BrainTalk Communities 10/2006-8/2011 Archives  

Go Back   BrainTalk Communities 10/2006-8/2011 Archives > Specific Neurological Conditions (A - L) > Child Neurology

Reply
 
Thread Tools Display Modes
  #1  
Old 11-06-2006, 01:08 PM
WesJr WesJr is offline
New Community Member
 
Join Date: Oct 2006
Posts: 20
Question Diastat new dial packaging.. anyone familiar??

The pharmacy just called me to say that the rectal injection of diastat has discontinued that medication and have introduced a new method of administering it called the dial -a-meter ( I think) Is anyone familiar with this??? He is calling the Neuro to approve it and to get another pescription for the newer version. I was just curious if anyone has tried it and how t works compared to the old?? Also has anyone tried the nasal spray to stop seizures?? What does that consist of also??? Is it valium also?? Thank you in advance to those that answer my questions !! Mandy
Reply With Quote
  #2  
Old 11-06-2006, 01:12 PM
Little JT Little JT is offline
Distinguished Community Member
 
Join Date: Oct 2006
Posts: 509
Default

Hi Mandy,
I think diastat is still administered rectally, but the dial system means that they give you a 10 mg vial and then you have to dial it down if you need to give them either 7.5 or 5 mg (if your child doesn't get the full 10). If your child gets 10 mg, like Jake, you don't have to mess with the dial, you just give them the full dose exactly like before. Does that make sense? It seems like a waste to me, but I guess it's another economically driven decision.

As far as the spray, I think it's versad and I'm curious too to hear what others have to say once they try it. I know some here are in the process of trying it.

Take care,
Amy
__________________
Amy, mom to Jake (8/21/02). Jake was 8 weeks premature and suffers from seizure disorder, hearing loss (cochlear implant), hypothyroidism, and global delays. He is a big brother to Adam (8/5/05). They are my angels!

www.carepages.com
CarePage name - JakeAnthony

Reply With Quote
  #3  
Old 11-06-2006, 04:19 PM
forr2grls forr2grls is offline
Community Member
 
Join Date: Oct 2006
Posts: 94
Default

I have a pack sitting right in front of me. It's called Diastat acu-dial.The pharmacist will dial and lock the mg prescribed by your Dr. Works the same,just a different look. It comes in a clear plastic container rather than a box. The lubricant that comes with is also easier to open than the other.Hope this helps.

PAula
Reply With Quote
  #4  
Old 11-06-2006, 04:40 PM
hunterjjumper hunterjjumper is offline
New Community Member
 
Join Date: Oct 2006
Posts: 18
Default

Quote:
Originally Posted by forr2grls View Post
Works the same,just a different look.
PAula
A different look and a whole different price. I couldn't believe how much this stuff cost now because of the new package! Thank goodness for insurance.
__________________
Tammy, Mom to
Helen 5 yo, hydro, CP, seizures;
Jill 10 yo, seizures;
Evan 13 yo Smart Alec.
Reply With Quote
  #5  
Old 11-06-2006, 04:41 PM
WesJr WesJr is offline
New Community Member
 
Join Date: Oct 2006
Posts: 20
Default Thank You Gals

I appreciate your input. I am glad it works basically the same. Always hard to get used to a new situation when these seizures can get scary. I would be interested to hear from anyone using the nasal spray also, as he will try to go back to Jr.High next year. This seems more appropriate for that situation than a rectal injection. Thank you again , You guys are great here . Mandy
Reply With Quote
  #6  
Old 11-06-2006, 05:21 PM
Kamie Kamie is offline
Distinguished Community Member
 
Join Date: Oct 2006
Posts: 125
Default

.........................

Last edited by Kamie; 12-26-2006 at 01:01 AM.
Reply With Quote
  #7  
Old 11-06-2006, 06:36 PM
lorilou lorilou is offline
Distinguished Community Member
 
Join Date: Oct 2006
Posts: 131
Default

My neurologist said that they came up with the new packaging so they could keep their patent longer...thus keep the price up.

We just got the nasal spray last week -- it's versed not valium. We haven't had to use it yet (hopefully won't need to). It's been approved for use but no one has started manufacturing it yet. You have to find a speciality pharmacy to make it for you.
__________________
Lori
Mom to Zac (18, ADD) and triplets Noah (spastic triplegic, seizure disorder, 11 surgeries and much more), Karissa (very mild left hemiplegic) & Jazmine ("was I a preemie too?") former 27 weekers who are now 11 and in 5th grade! Where does the time go????
Reply With Quote
  #8  
Old 11-06-2006, 06:40 PM
langansmom langansmom is offline
Distinguished Community Member
 
Join Date: Oct 2006
Posts: 935
Default

I am not a big fan of the acu-dial- just seems like one more thing that can be done wrong. Ugh. Our pharmacist does the dialing for me, although she gave me the option.

We're in the process of ordering the nasal spray. I am excited about that. We'll see how it works.

(((hugs)))
__________________


Wendy, mom to Langan, my little mystery girl born 7/19/02, has intractable seizures, global delays and CVI, vns implanted 2/10/06, on a small dose of lamictal and- as always- fighting for seizure control, and wife to Jon, the other love of my life.
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
No More Diastat!!! lorilou Child Neurology 22 11-02-2006 02:06 PM
diastat expired??? kathleenandjoe Child Neurology 1 10-30-2006 03:18 PM
diastat? mama z Child Neurology 15 10-21-2006 09:17 AM
Starting Procrit TX - anyone familiar w/ this med? Smiling Angel Spinal Disorders 4 10-15-2006 05:35 PM
Diastat Backordered??? lorilou Child Neurology 8 10-10-2006 10:15 AM


All times are GMT -4. The time now is 11:57 AM.


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
BrainTalk Communities Incorporated