Useful Websites

[linniec]

Here is a link to Epilepsy Ontario
Once on their site, click on any of the links in the rectangular box on your screen's left to see descriptions of:

Absence Seizures
Alice in Wonderland Syndrome
Atonic Seizures (drop attacks)
Catamenial Seizures ( Monthly, menstrual, or hormonal)
Clonic Seizures
Complex Partial Seizures
Epileptic Syndromes and Visually Induced Seizures (Photosensitive)
Febrile Seizures (Fever-induced)
Gelastic Seizures (Laughing)
Infantile Spasms
Lafora Disease
Lennox-Gastaut Syndrome
Musicogenic Seizures (Sound)
Myoclonic Seizures (Jerks)
Neonatal Seizures
Nocturnal Seizures (Night-time, sleeping)
Psychogenic Seizures (pseudoseizures)
Reflex Seizures
Rolandic Epilepsy
Secondarily Generalized Seizures
Simple Partial Seizures (auras)
Startle Epilepsy
Status Epilepticus
Tonic-Clonic Seizures
Tonic Seizures
Visual Reflex Seizures ( Photosensitive, flicker, color, or pattern sensitive)
Withdrawal Seizures (withdrawal of medications)

( the parenthesis, which are by no means all-inclusive, are mine.) If you hang around the Epilepsy Ontario Site you can discover more.. You can even use their search function.

Linnie

[moose53]

A web-forum for survivors of colon cancer:

http://www.colonclub.com/index.html

Barb

[Bernard]

http://www.coping-with-epilepsy.com/ - Shameless plug for site I built for my wife. Has friendly forum and a chart of alternative treatments with information on efficacy, adverse effects and more.

http://www.epilepsyforum.org.uk/ - Forum sponsored by the UK's National Society for Epilepsy

[lor]

I found a site with videos about E. There are different E videos. Also, when you get there you will see that they have other sites you can simply click on many more....like Asthma or Osteoporosis. http://www.everydayhealth.com/Public...egory=epilepsy

[Michelle83]

While the majority of patients with epilepsy are managed well with medications, a significant number of patients do not respond well to pharmacological therapy. For many of these patients with pharmaco-resistant epilepsy, surgery may offer a positive outcome.

The surgery will be performed by Nitin Tandon, M.D., assistant professor of neurosurgery at the University of Texas Medical School at Houston.

Resective surgery for epilepsy targets a specific, localized part of the brain, where the seizures are thought to originate. Though the origin of seizures may be within the frontal, parietal or occipital lobes, most typically, medically refractory seizures originate deep within the temporal lobe. Patients with such seizures can be well treated by a temporal lobectomy - a resective surgery in which scarring deep in the temporal lobe, in a part called the hippocampus, is removed.

Live Webcast of Resective Surgery for Refractory Epilepsy

[Michelle83]

Tests used in evaluation of epilepsy

Wada Testing

[howdydave]

Find An Epilepsy Center
http://www.naecepilepsy.org/centers/centers.html

This site does not list every epilepsy center in the USA, just those that
belong to The National Association of Epilepsy Centers.

[David Hosobuchi]

It is amazing what one finds when rummaging through so called "trash bins"...

In my mess of "BrainTalk" email received through our email account, there are many different types of "mailing list filters" that I have tried to organize so that I can at least differentiate the tons of email coming in that I should read and take note of, respond to, and those I don't usually need to bother with...

One of the piles of emails that comes in automatically, that needs no response from me, that contains a web link in each, pertains to the "BrainTalk Community Member WebRing Submissions"...

The other day, I received a new message in that folder. I just went in there to clear the "unread message". I happened to "misclick" on a random email; Perhaps because of a "twitch" or even "myoclonus"... I don't know... It was actually an old submission from a long time ago. But it lead me here:

E. is for Epilepsy by Paula Apodaca

I found the content of her blogs extremely interesting, and had to agree with many of the opinions stated on the stigma of epilepsy, and possible effects on the daily lives of those who suffer from it. I was convinced it should be shared here. After all, it is part of the BrainTalk Communities WebRing...

Coincidently, the new submission that was sent was to another site relating to Traumatic Brain Injury & Epilepsy.

There would be no way I could monitor each submission to the WebRing. There are hundreds. I thought I'd just share these epilepsy related ones here that I recently "stumbled upon"....

[howdydave]

Howdy!

Can't forget about my VNS site:

The VNS From A Patient's Point of View

This site provides information for the vagus nerve stimulator implant as a therapy for epilepsy.

Information about:

• The device
• Cost
• Expectations
• Other people's stories

[Porkette]

This website deals with epilepsy and other neurologic problems.

http://www.emedicine.com/neuro/index.shtml#seizures

I hope this will be of some help. Take care and May God Bless You!

Sue