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  #11  
Old 10-13-2006, 11:36 AM
linniec linniec is offline
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Default Photosensitivity, Graphics, and Epilepsy or other neurological conditions

Boy,
You've all taught me a lot today (don't get too pleased-teaching me a lot is easy). 1. I always thought that the refresh rate of a CRT (Cathod Ray Tube)=older monitors, was immutable-come to find out, as of today,it's changeable.(the refresh rate of a CRT, when we install the monitor out of the box, is just the default) 2. Didn't realise that the problem is with colors too. (Aarg! that's two things in one day!! ) I kinda knew that the LCD(Liquid Chrystal Display) monitor is easier on the eyes of people who are photosensitive.So see, I do know something!

Linnie
Atlanta,Georgia
"Beyond a wholesome discipline, be gentle to yourself...or with yourself."

Last edited by linniec; 12-22-2006 at 09:48 AM. Reason: just to put a . and a,
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  #12  
Old 10-13-2006, 03:20 PM
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David Hosobuchi David Hosobuchi is offline
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Quote:
Originally Posted by Porkette View Post
Hi Firehorse,
The bright colors always triggered absence (petit mal) or complex partial sz. for me. Florescent green on the old apple 2 E monitors was what really bothered me the most. I would be typing at work for about 5 min. and then I would always go into a sz. Here's wishing you well and May God Bless You!


Sue
Hey Porkette,

About those simple partials, do you still ever try to fight them conciously?

Firehorse
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  #13  
Old 10-13-2006, 06:18 PM
Porkette Porkette is offline
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Originally Posted by David Hosobuchi View Post
Hey Porkette,

About those simple partials, do you still ever try to fight them conciously?

Firehorse
Hi Firehorse,
In regards to the simple partials I still fight them consciously by tightening up the muscle in all of my body and making my hands into tight fists for a few seconds, it has stopped many aura sz. from leading into a cp sz. or absence sz. The moment I get a nervousness in my stomach or start to see colors in my eyes is when I tighten up the muscles and the sz. stops. Here's wishing you well and May God Bless You!

Sue
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  #14  
Old 10-13-2006, 06:39 PM
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David Hosobuchi David Hosobuchi is offline
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Default Fighting Auras/Simple Partials from becoming larger Seizures

Quote:
Originally Posted by Porkette
Hi Firehorse,
In regards to the simple partials I still fight them consciously by tightening up the muscle in all of my body and making my hands into tight fists for a few seconds, it has stopped many aura sz. from leading into a cp sz. or absence sz. The moment I get a nervousness in my stomach or start to see colors in my eyes is when I tighten up the muscles and the sz. stops. Here's wishing you well and May God Bless You!

Sue
Perhaps this might be a good subject to revisit???

Firehorse
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  #15  
Old 10-16-2006, 10:26 AM
Yi Win Yi Win is offline
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Hi,

I just had what I class a a 'dappy fit' due to the first taste of being in a car in the dark coming home last night - white lines in the centre with the headlamps on set me off (dont worry I wasnt thedriver!)- I just did a quick search on photosensitivity and came up with this site.

So it seems I am not alone, not a freak and there are others who have this horrid association with (in my case) mainly fluorescent lights!!!

I expect all you lot know how hard it is to live with this condition in the modern world of fluorescent office lights and computer screens!!!

I currently do not work as I am "unemplyable" (according to comnpanies) due to this condition - anyone else having similar problems?

Anyone there who suffers with this - please let me know how you cope and survive!!!
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  #16  
Old 10-16-2006, 02:14 PM
waralan waralan is offline
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Default photosenitevy

I don't have troukle with flashing lights on my screen, as I tend to look at the keys when I am typing.
Anyway photosenivity is supposed to affect roughly 3 % of people who have epilepsy.
In my case flashing lights at a hockey bother me much more.
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  #17  
Old 10-16-2006, 03:46 PM
RanMan RanMan is offline
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Hi everyone,

I find that the use of flat screen PC monitors/TV's can reduce the threat of a seizure b/c no glare, not as much flashing lights for ppl with photosensitive Ep and also better for the eyes.

Randy
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  #18  
Old 10-16-2006, 05:11 PM
annie annie is offline
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Quote:
Originally Posted by Yi Win View Post
So it seems I am not alone, not a freak and there are others who have this horrid association with (in my case) mainly fluorescent lights!!!
hi yi win, welcome to the forum.

no, you are not alone.

but you have more of a problem than photosensitivity. you need to go to a neurologist and tell the doctor what you are telling us. you need to be tested for seizures.

many people have seizures that can be treated. after they are under control you will get your life back.

so welcome to the group. hope that you get good medical care soon.

and the most important thing to know is that enough chocolate can cure anything.
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hugs and chocolate to everyone
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  #19  
Old 10-16-2006, 07:27 PM
linniec linniec is offline
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Hello Yi Win,
I hope you will be happy here.
I have looked at my cache of old responses about your two problems with 1. fluorescent lighting and in 2. being employable . Here are some of the more interesting responses--though none of the people here are doctors, their responses are from their own lives.

Several Persons reported:
If a store (or a street) is lit with fluorescent lighting that is parallel to the way you are walking or riding, it is bad.
An Optician (Eye Doctor) might suggest Polaroid lenses: they work well . Polarised lenses are available in prescription lenses, as bi-focals too. Polarised/polaroid lenses change the refraction patterns and they remove the "glare" from reflected sunlight, such as across water , very well. They also make driving or riding along tree-lined roads where the sunlight or the lighting "flashes" at some speed. Winter-time when the sun is low in the sky is much "comfortable"!
Anyone who suffers from light-stimulated problems (fluorescent lighting ) might talk to an Optician/Optometrist(Eye Doctor) for their opinion/knowledge.
Overhead fluorescent lighting in parallel with a monitor can become unbearable after 10 minutes. Fluorescent lighting is not quite so bad when it is at at right angles (90 degrees). A flat screen (LCD is short for Liquid Chrsytal Display) reduces the problem. Perhaps you should use A flat Screen, LCD, both at home and work. It may (just may) almost eliminate the reaction caused by Cathode Ray Tube (CRT) monitors/TV . Your job at Work may accommodate this problem if fluorescent lights can be turned off around you and you can sit next to large windows for maximum natural light).

Another interesting and innovative response from one person was as follows:

" Flourescent lights, tv's, (which are Cathod Ray Tubes or CRT's ) and standard computer screens (which are also Cathod Ray Tubes or CRT's ) are flashing lights,but the term flicker has always been used to refer to these.

I went to my local pharmacy and bought an eye patch for $3.00 .
Now, whenever I am in an area of flourescent lighting and/or Cathod Ray Tube(CRT) screens, I wear a patch and 100% of the time it has been effective.the results of this person's experiment were as follows:.

I found that the "Flourescent Light" syndrome that we suffer from is BINOCULAR (Two-eyes) and if we cover one eye, it doesn't matter which eye,left or right, we see monocular (One-eye) and will not realize any symptoms. It has worked for me 100% percent of the time."

Linnie
Atlanta,Georgia
Peace go with you

Last edited by linniec; 12-22-2006 at 09:52 AM. Reason: adding the words ----which are
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  #20  
Old 11-13-2006, 08:30 AM
linniec linniec is offline
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Here are some past responses in other threads from people who are reporting on other aspects of their photosensitivity. I'm certain there are even more photosensitive people here now.

Quote:
Originally Posted by RanMan View Post
IMO the flashing lights and all the noise (ringing bells, loud music etc) at a casino are HUGE triggers for epilepsy, especially if you have the photo sensative type of epilepsy.

Randy
Quote:
Originally Posted by satman next generation View Post
I had to service a satellite system at a night club, complete with the discoball and flashing lights and loud noise. I informed the owner that I was photosensitive before getting there and to my surprise, everyone was very accomodating and very helpful asking if there was anything they could do. Of course, they wanted their television. I was still very greatful and knocked 10% off the bill.
Yet my wife and I went to a large retailer like "HomeDepot" where they had a large display
at a front endcap with bright flashing lights allover it, (fortunately my wife saw it first and pushed me back outside). When she asked if they could turn it off and why, they just told her to cover my eyes when I walk in. We went to "Lowe's".
Quote:
Originally Posted by lor View Post
RanMan, I imagine lots of places are triggers for sz's. Every yr at this time, I think how some ppl with E can't have the little fun some of us have....at a Haunted House. I stand in line waiting to get into "Terror Town" & read a sign telling 'those who are sensative, do not come in, etc.' (It didn't used to be very specific a sign & each yr I would say to DH or someone, What about those with E?). To those who are indeed sensitive....good luck in whatever you do.
Quote:
Originally Posted by satman next generation View Post
My daughter is on the high school marching band, so being the proud "band dad" that I am I go to as many of the games that I can. At the very least, all of the home games and I videotape every performance. We just bought a new digital camcorder with a built in still camera with a basic flash, and I am able to take very excellent pictures. My question...at our game yesterday, the other team had 4 people walking the field on their side photographing the game, they weren't professionals, just
volunteers with some really nice cameras. The problem, all 4 were using strobe flashes and all 4 were taking about 5 to 10 pictures a minute according to my wife. I am photosensitive, but if I am very careful, I am usually o.k. to an extent. That was too much. I very politely approached these individuals and explained my situation and asked if they could at least slow down on the number of pictures. 3 ignored me and one said, nothing they can do they have to take these pictures for their school. Needless to say, I had to sit out the game. Fortunately they were just for the game, so I got the chance to videotape the halftime show with my simple digital camcorder that worked perfectly with the field lights, that I could zoom in like I was next to them without any extravagant light. After halftime I left. I have seen this a couple of other times, but for just a few pictures, certainly not to this extent. Is this something new that I might start to see more and more of as digital cameras advance or is this just one of those rare things that was an overkill. I will not be able to handle strobe flashes. God Bless....In HIS Service....Dan
Quote:
Originally Posted by annie View Post
most people don't know how to use a camera without using the flash.
i was at an epilepsy conference once where they were taking endless flash pictures. someone in the audience pointed out that this would be a problem for anyone with photosensitivity, and the doctors lecturing said that there was no such thing as photosensitivity. of course i didnt notice much because i went into status absence for about 20 minutes and missed the whole thing. the people i was sitting with noticed and kept me in my chair, so nothing happened. i suppose if you are going to have SUDEP from flashes the best place to do it is in a room full of eplepsy specialists.i don't know of any solution to this, but i certainly wish i did.

Linnie

Last edited by linniec; 11-13-2006 at 03:22 PM. Reason: spacing
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