BrainTalk Communities 10/2006-8/2011 Archives  

Go Back   BrainTalk Communities 10/2006-8/2011 Archives > Specific Neurological Conditions (A - L) > Gluten Sensitivity / Celiac Disease

Reply
 
Thread Tools Display Modes
  #11  
Old 04-21-2007, 08:27 PM
bewolf bewolf is offline
Distinguished Community Member
 
Join Date: Oct 2006
Location: Kent, England
Posts: 397
Default

HIYA DEBS!

It would be interesting if I were a celiac wouldn't it?


I will have to try the GF free diet for a while... not easy from what I read in this forum.

Does this mean no RUDDLES? (< English joke BTW)
__________________
NIL ILLEGITIMUS CARBORUNDUM.

When they say, "But you look fine", you say --
"And you look intelligent. Go figure."
Reply With Quote
  #12  
Old 04-21-2007, 08:57 PM
pab pab is offline
Distinguished Community Member
 
Join Date: Oct 2006
Posts: 286
Default

there are gluten free beers/////
Reply With Quote
  #13  
Old 04-22-2007, 10:19 AM
teaandtoastgirl teaandtoastgirl is offline
Distinguished Community Member
 
Join Date: Mar 2007
Location: near the coast in Maine
Posts: 263
Default

Good Morning GF Paperdoll, Bewolf and all!

WOW! An HS discussion on the GS site!! Our son was diagnosed with HS in March '07, seems its been misdignosed for the past 4 years. Anyway, he is 17 and those nasty boils have been popping up at any given moment for the past 4 years. Our specialist says weight gain is controlled by this disease and loosing weight is very difficult due to the metabolism problems caused by HS and apparently Gluten Sensitivity. Our son is 70 lbs over weight.

He was given antibiotics for a month to clear up an infected boil. At the same time we put our son on a gluten free diet due to my going GF six months prior. His doc was amazed how quickly the boil cleared up and that the scared tissues had begun to heal too. The doc says he'd never seen this happen before. Our son began to improve in many areas of his life, neurological problems primarily, not just the HS issues. Our specialist then wrote a script for "gluten enteropathy" for our son to attend a physical therapy center in our area which utilizes Integrative Manual Therapy.

Interesting results have surfaced. First is this, if our son ingests gluten, he will get the beginnings of a new boil within 48 hours. His boils are about 2 inches in diameter and the affected area will be very painful with swelling. If he suspends gluten, doesn't have it a second time, the boil does not get a head on it with fluid, the area remains sore for about 12 hours and then dissipates. But, if he continues to ingest gluten say over a period of 24 hours rather than 1 isolated hit, he'll get a bonafide boil, fluid, drainage, smell and all.

According to the PT center, our son's immune system has been taxed from both gluten and sugar. The sugar is actually the primary issue with regards to the immune system shut down, but the gluten was the predecessor. The gluten compromised his sigmoid colon. This, coupled with the sugar toxins have caused a blockage in his sweat glands and the acne inversa is the result.

His treatment through PT includes treatments of the cecum (processing center for gluten) thymus gland (immune system) sigmoid colon (elimination process center) and liver (toxins). They also recommend oolong tea baths as the oolong tea helps to open the pores and is soothing. 4 cups of oolong tea to a bath. They recommend using organic oolong tea. Our son says the baths are the best part of the healing.

Our son was an out-going gregarious kid prior to the onset of HS. We chalked the new quiet withdrawn kid, up to the onset of puberty, not knowning about HS. But puberty didn't start for our son until well past his 17th birthday, hum I think that is a gluten symptom.

Having been gluten free for 4 weeks now and in PT for 3, our son commented, "Mom, I haven't felt depressed for 2 whole weeks! In fact I feel like getting out and doing things and calling up old friends. It's amazing what a GF diet will do for someone!

GF Paperdoll- I'll bet DQ1 is a factor for our son as well. I'm ordering the enterolab tests this week.

Here's to you Bewolf, and feeling better. Give that Gf diet a try. You should see some results in the first 2 weeks. For our son, being gluten free means no pain, no depression,.. and that speaks volumes.

Cheers,
Leslie
Reply With Quote
  #14  
Old 04-22-2007, 03:25 PM
jcc jcc is offline
Distinguished Community Member
 
Join Date: Oct 2006
Location: WI
Posts: 1,195
Default

Interesting thread~ I took a quick look at PubMed and didn't find anything connecting HS w/ gluten. That doesn't necessarily mean anything. I googled and found this webpage of an HS sufferer who has considered gluten and leaky gut among a variety of possible factors... but I haven't had a chance to read it.
http://www.lastapple.com/jason/hs/welcome.html

Cara
__________________
The Gluten File
Reply With Quote
  #15  
Old 04-22-2007, 08:09 PM
teaandtoastgirl teaandtoastgirl is offline
Distinguished Community Member
 
Join Date: Mar 2007
Location: near the coast in Maine
Posts: 263
Default

A few threads back, I think it was,... someone posted that the author of the book Dangerous Grains, Hoggan, I think they said was his name, is a member of the board for HS.

Anyway I am posting here to clarify something I posted up above. The oolong tea bath is done with 4 cups of prepared tea, not 4 cups of tea leaves in case anyone was not clear on that.

Leslie
Reply With Quote
  #16  
Old 04-22-2007, 09:14 PM
jcc jcc is offline
Distinguished Community Member
 
Join Date: Oct 2006
Location: WI
Posts: 1,195
Default

I saw the Ron Hoggan connection. I even scanned the index at the back of Dangerous Grains... nothing. So, does he have HS? I was trying to figure that out. One would think, yes, if he's on the board. But, I see he was also on the board of Direct-MS.

I have a pretty open mind when it comes to the possiblity of gluten sensitivity being involved in many conditions. I must say, I have never even heard of HS until this thread. At least not that I can remember.

Cara
__________________
The Gluten File
Reply With Quote
  #17  
Old 04-22-2007, 11:03 PM
annelb annelb is offline
Distinguished Community Member
 
Join Date: Oct 2006
Posts: 1,425
Default

Here is the website I had posted. Ron Hoggan does not have Hidrandeitis Suppurative but he is on the board of the HS Foundation. http://www.hs-foundation.org/aboutus/board.htm
Anne
Reply With Quote
  #18  
Old 04-23-2007, 09:04 AM
teaandtoastgirl teaandtoastgirl is offline
Distinguished Community Member
 
Join Date: Mar 2007
Location: near the coast in Maine
Posts: 263
Default

HS may not be limited to Gluten Sensitivity, maybe some have the cassein intolerance. Or maybe it's just that an undiagnosed intolerance of any kind can set up the immune system for shut down and HS can begin. I am not a medical person and our experience is anedoctal. But I do find some of the stats interesting. 1 in 300 people in America get HS and it's more common in people with descent of the British Isles. Sounds like a possible GS issue to me. I wonder what Dr. H. would say. Is there a web address for him or a way to send off an email.

In my readings on HS, I've not seen anything about the DQ gene indentities, if HS sufferers have done enterolabs testing, or anything similar to things posted on our site. They've identified chromosomes. Diets seem to be very broad, eliminating things like caffeine and soda, taking herbs like curcumin or tumeric, bathing with tea tree oil-but not a real common thread such as we find here.

From our experience, I think our son's specialist will consider suggesting a gluten free diet to some of his other patients. Forward we go. Leslie
Reply With Quote
  #19  
Old 04-23-2007, 09:11 AM
teaandtoastgirl teaandtoastgirl is offline
Distinguished Community Member
 
Join Date: Mar 2007
Location: near the coast in Maine
Posts: 263
Default

As posted by Hanna on the Myosine IXB thread.

"Myosine IXB

This is from the French but as a new gene identified on the 19 chromosome that make the intestine permeable and inflamed allowing gluten to cross the intestines. (Univerisityof Ultrecht). I have not been able to get anything else other than it make the possibility of celiac 2.5 times higher. I have not seen this on the gluten file.

It would explain why so many of us are without diagnosis."



HS involves the 19th chromosome. Leslie
Reply With Quote
  #20  
Old 04-23-2007, 09:14 AM
JudyLV JudyLV is offline
Distinguished Community Member
 
Join Date: Oct 2006
Posts: 159
Default

Leslie,

I sent Dr. H an e-mail a year or so ago and he did respond. Here is his address m.hadjivassiliou@Sheffield.ac.uk

--Judy
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -4. The time now is 12:53 PM.


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2017, Jelsoft Enterprises Ltd.
BrainTalk Communities Incorporated