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((((((Hugs to All)))))) ~

Thank you so much, Virginia and Donna. We truly appreciate your love and support. As you light your candles, please remember all of our Precious Angels and their...

((((((Hugs to All)))))) ~

funnylegs4 ~

Thank you so much.

Because we haven't had the opportunity to have a Celebration of Life service for Jonathan, it would be wonderful if everyone...

((((((Jeanie)))))) ~

Many healing prayers on the way for you.

Love & Light,

*heart

Rose

((((((Hugs to All)))))) ~

Donna ~

Since we've had torrential rain, I haven't been walking, so I haven't see the lady. I pray that she's okay and wasn't injured.

Jim is feeling and eating...

((((((SaraEve41)))))) ~

*Welcome TO BRAINTALK!

So glad that you found us!

Why is there a need to titrate up to a therapeutic level of CBD? It doesn't have the assorted evil side effects...

5338

OUR PRECIOUS ANGELS


Forever in Our Hearts



Augie

5337

The 23rd Annual Compassionate Friends Worldwide Candle Lighting

In Memory of Children, Who Left Us Too Soon

Sunday

December 8, 2019

((((((lostparent)))))) ~

I think you are wise to seek a new neurologist. The current neuro is deferring to another doctor out of her specialty regarding CVI. But, when she's competing with other...

((((((Hugs to All)))))) ~

Donna ~

I'm so sorry that Alex's grandmother passed. While this places an extra sadness on the holiday, perhaps Grandma planned it this way, so that the family would...

Okay.

NO!

*biggrin

Love & Light,

*heart

((((((Hugs to All)))))) ~

Jeanie ~

Andy and Jim are such good sons. I'm so glad that you have some homemade food and pumpkin pie.

I used to enjoy watching tennis, but it just got so super...

((((((lostparent)))))) ~

I'm so sorry, again, that your son is having seizures, but having a diagnosis is a starting point for proper treatment. What treatment has been recommended? I hope that...

((((((Hugs to All)))))) ~

Ibuprofen can increase the risk of heart attack and stroke. It can also cause ulcers, bleeding, and holes in the stomach or intestines:
...

((((((Hugs to All)))))) ~

agate and Parsi ~

Perhaps you could ask Ralph for details on how people can participate in the conference call? If he doesn't know the answer, then perhaps he can...

((((((Hugs to All)))))) ~

Jeanie ~

I can certainly understand how much effort it is to get ready and drive for 40 minutes, and while toddlers are adorable, they can be exhausting. I'm glad you...

((((((Happy Thanksgiving)))))) ~

I hope that everyone is enjoying a lovely day. Howie and Virginia, how nice of your nephew and brother to bring you feasts!

It became tradition in my family...

((((((Hugs to All)))))) ~

Thank you callyflower, Donna, and Virginia!

I didn't mean to imply that any of you are a burden! You all make an effort to share your ideas with me, and I want to...

*happy thanksgiving

((((((Hugs to All)))))) ~

Thank you all for your support.

callyflower ~

HOLIDAY HELP

((((((callyflower)))))) ~

Thank you so very much for sharing this with me. Why haven't any of the professionals in Jim's case told us this potential risk without paracentesis periodically?

I...

((((((Hugs to All)))))) ~

Radiation treatment is creeping up on Jim now. He has bouts of heavy coughing, to the point that he feels like he'll vomit, but doesn't. He produces gunk, some "dirty,"...

((((((ANN)))))) ~

Most of my elders didn't make it to 80, so maybe that's why I think of myself as a Senior. Doesn't AARP call us Seniors after we turn 50? Seniors seems like a gentler label than...

((((((David)))))) ~

Thank you so much for sharing your journey through time back to Boston, where it all started. Great story, and how wonderful that you've met such interesting and lovely folks...

((((((Sue)))))) ~

I'm so happy for you that apple cider vinegar is still working so well for you in reducing your seizures. Isn't it amazing (and aggravating?) to think about all that you went...

((((((Hugs to All)))))) ~

ANN ~

Thank you! Yes, his platelets are in a good place, so no fear of transfusions for now. Interesting that he had that bout with blood in his urine for about a...

((((((Hugs to All)))))) ~

Mary Grace ~

Thank you so much for your love and prayers. We certainly do feel it, and it is comforting and reassuring. I hope that you, Kathleen and your family are...

((((((Jeanie)))))) ~

Thank you so much for your prayers. We love you too and keep you in our prayers. I hope you are over your cold and feeling stronger.

Love & Light,

*heart

Rose

((((((Virginia)))))) ~

Your friends were well meaning, of course. But they didn't realize the depth of your grief or consider the extra effort you had to go through to decorate and remove the...

((((((Donna))))))) ~

So happy to hear that Nick has a loaner mattress and is comfortable again. Last year, right before Thanksgiving, Jonathan's mattress pump quit. It was so stressful to get a...

((((((Lostparent)))))) ~

I'm so very sorry that your son is having seizures. I really wanted to be wrong.

When you've rested a bit and have time, please let us know what the two kinds of...

((((((Hugs to All)))))) ~

houghchrst ~

Thank you so much for your prayers and good vibes. We return them to you and your family.

We are looking forward to a break and relaxing. While going...

((((((Hugs to All)))))) ~

IT'S OVER!!!!

After watching the tragedy unfold today after the Santa Clarita High School Shooting, Jim and I tried to gather our energy to look forward to the last...

(((((((Hugs to All)))))) ~

Thank you, agate, for sharing Ralph's communications with you. My heart goes out to him, as he struggles without Ann.

I'm sure that you are letting him know how...

((((((Hugs to All)))))) ~

YESTERDAY

Mark and I had another two person therapy session, and I had to probe a little to get him to share, but he did. I thought, but didn't say, "You better take...

((((((Hugs to All)))))) ~

agate ~

Thank you.

I've tried to surround myself with support groups, since Jonathan and Michael were born. I was an activist in our communities to move forward...

((((((Lostparent)))))) ~

I hope your ST can persuade the specialists to work your son into their schedule prior to February. Early intervention in all of his issues is very important. Perhaps...

((((((Hugs to All)))))) ~

JIM'S MORNING

He slept more last night, but woke up feeling fuzzy headed and nauseous. Could be from radiation, or from Ascites, or cancer, or all of the above.
...

((((((Hugs to All)))))) ~

Donna ~

Oh my! You have had quite a bit of stuff going on! I just had an inkling that something might be amiss.

I'm so grateful that you were able to save your...

((((((Hugs to All)))))) ~

agate ~

I'm not a Martha fan either. I don't know anything about Marie Kondo.

But decluttering involves throwing out stuff, and all of Jim's clutter is...

((((((Hugs to All))))))~

renee ~

Many healing prayers and positive energy on the way for you. We'll be thinking of you on the 13th. Stay strong and keep that keen sense of humor. That and...

((((((Hugs to All)))))) ~

Jim has managed his 11 radiation treatments very well. It's very tiring, but it's actually good for him to be out and walking. I'd like to inspire Jim to walk about the...

((((((Lostparent)))))) ~

The never-ending appointments and tests and ... I feel your anguish and frustration. I think all of us here can relate to what you're going through and are sorry for you,...

((((((Hugs to All)))))) ~

Today, I found a new use for Witch Hazel.

We had an ant invasion in our kitchen. While I was cleaning up the kitchen, an ant bit me. I didn't realize it, until I sat...

((((((Hugs to All)))))) ~

Virginia and Mary Grace ~

Thank you for your love and prayers. It means everything to us to know that you are walking beside us on our journey.

Indeed, Jonathan...

((((((hugs to All))))))

today is Jonathan’s 50th birthday.

I woke up at 4 a.m. crying. I couldn’t go back to sleep, and Jim was coughing and restless. I checked on him as he started a...

((((((Hugs to All)))))) ~

Virginia ~

Thank you so much for your prayers, which are working.

funnylegs4 ~

Thank you. Yes, Jim's gut is good for something! It's still uncomfortable for...

((((((Hugs to All)))))) ~

Howie ~

This is great news! Notice the silence ... no cackling hens! *hsmile

Hey Everybody ~

David Hosobushi posted in the Feedback Forum about upcoming changes...

((((((Ambassador David)))))) ~

Thank you so much for all you do for BT voluntarily and with such a good heart and intention. I do not take BT for granted, and I am grateful to you and Mike for...

((((((Virginia)))))) ~

I hope that agate's link is the one that you need. I don't recall the thread or my post or the link, so I'm really useless!

Sending healing prayers for you, and I hope...

((((((Hugs to All)))))) ~

Okay, now we find out that dogs are affected by the time change, and they can't even tell time, I don't think. But then, they do have instincts. And if we change the...

((((((Hugs to All)))))) ~

For the next installment in our saga ...

BLOOD

Last night at 10 p.m., Jim told me that he was peeing blood and clots. It started soon after we got home, but he...

((((((Hugs to All)))))) ~

tic chick ~

Thanks for the *biggrin ! Very clever!

So these song lyrics started playing in my head ~

Does anybody really know what time it is? Does anybody...

((((((Hugs to All)))))) ~

John was a little early today, so we waited for about 20 minutes for Jim to go in for treatment. We were alone in the waiting room. After Jim was taken in, the waiting...

((((((Hugs to All)))))) ~

jingle ~

Thank you so much for your prayers. They mean so much to us. I pray that all is well with you too, and I love your Halloween tradition of giving to others. ...

((((((Hugs to All)))))) ~

I absolutely detest the time changes, both of them. My body clock is upset by just one hour twice a year. I feel like I have jet lag for at least a week.

This...

((((((Hugs to All)))))) ~

November is here. Jonathan's and Michael's birthdays are approaching rapidly. I feel like I am crumbling.

Yesterday, in the shower and the entire time I was getting...

((((((Lostparent)))))) ~

I found this information about non-electrical seizures from Cleveland Clinic:
...

((((((Hugs to All)))))) ~

funnylegs4 ~

So glad to hear the good news about your friends, and they and you continue to be in my prayers.

I updated about yesterday's cancer center experience...

((((((Hugs to All)))))) ~

I just love that all of you are moving and staying active. I feel that is extremely important to maintaining good health, or the best health we can have.

My morning...

((((((Sunshine)))))) ~

I'm never too busy to help my friends. *hsmile

Our primary use for Witch Hazel is to reduce swelling and bruising, because it is anti-inflammatory. For example, when I...

((((((Hugs to All)))))) ~

Thank you all so much for your support.

The fire was contained about 11 p.m. Firefighters remained on site to ensure that there are no flare ups. All has been...

*cooljack HAPPY HALLOWE'EN! *cooljack

((((((Hugs to All)))))) ~

Jim and I are meeting some incredible people every day at the radiation oncology center.

A stand-out among them all is a...

((((((Hugs to All)))))) ~

The nature preserve near us is on fire. Helicopters have been flying over us for the last 3 hours. The water copters are picking up water to drop on the fire from the...

((((((Hugs to All)))))) ~

Donna ~

Thank you, as always. I wrote a lengthy reply last night, then left to tend to Jim and didn't post it. Today, we have other things on our mind.

FIRE
...

((((((Hugs to All)))))) ~

Virginia ~

I agree with Sunshine. This sounds like discrimination to me. I'm guessing your health bills are much less expensive than Jim's are/have been, but his...

((((((Hugs to All)))))) ~

nuthatch ~

So glad that you and your family aren't impacted by the fires. Prayers that it remains that way for all of you.

While waiting for Jim to finish his...

((((((Hugs to All)))))) ~

Donna ~

Thank you so much for Neruda’s wonderful poem. I will share it with Jim after the football game. *smile He’d be happy to turn off the game for me for a few...

((((((Hugs to All)))))) ~

Virginia ~

Thank you for checking in with us. Jim has had another good day, and he feels like he will be strong enough to have radiation tomorrow. I texted John, and...

((((((Virginia)))))) ~

I'm glad the link is helpful. I was thinking TN also, but I knew that there were other options. I think you should check in with your doctor, if your jaw still hurts on...

((((((Donna)))))) ~

Thank you for your hugs, wisdom, love and enduring friendship.

John is truly wonderful, and a blessing to us. He is beside us all of the way. We are family.

...

((((((Virginia)))))) ~

Regular strength Tylenol is what Jim takes for pain, because Advil and Aspirin can cause bleeding. I agree that if you don't exceed the recommended dosage that you shouldn't...

((((((Linda)))))) ~

If it is the vinegar in the mustard, which releases the cramp, then why not just take a 1/4 teaspoon of vinegar?

Apple cider vinegar, with the Mother, is popular for...

((((((Hugs to All)))))) ~

Jim was taken in immediately after signing in. They're on a tight schedule, so no delays.

I walked to the large corridor in front, bought an Aquafina, texted a...

((((((Lazarus)))))) ~

Will you have your stitches out before or after Market on Saturday? That's great that they schedule appointments and that it is so close to you!

That's a good feeling...

((((((Hugs to All)))))) ~

I didn't get a chance to call the Toyota dealership today. Jim didn't sleep well during the night, so he napped for most of the morning, and he woke up around noon.

I...

((((((Lostparent)))))) ~

There are no dumb questions.

You may not want to tell your current neuro about the 2nd opinion.

There might be a possibility that the 2nd opinion doctor would...