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  1. funnylegs4's Avatar
    Quote Originally Posted by Donna Thomson
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    Do you blog, Funnylegs4? It would be lovely to hear about your mentor and how he/she supports you... in filmmaking?
    Right now the only blog I have is here http://cripvideoproductions.tumblr.com and I'v posted a new update on these Braintalk blogs yesterday. I am building a new website that will have even more posts. If you are interested in my mentors I will certainly write about them. They are extremely special to me. :)
  2. Donna Thomson's Avatar
    Do you blog, Funnylegs4? It would be lovely to hear about your mentor and how he/she supports you... in filmmaking?
  3. funnylegs4's Avatar
    Beautiful post! I have a deep bond with my mentor so I relate to this for sure.
  4. funnylegs4's Avatar
    Great post! I'll have to see this movie. My mentor finds "the spaces in between" very important and your post helped me see why.
  5. Donna Thomson's Avatar
    Ahhhh Rose, perhaps somewhere in your background there is an Native American Princess! Or then again, it could just be the wisdom resulting from years of extreme caregiving. You've described a scenario of this technique perfectly! xoxo
  6. Earth Mother 2 Angels's Avatar
    ((((((Donna)))))) ~ Great advice and application to caregivers!

    I've just been employing STOP the past few days, as Jon began bleeding from his catheter, and then developed a fever for 2 days, and fluid retention.

    First, I have to physically remove myself from Jon's room, after I've stood beside him pondering what to do, and felt inadequate and unequipped with an answer. Walk outside, do some laundry, drink some water, whatever it is that will distract my mind for a few moments.

    Then, I start lining up the potential causes for his condition. Could it be this? Could it be that? Rule in/rule out.

    Next I apply all of those causes to Jon, as I observe and thoroughly assess him. I identify options to help him, then implement them according to which seems to fit his problem best. In this case, it was 2 Tbsp of MOM. His bowels were slow. It helped. His temp came down, as did some of the fluid.

    Ah, but then I planned! I wrote an email to Jon's nurse inquiring as to whether she thought Jon would benefit from a CBC/CMP blood draw, including thyroid and other checks. Since Jon has improved, we will likely wait until his next nursing visit in September for the blood draw. But it's on the table now, if I want to do it sooner.

    I've actually been doing this for decades, and I had no idea that it's a First Nation survival technique!

    Healing prayers for Nick, you, and your entire family ~
  7. funnylegs4's Avatar
    I had no idea Nick has a blog! He is a good writer like his mother :)
  8. Donna Thomson's Avatar
    Thank you so much for your thoughtful and sensitive comments! I hate being asked what 'I do' as well - you know, just a Mom at home! I too love gardening and making things grow - my colleague Al Etmanski (a disability guru in Canada) has publicly called for a 'an igniting of the importance of the ordinary' - I think he's on to something! And hey, we can lead that revolution!
  9. Donna Thomson's Avatar
    Thank you, dear Rose! I simply cannot imagine how devastating it must have been to receive your sweet Michael's diagnosis. I remember thinking when I was pregnant with Natalie that if she was born with a disability, I wouldn't know what to do. I was already struggling so much to keep Nick alive - I knew I would never be able to look after another high needs child. And then, when she was born, I remember crying (hormones, I am sure!) that I was so scared - I didn't know how to look after a NORMAL baby! Of course, that was only for an hour a few hours post birth. Boy, normal neuro babies are very efficient at teaching you what they need and they are also very effective (like all babies) at seducing you into falling in love with them immediately! Anyway, thank you for sharing your thoughts and wisdom of experience, Rose! Sending you love as always, xo Donna
  10. Earth Mother 2 Angels's Avatar
    Donna ~ As always, full of insight and food for thought. I felt like I was in the room with you at the hospital, when the doctor began explaining Nick's test results. What a journey to now, 25 years later, as Nick thrives and lives his life to the fullest. Defying all of the odds.

    Like you, I've been on both ends of the generational spectrum with care giving and family members developing disabling conditions. Because of the challenges my boys faced, I feel that I was more understanding and patient with my elders. My parents were around the age I am now, when they passed. I felt then that they were too young, and even more so now, since I consider myself relatively "young" in senior years. In dog years, I'm Methuselah.

    When Jon was diagnosed with a developmental delay of unknown origin at 9 months, I felt much as you did with Nick. "Ok, now we know what's going on, we can attack it! We can give him everything he needs, and he will be just fine!"

    When Michael was diagnosed at 6 months, I was completely, utterly lost. And, because I asked the pediatrician, "How is this possible?" he speculated, "Possibly a double recessive gene." Thus, it became MY FAULT. Or, it became "OUR FAULT," because both the bio donor (nicest term) and I carried the same stinking recessive gene.

    So all of that "we'll do everything for him, and it will all be fine" stuff went out the window and became, "What are we going to do now?!" Fear. Panic. Guilt. A complete lack of knowledge about anything even remotely related to what we were going to face in the next 40+ years.

    Life ~ the ultimate learning experience!

    My heart goes out to you, as you endeavor to split yourself into clones to tend to the needs of your mom and Nick, and all of your loved ones, including yourself.
  11. tic chick's Avatar
    hey nick and donna!

    while i am not into heavily inked wrestlers , i am into people having passionate interests and being able to share them with others.

    i dislike being asked what i "do" for a living. it seems a lot of people equate your job, your salary, etc., with your worth to society. i have never worked for a salary since i was married, which is a detriment to me right now, being a separated woman at age 59, but i have donated thousands of hours of volunteer work to the private school where my children and other children attended. i think i have helped foster their dreams for their future. i hope my sharing and caring has made a difference to people on these forums. i currently share my knowledge of gardening with any child or adult who stops to ask me a question on what i am doing in my backyard or my front yard.

    i congratulate nicholas for sharing his passion with everyone! i read this quote on facebook today and i think it apropos to this blog title: "The plain fact is that the planet does not need more "successful" people. But it does desperately need more peacemakers, healers, restorers, storytellers, and lovers of every shape and form. It needs people who live well in their places. It needs people of moral courage willing to join the fight to make the world habitable and humane. And these needs have little to do with success as our culture has defined it". David W. Orr

    thank you for caring and sharing, jeannie
    Updated 07-22-2014 at 10:01 AM by tic chick
  12. Mike Weins's Avatar
    I deleted Lauren from the filters and re-entered Laurentian into the blog :) Not sure why the photos aren't showing up.
  13. Donna Thomson's Avatar
    Quote Originally Posted by Donna Thomson
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    HaHa, yes Mike, those are the mountains, funny to be connected to a designer! But I'm so glad that you are on the lookout for those annoying spammers. And yes, I must change my signature now! Natalie turned 22 last January! :)
    Oops sorry, Mod #7, I thought you were Mike. Just read 'recent visitors' and saw that you are, indeed, NOT Mike!
  14. Donna Thomson's Avatar
    HaHa, yes Mike, those are the mountains, funny to be connected to a designer! But I'm so glad that you are on the lookout for those annoying spammers. And yes, I must change my signature now! Natalie turned 22 last January! :)
  15. Moderator #7's Avatar
    Dear Donna,

    I did a little searching and think you are referring to the L-a-u-r-e-n-t-i-a-n mountains?

    If so, I think the word "L-a-u-r-e-n-t" is part of the spam catchers list of words that cause part of the name to be blocked (****) off. I think this one is blocking the name of a famous designer.

    If that's it, just drop a note to Mike and if it's not, drop a note to Mike, also .
  16. funnylegs4's Avatar
    Again a lovely post Donna. I deeply value friendship but am happy alone sometimes. If your daughter is 22 you should change your sig since it says she is 21, not 22. hmm the mountain block is weird, maybe it is a safety feature?? Like something to prevent people from saying their exact location? I don't know.
  17. Donna Thomson's Avatar
    Sorry guys, the photos wouldn't load and I don't know why it blocked out the name of my home mountain range. Strange!
  18. funnylegs4's Avatar
    Quote Originally Posted by Donna Thomson
    This quote is hidden because you are ignoring this member. Show Quote
    Thank you for sharing! You know, I'm really interested in personal power politics and how those play out in disability. So, for example, beautiful people excluding less beautiful people, less beautiful people putting down paras, paras putting down quads or developmental disabled, you get the picture. What are the antidotes to equalizing power in society and what's wrong with listening and being friendly? Is the barrier fear? It's definitely something to do with the 'other' and I remember reading a study somehwere that said even people with severe disfigurement have these prejudices. Anyway, I'd love to see a film on that! (isn't that what the old film 'Freaks' tried to do maybe?) x Donna
    You're welcome. Thanks so much for the suggestion! To me personally it has to do with valuing every single person equally. Everybody is aways going to have prejudices and some people are always going to be quote on quote "better" looking or have more physical abilities,nothing is going to change that, but if you value humanity equally there is mutual respect. When somebody looks different or has a different opinion people put less value on them,and I find it very sad. I'm working on developing a larger film project after this current one that does deal with some of this as part of the plot.
  19. Donna Thomson's Avatar
    Thank you for sharing! You know, I'm really interested in personal power politics and how those play out in disability. So, for example, beautiful people excluding less beautiful people, less beautiful people putting down paras, paras putting down quads or developmental disabled, you get the picture. What are the antidotes to equalizing power in society and what's wrong with listening and being friendly? Is the barrier fear? It's definitely something to do with the 'other' and I remember reading a study somehwere that said even people with severe disfigurement have these prejudices. Anyway, I'd love to see a film on that! (isn't that what the old film 'Freaks' tried to do maybe?) x Donna
  20. funnylegs4's Avatar
    Quote Originally Posted by Donna Thomson
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    Thank you so much for your kind words! Yes, it was the car accident (we believe) that caused Nick's CP. But hey, what's the difference, right? It is what it is and we all have to just live with what opportunities and challenges we have. I just LOVE how you find camraderie in walking with seniors because of the slower pace. That is just awesome - I think that's what the non-english native english students found with seniors too - they could all slow down and practice and chat and be real. There's something really, really good in that.
    Thanks for sharing and I LOVE your film work!!!!! x Donna
    You're very welcome Donna! Exactly! It doesn't make any difference. Everybody has some challenge in life. I'm just more interested in the inner medical workings of CP lately. Probably later in July I might blog here about why my own disability has become more of a fascination for me. I find that the elderly are very honest too, a lot of the time, and I like that. They have a lot to teach us. Thanks for your support of my films! I am planning a blog post about my newest film. Is there anything about my filmmaking process you would particularly like to hear about??? Sorry to jump into me here. Just curious.
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