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  #1  
Old 10-03-2006, 01:38 AM
sofiebest sofiebest is offline
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Join Date: Oct 2006
Posts: 17
Smile roll call cmt

Now that the site is up, should we try to use the cmt-room more actively? Missing the old gang a lot
Per, Norway
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  #2  
Old 10-03-2006, 09:12 AM
leaf leaf is offline
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Location: Bristol UK
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Hi Per,
I would and do drop in quite often, mostly to use the chat room.

Hope all is well,


Jon 'leaf' leonard
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  #3  
Old 10-05-2006, 08:35 PM
Davyy Davyy is offline
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Default Good to be back online.

Hope tosee alot of people using this site
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  #4  
Old 10-08-2006, 01:43 PM
sofiebest sofiebest is offline
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Good to see you, Leaf and Davvy, I hope others will join too. As there is no cure and no meds involved other than painkillers for those who need, we have far less to discuss than other forums.
On the other side, the mutual support and understanding is important.
I am way out of tie zones, but try to check in on chat daily
best wishes, Per
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  #5  
Old 10-26-2006, 02:44 PM
hmm_md hmm_md is offline
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Join Date: Oct 2006
Posts: 19
Default Hello

On the recommendation of 'leaf' I am checking in here. I am comming slowly to the realization that I (and my family) probably have HNPP.

Currently I'm seeking help on how to make better a problem that has been going on for about 1 1/2 years. Burning and numbness on the left face and tongue. CT, MRI and blood work all normal, so no stroke. I'm open to any and all comments and ideas! 'Leaf' and I have been carrying on quite an interesting conversation over in Peripheral Neuropathy.

Holli in Topanga, California, USA
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  #6  
Old 10-27-2006, 08:27 AM
leaf leaf is offline
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Join Date: Oct 2006
Location: Bristol UK
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Holli,

I left a link to this site on the PN forum,

http://facial-neuralgia.org/conditions/ad.html

I think Hnpp makes us quite susceptible to many types of neuralgia. Though I would imagine many docotrs would disagree as they have a fixation with painless palsies. However from my side of the fence it seems a logical conclusion... perhaps...
__________________
HNPP - Hereditary Neuropathy with liabilty to pressure palsy.
HNPP UK Links and Info
Hnpp Info page : CMTA : CMT UK
Inner Ear Disease
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  #7  
Old 11-27-2006, 11:30 PM
Angel Angel is offline
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Join Date: Oct 2006
Posts: 5
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Greetings
Am around but theres no cmt chat I asked for one.........
Snowing here in Seattle
Hope u all well
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  #8  
Old 07-19-2011, 10:18 AM
Pythons Pythons is offline
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Hi everyone hi angel i remember you from cmt chat room years ago
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  #9  
Old 07-29-2011, 08:32 AM
Pythons Pythons is offline
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Its a shame no one comes here
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