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Old 08-23-2009, 09:24 PM
DystoniaGal DystoniaGal is offline
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Join Date: Oct 2006
Location: Gainesville, FL
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Thumbs up so far so good

well 3 days out from surgery and no headaches. *knock on wood* *all crossables crossed*

i have to sleep on an incline, for how long, who knows. but at this point i am willing to do anything to stay headache free and get my life back.

so i am back to a codman set at 200 with anti-syphon. hopefully this does the trick for a long time to come.

thanks for all the prayers and well wishes,
suzie
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DYT1 positive dytonia . Dx 1989.
Deep Brain Stimuation at Shands at UF in 2003.
Hydrocephalus dx in 1/2004 due to an infection and resolved as of 4/4/08. Hydrocephalus returned and shunted 7/9/09 with OSV II,revised 8/5/09. So many CT scans I should
GLOW
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Old 08-23-2009, 09:51 PM
LIZARD LIZARD is offline
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YAY!!!!!!!! It's great to hear you're doing well, Suzie!




LIZARD
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LIZ in Li'l Rhody; hydrocephalus dx'ed at 3 weeks old. No shunt surgery in 30 years! Epilepsy well-controlled and autoimmune issues being worked on. Mom to Caren, 19, successful ablation 4/18/07 for WPW; and Drewy, 16, (autism dx'ed at 2 1/2, 13 mm ACM dx'ed at 5 1/2, no surgery, doing awesome!!) Wife of 20 years to Don...and friend to Gina. RIP. 9/5/66-10/22/07

http://s.excoboard.com/Livingwithhyd..._Gina_Libonate
http://health.groups.yahoo.com/group/autism-chiari/
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Old 08-23-2009, 11:15 PM
Nick,Brian,andJon'sMom Nick,Brian,andJon'sMom is offline
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Suzie,

I am happy to hear that you are feeling better.

Marcie
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