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  1. Know of pediatric (infant) epilepsy support groups?

    Do you know of any active Pediatric epilepsy support groups?

    Linnie
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    Here are legitimate sources online sources...

    Here are legitimate sources online sources outside the US. Here are the steps to take.

    1. First,Look into http://www.rxrights.org
    2. Second, when comfortable with the process, go to...
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    Asbestos is harmless AS LONG AS LEFT ALONE. It is...

    Asbestos is harmless AS LONG AS LEFT ALONE. It is dangerous when its long strands becomes febrile WHILE being removed. Again it is dangerous while being removed and should never be used. In place,...
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    National Prescription Drug Take-Back Day

    The next National Prescription Drug Take-Back Day is September 27, 2014 from 10AM to 2PM . Locate sites here.

    http://www.deadiversion.usdoj.gov/drug_disposal/takeback
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    Some Good Microwave recipes. Use Glass or pottery...

    Some Good Microwave recipes. Use Glass or pottery when microwaving. NOT plastic.

    http://www.mealsforyou.com/cgi-bin/recipeGadget?gadget.microwave


    Linnie
  6. To see it, cut and paste it. Linnie

    To see it, cut and paste it.

    Linnie
  7. Thread: OT Prayer need

    by linniec
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    Satman Dan I often think of you and am sorry...

    Satman Dan

    I often think of you and am sorry to read of your diagnosis as well as over-joyed to read of your personal story.

    Linnie

    Read Dan's story,
    www.strongsvillebiblefellowship.org
    ...
  8. Sue, This study, done in 2011, included only...

    Sue,

    This study, done in 2011, included only those drugs which were implicated in other studies . However, bad news for Vimpat.
    Vimpat's generic name is Lacosamide.
    From an NIH site called...
  9. Epilepsy drugs - aed's-- that may increase falls

    Examples of AEDS , listed by generic name, that can increase the risk of falling, or of a serious outcome if a fall occurs (1-7 are at the bottom and refer to possible mechanisms)
    (See Possible...
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    I agree that the mass exodus is sad, and, being...

    I agree that the mass exodus is sad, and, being from BT, I do feel like a college graduate , but the in-the-trenches information is from people not sites. There are 76 Epilepsy groups on FB...
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    A Great Doctor for all of us

    Please see the TED Talk
    http://www.ted.com/talks/abraham_verghese_a_doctor_s_touch.html

    Linnie
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    I see it as an augmentation, not a replacement. I...

    I see it as an augmentation, not a replacement. I know that I go to Braintalk and facebook . We are on facebook, as friends. On Facebook we connect with others and show the rest of our lives and...
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    Check. Linnie

    Check.


    Linnie
  14. I found a doctor with the Mayo Clinic, who knows...

    I found a doctor with the Mayo Clinic, who knows about Landau Kleffner Syndrome. She is Katherine C. Nickels, M.D.
    Here are some links to The Mayo Clinic and to Doctor Katherine C. Nickels....
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    YAH YAAAY to Tattoo! Linnie

    YAH YAAAY to Tattoo!

    Linnie
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    Poor Tigerchef. he's gone through so much. Linnie

    Poor Tigerchef. he's gone through so much.
    Linnie
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    Yes, That's all to worry about now! Although...

    Yes, That's all to worry about now! Although you're right about the age-discrimination, you are very fortunate to be in a medical field.

    YAY again!

    Linnie
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    Recall Antiepileptic Drugs

    There has recently been a Recall of two Antiepileptic Drugs.
    The information is as follows
    May 23, 2013
    Glenmark Pharmaceuticals is recalling Two Generic AED's.
    Gabapentin Tablets-- 600mg,...
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    Great! You sure did put up with a LOT more...

    Great! You sure did put up with a LOT more hurdles than anybody else did!

    Linnie
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    Here are the results of my googling levetiracetam...

    Here are the results of my googling levetiracetam "long-term"
    ...
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    I was here yesturday afternoon-5/5/13 and again...

    I was here yesturday afternoon-5/5/13 and again this morning 5/6/13. I saw everything just fine.

    Linnie
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    The tastes, the smells, and the low voltage...

    The tastes, the smells, and the low voltage electricity does sound like something related to epilepsy. Some extremly good sites are here, at epilepsy.com and at neurotalk. I know you did extensive...
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    Great Howdy! But could levetiracetam have played...

    Great Howdy! But could levetiracetam have played some role in the development of your cancer? It's strong stuff.
  24. There are legitimate sources online sources...

    There are legitimate sources online sources outside the US. Here are the steps to take.

    First,Look into http://www.rxrights.org
    Second, when comfortable with the process, go to ...
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    I had an allergic reaction to one of the inert...

    I had an allergic reaction to one of the inert ingredients-excipients- in three different generic formulations of levetiracetam. So far, after 8 years of Keppra, I've had no known kidney problems,...
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    It sounds like an atonic followed by a ...

    It sounds like an atonic followed by a Clonic-Tonic to me. I have a hard time getting up off the floor.

    Linnie
  27. Still Another Levetiracetam failure. ...

    Still Another Levetiracetam failure.

    http://www.peoplespharmacy.com/2013/04/08/generic-seizure-medicine-let-him-down/
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    Do either of you have carpets? I try to stimulate...

    Do either of you have carpets? I try to stimulate my nerves against the rug. For days, I felt nothing, but finally I FElT! the bristles of the carpet ! I have chemically induced neuropathy.

    Linnie
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    Lor, I don't know when they first figured out...

    Lor, I don't know when they first figured out that Dilantin (Phenytoin) has a relationship with neuropathy, I only know that Dilantin is a MAJOR contributor. You can google Dilantin Neuropathy. ANY...
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    I think Annie is generally right, although her...

    I think Annie is generally right, although her seizures, like mine, are different. My seizures became worse after menopause. Annie has chosen not to take medications . Porkette, you and I have taken...
  31. Generics do work for some, but not for all. If...

    Generics do work for some, but not for all. If Generics work for you, it can mean a saving of thousands. I tried 3 formulations of Levetiracetam (Keppra) BEFORE giving up. Each generic formulation...
  32. Fortune Magazine covers the generic brand name...

    Fortune Magazine covers the generic brand name contraversy quite well:

    http://management.fortune.cnn.com/2013/01/10/generic-drugs-quality/?section=magazines_fortune


    Linnie
  33. Thread: Diaper source

    by linniec
    Replies
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    1,145

    Diaper source

    I know many have posted problems about getting diapers for larger children. Today, someone mailed me a source which includes Adults and children. There are several things covered in this link so...
  34. I did find out that you should 1 Call the chosen...

    I did find out that you should 1 Call the chosen pharmacy first.
    2. Fax your prescription Second.

    If this is your first time setting up the account, it may take 3 weeks.


    Linnie
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    Interesting. Isn't Ketotifen the major ingredient...

    Interesting. Isn't Ketotifen the major ingredient of Zyrtec ?


    Linnie
  36. Aurora, Please get in touch with Joe and/or ...

    Aurora,

    Please get in touch with Joe and/or Terry Graedon Of The People's Pharmacy . They have been fighting for people like you who have bad results from the brand to generic switch for YEARS....
  37. Thread: Keppra doses

    by linniec
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    Travis, Yes, I have taken 4000 mg of Keppra...

    Travis,
    Yes, I have taken 4000 mg of Keppra (brand for levetiracetam) a day. I was somewhat more jumpy and prone to overreactions. But it was tolerable. I now need to take the brand, because it...
  38. Satman! I was just thinking of you TWO days ago!...

    Satman! I was just thinking of you TWO days ago!

    Linnie
  39. Replies
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    Here's the ordering process. Your doctor can be...

    Here's the ordering process. Your doctor can be anywhere.
    1. You get a prescription from your own doctor
    2. You contact a legitimate Canadian source. You ask them about your meds and they will...
  40. Today's 11/1/12 NYT says " While the active...

    Today's 11/1/12 NYT says " While the active ingredient is the same as the brand-name version, the mechanism for gradually releasing the drug into a personís body can vary. "

    Linnie
  41. Canadian Prescription drugs , Prescriptions from Canada

    I know that many here are on costy drugs, but are wary about ordering on-line. Yet there are legitimate sources. Here's are three steps to take.

    First,Look into http://www.rxrights.org
    Second,...
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    Also check http://www.cipa.com which stands...

    Also check
    http://www.cipa.com
    which stands for Canadian International Pharmacy Association.

    Linnie
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    Look into http://www.rxrights.org and, when...

    Look into http://www.rxrights.org and, when comfortable with the process,
    http://www.pharmacychecker.com

    Linnie
  44. Replies
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    Has anyone tried peripheral neuropathy exercises...

    Has anyone tried peripheral neuropathy exercises at youtube. I found several basic ones that seemed to help.

    Linnie
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    Lor, Please report this to your...

    Lor,
    Please report this to your neurologist/epileptologist. Dilantin is a major culprit. It is famous for causing Peripheral neuropathy or , at the very least, its beginnings. Don't let it go...
  46. The writer asked whether she could talk to me,...

    The writer asked whether she could talk to me, but seemed most interested in my allusion to Dr. Jacqueline French of NYU, who's done a lot of research on the brand-name generic switch. Contacting her...
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    If you have symptoms of tingling and and numbing...

    If you have symptoms of tingling and and numbing of your hands or feet, which feels like a glove, sausage casing, or worse , you may have injured peripheral nerves. An electrical test of your...
  48. Brand Name generic medication switch Wall Street Journal interest.

    The Wall Street Journal has just asked for my story as I could not switch to generics from brand name.

    Linnie
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    I have exactly the same problem with a bum left...

    I have exactly the same problem with a bum left hand and a cane. My cup's are at a 60 degree angle. Tell Jeff to 1. Get some easy grip (ridged) styrofoam cups. They're literally lighter than the...
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    Tegretal's effect on the Digestive System:...

    Tegretal's effect on the Digestive System: Nausea, vomiting, gastric distress and abdominal pain, diarrhea, constipation, anorexia, and dryness of the mouth and pharynx, including glossitis and...
  51. This is huge ! prescriptions generics Levetiracetam Keppra Wellbutrin (Budeprion

    Huge win for us! A crack in the armor!

    Today the FDA recalled TEVA'S Generic drug of Wellbutrin XL 300 (Budeprion XL 300) from the market which it had previously approved in 2006. Read Entire...
  52. Thread: Help please

    by linniec
    Replies
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    http://dailymed.nlm.nih.gov/dailymed/search.cfm?st...

    http://dailymed.nlm.nih.gov/dailymed/search.cfm?startswith=lamotrigine&x=31&y=14

    1. Go to the address above.
    2. Scroll down to the Manufacturer of your lamotrigine.
    3. Click on it.
    4. Select...
  53. Thread: Help please

    by linniec
    Replies
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    1,844

    It is Likely that you will have seizures again....

    It is Likely that you will have seizures again. Do you have time to go to your epileptologist or neurologist to see about getting another script to take with you? Some people, taking some medicines,...
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    Lor, Please Use those Google search terms to...

    Lor,

    Please Use those Google search terms to find out much more. Dilantin ( Phenyltoin ) has an interesting connection to neuropathy. It can either Cause neuropathy or help neuropathy. But...
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    Peripheral Neuropathy , medication caused

    Peripheral Neuropathy , a numbness,tightness, pain, swelling and/or tingling nerves in the hands in feet, is known in Diabetics, in those with HIV AIDS,in Alchoholics and in people having treatment...
  56. Inert Ingredients ,excipients, common impurities

    INERT INGREDIENTS FUNCTIONS AND COMMON IMPURITIES
    "Some Inert Ingredients ,(AKA excipients)comprise the product's delivery system. These transport the active drug to the site in the body where the...
  57. "Some Inert Ingredients ,(AKA excipients) for...

    "Some Inert Ingredients ,(AKA excipients) for example, comprise the product's delivery system. These transport the active drug to the site in the body where the drug is intended to exert its action....
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    check in present

    I'm back! I tried at 7:30 this am, when I could see the forum. Tried again at again at noon, and finally I'm back with my same log on name and password!

    Linnie
  59. Replies
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    I think they last a long time ONLY if they're...

    I think they last a long time ONLY if they're left on continuously. Since very few lights are left on continuously, the hype is just that. hype.


    Linnie
  60. Mucho Cuss !!! Linnie

    Mucho Cuss !!!


    Linnie
  61. Thread: Claritin

    by linniec
    Replies
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    2,325

    My daughter in law acted correctly when seeing a...

    My daughter in law acted correctly when seeing a seizure. As was, she didn't know it was a seizure, but suspected it. The stranger was unsteady then fell to the ground unconscious. She made sure he...
  62. Replies
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    Oh No! Please let Jeff (Tigerchef) know that we...

    Oh No! Please let Jeff (Tigerchef) know that we care so much, and that people have asked about him. I've even received PM's about him from people who want to get in touch with him.

    Linnie
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    Medicare doesn't. Linnie

    Medicare doesn't.

    Linnie
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    How horrible. But I'm glad you're O.K. Sue. Thank...

    How horrible. But I'm glad you're O.K. Sue. Thank you for updating.

    Linnie
  65. I hope so, you've been having some very serious...

    I hope so, you've been having some very serious problems.


    Linnie
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    If possible, deal with a pharmacist at a locally...

    If possible, deal with a pharmacist at a locally owned, non-chain pharmacy. A pharmacist is a trained professional often with a doctorate. Unfortunately those at chain stores are over-worked, kept on...
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    Both my epileptologist and later my neurologist...

    Both my epileptologist and later my neurologist told me that the generic for Trileptal does NOT work.



    Linnie
  68. Thread: Goodbye to all

    by linniec
    Replies
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    3,539

    Nooooooooooo! Linnie

    Nooooooooooo!


    Linnie
  69. Replies
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    Poll: I like the home page. I like seeing what people...

    I like the home page. I like seeing what people have posted recently in other threads because it may be sideways applicable to my brain or my physical self. I also REALLY like seeing the latest...
  70. WATCH OUT! Fillers ,inert ingredients, or Excipients NOT INERT prescriptions generics

    Recently, I took a generic Of Keppra, A drug that worked well for 7 years. The generic meant unbearable itching and burning, but good control. My problem was probably the "Inert" ingredients also...
  71. It is so cruel to be on so many medications. The...

    It is so cruel to be on so many medications. The Real problem began when I lost my company insurance and climbed onto Medicare. What a joke. I tried generics, and couldn't take them. So Until I pay...
  72. Replies
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    As Earth Angel Said, noone here is a doctor....

    As Earth Angel Said, noone here is a doctor. People who have epilepsy do know alot about their condition. Epilepsy meds are different for everyone.Therefore, Consult a neurologist. about...
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    rxrights has a FB page. Just type the one word ...

    rxrights has a FB page. Just type the one word , rxrights ,in your Facebook search window. Many people there report stories similar, though not the same, as your's.
    They have a link to...
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    This is so very wrong. People operate under the...

    This is so very wrong. People operate under the great misconception that Medicare cares. Try
    rxrights.org


    Linnie
  75. Replies
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    THat Is So cool Lor!

    THat Is So cool Lor!
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