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  1. funnylegs4's Avatar
    Quote Originally Posted by David Hosobuchi
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    Yes funnylegs4, I have some familiarity with this. One type of way the brain does this is called collateral sprouting. Where there is continued stimulus along the interrupted nerve pathways due to injuries, the dendrites can "sprout" in some cases a great distance to bridge the gap between old connections. I understand that it takes much therapy, determination, and patience from the patients, but is possible.
    Yes I just read this when learning about dendrites in a class(the structure of neurons in itself is amazing, such a well oiled machine). They said some of this kind of idea started in the 1980s and 1990s but they are finding more proof of it now. Practice and repetition are the main thing for building new connections. I constantly remind myself of this in my therapies.
  2. David Hosobuchi's Avatar
    Yes funnylegs4, I have some familiarity with this. One type of way the brain does this is called collateral sprouting. Where there is continued stimulus along the interrupted nerve pathways due to injuries, the dendrites can "sprout" in some cases a great distance to bridge the gap between old connections. I understand that it takes much therapy, determination, and patience from the patients, but is possible.
  3. funnylegs4's Avatar
    This is amazing stuff!!! Thank you so so much for sharing! It reminded me of this post http://www.enterthefaun.com/whats-in-a-brain/ Apparently this kind of focus is already being used on people with CP and dystonia so it makes perfect sense to me that you have the ability to focus on individual body parts to control seizures. From what I understand brain cells themselves don't regenerate(if they die they don't come back) but the connections between the cells that are alive and left to function normally change and can take over the functions of any brain cells that are dead. Even in older adults. The connections between the cells are the new pathways. Indeed we can heal ourselves but sometimes it is a slow process. I have learned that working with the brain and body takes immense patience but it is totally worth it! Keep it up!!!
  4. David Hosobuchi's Avatar
    Hi Jeannie,

    Yes, I have done some research on building neural pathways, what is called learned response, and then repetitive stimulus through these paths to reinforce this. Practice makes perfect. Sort of like learning to ride a bike. Once engrained, it becomes second nature. What I have learned from this is astounding. What the nervousness system is capable of under certain circumstances can really blow your mind!

    As for what you describe as panic attacks, they do sound like they could be similar in some way if in fact they are a simple partial seizure.
    I can't say I use the same technique for relaxation, and I think it would be too difficult to explain exactly what I do here, and really I don't know if I could.

    The 1st thing is to realize that it is a seizure. Then realize that you can do have some level of control, as long as you are conscious and can focus on what you are doing. That in itself is a very self empowering tool. Because even if you fail, you will learn from it and remember what you did. You will learn what does & doesn't work. Everyone falls when learning how to ride a bike. You just get back on and try again. Each time you get better at it.

    There are several reasons that makes me keep going on with this is, one is the thought that possibility that one day I may build up these pathways to the point where drugs are no longer needed to help control my seizures. I also have a few that are based on more "what ifs" than actual proven & established means. What if this could be taught to children with similar forms of seizures. The brain of a child, by its very nature is much more able to learn and grow. It is only rational to think that they would be able to make use of techniques like this more effectively than adults. Another is along the lines of using neuromodulation in conjunction with what could be learned from EEG telemetry of this. Perhaps a new type of simulator could be developed?

    I also do know a bit about the history of neuromodulation. That was very much along the lines of my father's specialty. He happened to be a pioneer in that field. Curious? Look up Dr. Yoshio Hosobuchi; keywords: Deep brain stimulation, pain control, neuromodulation.
  5. David Hosobuchi's Avatar
    Quote Originally Posted by Virginia
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    David, thanks so much for this post. It is obvious that you are a very strong minded person - to do what you did without the advice of your Physician Father. You seem to have done extremely well with the handling of your situation. I am happy for you and for us here on this board.Virginia
    i have always listened to the advice given from my father, and valued it. Though I have not always used or followed it exactly in the way it probably was intended.Really, at the time I did this, I have to admit that I was young, brash, more stong willed, rather than strong minded. My purpose was mainly to show my father that as an adult, I could take control of my own health problems and knew enough to seek proper care. I had also decided that it was time to seek an outside opinion, one that would not have personal issues. Having a father for a doctor was good enough when you had a cough or a cold. He even diagnosed the fractured fibula that would have gone unnoticed on the x-ray at the ski slopes when I was 8. Though for a chronic condition outside of his specialty, especially for family, I realized it was not the proper way to get treatment. I decided it was time to act in my best interests.
  6. tic chick's Avatar
    hey david!

    what an interesting story!

    i'm reading your story and seeing the similarities between my panic attacks and your seizures. the impending sense of doom, the terrible anxiety and the stomach twisting are all parts of my panic attacks. my panic attacks happen during times of stress also, but not exclusively. i realize that i am already hyperventilating when i get the feelings of doom, etc. i learned the trick about regulating my breathing while breathing into a plain, brown paper bag. i never knew why this worked until i googled it and found the answer: http://en.wikipedia.org/wiki/Hyperventilation_syndrome , what is interesting is that it says people with epilepsy shouldn't use the technique of "overbreathing" to diagnose hyperventilation syndrome. it also says that the feelings that hyperventilation causes are caused by "respiratory alkalosis" or high blood pH. if i don't have a paper bag handy, i also use the techniques of counting how long i inhale and exhale and also of relaxing muscle groups from my feet to my head, maybe the same ones you use.

    i started to use benzodiazepines at age 32 to control the 2-3 weekly panic attacks i had been having since i was 19 y/o, which started after a traumatic incident when i was 18 and also caused the post traumatic stress disorder i was also dx'ed as having. i only have a panic attack maybe once every year or two now, depending on what's going on in my life. once i realize i am hyperventilating, i can easily stop that and thus stop the panic attack, but i don't notice my breathing patterns until i am hyperventilating.

    i sincerely believe that your brain is building new neural pathways that are helping your brain to be flexible in fighting your seizures. by meditating and using other techniques, you give your brain the power to "ride the waves" of your seizure. there is a very good facebook page and also a website called "the mind unleashed" (www.themindunleashed.org). recently, they had an article on breaking habits (and creating new neural pathways), that i read: (http://themindunleashed.org/2014/03/...-pathways.html). i realized these are methods i had already read from various sources when i set out to try and lose weight (something i had already tried and had little to some success). this time, i managed to lose a bit over 100 lbs. and keep it off since 2006. i truly believe that new neural pathways changed the way i viewed eating and what and how much i ate and allowed me to slowly build the pathways i would need to "ride the waves" of the habits that led me to overeat.

    the brain is a mighty powerful tool. we have to learn how to harness it's power to heal ourselves. we have to put our brain in synch with our spirit, our spirituality, good nutrition and positivity towards all life on this Earth.

    i congratulate you on having the courage to undertake this journey and for the successes you have had. i hope you reach your goals. i'd be interested in any sources you read on the internet or elsewhere about building new neural pathways.

    “The green reed which bends in the wind is stronger than the mighty oak which breaks in a storm.” Confucius

    thank you for sharing,
    jeannie
    Updated 04-17-2015 at 09:49 AM by tic chick
  7. Virginia's Avatar
    David, thanks so much for this post. It is obvious that you are a very strong minded person - to do what you did without the advice of your Physician Father.

    You seem to have done extremely well with the handling of your situation. I am happy for you and for us here on this board.

    Virginia
  8. David Hosobuchi's Avatar
    It has been amazing what a little knowledge about neurology, combined with common sense, and I must admit a years of dedication have accomplished. I wish to thank all of the members here for that, you have all helped me keep my personal dedication in this.

    Thanks for your comments. Questions, or anything else, I encourage you to please keep them coming.

    To all readers: Keep in mind that everyone's seizures are in a way very unique to themselves, so it can't be ruled out that the technique I have developed to stop a simple partial seizure from generalizing could possibly be unique to me. So don't just try jumping off your Meds to try this! Like medications, it might not be the right one (way to fight) for you. It could have detrimental reprocussions.
  9. Lazarus's Avatar
    Thank you for this interesting review of your decisions about medical care
  10. Jeanie Z's Avatar
    :) Thank you for sharing your seizure story. One of my dear friends as a teen had awful seizures. Over the years I have lost track of him but I hope he is having the ability to control his seizures too. Jeanie :)


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