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  #11  
Old 10-15-2010, 09:36 AM
Tattoo2 Tattoo2 is offline
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Those sound a lot like Simple Partial seizures. My first seizures that I was aware of were Simple Partials, "funny feelings", and occuirred for a couple of years before I finally had a Complex Partial that others could witness. You might be having secondarily generalized seizures, but only a thorough examination and testing will tell for sure.
What dose of Keppra did he put you on? Also, I cannot see any self respecting neurologist much less an Epileptologist so quickly switching to a psych drug, Cymbalta. Geeze! Untrained docs automatically think psych which is a big mistake that we have to pay for. Good luck, and do check him out very thoroughly. There may be a website that has his credentials on it. The hospital or his practice name is a good place to start. Then ask. Docs like this are scary and make me angry. No one can hope to get better if they are not directed to the doc with the proper tools needed for the specific illness. They are not at all interchangeable.
Once, I went to a neurologist whose specialty was headaches. Hardly the one with the proper training I needed for epilepsy, although headaches are considered to be neuro. I was not controlled, and he did nothing, but play with my meds while they got worse and worse. He also jerked me around by sending me to one of "his friends", an epileptologist, at Emory Clinic's Epilepsy Center, who was more concerned/interested in my splenectomy and never mentioned my epilepsy. Told me to go my back to my other doc. This is a dangerous place to me. Was there later as a patient and cold have died. have to do our research carefully. No excuse.
Look for a board certified epileptologist ( with the certificate of completed Fellowship) , and get your PCP to do the referral. That will be easier. Tattoo

Last edited by Tattoo2; 10-15-2010 at 05:40 PM. Reason: spell checker on strike!
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  #12  
Old 10-15-2010, 11:46 AM
lor lor is offline
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You were wanting a hug to give. Here's one to have


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  #13  
Old 10-16-2010, 01:51 AM
annie annie is offline
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Remember any doctor can call himself a neurologist or a specialist in anything. Just because a doctor calls himself an orthopedic specialist does not mean that he is board certified.

You want first thing of all to make sure that this guy is board certified in neurology.

My neighbor has diabetes, takes shots, and has gout. She is being treated by a podiatrist. Who says he is a specialist in diabetes and gout. And he may be, but I surely would want at least an MD in my specialists.
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  #14  
Old 10-16-2010, 07:39 AM
TH Alvorsrod TH Alvorsrod is offline
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Quote:
Originally Posted by lor View Post
You were wanting a hug to give. Here's one to have


Thank You!!!!
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  #15  
Old 11-02-2010, 10:11 PM
Tattoo2 Tattoo2 is offline
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Bump!

"An Epileptologist is usually at a Comprehensive Epilepsy Center and has always had additional training/education in epilepsy past the Neurology residency. There will be a certificate on the wall saying he/she has completed a Fellowship in Epilepsy or Neurophysiology. Without that, he is not an Epileptologist. What do you know abt this new doc? Find out where he did his Fellowship and in what area. Definitely necessary! Tattoo"
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  #16  
Old 07-11-2011, 10:27 PM
TH Alvorsrod TH Alvorsrod is offline
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I had decided not to comment on this thread any longer because of all the Negative Nancy comments but I do believe that the Cymbalta has my issues under control!

I am down to 500 mg of Keppra PER DAY and 40 mg of Cymbalta per day. Since starting the Cymbalta in late November of last year, I am clear-headed, not afraid to drive, have not had any seizures and am no longer living in a fog.

The difference in the way I feel on a daily basis is amazing! By the end of the year, I will be completely off Keppra and my fingers are crossed! I feel FABULOUS!!!!!
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  #17  
Old 07-13-2011, 12:38 PM
LIZARD LIZARD is offline
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I'm so glad you feel so much better!! Please understand, too, that we're just being realistic with you. I have had plenty of normal EEGs, and I only take 250 mg Keppra (nothing else) at night and have COMPLETE control of my epilepsy...but I know I still have epi., and I always will. I was even off meds for years at a time, but there would always be a breakthrough sz at some point. It's just a matter of time. After my completely normal 24-hour EEG, I had SIX GM szs in two years. It was awhile later, too, so I'm just cautioning you that epilepsy probably isn't done with you yet. I KNOW that disappointment, too; I have been there.



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LIZ in Li'l Rhody; hydrocephalus dx'ed at 3 weeks old. No shunt surgery in 30 years! Epilepsy well-controlled and autoimmune issues being worked on. Mom to Caren, 19, successful ablation 4/18/07 for WPW; and Drewy, 16, (autism dx'ed at 2 1/2, 13 mm ACM dx'ed at 5 1/2, no surgery, doing awesome!!) Wife of 20 years to Don...and friend to Gina. RIP. 9/5/66-10/22/07

http://s.excoboard.com/Livingwithhyd..._Gina_Libonate
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  #18  
Old 07-13-2011, 09:56 PM
TH Alvorsrod TH Alvorsrod is offline
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Thank you, Liz! As always, you're thoughtful and sweet.
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