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Old 10-16-2006, 06:42 PM
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David Hosobuchi David Hosobuchi is offline
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Default Useful Websites

Use this thread for posting other websites relevent to this forum....

Last edited by David Hosobuchi; 10-16-2006 at 07:14 PM.
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Old 10-16-2006, 07:55 PM
AncientWolf AncientWolf is offline
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Here's one from the national institutes of health on the medical efficacy of marijuana in treatment of epilepsy and other movement disorders.
'Twas brillig and the slythy toves, did gyre and gimble in the wabe, all mimsy were the borogroves and the momeraths outgrabe.
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Old 10-16-2006, 11:38 PM
Birdbomb Birdbomb is offline
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Independent free forum for those implanted with VNS or those interested in VNS Therapy (R).

"If you are going through he11, keep going."
(Sir Winston Churchill, 1874-1965)
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Old 10-17-2006, 07:55 AM
Rocking4Epilepsy Rocking4Epilepsy is offline
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In Memory of Danny Jr

Has many things to help others...
Saftey Precautions
and much more
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Old 10-21-2006, 06:48 PM
Porkette Porkette is offline
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Internet Handbook of Neurology
(when the main page comes up click on Epilepsy)
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Old 10-22-2006, 12:46 PM
howdydave howdydave is offline
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HowdyDave - Epilepsy Resources

Links to:
  • Forums
  • Find an Epilepsy Center (USA)
  • EFA sites
  • International Epilepsy Associations
  • Epilepsy information sites
Dave ©¿©¬
Ego sum quis ego sum quod ut est quicumque ego sum - Popeye
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Old 10-22-2006, 02:13 PM
Ona Ona is offline
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Posts: 49

Originally Posted by jcc
I also found this interview most interesting~ with Dr. Bonnet

I know there were a couple who posted on the GS/CD board who had been dx'd with pyroluria, but I'm struggling to remember who they both were. I have an idea, but can't quite remember...

The above, is a posting by jcc. This is a VERY interesting interview, about PYROLURIA as an underlying cause for SEIZURES, with Dr. Bonnet. I really enjoyed reading the interview!

When I was 18 months old, I was diagnosed with Right Mesial Temporal Lobe Epilepsy. My seizures were never under control with Anti-Epileptic Drugs, they were just less severe.

It wasn't until last year, when I was 28 yrs of age, did I finally get the proper diagnosis. . . PYROLURIA - a severe vitamin deficiency of vitamins B6, Zinc, and Aracadonic Acid (an Omega-6 Essential Fatty Acid).

Now, my seizures are completely under control.

I have eliminated several food allergens from my diet:
All Grains
Food Dyes
& Alcohols

I make sure I eat pleanty of:
Meat (Eggs, Beef, Chicken, Turkey, Clams)

I also strictly adhere to a program of prescribed dosages of Vitamins, along with prescription Anti-Epileptic, Anti-Psychotic, Anti-Depressent drugs.

As long as I stick to "THE PROGRAM". . . I feel great!
No seizures, crying-spells, insomnia, mania, depression, OCD, memory loss,
"I can drive, now, too!"

Take a look at the posibility of PYROLURIA as a root-cause of seizures.
I'm sure glad I did.


Last edited by Ona; 10-22-2006 at 03:44 PM. Reason: url didn't work. . . now it does!
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Old 10-22-2006, 10:41 PM
joy joy is offline
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The url worked for me too. Thanks for the information and something I can check into for my daughter who has seizures.
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Old 11-07-2006, 12:31 AM
frankt frankt is offline
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Default R.a.i.s.e

We are in the process of setting up our organization. We are dedicated to exposing the deadlier side of Epilepsy. Visit us at
for more information..

We are here to give a voice to those who cannot speak for themselves and to those whose voices have been forever silenced...

We are here to say that these people do matter…

And that they are worth saving…
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Old 11-24-2006, 06:14 PM
mercy mercy is offline
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Posts: 88

here is the link to the book Conversations with Neil's Brain. This is a book about a guy who is going to have brain surgery. He has a lot of conversations with his doctor as he figures out what part of the brain does what. You also get a glimpse into brain surgery and what goes on.
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