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  #21  
Old 10-10-2007, 04:35 PM
Marciab Marciab is offline
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Location: Florida
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Heidi,

Great paper. I hope you are successful in getting the medical community to pay attention to this. It could save so many people from suffering with so many problems.

I had a question about recovering ...

You wrote:

Quote:
The efficacy of current therapies may be improved, or neuroactive drugs might even be found to stimulate exocytosis or neurogenesis in damaged areas. Nonetheless, the mere possibility that the progressive nature of these diseases could be arrested and acute symptoms be alleviated is enough reason to test this hypothesis with targeted research.
Can you tell me what those current therapies are ? I'm too slow still on my speech comprehension. Either that or the newscasters are speaking a lot faster.

Thanks ... Marcia
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  #22  
Old 10-17-2007, 08:40 PM
Heidi L Heidi L is offline
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sorry, I forgot about this thread. Thanks for the compliment. I put up a new page with my story:
http://www.lindborglabs.com/AboutHeid.htm

Narcoleptics use a drug called Xyrem. Nobody knows how it really works, but I think it might stimulate exocytosis and clean out the nerve endings. I'm not sure about that, but it could be tested.

I think nicotine might do the same thing, actually. It can't be patented though, so nobody will test it.

There was a clinical study on a drug for PD called GDNF that showed promise with stimulating new neuron growth. It was cancelled though.

I have a new friend with PD and myoclonus. I need to point him your way...
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  #23  
Old 11-20-2007, 05:46 PM
diane08502 diane08502 is offline
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Default Celiac Disease and Epilepsy

Hi, my name is Diane, I live in NJ. My son has myoclonic Epilepsy, he was diagnosed at 10 months old. I took him to a Pediatric GI specialist, because he had "REFLUX", well, he was put on Zantac when he was 3 months old, and that was only because I used my experience as an RN, and demanded it, with the old pediatrician. He started having seizures when he was about 6 months old. By the time we saw the Pediatric GI specialist, he was on Phenobarbital for 4 months, AND, miracle of miracles, his REFLUX disappeared. His blood tests were negative and his other symptoms, developmental delays, had also improved. He has occaisional constipation from the phenobarbital, which is a pleasant problem that I am happy to deal with INSTEAD of seizures. The pediatrician didnt think he needed a pediatric GI specialist, but, he was concerned about using the Zantac, and it didnt seem to help. ONe year ago, my son was flat on his back, vomiting all over, he was 8 months old, he coudnt sit. NOW, with 9 months of physical therapy, 10 months of phenobarbital, and 7 months in the NJ EIS (early intervetion system) he is able to walk!!! We did not change his diet because we did not think he had Celiac disease, but, nobody addressed it but the pediatric GI specialist. The pediatrician didnt bring it up, and, if my son needed a gluten free diet, I would gladly do that too. I also have a bladder problem, IC, which is very directly affected by what I eat. SO, mayber our grandmothers were right, You are what you eat???? I am glad that so many people are taking control of their lives by making changes like GF diets, the pharmaceutical companies wont encourage this, there no money in it for them. ANyway, I hope you all have a Happy and Safe Thanksgiving, Diane, Mom of JOe Joe, 20 months, myoclonic Epilepsy, External hydrocephalus, hearing loss at birth, single artery umbillical cord (oh yeah, that has nothing to do with anything, so I am told!!) and Developmental delays, but, not for long, cause he is figuring out how to be a TODDLER!!! Thank You God for answering our prayers!
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  #24  
Old 11-28-2007, 02:04 AM
kwms kwms is offline
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Join Date: Nov 2007
Posts: 9
Default Neurologist / Nutritionist book tying several neuro conditions to diet

I just returned from a conference a few weeks ago where Dr. Natasha Campbell-McBride spoke. She was one of several dozen speakers on all kinds of topic related to nutrition and health. She is a neurologist and her son was diagnosed with severe autism. She went back to school and got her PhD in nutrition and now runs a nutrition clinic in the UK. She completely healed her son's autism through diet. He is 12 now and in a regular mainstream school and doing fine, playing sports, has friends, etc.

Her talk was called the "Gut And Psychology Syndrome" or GAPS for short. She mentioned ADD, ADHD, Dyslexia, Dyspraxia, learning, behavioral and social problems in children being on the rise significantly and in adults - substance abuse, depression, OCD, manic deppressive, schizophrenia. She has seen all of these patients and she finds many symptoms that overlap: allergies, asthma, eczema, malnutrition, bed wetting, thrush, chronic cystitis, etc. The number one problem for all of these people is DIGESTIVE PROBLEMS.

"All diseases begin in teh gut" - Hypocrates

Because 84% of our immunity is located in the gut wall, this is where she focust her attention. If you took the lining of the gut and rolled it out flat, it would take up the area of a tennis court. It is that large. In fact 90% of the cells in the body are part of the digestive system. The gut flora are the bacteria that live inside your gut. Their roles are to protect from invaders, maintain the health and integrity of the gut, provide appropriate digestive and absorption, vitamin production, detoxification, and immune system modulation. With all the polluted air and water we encounter, our last defense is the gut flora.

GAPS patients have what's called Gut Dysbiosis or "leaky gut" They have reduced or absent populations of normal flora, candida species overgrowth, clostridia species, slphate reducing bacteria, viruses (measles, herpes, CMV, etc.)

In a typical scenario this is what her GAPS patients present: Mother has gut dysbiosis (what the child swallows in the birth canal becomes the baby's gut flora, so if the mother has an imbalance it is very likely the child will too - but this is good news, because it means the condition is reversible, not genetic!), the baby doesn't develop normal gut flora, his/her immune system is compromised, many ear infections (the cause for 80% of doctor visits) with frequent antibiotics treatments, chest infections, also with frequent antibiotic treatments (antibiotics kill both the bad bacteria and the good, healthy bacteria in the gut, upsetting the normal balance), vaccinations - she doesn't feel these are a direct cause but seem to become a "last straw" in these cases where the gut flora is on the tipping point, the usual weaning diet (grains as baby's first food), gut dysbiosis, toxicity, brain disfunction

Key Treatments for re-establishment of normal gut flora:
* diet (based on the Specific Carbohydrate Diet)
* an effective probiotic - NOT prophylactic
* address the nutritional deficiencies
* detoxification

She also advocates for supplementation with cod liver oil for Vitamin A. (Green Pastures is an excellent brand) and Essential Fatty Acids (omega-3, omega-6, omega-9). Instead of multi-vitamins, minerals and amino acids, she recommends fixing the diet instead because the absorption rate of most supplements is 9%. Detoxification with juicing, baths w/ epsom salt and avoiding toxins as much as possible is recommended.

Your gut lining is always renewing itself, but it will take about 2 years to completely renew the entire gut wall.
During this 2 year period these foods should be avoided:
*all grains
* starchy vegetables (winter squash are ok to eat)
* sugar, other commercial sweeteners
* milk (and milk sugar lactose)
* starchy beans including soy (white navy beans are ok to eat)
* all processed foods
* all food additives

Recommended foods for this 2 year period are:
* all meat - fresh or frozen
* all fish - fresh or frozen
* organ meats (liver, kidneys, etc)
* good quality eggs from pastured chickens
* non-starch vegetables
* all ripe fruits including dried fruits - important here to get local fruits because our produce travels an average of 1500 miles to the stores and so it is picked very unripe and then ripened during its journey, meaning the consumer doesn't get the full benefit of the nutritional value of the fruit at the peak of ripeness. If you can, find a local grower and buy directly from him, picking the choicest fruit. She said, you don't want the apple on the tree, you want the one on the ground. It is ripe if it fell to the ground. And if it has a worm in it, even better! (meaning the worm selected that apple as a nutritious one, so it would be nutritious for you to, just cut off the part where the worm is)
* nuts and seeds
* fermented dairy
* cold extracted honey
* natural fats - all animal fats, butter & ghee, coconut & palm oil, cold-pressed virgin olive oil
* AVOID ALL margarines, butter replacements, vegetable oils and cooking oils!

For breads, pies, cakes, muffins, pancakes, waffles, etc:
* use nut flours or seed flours (coconut and almond flour are good examples)
* eggs
* butter, ghee, coconut oil, goose fat, duck fat
* use carrots, winter squash, marrow or zucchini
* for sweetness use dried fruits: dates, figs, apricots, raisins
* really ripe bananas - black looking that are being thrown out at the store
* celtic sea salt, sun-dried tomato, tomato puree, spices
* cheese and fermented cream

Meats and fish stocks - THIS SHE SAYS IS A MUST! (provides lots of minerals)
* homemade meat and fish stock
* soups and stews made w/ the stock
* meat jelly made at home
* bone marrow
* joints & cartilage
* natural gelatine
AVOID commercial boullion cubes or granules!

After the 2 year period you can slowly add dairy back in small steps. Introduce each item with very small bits and check for a reaction before moving on. If there is a reaction, stop the person is not ready, continue to heal and try later. Adding dairy back should take around 18 mos to complete.
Step 1 - introduce organic unsalted ghee
Step 2 - introduce organic unsalted butter
Step 3 - introduce kefir, yogurt and fermented cream
Step 4 - introduce homemade cheese
Step 5 - introduce mature traditional cheese
Step 6 - introduce double cream and clotted cream
AVOID ALL PASTEURIZED MILK AND MILK SUBSTITUTES!

Fermented Foods
* saurkraut - traditionally lacto-fermented
* fermented vegetables w/ kefir starter
* fermented fish w/ kefir starter or whey
* fermented dairy
* homemade vinegar

Low fiber diet for diarrhea
* no raw foods, no fruit, no nuts, no seeds
* feed homemade meat stock
* feed meat and fish well cooked in water
* soups and stews w/ vegetables & meats
* well cooked vegetables
* eggs
* homemade kefir, yogurt, cheese
* fermented vegetables

Natural chelation
* freshly pressed vegetables & fruit juices
* probiotics
* fermented foods
* sea greens
* humic acids: fulvic acid, humet, etc.
* spirulina & algae
* NDF (nano-collodial Detox Factor)

The above is all from my hand-written notes at her talk. I am expecting to get an MP3 of the whole seminar. If you'd like a copy, post a reply and I will check this board when it comes in.

For a copy of Dr. Campbell-McBride's book or the probiotic she's formulated, you can check this distributor's website: www.guthealth.info

Also there are some videos featuring Dr. Campbell-McBride and Donna Gates (of the Body Ecology Diet) on YouTube. She covers most of what is listed above: http://www.youtube.com/watch?v=Zpe4kcvaesw
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  #25  
Old 11-28-2007, 02:11 AM
kwms kwms is offline
New Community Member
 
Join Date: Nov 2007
Posts: 9
Default Neurologist / Nutritionist book tying several neuro conditions to diet

I just returned from a conference a few weeks ago where Dr. Natasha Campbell-McBride spoke. She was one of several dozen speakers on all kinds of topic related to nutrition and health. She is a neurologist and her son was diagnosed with severe autism. She went back to school and got her PhD in nutrition and now runs a nutrition clinic in the UK. She completely healed her son's autism through diet. He is 12 now and in a regular mainstream school and doing fine, playing sports, has friends, etc.

Her talk was called the "Gut And Psychology Syndrome" or GAPS for short. She mentioned ADD, ADHD, Dyslexia, Dyspraxia, learning, behavioral and social problems in children being on the rise significantly and in adults - substance abuse, depression, OCD, manic deppressive, schizophrenia. She has seen all of these patients and she finds many symptoms that overlap: allergies, asthma, eczema, malnutrition, bed wetting, thrush, chronic cystitis, etc. The number one problem for all of these people is DIGESTIVE PROBLEMS.

"All diseases begin in teh gut" - Hypocrates

Because 84% of our immunity is located in the gut wall, this is where she focust her attention. If you took the lining of the gut and rolled it out flat, it would take up the area of a tennis court. It is that large. In fact 90% of the cells in the body are part of the digestive system. The gut flora are the bacteria that live inside your gut. Their roles are to protect from invaders, maintain the health and integrity of the gut, provide appropriate digestive and absorption, vitamin production, detoxification, and immune system modulation. With all the polluted air and water we encounter, our last defense is the gut flora.

GAPS patients have what's called Gut Dysbiosis or "leaky gut" They have reduced or absent populations of normal flora, candida species overgrowth, clostridia species, slphate reducing bacteria, viruses (measles, herpes, CMV, etc.)

In a typical scenario this is what her GAPS patients present: Mother has gut dysbiosis (what the child swallows in the birth canal becomes the baby's gut flora, so if the mother has an imbalance it is very likely the child will too - but this is good news, because it means the condition is reversible, not genetic!), the baby doesn't develop normal gut flora, his/her immune system is compromised, many ear infections (the cause for 80% of doctor visits) with frequent antibiotics treatments, chest infections, also with frequent antibiotic treatments (antibiotics kill both the bad bacteria and the good, healthy bacteria in the gut, upsetting the normal balance), vaccinations - she doesn't feel these are a direct cause but seem to become a "last straw" in these cases where the gut flora is on the tipping point, the usual weaning diet (grains as baby's first food), gut dysbiosis, toxicity, brain disfunction

Key Treatments for re-establishment of normal gut flora:
* diet (based on the Specific Carbohydrate Diet)
* an effective probiotic - NOT prophylactic
* address the nutritional deficiencies
* detoxification

She also advocates for supplementation with cod liver oil for Vitamin A. (Green Pastures is an excellent brand) and Essential Fatty Acids (omega-3, omega-6, omega-9). Instead of multi-vitamins, minerals and amino acids, she recommends fixing the diet instead because the absorption rate of most supplements is 9%. Detoxification with juicing, baths w/ epsom salt and avoiding toxins as much as possible is recommended.

Your gut lining is always renewing itself, but it will take about 2 years to completely renew the entire gut wall.
During this 2 year period these foods should be avoided:
*all grains
* starchy vegetables (winter squash are ok to eat)
* sugar, other commercial sweeteners
* milk (and milk sugar lactose)
* starchy beans including soy (white navy beans are ok to eat)
* all processed foods
* all food additives

Recommended foods for this 2 year period are:
* all meat - fresh or frozen
* all fish - fresh or frozen
* organ meats (liver, kidneys, etc)
* good quality eggs from pastured chickens
* non-starch vegetables
* all ripe fruits including dried fruits - important here to get local fruits because our produce travels an average of 1500 miles to the stores and so it is picked very unripe and then ripened during its journey, meaning the consumer doesn't get the full benefit of the nutritional value of the fruit at the peak of ripeness. If you can, find a local grower and buy directly from him, picking the choicest fruit. She said, you don't want the apple on the tree, you want the one on the ground. It is ripe if it fell to the ground. And if it has a worm in it, even better! (meaning the worm selected that apple as a nutritious one, so it would be nutritious for you to, just cut off the part where the worm is)
* nuts and seeds
* fermented dairy
* cold extracted honey
* natural fats - all animal fats, butter & ghee, coconut & palm oil, cold-pressed virgin olive oil
* AVOID ALL margarines, butter replacements, vegetable oils and cooking oils!

For breads, pies, cakes, muffins, pancakes, waffles, etc:
* use nut flours or seed flours (coconut and almond flour are good examples)
* eggs
* butter, ghee, coconut oil, goose fat, duck fat
* use carrots, winter squash, marrow or zucchini
* for sweetness use dried fruits: dates, figs, apricots, raisins
* really ripe bananas - black looking that are being thrown out at the store
* celtic sea salt, sun-dried tomato, tomato puree, spices
* cheese and fermented cream

Meats and fish stocks - THIS SHE SAYS IS A MUST! (provides lots of minerals)
* homemade meat and fish stock
* soups and stews made w/ the stock
* meat jelly made at home
* bone marrow
* joints & cartilage
* natural gelatine
AVOID commercial boullion cubes or granules!

After the 2 year period you can slowly add dairy back in small steps. Introduce each item with very small bits and check for a reaction before moving on. If there is a reaction, stop the person is not ready, continue to heal and try later. Adding dairy back should take around 18 mos to complete.
Step 1 - introduce organic unsalted ghee
Step 2 - introduce organic unsalted butter
Step 3 - introduce kefir, yogurt and fermented cream
Step 4 - introduce homemade cheese
Step 5 - introduce mature traditional cheese
Step 6 - introduce double cream and clotted cream
AVOID ALL PASTEURIZED MILK AND MILK SUBSTITUTES!

Fermented Foods
* saurkraut - traditionally lacto-fermented
* fermented vegetables w/ kefir starter
* fermented fish w/ kefir starter or whey
* fermented dairy
* homemade vinegar

Low fiber diet for diarrhea
* no raw foods, no fruit, no nuts, no seeds
* feed homemade meat stock
* feed meat and fish well cooked in water
* soups and stews w/ vegetables & meats
* well cooked vegetables
* eggs
* homemade kefir, yogurt, cheese
* fermented vegetables

Natural chelation
* freshly pressed vegetables & fruit juices
* probiotics
* fermented foods
* sea greens
* humic acids: fulvic acid, humet, etc.
* spirulina & algae
* NDF (nano-collodial Detox Factor)

The above is all from my hand-written notes at her talk. I am expecting to get an MP3 of the whole seminar. If you'd like a copy, post a reply and I will check this board when it comes in.

For a copy of Dr. Campbell-McBride's book or the probiotic she's formulated, you can check this distributor's website: www.guthealth.info

Also there are some videos featuring Dr. Campbell-McBride and Donna Gates (of the Body Ecology Diet) on YouTube. She covers most of what is listed above: http://www.youtube.com/watch?v=Zpe4kcvaesw "The cure for autism and mental illness - part 1"
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  #26  
Old 12-08-2007, 11:08 AM
Marciab Marciab is offline
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Join Date: Dec 2006
Location: Florida
Posts: 199
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Quote:
Originally Posted by diane08502 View Post
Hi, my name is Diane, I live in NJ. My son has myoclonic Epilepsy, he was diagnosed at 10 months old. I took him to a Pediatric GI specialist, because he had "REFLUX", well, he was put on Zantac when he was 3 months old, and that was only because I used my experience as an RN, and demanded it, with the old pediatrician. He started having seizures when he was about 6 months old. By the time we saw the Pediatric GI specialist, he was on Phenobarbital for 4 months, AND, miracle of miracles, his REFLUX disappeared. His blood tests were negative and his other symptoms, developmental delays, had also improved. He has occaisional constipation from the phenobarbital, which is a pleasant problem that I am happy to deal with INSTEAD of seizures. The pediatrician didnt think he needed a pediatric GI specialist, but, he was concerned about using the Zantac, and it didnt seem to help. ONe year ago, my son was flat on his back, vomiting all over, he was 8 months old, he coudnt sit. NOW, with 9 months of physical therapy, 10 months of phenobarbital, and 7 months in the NJ EIS (early intervetion system) he is able to walk!!! We did not change his diet because we did not think he had Celiac disease, but, nobody addressed it but the pediatric GI specialist. The pediatrician didnt bring it up, and, if my son needed a gluten free diet, I would gladly do that too. I also have a bladder problem, IC, which is very directly affected by what I eat. SO, mayber our grandmothers were right, You are what you eat???? I am glad that so many people are taking control of their lives by making changes like GF diets, the pharmaceutical companies wont encourage this, there no money in it for them. ANyway, I hope you all have a Happy and Safe Thanksgiving, Diane, Mom of JOe Joe, 20 months, myoclonic Epilepsy, External hydrocephalus, hearing loss at birth, single artery umbillical cord (oh yeah, that has nothing to do with anything, so I am told!!) and Developmental delays, but, not for long, cause he is figuring out how to be a TODDLER!!! Thank You God for answering our prayers!
Diane,

Sorry it took me so long to reply. I hope you are trying the GF + diet for your son. I'm not up on what to look for in children, but others on the Gluten Sensitivity section here will be. Since you know you react to foods, there's a good probability that your son is too.

Enjoy the toddling ... My youngest is in college now ...

Marcia
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  #27  
Old 12-08-2007, 11:31 AM
Marciab Marciab is offline
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Join Date: Dec 2006
Location: Florida
Posts: 199
Default

Thanks for posting this. I've seen other info like this on the web too.


Quote:
Originally Posted by kwms View Post

"All diseases begin in teh gut" - Hypocrates

Because 84% of our immunity is located in the gut wall, this is where she focust her attention. If you took the lining of the gut and rolled it out flat, it would take up the area of a tennis court. It is that large. In fact 90% of the cells in the body are part of the digestive system. The gut flora are the bacteria that live inside your gut. Their roles are to protect from invaders, maintain the health and integrity of the gut, provide appropriate digestive and absorption, vitamin production, detoxification, and immune system modulation. With all the polluted air and water we encounter, our last defense is the gut flora.

GAPS patients have what's called Gut Dysbiosis or "leaky gut" They have reduced or absent populations of normal flora, candida species overgrowth, clostridia species, slphate reducing bacteria, viruses (measles, herpes, CMV, etc.)

In a typical scenario this is what her GAPS patients present: Mother has gut dysbiosis (what the child swallows in the birth canal becomes the baby's gut flora, so if the mother has an imbalance it is very likely the child will too - but this is good news, because it means the condition is reversible, not genetic!), the baby doesn't develop normal gut flora, his/her immune system is compromised, many ear infections (the cause for 80% of doctor visits) with frequent antibiotics treatments, chest infections, also with frequent antibiotic treatments (antibiotics kill both the bad bacteria and the good, healthy bacteria in the gut, upsetting the normal balance), vaccinations - she doesn't feel these are a direct cause but seem to become a "last straw" in these cases where the gut flora is on the tipping point, the usual weaning diet (grains as baby's first food), gut dysbiosis, toxicity, brain disfunction

More and more I see others agreeing with what this doctor is saying. It'd sure be great if treating our guts became the first treatment our doctors looked at.


Quote:
Originally Posted by kwms View Post

Key Treatments for re-establishment of normal gut flora:
* diet (based on the Specific Carbohydrate Diet)
* an effective probiotic - NOT prophylactic
* address the nutritional deficiencies
* detoxification

She also advocates for supplementation with cod liver oil for Vitamin A. (Green Pastures is an excellent brand) and Essential Fatty Acids (omega-3, omega-6, omega-9). Instead of multi-vitamins, minerals and amino acids, she recommends fixing the diet instead because the absorption rate of most supplements is 9%. Detoxification with juicing, baths w/ epsom salt and avoiding toxins as much as possible is recommended.

Your gut lining is always renewing itself, but it will take about 2 years to completely renew the entire gut wall.
During this 2 year period these foods should be avoided:
*all grains
* starchy vegetables (winter squash are ok to eat)
* sugar, other commercial sweeteners
* milk (and milk sugar lactose)
* starchy beans including soy (white navy beans are ok to eat)
* all processed foods
* all food additives

Recommended foods for this 2 year period are:
* all meat - fresh or frozen
* all fish - fresh or frozen
* organ meats (liver, kidneys, etc)
* good quality eggs from pastured chickens
* non-starch vegetables
* all ripe fruits including dried fruits - important here to get local fruits because our produce travels an average of 1500 miles to the stores and so it is picked very unripe and then ripened during its journey, meaning the consumer doesn't get the full benefit of the nutritional value of the fruit at the peak of ripeness. If you can, find a local grower and buy directly from him, picking the choicest fruit. She said, you don't want the apple on the tree, you want the one on the ground. It is ripe if it fell to the ground. And if it has a worm in it, even better! (meaning the worm selected that apple as a nutritious one, so it would be nutritious for you to, just cut off the part where the worm is)
* nuts and seeds
* fermented dairy
* cold extracted honey
* natural fats - all animal fats, butter & ghee, coconut & palm oil, cold-pressed virgin olive oil
* AVOID ALL margarines, butter replacements, vegetable oils and cooking oils!

For breads, pies, cakes, muffins, pancakes, waffles, etc:
* use nut flours or seed flours (coconut and almond flour are good examples)
* eggs
* butter, ghee, coconut oil, goose fat, duck fat
* use carrots, winter squash, marrow or zucchini
* for sweetness use dried fruits: dates, figs, apricots, raisins
* really ripe bananas - black looking that are being thrown out at the store
* celtic sea salt, sun-dried tomato, tomato puree, spices
* cheese and fermented cream

Meats and fish stocks - THIS SHE SAYS IS A MUST! (provides lots of minerals)
* homemade meat and fish stock
* soups and stews made w/ the stock
* meat jelly made at home
* bone marrow
* joints & cartilage
* natural gelatine
AVOID commercial boullion cubes or granules!

After the 2 year period you can slowly add dairy back in small steps. Introduce each item with very small bits and check for a reaction before moving on. If there is a reaction, stop the person is not ready, continue to heal and try later. Adding dairy back should take around 18 mos to complete.
Step 1 - introduce organic unsalted ghee
Step 2 - introduce organic unsalted butter
Step 3 - introduce kefir, yogurt and fermented cream
Step 4 - introduce homemade cheese
Step 5 - introduce mature traditional cheese
Step 6 - introduce double cream and clotted cream
AVOID ALL PASTEURIZED MILK AND MILK SUBSTITUTES!

Fermented Foods
* saurkraut - traditionally lacto-fermented
* fermented vegetables w/ kefir starter
* fermented fish w/ kefir starter or whey
* fermented dairy
* homemade vinegar

Low fiber diet for diarrhea
* no raw foods, no fruit, no nuts, no seeds
* feed homemade meat stock
* feed meat and fish well cooked in water
* soups and stews w/ vegetables & meats
* well cooked vegetables
* eggs
* homemade kefir, yogurt, cheese
* fermented vegetables

Natural chelation
* freshly pressed vegetables & fruit juices
* probiotics
* fermented foods
* sea greens
* humic acids: fulvic acid, humet, etc.
* spirulina & algae
* NDF (nano-collodial Detox Factor)

The above is all from my hand-written notes at her talk. I am expecting to get an MP3 of the whole seminar. If you'd like a copy, post a reply and I will check this board when it comes in.

For a copy of Dr. Campbell-McBride's book or the probiotic she's formulated, you can check this distributor's website: www.guthealth.info

Also there are some videos featuring Dr. Campbell-McBride and Donna Gates (of the Body Ecology Diet) on YouTube. She covers most of what is listed above: http://www.youtube.com/watch?v=Zpe4kcvaesw

This is good advice, but I'd recommend starting out with a low carb diet that is just meats, fruits, veggies, nuts and seeds. Add probiotics, a good digestive enzyme and healthy fats like EVOO, grapeseed oil, flax, etc to your diet. This will start healing the digestive tract.

Marcia
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  #28  
Old 06-09-2008, 10:56 PM
Marciab Marciab is offline
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Join Date: Dec 2006
Location: Florida
Posts: 199
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Bumping this for the newbies. There's some great info in this from some very helpful people.

BTW, I'm still improving albeit slowly. Healing is a marathon for me, but it could just be a sprint for you. We're all different.

Since posting the last time, I've noticed an improvement with my chronic hypoglycemia by going on the Paleo diet. My GTT as of April 2008 shows that I'm no longer hypoglycemic, but I still feel better if I eat every 2 - 3 hours.

http://www.naturalnews.com/022215.html


On May 1st, I started experimenting with step 1 of the John Hopkins protocal for OI/NMH. I noticed within the first day or so that my muslces didn't feel weak anymore when I vacuumed. I went from having to take long rest periods after 5 minutes of vacuuming to vacuuming the whole LR/DR/K in 15 minutes ...

http://www.pediatricnetwork.org/medi...hnshopkins.htm

Originally when I posted this, I thought the feeling like the floor was moving out from under my feet was OI/NMH. Did I mention I'm a patient not a doctor ??!!

HTH ... Marcia
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  #29  
Old 06-20-2008, 12:15 PM
RTFlynn RTFlynn is offline
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On a related note (but not celiac specific), there is some studies that show MS, and other auto-immune conditions, as being related to dairy. With that in mind, Colin Campbell's (Cornell U. prof and long time nutrition researcher), The China Study, is an interesting read.
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  #30  
Old 12-02-2008, 08:51 PM
Marciab Marciab is offline
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Join Date: Dec 2006
Location: Florida
Posts: 199
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Hi again.

I wanted to bring you up to date on some treatments I've found that have helped me and might help you too ...

And if you haven't already, I'd read the rest of this thread. I've found it to be right on target whether you are trying to heal from a chronic condition or new one. I find it helpful to read various websites when researching health conditions. I'd recommend reading anything on the Paleo, low carb or low glycemic diet. Besides that be sure to take a look at what toxins could be causing your symptoms. This could be gluten or dairy or corn or msg or pesticides or or or ... To get started I'd eliminate the common food allergens and then anything you know makes you feel sick. That doesn't include teenagers .. : )

For me, zero gluten is imperative ... But

I've discovered DPP-IV which is a digestive enzyme for gluten and dairy. If you google this you'll find that it is being used by some in the celiac and autism communities to counteract the effects of being cross contaminated with gluten or dairy. And while this doesn't appear to work for everyone, I've noticed a difference. This should only be used when gluten can't be avoided. It's not meant to be a substitute for a GF diet. FWIW. Beware of those products labelled gluten free. They can have 20 ppm and still be considered gf. I have the feeling these are nailing me ...

And for anyone with orthostatic intolerance (OI), while I'm still benefitting from salt loading (Himalayan salt), I've also added alkaline water (eVAMOR) to my regime to help avoid post exertional malaise (PEM). That's the tired feeling those of us with CFS get for days after excercising and is linked to OI. At this point, I'm down to one day of rest, if any, after a day of activity ... I was at 2 - 3 days of PEM when I last posted. knock on wood ... I'm also in PT for OI which appears to be helping too. Anyone can benefit from alkaline water though. Just don't drink it with your meds or supplements or with a meal. It can interact with those ...

I'm not sure what role the Paleo / low oxalate diet is playing in this latest improvement, but I still feel better when I follow it.

hth ... marcia

Last edited by Marciab; 12-04-2008 at 11:51 AM.
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