bouquet, frog postage stamps (Hi Vicki) and chocolates. He also put mums on the front steps. He knows me.

    We went to lunch at Legal Seafood...
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    Oh my, what a nasty spasm! I imagine this is...

    Oh my, what a nasty spasm! I imagine this is really messing with your sleep.


    Isn’t it crazy how a day can have such diverse aspects?
    ANN
  68. Replies
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    Thank you! Number five married and number 37...

    Thank you! Number five married and number 37 together.

    ANN
  69. Replies
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    Good luck tomorrow, Rose. ANN

    Good luck tomorrow, Rose.

    ANN
  70. Replies
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    It’s quiet in here today. I hope Howie is OK. ...

    It’s quiet in here today. I hope Howie is OK.

    Jeanie, how is your leg?

    I saw my new PMD yesterday. He is very interesting. I like him. He understands I have had a rough year and is sorry “that...
  71. My dad’s vascular surgeon had my mom put bag balm...

    My dad’s vascular surgeon had my mom put bag balm on my dad’s diabetic feet.

    ANN
  72. I find Rutgers’ Spinal Cord Injury forums have a...

    I find Rutgers’ Spinal Cord Injury forums have a wealth of info including skin, uti’s and baclofen pumps.

    http://sci.rutgers.edu/forum/forumdisplay.php?3-SCI-Community-Forums

    ANN
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    Thank you for taking the time to post, Jeanie. We...

    Thank you for taking the time to post, Jeanie. We have all been wondering about you. I was worried.

    You are (underlined) amazing.

    ANN
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    I haven’t shopped in a proper department store...

    I haven’t shopped in a proper department store like that for many years, Virginia. I was in Macy’s and Nordstrom’s before my wedding but Macy’s was kind of tacky with almost no service and...
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    This afternoon we went to Home Depot to buy the...

    This afternoon we went to Home Depot to buy the things I need to convert my raised bed to a “low tunnel” for the fall/winter garden. Like this:

    https://m.youtube.com/watch?v=kobuJQFF0DM

    Trying...
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