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  #1  
Old 08-18-2009, 05:56 PM
DystoniaGal DystoniaGal is offline
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Location: Gainesville, FL
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Default Headed back to the OR on Thursday

I'm overdraining tremendously on this OSV II so I have decided to have a Codman put and start at 200 and go from there, with an anti-siphon as well. Hopefully this will help and I can get my life back.
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DYT1 positive dytonia . Dx 1989.
Deep Brain Stimuation at Shands at UF in 2003.
Hydrocephalus dx in 1/2004 due to an infection and resolved as of 4/4/08. Hydrocephalus returned and shunted 7/9/09 with OSV II,revised 8/5/09. So many CT scans I should
GLOW
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Old 08-18-2009, 06:26 PM
LIZARD LIZARD is offline
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Aw, Suzie.

I hope it works for you!




LIZARD
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LIZ in Li'l Rhody; hydrocephalus dx'ed at 3 weeks old. No shunt surgery in 30 years! Epilepsy well-controlled and autoimmune issues being worked on. Mom to Caren, 19, successful ablation 4/18/07 for WPW; and Drewy, 16, (autism dx'ed at 2 1/2, 13 mm ACM dx'ed at 5 1/2, no surgery, doing awesome!!) Wife of 20 years to Don...and friend to Gina. RIP. 9/5/66-10/22/07

http://s.excoboard.com/Livingwithhyd..._Gina_Libonate
http://health.groups.yahoo.com/group/autism-chiari/
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  #3  
Old 08-18-2009, 06:28 PM
Nick,Brian,andJon'sMom Nick,Brian,andJon'sMom is offline
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Suzie,

Sorry to hear that you have to go back to the OR. Hope the new valve does the trick for you.

I will be keeping you in my thoughts on Thursday.

Marcie
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  #4  
Old 08-18-2009, 06:39 PM
monicad1974 monicad1974 is offline
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Good luck...
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Monica, NC;1983 brain tumor:ceribellium attached to the brain stem; shunted 9 days later due to Dr./nurse error, 11/08 non programmable revision... Find me on facebook: [SIGPIC][/SIGPIC]http://www.facebook.com/home.php?ref=home#/pepperknowsbest?ref=name
or my blog http://pepperknowsbest.blogspot.com/
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  #5  
Old 08-18-2009, 06:45 PM
CoolAngel28 CoolAngel28 is offline
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Unhappy

Suzie,

You will be in my thoughts and prayers...Kristin
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[SIGPIC][/SIGPIC]

CoolAngel28~"When life deals you a lemon,make lemonade and brownies." also "Life is like a box of chocolates,ya never know what you're gonna get."
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  #6  
Old 08-18-2009, 08:12 PM
Suecr Suecr is offline
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Sorry to hear about the upcoming surgery. Good thoughts for a successful surgery and speedy recovery!
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Mom to Hayley, born 2/25/04 with complex arachnoid cysts and hydrocephalus, endocrine deficiency (on GH), cardiac autonomic dysfunction and other neurological and vision issues. And mom to Bobby 7 going on 16!
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  #7  
Old 08-18-2009, 10:50 PM
DystoniaGal DystoniaGal is offline
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surgeons theory, i am very pressure sensitive. slightest increase i get sick, slightest decrease i get sick. if i am still overdraining on the programmable, not sure what we will do then. but the codman will work for me this time :-)

this will be my 3rd op since 7/9 and my 20th since jan 2003. :-(
__________________
DYT1 positive dytonia . Dx 1989.
Deep Brain Stimuation at Shands at UF in 2003.
Hydrocephalus dx in 1/2004 due to an infection and resolved as of 4/4/08. Hydrocephalus returned and shunted 7/9/09 with OSV II,revised 8/5/09. So many CT scans I should
GLOW
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  #8  
Old 08-19-2009, 06:56 AM
CathyE CathyE is offline
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I really hope this works for you!

healing hugs (((((Suzie))))))

Cathy
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I discovered I had Hydro at age 50 when it apparently decompensated, was shunted 8 months later. I was told I probably wouldn't be able to tolerate a shunt having had enlarged ventricles for so many years. I seem to have to alternate between the top 2 Strata settings.
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  #9  
Old 08-19-2009, 10:22 AM
1Lily 1Lily is offline
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Suzie,
I hope that this one is the answer for you. Fingers crossed, and you are in my thoughts and prayers.
Lily
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