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Old 10-03-2010, 10:53 PM
DystoniaGal DystoniaGal is offline
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Join Date: Oct 2006
Location: Gainesville, FL
Posts: 396

Originally Posted by Paul from Australia View Post

Last time when Grant was in ICU (April) he was given an antibiotic and got a rash. The docs are trying to find out which drug that was as we don't remember.
Could it be Vancomycin?
DYT1 positive dytonia . Dx 1989.
Deep Brain Stimuation at Shands at UF in 2003.
Hydrocephalus dx in 1/2004 due to an infection and resolved as of 4/4/08. Hydrocephalus returned and shunted 7/9/09 with OSV II,revised 8/5/09. So many CT scans I should
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Old 10-03-2010, 11:41 PM
Earth Mother 2 Angels Earth Mother 2 Angels is offline
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Posts: 295


I checked your posts on CN for March to April 2010, and around 3/13/10, you mentioned that Grant had a rash, but you stopped posting updates here about Grant after 3/15/10. Your next update post is in April.

So perhaps you posted about the offending antibiotic on facebook sometime between 3/15 and April 2010. If you are able to access that communication, you might be able to track down the med of concern.

Just a thought ...
As prayers continue ~

Love & Light,

*smallrose Mom to Jon, 41, (seizure disorder; Gtube; trache; colostomy; osteoporosis; hypothyroid; enlarged prostate; assorted mysteries) and Michael, 32, (intractable seizures; Gtube), who were born with an undiagnosed progressive neuromuscular disease and courageous spirits. Our Angel Michael received his wings in 2003 and now resides in Heaven. Our Angel Jon lives at home with me and Jim, the world's most wonderful dad.
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