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  #1  
Old 07-04-2007, 08:03 AM
Braindrain Braindrain is offline
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Location: Baltimore, MD
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Angry "Dr. Dad" is at it again!

Well, it finally happened: last night, I came out to the kitchen at 9:00pm
to get something to eat to take my pills with. The first thing out of his
mouth was, "Are you eating again?!" So, I told him that:

I'm getting ready to take my pills

I have to take my pills with food

If I take them on an empty stomach, I get sick.

His reply: "That's just another excuse."

So, I said: "Fine, I'll just stop taking the pills altogether and then you
won't have to worry about it."

His reply: "Good."

So, my choices are:

1) Stop taking the pills completely (which will probably cause a status
episode and land me in the hospital)

2) Ask my neurologist if I can drop the 3:00pm pill, so I can take my
night time pills at dinner (which I doubt he'll agree to, since I've been
doing great on this combination for several years)

3) Ask if I can take the 3:00pm pill together with my night time dose
at dinner time, so that I'm taking them all with food. (Which may or
may not cause my levels to get too high, since I'd be taking 230mgs)

4) Shoot my father. (Don't tempt me! )

If the FSOB would do what he keeps telling everyone else to do and mind
his own d@mn business, we wouldn't have this problem!
__________________
Gina
*************************************
Hydrocephalus, Porencephalic Cyst, Epilepsy, Vision
Problems, Slit Ventricle Syndrome, Spinal Stenosis

My website:

http://s2.excoboard.com/exco/index.php?boardid=14130

Support for people who have hydrocephalus and
associated conditions-and their families and friends.
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  #2  
Old 07-04-2007, 10:34 AM
LIZARD LIZARD is offline
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Thumbs down

Don't pay him any mind. What a crackpot.


LIZARD
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LIZ in Li'l Rhody; hydrocephalus dx'ed at 3 weeks old. No shunt surgery in 30 years! Epilepsy well-controlled and autoimmune issues being worked on. Mom to Caren, 19, successful ablation 4/18/07 for WPW; and Drewy, 16, (autism dx'ed at 2 1/2, 13 mm ACM dx'ed at 5 1/2, no surgery, doing awesome!!) Wife of 20 years to Don...and friend to Gina. RIP. 9/5/66-10/22/07

http://s.excoboard.com/Livingwithhyd..._Gina_Libonate
http://health.groups.yahoo.com/group/autism-chiari/
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  #3  
Old 07-04-2007, 10:55 AM
JAVISI JAVISI is offline
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Red face My dad must be similar to your dad

Gina,
Our fathers must come from the same blood line. My dad goes with me to my Dr's appointments. I can barely can get a word in edgewise. I am not 4 I am 40!
I try to tell myself that his intentions are good. He is not doing anything to try to hurt me purposely although he has many times. He often thinks that he is an expert on my health!

I am sure that your dad has good intentions but is not helping you! Have you ever tried to talk to him about it? I had so much stress during my divorce, I just wanted out, my dad wanted to go for blood! He got into a fight with my Lawyer! I cried and tried to tell him but yet I was a little reserved, I am not good at confrontations. I got over his remarks after a few days, and I always do!

I wish I had the perfect answer for you but I don't.

Dreaming Big and Reaching for the Stars! Javisi
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  #4  
Old 07-04-2007, 12:34 PM
Braindrain Braindrain is offline
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Javisi:

The ironic thing about this is that my father has never gone with me to
any of my neurology/neurosurgery appointments and knows nothing
about epilepsy or hydrocephalus. His only concerns are:

Money: The food I'm eating costs money (the pills I'm taking cost
more than the food! )

Appearance: "Every time I see you, you're eating again!" (Don't look!)

I think I do have to see my neuro in a couple of months, because my
prescription refills are getting low. We'll just have to see what happens
between now and then.
__________________
Gina
*************************************
Hydrocephalus, Porencephalic Cyst, Epilepsy, Vision
Problems, Slit Ventricle Syndrome, Spinal Stenosis

My website:

http://s2.excoboard.com/exco/index.php?boardid=14130

Support for people who have hydrocephalus and
associated conditions-and their families and friends.
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  #5  
Old 07-04-2007, 02:28 PM
Porkette Porkette is offline
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Hi Gina,
I understand exactly how you feel! My parents especially my Dad always complained about buying my meds, as well as the medical bills even though my mom had health ins. (when I was a kid.) The only difference is both of my parents complain to me because I don't want to eat that much because the AED, diamox cuts the appetite and all I hear from my parents is: "I wish you would eat something, you need to put some weight on!" That's when I tell them I'm 44 not 4 and I don't want to be overweight with heart problems and high blood pressure like you dad and that's when they are quiet .
Over the yrs. I've learned to let it go in one ear and out the other because if they see they are getting to me they will just continue on but since I started to ignore them yelling at me they have been more quiet. Here's wishing you well and May God Bless You!

Sue
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  #6  
Old 07-04-2007, 04:12 PM
CoolAngel28 CoolAngel28 is offline
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I'm with Lizard on this one..don't pay any attention to your dad.

Javisi,I'm starting to think our dads are alike,strange but,true... He gave 2 doctors the third degree...
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  #7  
Old 07-04-2007, 06:55 PM
waves waves is offline
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Cool dads and pills and food

people can be so short-sighted.

please take your pills... you could talk with your doctor about changes, sure, but... as you say, this schedule has been working well for you, so my 2 bits are ... "if it ain't broke, don't fix it!"

only practical idea i have is, would it be feasible for you to save a portion of your dinner, enough to eat later with your night pills. doesn't that sound crazy. but it would get around dad, and preserve your schedule.... ok, that, or...

HAVE IT OUT WITH HIM ... but gently?

your health and your meds are of paramount importance and i think somewhere in there your dad might even realize that... others' defenses against our illnesses are so varied... your dad may be more vulnerable than his complaints let show.

be well.

~ waves ~
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  #8  
Old 07-05-2007, 09:59 AM
Bernard Bernard is offline
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Don't compromise your health just to appease your dad's personality faults.
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Check out this chart of alternative epilepsy treatments.
What do you know about EEG neurofeedback?
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  #9  
Old 07-05-2007, 10:00 AM
Braindrain Braindrain is offline
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Join Date: Oct 2006
Location: Baltimore, MD
Posts: 845
Exclamation Plan B

I was thinking of using my quad cane on his skull-the cane's metallic and
my father's hard-headed, so it should be an even match.

I suppose I could buy myself some snacks and keep them in my room,
but I have to find a place where he won't see them. He's nosy, what
can I say?

My biggest problem with all of this is that I don't see where it's any of
his business how I take my pills! I don't tell him how to take his meds,
why does he feel he has the right to tell me how to take mine?!

BTW, how do you "ignore" someone who literally gets in your face about
this???
__________________
Gina
*************************************
Hydrocephalus, Porencephalic Cyst, Epilepsy, Vision
Problems, Slit Ventricle Syndrome, Spinal Stenosis

My website:

http://s2.excoboard.com/exco/index.php?boardid=14130

Support for people who have hydrocephalus and
associated conditions-and their families and friends.
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  #10  
Old 07-05-2007, 02:38 PM
LIZARD LIZARD is offline
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Quote:
Originally Posted by Braindrain View Post
BTW, how do you "ignore" someone who literally gets in your face about this???
Call your neuro and put your dad on the phone. Hearing the word from the "expert" should shut him up.


LIZARD
__________________
LIZ in Li'l Rhody; hydrocephalus dx'ed at 3 weeks old. No shunt surgery in 30 years! Epilepsy well-controlled and autoimmune issues being worked on. Mom to Caren, 19, successful ablation 4/18/07 for WPW; and Drewy, 16, (autism dx'ed at 2 1/2, 13 mm ACM dx'ed at 5 1/2, no surgery, doing awesome!!) Wife of 20 years to Don...and friend to Gina. RIP. 9/5/66-10/22/07

http://s.excoboard.com/Livingwithhyd..._Gina_Libonate
http://health.groups.yahoo.com/group/autism-chiari/
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