BrainTalk Communities Inc http://www.braintalkcommunities.org/ Online neurological support groups for patients with brain disroders en Tue, 21 May 2013 19:57:28 GMT vBulletin 60 http://www.braintalkcommunities.org/images/misc/rss.png BrainTalk Communities Inc http://www.braintalkcommunities.org/ Autoimmune Disease and Gluten http://www.braintalkcommunities.org/showthread.php/3463-Autoimmune-Disease-and-Gluten?goto=newpost Tue, 21 May 2013 19:16:06 GMT
Quote:
Curr Allergy Asthma Rep. 2013 May 17. [Epub ahead of print]
Celiac Disease and Autoimmunity: Review and Controversies.
Denham JM, Hill ID.
Source

Nationwide Children's Hospital, The Ohio State University School of Medicine, 700 Children's Drive, Columbus, OH, 43205, USA, Jolanda.denham@nationwidechildrens.org.
Abstract

Celiac disease (CD) is an autoimmune condition affecting the small intestine, triggered by the ingestion of gluten, the protein fraction of wheat, barley, and rye. There is a strong linkage between CD and HLA-DQ2 and HLA-DQ8 haplotypes. Multiple case reports and small series suggest concordance between CD and other autoimmune disorders. This paper provides a brief overview of the pathogenesis of CD and reviews the literature regarding associations between CD and other autoimmune diseases, including the potential effects of gluten-free diet therapy on the prevention or amelioration of associated diseases.

PMID:
23681421
[PubMed - as supplied by publisher]
http://www.ncbi.nlm.nih.gov/pubmed/23681421

I would love to read the complete article. I wonder if they found the GF diet to help with the autoimmune disease. I would think they would based on hearing people's stories of recovery.

If you are new to Braintalk, The Gluten File has great information about autoimmune diseases that have been linked to CD and gluten sensitivity. www.theglutenfile.com
Anne ]]> Gluten Sensitivity / Celiac Disease annelb http://www.braintalkcommunities.org/showthread.php/3463-Autoimmune-Disease-and-Gluten Attorney Gary S. Mayerson to address statutory entirlements http://www.braintalkcommunities.org/showthread.php/3462-Attorney-Gary-S-Mayerson-to-address-statutory-entirlements?goto=newpost Tue, 21 May 2013 12:23:29 GMT On Monday evening, June 17, 2013, from 5:30 - 8 p.m., FACES and the Comprehensive Epilepsy Center will host the evening's Peace of Mind lecture by attorney Gary S. Mayerson of Mayerson & Associates. Gary will address statutory entitlements, and what parents can and should do to secure appropriate services and accommodations.

Join us at 5:30 - 6:30 p.m. for a pre-lecture social, an opportunity to network with other FACES parents. Light refreshments will be served. The lecture will begin promptly at 6:30 - 8 p.m.

The lecture will take place at the NYU Medical Center, Alumni Hall B, 550 First Avenue, New York, NY 10016

Admission is always FREE - please register online by Thursday, June 13, 2013. Capacity is limited.

A link to registration, along with updated information, details and schedule for Peace of Mind lectures are all available at the Peace of Mind page of the FACES website.

https://onlinegiving.nyumc.org/peaceofmind-schools

Video recording will be available online at the Peace of Mind page following the lecture.

___________________

About the presenter:

Gary S. Mayerson is a graduate of the Georgetown University Law Center and the S.I. Newhouse School of Public Communications at Syracuse University. In early 2000, Gary formed MAYERSON & ASSOCIATES as the very first law practice in the nation dedicated to representing children and adolescents with autism spectrum disorders and related developmental disabilities.



]]> Epilepsy Ted-T http://www.braintalkcommunities.org/showthread.php/3462-Attorney-Gary-S-Mayerson-to-address-statutory-entirlements Raw and Creamy Cilantro Sauce http://www.braintalkcommunities.org/showthread.php/3461-Raw-and-Creamy-Cilantro-Sauce?goto=newpost Tue, 21 May 2013 03:58:56 GMT hey all *bunch! i have never developed a taste for pesto. when i found this sauce, i was immediately intrigued. herbs, nuts, olive oil...sort of... hey all *bunch!

i have never developed a taste for pesto. when i found this sauce, i was immediately intrigued. herbs, nuts, olive oil...sort of pesto-ey. once i made it, i was hooked for life. i have used a couple spoonfuls on my salads, you could use it as a dressing for a pasta and veggie salad, a topping for a chicken breast, a dip for raw veggies...the possibilities are unlimited! i make a double batch, because it is so much work to wash and strip the leaves off the parsley and cilantro. i find that a good sized bunch of cilantro or parsley equals about 1 cup. i also toast my walnuts for about 10-15 minutes in a very low oven (275 degrees) to give them a better flavor. dried rosemary is fine also...although i don't know the exchange for fresh and dried herbs. if i have this in the frig longer than a day, i add a teaspoon of orange juice to it everyday to freshen up the flavor. i hope you try this and enjoy it as much as i do! jeannie

Quote:
Raw & Creamy Paleo Cilantro Sauce
■1 cup chopped cilantro
■1/2 cup chopped parsley
■1/2 cup walnuts
■1/4 cup olive oil
■1/2 medium orange, juiced, about 3 tbsp
■1 tbsp apple cider vinegar
■1/8 cup water
■1 spring fresh rosemary, about 1 tsp, chopped
■salt & pepper to taste (taste, adjust, taste again, taste again, and again…)

Pulse all ingredients together with a food processor or immersion blender, until mostly creamy- some chunks of walnuts add to the texture.
http://www.whatrunslori.com/2012/05/...ilantro-sauce/
]]> No Gluten Here tic chick http://www.braintalkcommunities.org/showthread.php/3461-Raw-and-Creamy-Cilantro-Sauce Get Well, Julia http://www.braintalkcommunities.org/showthread.php/3460-Get-Well-Julia?goto=newpost Tue, 21 May 2013 03:28:25 GMT hey all *bunch, we all know julia has been under the weather lately and today her dear hubby called me and said julia had her gallbladder out last... hey all *bunch,

we all know julia has been under the weather lately and today her dear hubby called me and said julia had her gallbladder out last week. i know what that's like and i hope getting this problem resolved will make her feel so much better!

julia, as part of the bt family, you are missed here! i hope to see your wise words and sense of humor back here soon!

GET WELL.jpg

jeannie
Attached Images
]]> Emotional Support tic chick http://www.braintalkcommunities.org/showthread.php/3460-Get-Well-Julia New here - MS Symptoms http://www.braintalkcommunities.org/showthread.php/3458-New-here-MS-Symptoms?goto=newpost Tue, 21 May 2013 02:58:04 GMT Hello, everyone. I am a 21 year old female who is Caucasian.
I've been experiencing some seriously strange symptoms, the latest being visual.

  • Nov 2012: Strange tingling in my feet, particularly around the balls of the feet/underside of the foot. The tingling was MUCH worse in my right foot.
  • The tingling continued for months, about 5-6. It is still present, but much less so now that I do not fixate on it so much.
  • May 2013: I've been noticing I've been walking into things. A lot. Not subtly or gently; I took out a huge chunk of skin when I walked into something in my apartment. I walk into doors, etc. Pretty often to the point of bruising.
  • May 2013: I now have a visual issue. I suspect it's Optic Neuritis. I went to the ER last night. My vision is foggy, blurry, and it seems like black things are gray. Red things look desaturated. My partner's face, when I look at it, loses some of its color. My left eye is affected. Things look wrong out of my left eye. There is also pain/pressure behind the eyeball and around the socket. Pain started April 25th or so, of this year. It is now May 20th and the pain is still here, and now I can't see as well.


I went to the ER, like I said, and got an ophthalmologist appointment for tomorrow morning. Thank GOD. Does this sound like Optic Neuritis?
I forgot to add: The visual fogginess gets SO MUCH WORSE after heat exposure. I was on vacation with my partner 2 weeks ago and we were in a hot tub. 3 minutes later, I said "I can't see so well out of my eye that hurts." I notice when I shower, the visual fogginess is incredibly worse.

I am not convinced I have MS, but I am not convinced I don't!
I have never had an MRI or a CT scan on my brain or head. I wish I could have one.

What are my next steps after the appointment tomorrow? I hope my specialist has some answers. ]]> Multiple Sclerosis babylamb http://www.braintalkcommunities.org/showthread.php/3458-New-here-MS-Symptoms Auto-ject Copaxone http://www.braintalkcommunities.org/showthread.php/3457-Auto-ject-Copaxone?goto=newpost Mon, 20 May 2013 17:55:42 GMT Hi,

Don't knwo if any of you use the auto-ject for copaxone but I do. I was off it for quite sometime due to financial difficulties but have started it again.
It seems to me that there used to be a swishing sound towards the end of the injection when you injected it using the auto-ject. I no longer hear that sound.
Do any of you hear/heard that swishing sound or have I completely lost it? ]]> Multiple Sclerosis newone http://www.braintalkcommunities.org/showthread.php/3457-Auto-ject-Copaxone <![CDATA[pernicious anemia ..... I could'nt find any info]]> http://www.braintalkcommunities.org/showthread.php/3456-pernicious-anemia-I-could-nt-find-any-info?goto=newpost Mon, 20 May 2013 15:04:52 GMT Hello! Is there anyone out there that has this.It's been a long time since I was here, and things here have changed a lot.This was the place that I learned so much about PA, and I hope to learn some more.So if you have this disease please let me know: ]]> boo http://www.braintalkcommunities.org/showthread.php/3456-pernicious-anemia-I-could-nt-find-any-info Medical Records http://www.braintalkcommunities.org/showthread.php/3455-Medical-Records?goto=newpost Mon, 20 May 2013 07:03:07 GMT Hi All - hope this finds everyone well. My question is: When I talk to my Psychiitrist at the VA, Is there ANY way I can ensure that those records... Hi All - hope this finds everyone well. My question is: When I talk to my Psychiitrist at the VA, Is there ANY way I can ensure that those records are shared with NO ONE? (including other VA doctors) I have personal reasons for this, I actually go to a medicaid clinic, I am on SSI, and I would love to unload on my shrink (VA), BUT, I feel it is between me and him - and it is NO one else's business as I value my privacy, sadly, a very precious commodity these days. My only other option, would be to go to a walk- in clinic as a homeless person with no ID and hope to be seen and decline to share or sign ANY paperwork that had my name on it. I have serious issues that I Know I need to address but I am NOT willing to give up my right to privacy. thoughts?
I would add that I am an ordained minister and I would NEVER divulge something discussed with me to anyone else unless they asked, or they needed more then I could provide in which case I would get a written consent form after counseling them on the ramifications of doing so.
Blessings
Alex44
Skypilot ]]> Chronic Pain alex44 http://www.braintalkcommunities.org/showthread.php/3455-Medical-Records Is this possibly a seizure my 3 yr old is having? http://www.braintalkcommunities.org/showthread.php/3454-Is-this-possibly-a-seizure-my-3-yr-old-is-having?goto=newpost Mon, 20 May 2013 03:07:08 GMT Long story short there is no epilepsy in my family, my brother has a condition that causes them if his calcium etc levels get too low but other than... Long story short there is no epilepsy in my family, my brother has a condition that causes them if his calcium etc levels get too low but other than that there hasn't been any solid conditions diagnosed. My 9 yr old had petit mals when he was 18 mths and it resolved itself for no reason. My three yr old has always, as all my others, twitched since they were babies but what happened last night scared me to death. His bed has a side slated board to keep him from falling off. He generally hits it at least several times a night. I even padded it to keep him from hurting himself. I heard him hit it hard then heard the board rattling. I got up saying what in the world are you doing? When I put my hand on him I could feel what I thought was hard shivering. First thought was he was cold so I pulled the covers up and my hand brushed his arm. His muscles were rhythmically twitching. I ran to my bathroom to hit the light so I could see him. He was fast sleeping, not twitching/shivering as he was but still a little twitch not so rhythmic. For reference he is suspected of having autism, he has major sensory issues, speech delay. ]]> Child Neurology jdoxakis http://www.braintalkcommunities.org/showthread.php/3454-Is-this-possibly-a-seizure-my-3-yr-old-is-having CJD BLOOD SCREENING, DONORS, AND SILENT CARRIERS House of Commons Written Answers http://www.braintalkcommunities.org/showthread.php/3453-CJD-BLOOD-SCREENING-DONORS-AND-SILENT-CARRIERS-House-of-Commons-Written-Answers?goto=newpost Mon, 20 May 2013 02:19:44 GMT Sunday, May 19, 2013 CJD BLOOD SCREENING, DONORS, AND SILENT CARRIERS House of Commons Written Answers 16 May 2013 ... Sunday, May 19, 2013

CJD BLOOD SCREENING, DONORS, AND SILENT CARRIERS House of Commons Written Answers 16 May 2013

http://creutzfeldt-jakob-disease.blo...nd-silent.html



tss ]]> Creutzfeldt Jakobs Disease (CJD) flatfish http://www.braintalkcommunities.org/showthread.php/3453-CJD-BLOOD-SCREENING-DONORS-AND-SILENT-CARRIERS-House-of-Commons-Written-Answers Will this help my neuropathy pain? http://www.braintalkcommunities.org/showthread.php/3452-Will-this-help-my-neuropathy-pain?goto=newpost Sat, 18 May 2013 23:30:19 GMT I was just told that a medication that you can get online called Neuropathy Support Formula can help decrease the amount of pain caused by... I was just told that a medication that you can get online called Neuropathy Support Formula can help decrease the amount of pain caused by Neuropathy. Does anybody know about this? Does it really heal the damaged nerves? After 10 years of pain I will try almost anything IF it works. boo ]]> Peripheral Neuropathy boo http://www.braintalkcommunities.org/showthread.php/3452-Will-this-help-my-neuropathy-pain Frustrated http://www.braintalkcommunities.org/showthread.php/3451-Frustrated?goto=newpost Sat, 18 May 2013 13:36:03 GMT I am so happy that I was able to find this thread. It definitely makes me feel less alone, so thank you. About 5 weeks ago, I started with what I... I am so happy that I was able to find this thread. It definitely makes me feel less alone, so thank you.

About 5 weeks ago, I started with what I thought a bad sinus infection, my nose was running nonstop. I went into an ENT at the advice of my primary this past monday and he sent me for a cat scan as well an MRI. I was told that I am leaking spinal fluid from what they thought was a pituitary gland, but after a neurosurgeon viewed the test results, he said no that it was a simple tear in the membrane. Now back to the ENT, while he agrees it's a tear, he doesen't understand why it tore in the first place. He keeps throwing out different scenarios and diagnosis, but is consulting with different radiologists as well the same neuro surgeon. I appreciate his diligence at not jumping into the unknown, and while he says I am in no physical danger at this point, I am positively terrified. I have always been healthy, never the first issue. The only time I've had surgery was when I was 5 for my tonsils, and thats it except for child birth. I just want someone to tell me what is wrong without a doubt and fix it. He is now saying that one of the radiologists wants to do a dye test through my spine and run a cat scan. He doesen't want to put me through that, but we may have no option. All the while, if I tip my head forward just slightly, it gushes the fluid out. I have no other symptoms, no headaches, no dizziness, nothing. It's very frustrating to have something wrong with you and noone seems to know why. I wish they could just spray something up there and let me get about my life.

Any advice or thoughts would be greatly appreciated.
Lauren ]]> Cerebrospinal Fluid (CSF) Leak LaurenSchuch http://www.braintalkcommunities.org/showthread.php/3451-Frustrated Celiac blood test http://www.braintalkcommunities.org/showthread.php/3450-Celiac-blood-test?goto=newpost Sat, 18 May 2013 12:21:15 GMT I'm so glad to see this forum so active now! My daughter has been Gluten free for almost 3 years now.I have been extremely careful about ehr diet. Last week ehr GI doc tested her celaic numbers and they were still a bit high. 31 I believe. From what I was told when she was first tested (and it was 150) normal was below 20. So it's not exactly normal. He wasn't concerned but I do wonder about this. Does anyone know exactly what his means? Doesn this mean she has been still getting gluten over an extended time? Does it mean she may have just gotten some before the test? Is it "normal" to still be a little high after 3 years? I don't know what mroe I can do as far as being careful. It's really hard since manufacturers lable things Gluten free yet they are manufactured in plants and sometimes on the same machinery as gluten products. I try to stick wiht whole foods and certified GF but there are just some things that I have to have faith in and use. Very confusing... She has other issues with ehr tummy so I never know if she got glutened or if it's her other problems. She ahs down syndorme so her communication of these things is difficult.
Mary Grace ]]> Gluten Sensitivity / Celiac Disease mg12061 http://www.braintalkcommunities.org/showthread.php/3450-Celiac-blood-test Reaching a goal: Commencement! http://www.braintalkcommunities.org/showthread.php/3449-Reaching-a-goal-Commencement!?goto=newpost Sat, 18 May 2013 04:18:43 GMT Hello,
You probably are aware that I am in school to attain my Master's degree. I thought I would share with you that I will be attending commencement and walk across the stage this weekend. Although the coursework will be completed in a few months, the ceremony is held now, and I have decided to participate. I wasn't going to go, but things fell into place. I am so excited. It will be a very fast weekend as I still have work to do, but I wanted to share the near end of this leg of my journey with you, my BT friends and family! Tattoo ]]> Epilepsy Tattoo2 http://www.braintalkcommunities.org/showthread.php/3449-Reaching-a-goal-Commencement! Future Planning When Capacity is an Issue: A New Blog about A Great New Idea! http://www.braintalkcommunities.org/showthread.php/3448-Future-Planning-When-Capacity-is-an-Issue-A-New-Blog-about-A-Great-New-Idea!?goto=newpost Fri, 17 May 2013 22:43:21 GMT http://www.donnathomson.com/2013/05/future-planning-when-capacity-is-issue.html Sending a big hug on this beautiful spring evening to all my... http://www.donnathomson.com/2013/05/...-is-issue.html

Sending a big hug on this beautiful spring evening to all my friends here at CN2 xoxo Donna ]]> Child Neurology Donna Thomson http://www.braintalkcommunities.org/showthread.php/3448-Future-Planning-When-Capacity-is-an-Issue-A-New-Blog-about-A-Great-New-Idea!