Forum: Child Neurology
12-25-2010, 03:45 AM
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Replies: 4
Views: 1,003
I dont have an ITB pump, but I am on oral...
I dont have an ITB pump, but I am on oral baclofen for my dystonia and I have been on baclofen for over 20 years now. Sounds like there may be a kink in the tubing if the spasms are intermittent.
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Forum: Child Neurology
10-03-2010, 10:53 PM
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Replies: 11
Views: 1,142
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-29-2010, 01:12 AM
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Replies: 5
Views: 1,065
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
05-22-2010, 04:38 PM
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Replies: 13
Views: 1,180
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
05-22-2010, 04:37 PM
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Replies: 13
Views: 1,180
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
05-04-2010, 06:57 PM
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Replies: 13
Views: 1,180
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
04-25-2010, 03:37 PM
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Replies: 3
Views: 475
Deborah
Havent been here in a long time, but as...
Deborah
Havent been here in a long time, but as long as Austin is a full-time student you should be able to keep him on your insurance until age 23 or older in some states. I dont recall how old he...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
11-15-2009, 10:29 AM
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Replies: 5
Views: 803
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
09-14-2009, 07:58 PM
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Replies: 13
Views: 1,642
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Forum: Child Neurology
08-24-2009, 04:33 PM
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Replies: 21
Views: 1,423
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-24-2009, 04:31 PM
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Replies: 13
Views: 886
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-23-2009, 09:35 PM
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Replies: 5
Views: 527
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-23-2009, 09:24 PM
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Replies: 2
Views: 401
so far so good
well 3 days out from surgery and no headaches. *knock on wood* *all crossables crossed*
i have to sleep on an incline, for how long, who knows. but at this point i am willing to do anything to...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-18-2009, 10:50 PM
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Replies: 8
Views: 819
surgeons theory, i am very pressure sensitive....
surgeons theory, i am very pressure sensitive. slightest increase i get sick, slightest decrease i get sick. if i am still overdraining on the programmable, not sure what we will do then. but the...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-18-2009, 05:59 PM
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Replies: 1
Views: 688
News from Lisa Jean/Hannah
Not sure if many of you follow Hannah on Caringbridge. Hannah's sister Kati has just been dx with some sort of mitochondrial disorder and most likely Hannah has it as well since they both have the...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-18-2009, 05:56 PM
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Replies: 8
Views: 819
Headed back to the OR on Thursday
I'm overdraining tremendously on this OSV II so I have decided to have a Codman put and start at 200 and go from there, with an anti-siphon as well. Hopefully this will help and I can get my life...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-18-2009, 05:54 PM
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Replies: 6
Views: 698
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-16-2009, 07:02 PM
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Replies: 6
Views: 698
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-16-2009, 12:01 AM
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Replies: 11
Views: 829
With you having a VA shunt, I would think the...
With you having a VA shunt, I would think the docs would be more aggressive since you could go septic very easily. I know that the medical system in England has the channels you have to go through...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-15-2009, 11:52 PM
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Replies: 6
Views: 1,940
Before you go all the way up to CC, why not try...
Before you go all the way up to CC, why not try getting a consult at Shands at UF here in Gainesville. Fantastic group of NS, been with them for 6 years and have seen most of them in one capacity or...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-14-2009, 04:59 PM
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Replies: 3
Views: 424
My NS's nurse called me this morning giving me...
My NS's nurse called me this morning giving me two options. Wait it out and see how my brain adjusts or go back to a programmable. At this point, I am opting for the programmable to at least get me...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-13-2009, 08:50 AM
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Replies: 3
Views: 424
Marcie/Jon's Mom
I had the OSVII placed 7/9 and had a proximal revision on 8/5. I am definitely overdraining. I have a burr hole from my fenestration a few years ago. WHen I start to overdrain, the hole gets sunken...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-12-2009, 11:22 PM
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Replies: 16
Views: 1,246
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-12-2009, 11:20 PM
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Replies: 6
Views: 579
Well today started off really well, no headache...
Well today started off really well, no headache and well after lunch things went downhill fast. I am overdraining and I am miserable. I promised my NS I would give this 2 weeks for my brain to settle...
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Forum: Hydrocephalus (in memory of Braindrain aka Gina)
08-11-2009, 06:30 PM
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Replies: 16
Views: 1,246
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