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#1
10-22-2009, 10:51 AM
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Sleeping sitting up
Hi,
I have needed to sleep in an almost upright position at night, to avoid feeling like my brain spent the night in a blender. Does anyone know what this means? I also end up with a headache near the end of the day - front right side of head, near the shunt. Actually, now that I think of it, I have been getting weird pains along the shunt path as well. Any input? Sound familiar to you shunt 'veterans'? Bless you for all of the help that you give to newbies like me. Lily 
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#2
10-23-2009, 03:12 AM
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Hi Lily
Sorry to hear your having a difficult time getting comfy. My son has always required 3-5 pillows to sleep. During ICP monitoring it did display higher pressures the flatter he was. Af ter 2am his pressures did seem to come dowm a bit, so I will remove a pillow or 2..still do it. ICP peaks at 2am according to NS and others. My opinion is that a properly functioning shunt should adjust to the change in position. Good Luck Marilou
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#3
11-15-2009, 10:29 AM
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Lily
Havent been here in a while. You sound like you might be overdraining. I sleep on an incline to help with the overdraining. Do you have an anti-siphon?
__________________
DYT1 positive dytonia . Dx 1989. Deep Brain Stimuation at Shands at UF in 2003. Hydrocephalus dx in 1/2004 due to an infection and resolved as of 4/4/08. Hydrocephalus returned and shunted 7/9/09 with OSV II,revised 8/5/09. So many CT scans I should GLOW
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#4
11-15-2009, 11:56 AM
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Quote:
But I am guessing that Suzie sleeps on an incline for the same reason that I often have to: to drain more at night to reduce the day time over draining. Anyone else? Cathy
__________________
I discovered I had Hydro at age 50 when it apparently decompensated, was shunted 8 months later. I was told I probably wouldn't be able to tolerate a shunt having had enlarged ventricles for so many years. I seem to have to alternate between the top 2 Strata settings.
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#5
11-15-2009, 12:19 PM
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No advice, but sorry you are having problems. I know when Hayley was overdraining she felt better laying down and always wanted to "stand on her head"
__________________
Mom to Hayley, born 2/25/04 with complex arachnoid cysts and hydrocephalus, endocrine deficiency (on GH), cardiac autonomic dysfunction and other neurological and vision issues. And mom to Bobby 7 going on 16!
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