Greetings All,
Although it has been quite some time since I last posted, I have been around and have kept up with all the happenings and misfortunes that have occurred. The losses deeply saddened me.
My own personal tragedies have kept me from opening up and posting an update, but finally I have moved past the grief and shock and find I can talk about my loses.
First, I can report that after 27 years of living with MS, I seem none the worse for wear. My neurologists tells me that my MRI looks exactly how he expects it to look for someone who has had MS for as long as I have been diagnosed. I am still mobile although I now rely heavily on my rollator to get around and keep my balance. Aside from some muscle cramps and spasms, I have no new symptoms to speak of. Fatigue/exhaustion is still my biggest "handicap" and I use Adderall sparingly to help with the problem.
I have been keeping safe during this pandemic and am happy that I will be able to rely on video appointments in the next 6 months, for doctor appointments. Since I rarely venture out of the house, I haven't had to be concerned with being in unsafe environments. Curt masks up and is staying as safe as he can when he takes care of our physical needs.
I must admit that 2020 has not been very good for us. On May 30th my beloved sister was found dead in her apartment. She was only 56 years old and apparently died during her sleep. The coroner told us that she died of organic cardiovascular disease assuring us she did not contract covid 19, which is what we naturally assumed she had. As her emergency contact, I was contacted by her job, requesting that I contact her since it was unlike her to miss work without calling in. After not being able to reach her, I asked the Indianapolis police to go to her house and do a safety check. They found her and told me they thought she had died two days earlier since she was very cold. The coroner still put her date of death on March 30, so I guess they didn't have conclusive proof of when she died.
Since covid was just kicking off in March, everything was very hard to do. My sister and I couldn't travel to Indianapolis so everything had to be handled by phone and email. We couldn't have any type of Memorial service for her either as funeral homes hadn't yet installed remote video type services. Shock and disbelief were our constant companions at that time, as you can imagine. I always believed that out of the 3 of us siblings, I would be the first one to pass away, since I have always had the most medical issues. I never, in my wildest dreams, thought the youngest of the 3 of us would die first, at such a young age. It was a hard pill to swallow.
My family was slowly recovering from the shock of her death when a cousin that I grew up with, was rushed to the ER and deteriorated while there and ended up dying from multiple organ failure. This happened on May 15th. He was 58 years old. My family was thrown back into a cycle of grief, disbelief, and heart-ache.
We have been comforting one another and binding together as an extended family which has helped us all to deal with both losses. The sting of death is so strong and nothing eases the pain of missing a loved one. However we are managing their deaths as best we can.
Being able to physically post this thread, shows me I am dealing with the deaths a little better now. At least I can "talk" about it now. Thank you all for allowing me to to share. It is good to be back!
Although it has been quite some time since I last posted, I have been around and have kept up with all the happenings and misfortunes that have occurred. The losses deeply saddened me.
My own personal tragedies have kept me from opening up and posting an update, but finally I have moved past the grief and shock and find I can talk about my loses.
First, I can report that after 27 years of living with MS, I seem none the worse for wear. My neurologists tells me that my MRI looks exactly how he expects it to look for someone who has had MS for as long as I have been diagnosed. I am still mobile although I now rely heavily on my rollator to get around and keep my balance. Aside from some muscle cramps and spasms, I have no new symptoms to speak of. Fatigue/exhaustion is still my biggest "handicap" and I use Adderall sparingly to help with the problem.
I have been keeping safe during this pandemic and am happy that I will be able to rely on video appointments in the next 6 months, for doctor appointments. Since I rarely venture out of the house, I haven't had to be concerned with being in unsafe environments. Curt masks up and is staying as safe as he can when he takes care of our physical needs.
I must admit that 2020 has not been very good for us. On May 30th my beloved sister was found dead in her apartment. She was only 56 years old and apparently died during her sleep. The coroner told us that she died of organic cardiovascular disease assuring us she did not contract covid 19, which is what we naturally assumed she had. As her emergency contact, I was contacted by her job, requesting that I contact her since it was unlike her to miss work without calling in. After not being able to reach her, I asked the Indianapolis police to go to her house and do a safety check. They found her and told me they thought she had died two days earlier since she was very cold. The coroner still put her date of death on March 30, so I guess they didn't have conclusive proof of when she died.
Since covid was just kicking off in March, everything was very hard to do. My sister and I couldn't travel to Indianapolis so everything had to be handled by phone and email. We couldn't have any type of Memorial service for her either as funeral homes hadn't yet installed remote video type services. Shock and disbelief were our constant companions at that time, as you can imagine. I always believed that out of the 3 of us siblings, I would be the first one to pass away, since I have always had the most medical issues. I never, in my wildest dreams, thought the youngest of the 3 of us would die first, at such a young age. It was a hard pill to swallow.
My family was slowly recovering from the shock of her death when a cousin that I grew up with, was rushed to the ER and deteriorated while there and ended up dying from multiple organ failure. This happened on May 15th. He was 58 years old. My family was thrown back into a cycle of grief, disbelief, and heart-ache.
We have been comforting one another and binding together as an extended family which has helped us all to deal with both losses. The sting of death is so strong and nothing eases the pain of missing a loved one. However we are managing their deaths as best we can.
Being able to physically post this thread, shows me I am dealing with the deaths a little better now. At least I can "talk" about it now. Thank you all for allowing me to to share. It is good to be back!
Sorry to read of your pain and your achy muscles and bones. I decided to get a upright walker, in the hopes that I will correct my poor posture from using my rollator. It should be arriving within the next few days and I am excitedly awaiting its arrival.
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