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  #1  
Old 08-04-2009, 10:34 AM
jadiee-x jadiee-x is offline
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Default Staph/MRSA??

I posted this on the MRSA forum too, im just wanting opinions


''About 3 weeks ago, i had surgery for a VA shunt. About a week after the surgery i pulled off the sticky dressing off of a head wound, it pulled off some dry blood which made a tiny area of the incision gunk and a bit of pus came out.
Over the weeks that area has become tender and sore and now a very circular hole is visible, it keeps weeping see through liquid, watery blood, gunk and pus.

Ive looked at pictures of staph infections and this looks very similar.

I was given oral antibiotics to treat a suspected shunt infection although bloodtests came back fine, that was a week ago now, although since then the hole seems to have got bigger and is less clotted than before.
I was given a strong dose for 5 days, tomorrow will be my last day of the course, and so far there seems to be no improvement.
When cleaning it the other day, a blue interior stitch from my surgery popped out of the hole, still attached to deep inside my head :/

I havent had any fever as such but i have been having headaches and feeling nauseated.''

Please exuse the hair

1st Aug - Relatively small ...bit of pus (sorry)
P010809_12.51.JPG

P010809_12.59[02].JPG

2nd Aug...Gunk clogging the hole first thing in the morning.
P020809_08.22[01].JPG

3rd Aug - Bigger redder wound (notice a blue interior stitch has made its way out of the hole)
P030809_13.59[01].JPG

P030809_14.07[02].JPG
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18 years old, currently treated for an arachnoid cyst and hydrocephalus with a very low pressure shunt.
15 brain surgeries since Sep 08, and 2 prior then.
Treated at Great Ormond Street Hospital.
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  #2  
Old 08-04-2009, 10:53 AM
alizesmom alizesmom is offline
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You definitely need to get that cultured. Good luck. Karen
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Old 08-04-2009, 11:02 AM
jadiee-x jadiee-x is offline
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Im off to see my opthamologist tomorrow at the hospital, ive been asked by a neuro reg to come up to my neuro ward and get it reviewed as i was asked down to there almost a week ago, the wound was small then and the hole was clogged with blood when the first reg saw this. He didnt seem worried and i was prescribed oral antibiotics. The 2nd Reg however saw the wound when it became unclogged, he seemed to suggest MRSA. He told me to get down hard on the antibiotics but he said he didnt think they will help and he believed it will get worse. He had originally asked me to come back yesterday rather than tomorrow, but he let us twist his little finger due to travel difficulties. :P

My guess is, its just a little scab hole or something that keeps weeping, I think it will be stitched with a single stitch and left to heal. The 2nd reg i saw wanted to stitch it, but realised if there is an infection, he will be sealing it in.

Hospital days...what are they like!! LOL
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18 years old, currently treated for an arachnoid cyst and hydrocephalus with a very low pressure shunt.
15 brain surgeries since Sep 08, and 2 prior then.
Treated at Great Ormond Street Hospital.
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Old 08-04-2009, 11:43 AM
laura.xx laura.xx is offline
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aw Jade I hope everything is okay, you've been through wayy too much!
Keep us updated, thoughts and prayers.
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Laura. 20 year old music fanatic
Born 3 months premature with spinal meningitis. Dx'ed with chronic hydrocephalus due to a second occurrence of meningitis. VP shunt fitted at 3 months corrected age, revisions at 2.5years, 7 years, 17 years (x2), and 18.
Now using two Codman programmables (left & right)
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Old 08-04-2009, 02:05 PM
mumtomeme mumtomeme is offline
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Sorry to hear you are going though all off this. I hope you get some answers tomorrow
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  #6  
Old 08-06-2009, 06:46 AM
jadiee-x jadiee-x is offline
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Hi guys,
Had my appointments, they went 'ok.'
Relieved to say that the surgeon now think that the wound on my head is a 'stitch granuloma' seeing as there was a stitch right bang in the middle of it, but been put on another week of antibiotics just to make sure.

My first appointment of the day were to have a visual fields test. Turns out My perfect vision in my left eye from April now has a blind spot and some vision lost to go along with my right eye...from all the pressure thats been in my head as of late.

My second appointment was to have the back of my eyes looked into to see if there is any damage on the optic nerve.
-Turns out there is noticeable bruising on one eye, and very little on the other. Where this would normally cause alarm, these were inconclusive simply because we dont know whether this is old papilledema from before my last surgery or whether is bruising from present pressure...I guess time will tell.

What confuses me though, that was back in September when i was diagnosed of papilledema of my right eye, I had all that commotion of the ICP monitoring and then shunt malfunction and then revision surgery, but the day after surgery, my eyes were checked...and given the all clear of no papilledema at all. Yet now im almost a month on from my last surgery and theres still bruising ??
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18 years old, currently treated for an arachnoid cyst and hydrocephalus with a very low pressure shunt.
15 brain surgeries since Sep 08, and 2 prior then.
Treated at Great Ormond Street Hospital.
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Old 08-06-2009, 08:50 AM
hope9 hope9 is offline
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Jade, glad to hear everything went 'ok'.. especially about the wound.

Regarding the papilledema.. I get my eyes checked every year and I still have papilledema. Mine has to be from my prior pressure build ups because I've been low pressure for a few years now. I still have to go through the field test and everything.. and I still have blind spots. So maybe that is your case.. it's just scarring from all your brain has been through??

I hope all of this settles down soon for you.. you deserve a longggg vacation!!!

xoxo
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Krissy! Hydrocephalus due to tectal glioma; diagnosed at age 6, now 19! Recently had my 5th surgery after my shunt of 11 years started over draining.. now I have a programmable! So far, so good
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  #8  
Old 08-15-2009, 07:27 PM
jadiee-x jadiee-x is offline
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2 weeks on from antibiotics and no difference yet
Sometime he collects more pus than it has before!

As my surgeon told me keep it clean and get the gunk out, ive been doing so, with a little sterilised metal scoop. Im actually hitting bone where its so deep, so it couldnt possibly be any deeper unless i went into the bone!!

Perhaps the other surgeon should of put a stitch in which he first thought about, atleast then my pillow case wouldnt have to keep being washed due to bloody weaping each and every night!! :P
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18 years old, currently treated for an arachnoid cyst and hydrocephalus with a very low pressure shunt.
15 brain surgeries since Sep 08, and 2 prior then.
Treated at Great Ormond Street Hospital.
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  #9  
Old 08-15-2009, 10:26 PM
Nat Hyland Nat Hyland is offline
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Thumbs down You've answered my question in your last sentence..

why is there a hole there AT ALL!? As far as I'm concerned, this means they didn't close the wound properly, which, of course, is going to leave you susceptible to infection !

Your "pus" problem is not going to improve one bit until they close up that "hole" somehow! Does someone need some sewing lessons, or what???

Nat.
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  #10  
Old 08-16-2009, 12:01 AM
DystoniaGal DystoniaGal is offline
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With you having a VA shunt, I would think the docs would be more aggressive since you could go septic very easily. I know that the medical system in England has the channels you have to go through and get approval and yada yada. But I really don't seem comfortable with all that you have written. Have they cultured the pus/blood from the wound?

I got my hydro from staph/strep/fungal infection that went to my brain. Please be more agressive with your docs to get answers.
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DYT1 positive dytonia . Dx 1989.
Deep Brain Stimuation at Shands at UF in 2003.
Hydrocephalus dx in 1/2004 due to an infection and resolved as of 4/4/08. Hydrocephalus returned and shunted 7/9/09 with OSV II,revised 8/5/09. So many CT scans I should
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