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  1. Replies
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    An article about ocular manifestations in some...

    An article about ocular manifestations in some people with Stiff Person Syndrome...
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    New genome testing technique to differentiate ...

    New genome testing technique to differentiate several diseases from each other: CMT, SPS, Dystonia, etc.
    ...
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    A useful Personal Blog on living with SPS......

    A useful Personal Blog on living with SPS...
    https://www.iowastatedaily.com/politics/iowa-state-student-talks-healthcare-issues/article_a86361e0-43cd-11ea-8460-4349801478d3.html
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    https://academiccommons.columbia.edu/doi/10.7916/d...

    https://academiccommons.columbia.edu/doi/10.7916/d8-1pjh-mr08

    Case report of treatment resistant SPS
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    https://norml.org/news/2019/12/05/ca...erson-syndr...

    https://norml.org/news/2019/12/05/ca...erson-syndrome

    Case report of 1:1 THC/CBD MMJ helping SPS patient reduce
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    Woman died of a bone marrow transplant...

    Woman died of a bone marrow transplant complications, done to treat SPS:
    https://elynews.com/2019/11/27/brenda-eyre/
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    http://www.sciencepublishinggroup.com/journal/pape...

    http://www.sciencepublishinggroup.com/journal/paperinfo?journalid=252&paperId=10042296
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    https://www.cureus.com/articles/22323-a-case-of-an...

    https://www.cureus.com/articles/22323-a-case-of-anti-glutamic-acid-decarboxylase-65-antibody-positive-stiff-person-syndrome-presenting-initially-as-acute-peripheral-vestibulopathy-leading-to-delayed-d...
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    https://www.ncbi.nlm.nih.gov/pubmed/31624742?dopt=...

    https://www.ncbi.nlm.nih.gov/pubmed/31624742?dopt=Abstract

    Research on the relationship between SPS and neuroendocrine disorders.
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    This is a case study just published on a woman...

    This is a case study just published on a woman with Stiff Person Syndrome.

    https://tremorjournal.org/index.php/tremor/article/view/677/2445
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    Thanks Tic Chic. No, I never heard from him. I...

    Thanks Tic Chic. No, I never heard from him. I did try to contact him through FB. Oh well. Good memory Tic Chick!
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    https://www.ncbi.nlm.nih.gov/pubmed/31543806 ...

    https://www.ncbi.nlm.nih.gov/pubmed/31543806

    SPS masquerading as Compartment Syndrome.
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    https://www.networknewswire.com/terminally-ill-san...

    https://www.networknewswire.com/terminally-ill-san-antonio-firefighter-returns-to-work-thanks-to-last-ditch-treatment/

    It is hard to know exactly what helped this man. Reading the article, I think...
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    https://wwl.radio.com/articles/louis...l-pot-produ...

    https://wwl.radio.com/articles/louis...l-pot-products

    https://www.nola.com/news/healthcare...996ca6444.html

    These are articles about MMJ and its use for medicinal reasons. They use the example...
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    https://www.dailymail.co.uk/news/article-7321053/I...

    https://www.dailymail.co.uk/news/article-7321053/It-saved-life-Calls-cannabis-legalised-Australia.html
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    https://7news.com.au/sunday-night/medical-cannabis...

    https://7news.com.au/sunday-night/medical-cannabis-debate-australians-left-in-pain-by-expensive-and-limited-access-to-drug-c-378990
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    https://kdvr.com/2019/07/15/denver-woman-battling-...

    https://kdvr.com/2019/07/15/denver-woman-battling-one-in-a-million-disease/
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    https://journals.lww.com/neurotodayonline/blog/AAN...

    https://journals.lww.com/neurotodayonline/blog/AANEMAnnualMeetingBlog/Pages/post.aspx?PostID=3

    Longitudinal study of SPS shows it worsens over time. Gold standard treatment to delay worsening...
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    https://www.dailychronicle24.com/2019/07/03/immuno...

    https://www.dailychronicle24.com/2019/07/03/immunoadsorption-columns-market-overview-cost-structure-analysis-growth-opportunities-and-forecast-to-2028/
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    This woman, and mom, dxd SPS and morbidly obese....

    This woman, and mom, dxd SPS and morbidly obese. Lost her weight after a stroke, and took up Cross Fit and then competed in a handicapped competition of weight lifting: We might not do CrossFit, but,...
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    https://melodyreports.com/immunoglobulins-market-i...

    https://melodyreports.com/immunoglobulins-market-is-expected-to-clock-a-notable-7-2-cagr-during-2018-2026/2931/
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    https://www.erienewsnow.com/story/40654673/local-t...

    https://www.erienewsnow.com/story/40654673/local-teen-battling-rare-disease-graduates-from-high-school
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    https://www.ksat.com/news/new-therapy-working-for-...

    https://www.ksat.com/news/new-therapy-working-for-safd-firefighter-battling-rare-stiff-person-syndrome
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    Case report of misdiagnosis of Stiff Person...

    Case report of misdiagnosis of Stiff Person Syndrome that was unresponsive to Baclofen and Benzodiazepines

    https://jamanetwork.com/journals/jamaneurology/article-abstract/2732173
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    https://www.cureus.com/articles/20141-anti-glutama...

    https://www.cureus.com/articles/20141-anti-glutamate-dehydrogenase-antibody-positive-cerebellar-ataxia-and-stiff-person-syndrome-responding-to-dual-treatment-with-steroids-and-intravenous-immunoglobul...
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    https://www.ncbi.nlm.nih.gov/pubmed/27065452# ...

    https://www.ncbi.nlm.nih.gov/pubmed/27065452#

    This study showed that people with GAD65 antibodies had worse SPS symptoms than those with the glycine receptor variety of SPS. People with GAD65...
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    There is an informational meeting in Connecticut...

    There is an informational meeting in Connecticut about SPS, open to patients and families and professionals:
    http://stiffpersonsupport.org/wp-content/uploads/2019/02/2019-May-SPS-Conference.pdf
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    https://www.medpagetoday.com/meetingcoverage/aan/7...

    https://www.medpagetoday.com/meetingcoverage/aan/79664

    This is a new article from AAN meeting on SPS treatments. Very interesting. They talk about a new approach, using a certain cancer drug....
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    Not much info, but its nice to see it mentioned...

    Not much info, but its nice to see it mentioned in this article:

    https://www.capitalgazette.com/news/obituaries/ac-cn-jeni-parris-brady-20190429-story.html
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    Just emailed this athlete with SPS...

    Just emailed this athlete with SPS
    https://www.palmbeachpost.com/news/20190412/paralympian-strives-to-boost-quality-of-life-for-people-with-disabilities
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    https://www.nytimes.com/column/disability

    https://www.nytimes.com/column/disability
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    Curiously, this older study (1998) on Stiff...

    Curiously, this older study (1998) on Stiff Person syndrome, popped up in my news feed here in 2019 . But, despite its age it is interesting to note some earlier thinking of GAD and glycine receptors...
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    Nice to see that Stiff Person Syndrome is...

    Nice to see that Stiff Person Syndrome is mentioned as one of the targets of this therapy—- it means, at least to me, that researchers are keeping it in mind—-

    BTW—-never ignore info coming from...
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    https://www.scnow.com/news/pee_dee_weekly/article_...

    https://www.scnow.com/news/pee_dee_weekly/article_d580d0d8-3d37-11e9-9c0c-5b9853e65d62.html
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    https://n.neurology.org/content/55/10/1531.short

    https://n.neurology.org/content/55/10/1531.short
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    https://honestversion.com/paraneoplastic-syndromes...

    https://honestversion.com/paraneoplastic-syndromes-market-to-garner-brimming-revenues-by-2026/

    This article touches on Paraneoplastic syndrome and mentions Stiff Person Syndrome. There is a subset...
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    https://patientworthy.com/2019/02/27/what-stiff-pe...

    https://patientworthy.com/2019/02/27/what-stiff-person-syndrome-sps-study/
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    Stiff Person in the News Feed

    I am starting an ongoing thread of any articles that pop up on the internet about Stiff Person Syndrome: either first person accounts or research or....The disease is so very rare, that it would be...
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