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    Vns #3

    Just got back from my epileptologists office and they are lining me up for the instillation of my third Vagus Nerve Stimulator.

    It works so well for me that they want to make sure I have a new one before the batteries run out on the one inside of me.
    Dave
    Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
    www.howdydave.com

    #2
    For anybody considering having a VNS implant:

    I just got a "Heads Up" from my sister (who is an RN) that Medtronics now has one that allows you to have an MRI with the device inside of you.
    Look into it when you are considering all of the pros and cons.
    Dave
    Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
    www.howdydave.com

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      #3
      Howdy Dave,

      That's great news to hear! I wish you the best of luck with the new VNS. I was looking into that but I have more than 2 areas in my brain that
      are triggering seizures so my Epileptologist put me on cbd (med marijuana) and that has really helped me a lot.
      Here's wishing you only the best and May God Bless You!

      Sue

      Comment


        #4
        I got the VNS because it was discovered that I have activity and triggers in both temporal lobes when I was a candidate for epilepsy surgery.

        They can't amputate both halves of your brain don'cha know...
        Dave
        Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
        www.howdydave.com

        Comment


          #5
          The surgery went well and, I'm glad to say, this time they used glue rather than biodegradable thread to close the wound.
          When the biodegradable thread starts breaking apart, ends of it stick ya and it itches like crazy!
          Last edited by howdydave; 01-25-2018, 07:31 AM.
          Dave
          Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
          www.howdydave.com

          Comment


            #6
            Howdy Dave,
            I'm happy to hear that your surgery went well. The glue does itch like crazy but give it time and it will stop itching. I'm now looking into
            gamma knife surgery since the damage on both temporal lobes are so deep they can't get all of it by doing the temporal lobectomy so the gamma knife
            surgery is my next step. Wishing you only the best and May God Bless You!

            Sue

            Comment


              #7
              I had a VNS put in and it has helped some and now I am on the CBD (Epidiolex). I don't really feel like the CBD is making a difference although I am not at 'theraputic' level yet (I'm only at 5 mg a day).

              Comment


                #8
                ((((((SaraEve41)))))) ~

                TO BRAINTALK!

                So glad that you found us!

                Why is there a need to titrate up to a therapeutic level of CBD? It doesn't have the assorted evil side effects of AEDs, and while there might be a toxic level of CBD oil, how is it measured? Does it show up in blood tests?

                I'm happy that the VNS is working well for you, and I hope it continues to do so.

                Please drop by and visit again. This forum is a bit quiet these days, but if there is activity here, perhaps you will entice other members to return and chat.

                Love & Light,



                Rose
                Mom to Jon, 49, & Michael, 32, born with an undiagnosed progressive neuromuscular disease. Angel Michael received his wings in 2003. Angel Jon received his wings in 2019. In 2020, Jim, their Dad, joined them.

                Comment


                  #9
                  Hi SaraEve41,

                  Just like you I use the cbd oil and I use 5 mg. a day I don't get the Epidiolex I found out that had more chemicals than the natural cbd oil so I bought mine from a place on line called Healthy hemp oil.com
                  they have it in creams, inhalers and mouth spray. I use the mouth spray and so far it has reduced my seizures to the lowest in my life. I wish you the best of luck and May God Bless You!

                  Sue

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