BrainTalk Communities 10/2006-8/2011 Archives  

Go Back   BrainTalk Communities 10/2006-8/2011 Archives > Specific Neurological Conditions (M - Z) > Tourette Syndrome

Reply
 
Thread Tools Display Modes
  #1  
Old 11-29-2007, 12:14 PM
Tattle Tattle is offline
New Community Member
 
Join Date: Nov 2007
Location: Northern Michigan
Posts: 6
Wink Anyone from MICHIGAN

Hello everyone:

I'm Tammy mother of 2, my son is 14 and has TS, ADD, and OCD, My Daughter is 11. I also have my HUBBY of 17 years. My Family is my LIFE and my kids keep me very busy. My son plays every sport you can think of (Football, Basketball (which we are in right now), Wrestling, and Baseball). My Daughter is in 6 Dance Classes and is a student teacher for 2 pre-school classes. So as you can see I run, run, run.....I LOVE it.. Hubby just meets up with us after work.

I also work full time as an office manager for a Log Home Company, which also keeps me very busy.

We found out last March that our son had Tourettes, this was after 4 years of trying to find out why he Bobbed his head like he does. 4 years ago we were told that it was most likely Epelipsy (sorry ms). We were told to just hold off because they didn't feel it was bad enough for meds, PLUS that would follow him the rest of his life (Driving, work, Army, ect. ect.) So we did what the Doc's order which was NOTHING.

Last Feburary his bobbing was so bad that others started to notice it more and more. It was brought to us by a friend that it looked like Jerry might have Tourettes.. WHAT are you nuts my son doesn't have that... he doesn't blurt out bad words... WOW how dumb are we.. With all that you see on TV thats all you think Tourettes is.

We went back to his doctor and demanded more test. When we went in I was armed and ready for a battle.. I had a months worth of video to show the head Bobbing, and also a Jaw Jerking thing that we had seen before but thought he was poping his ears. Once the Doctor looked at everything I had with me, she said she was pretty sure we were on track with the Tourettes, but wanted to rule out a few things, so back we went for more test. This time my husband demanded that we see a Doctor at the UOFM or the childrends Hospital in GR. They sent us to the UOFM and they confirmed that its Tourettes.

I have to say that I felt like such a BAD mom for not pushing this all before. I now know that its not my fault and all's we can do it our best from this point on.

I am so proud of my son, he doesn't feel bad (Nor should he) about having Tourettes or ADD or OCD, he is very open and when someone ask why he does what he does he tells them.

I look forward to chatting with you all

Hugs
Tammy
Reply With Quote
  #2  
Old 02-02-2008, 01:29 AM
spitball spitball is offline
Community Member
 
Join Date: Oct 2006
Posts: 49
Default Hi Tammy

Hi- You are doing the everything you can for your son, so don't be hard on yourself. The media does tend to portray TS as swearing; it is too bad that is the generalized perception, but at least it is getting the words Tourette Syndrome heard. Nobody with a Neurological or other illness asks for it. Out of curiousity, how did the original Neurologist mention your son might have epilepsy? Any EEGs, etc? You have come to a great place to get support and learn from each other. Your son is lucky to have a concerned Mom who does her research. Not from Michigan. Be Well.
Reply With Quote
  #3  
Old 02-11-2008, 07:50 PM
snapdragon928 snapdragon928 is offline
New Community Member
 
Join Date: Feb 2007
Posts: 29
Default tics from michigan

I also went to the U of M and am looking at the possibility of going back again. My neurolgist sent me a few years back when the ticcing got real bad. Well lo and behold I have started something new and rare for us, three weeks ago about I started ticcing the slowdown tic I get at work. By the time I got home I was swearing, and it just got worse till every other word was a swear word or two. The doctor took me off work, and in another week she took me off again because I was still swearing (coprolalia-only ten % I guess do it, lucky me) I am hoping that it gets better soon. At the U of M they said it was risperdal or haldol, that was my two choices for meds. So I was not impressed about either one. I started on risperdal when I went to the doctors office and told him I could not wait anymore for U of M , who were going to send the report out for like two or three weeks and didn't give me a script-I had headaches for weeks from the head bobbing and other tics, I could barely function. He asked what they talked about ordering for me and he wrote me the script before he got the report, thank God. It has helped alot. But I went off of it for about a month and now here I am with brand new tics. So i was happy to finally get a definate diagnosis, but did not have a very good feeling about U of M. But if I go to my neurologist, he will probably send me back. Since they did help, it would be ok, but I will not go to haldol at all. Nice to meet you.
Reply With Quote
  #4  
Old 02-11-2008, 09:01 PM
tic chick tic chick is offline
Distinguished Community Member
 
Join Date: Oct 2006
Location: Detroit, MI
Posts: 4,282
Default

snapdragon...

i have a great neurologist that i have been seeing for the last 23 years. he is a movement disorders specialist. he is in southfield, around 13 mile road and telegraph. his name is dr. peter lewitt. if you want any more info, just pm me by clicking on my name, "tic chick". you will get a drop down menu. click on "send a private message to tic chick". he is so past prescribing haldol.

sorry about the coprolalia. i hope it doesn't last too long.

take care of yourself,
jeannie
__________________
Here's to good women. May we know them. May we be them. May we raise them.
"The world is a better place when you're barefoot." Mark
"Don't go there unless you know the way back." TC
"...there will be an answer. Let it be." Paul McCartney
Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
ATTN Michigan Members: FREE educational seminar on thrombosis and thrombophilia Eyzrbrn Antiphospholipid Antibody Syndrome (APS) 0 03-02-2007 10:08 PM
Michigan Parkinson Foundation is offering a 7-week class on living with Parkinson CarolynS Parkinson's Disease 0 02-14-2007 08:15 PM


All times are GMT -4. The time now is 09:18 PM.


Powered by vBulletin® Version 3.8.5
Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.
BrainTalk Communities Incorporated