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Old 08-18-2009, 05:59 PM
DystoniaGal DystoniaGal is offline
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Location: Gainesville, FL
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Default News from Lisa Jean/Hannah

Not sure if many of you follow Hannah on Caringbridge. Hannah's sister Kati has just been dx with some sort of mitochondrial disorder and most likely Hannah has it as well since they both have the same issues.

Here are the links to the caringbridge page:
http://www.caringbridge.org/visit/hannahrose
http://www.caringbridge.org/visit/katipearl

Suzie
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DYT1 positive dytonia . Dx 1989.
Deep Brain Stimuation at Shands at UF in 2003.
Hydrocephalus dx in 1/2004 due to an infection and resolved as of 4/4/08. Hydrocephalus returned and shunted 7/9/09 with OSV II,revised 8/5/09. So many CT scans I should
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Old 08-18-2009, 08:10 PM
Suecr Suecr is offline
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Thanks for posting, I was wondering about Hannah.
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Mom to Hayley, born 2/25/04 with complex arachnoid cysts and hydrocephalus, endocrine deficiency (on GH), cardiac autonomic dysfunction and other neurological and vision issues. And mom to Bobby 7 going on 16!
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