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Forum: Cerebrospinal Fluid (CSF) Leak 12-04-2010, 06:59 AM
Replies: 7
Views: 626
Posted By Concerned Gal
Tamaretta - thanks for the update on Taylor....

Tamaretta - thanks for the update on Taylor. Sounds like she has had many a rough day. Continuing to wish you all the best.
Forum: Cerebrospinal Fluid (CSF) Leak 08-23-2010, 01:33 AM
Replies: 5
Views: 696
Posted By Concerned Gal
I gained quite a bit of weight just after my leak...

I gained quite a bit of weight just after my leak episode (ie in the few months after I started to move around a bit more). I was sickly thin during the worst of my leak symptoms. Turns out my...
Forum: Cerebrospinal Fluid (CSF) Leak 08-23-2010, 01:28 AM
Replies: 7
Views: 785
Posted By Concerned Gal
Oh smiles...sorry you are still suffering. I...

Oh smiles...sorry you are still suffering. I haven't been around much so only just saw this thread.

I personally feel like I can go high pressure sometimes. The pressure changes in my head and it...
Forum: Cerebrospinal Fluid (CSF) Leak 08-23-2010, 01:16 AM
Replies: 1
Views: 470
Posted By Concerned Gal
I often think of Kim too. hope you are doing...

I often think of Kim too.

hope you are doing well Kim!!!
Forum: Cerebrospinal Fluid (CSF) Leak 07-19-2010, 07:00 AM
Replies: 5
Views: 1,093
Posted By Concerned Gal
Smiles - hope you are going well. I was a bit...

Smiles - hope you are going well. I was a bit saddened when I checked in and saw you were still needing blood patches after all this time.

Anyway, after my second blood patch, I felt really good...
Forum: Cerebrospinal Fluid (CSF) Leak 07-19-2010, 06:54 AM
Replies: 12
Views: 1,005
Posted By Concerned Gal
Yea, wonderful news

Yea, wonderful news
Forum: Cerebrospinal Fluid (CSF) Leak 05-25-2010, 03:55 AM
Replies: 11
Views: 661
Posted By Concerned Gal
Yes. was very stiff for a month or so I think....

Yes. was very stiff for a month or so I think. Take it easy
Forum: Cerebrospinal Fluid (CSF) Leak 05-25-2010, 03:55 AM
Replies: 6
Views: 634
Posted By Concerned Gal
Great news Belinda. Sorry i haven't been here to...

Great news Belinda. Sorry i haven't been here to see your post earlier.

Take it easy and all the best for the future.
Forum: Cerebrospinal Fluid (CSF) Leak 05-25-2010, 03:53 AM
Replies: 19
Views: 2,007
Posted By Concerned Gal
I haven't heard many cases of this. But I do hang...

I haven't heard many cases of this. But I do hang out on this site where unfortunatley most of our cases are non responsive to conservative treatment....which explains why we are still hanging around...
Forum: Cerebrospinal Fluid (CSF) Leak 05-25-2010, 03:51 AM
Replies: 15
Views: 910
Posted By Concerned Gal
Congrats xtine!!! So happy for you. Take it...

Congrats xtine!!! So happy for you.

Take it easy and best of luck for the recovery period.
Forum: Cerebrospinal Fluid (CSF) Leak 05-12-2010, 03:40 AM
Replies: 15
Views: 910
Posted By Concerned Gal
xtine - good luck tomorrow. keep us updated. ...

xtine - good luck tomorrow. keep us updated.

I had a general and I found waking up to a new baby an amazing experience. As soon as I opened my eyes I saw hubby cuddling our little princess - it...
Forum: Cerebrospinal Fluid (CSF) Leak 05-03-2010, 01:06 AM
Replies: 15
Views: 910
Posted By Concerned Gal
Definitely recommend a general. My OB was...

Definitely recommend a general. My OB was adamanent that this was the only way for me as I obviously had a "predisposition" for leaking. I was diagnosed with a leak though so had the official...
Forum: Cerebrospinal Fluid (CSF) Leak 03-30-2010, 05:24 AM
Replies: 15
Views: 910
Posted By Concerned Gal
Update on xtine?

Anyone heard an update from xtine?

From memory she announced she was expecting a little bundle of joy.

Hope you are doing well xtine.
Forum: Cerebrospinal Fluid (CSF) Leak 03-30-2010, 05:18 AM
Replies: 17
Views: 1,681
Posted By Concerned Gal
My thyroid went haywire only after I started to...

My thyroid went haywire only after I started to come out of the worst of my leak episode. Hasn't been right since....
Forum: Cerebrospinal Fluid (CSF) Leak 02-15-2010, 12:51 AM
Replies: 5
Views: 1,801
Posted By Concerned Gal
I was also of the understanding that prednisone...

I was also of the understanding that prednisone (corticosteriods) can raise intracranial pressure.

take care.
Forum: Cerebrospinal Fluid (CSF) Leak 02-15-2010, 12:49 AM
Replies: 7
Views: 682
Posted By Concerned Gal
Lovely lovely news

Lovely lovely news
Forum: Cerebrospinal Fluid (CSF) Leak 12-22-2009, 12:58 AM
Replies: 10
Views: 922
Posted By Concerned Gal
* a carton of caffeinated soda okleaker...

* a carton of caffeinated soda


okleaker - I have one of those tools you refer to with the claw on the end - INVALUABLE!
Forum: Cerebrospinal Fluid (CSF) Leak 11-30-2009, 03:11 AM
Replies: 10
Views: 1,041
Posted By Concerned Gal
Great news cinda! Hope things continue well for...

Great news cinda! Hope things continue well for you.
Forum: Cerebrospinal Fluid (CSF) Leak 11-13-2009, 06:42 AM
Replies: 7
Views: 974
Posted By Concerned Gal
keep a symptom diary and timeline of incidents...

keep a symptom diary and timeline of incidents big or small and take to all appointments.

it is one thing to go into a Dr and say I feel terrible all the time and another to be able to list daily...
Forum: Cerebrospinal Fluid (CSF) Leak 10-21-2009, 04:27 AM
Replies: 9
Views: 641
Posted By Concerned Gal
Oh Laura. all the best for them!

Oh Laura. all the best for them!
Forum: Cerebrospinal Fluid (CSF) Leak 10-20-2009, 03:32 AM
Replies: 5
Views: 515
Posted By Concerned Gal
(((hugs))))) I can't think of anything helpful...

(((hugs))))) I can't think of anything helpful to say
Forum: Cerebrospinal Fluid (CSF) Leak 10-15-2009, 05:53 AM
Replies: 15
Views: 1,237
Posted By Concerned Gal
I'm a confirmed leaker - confirmed through many...

I'm a confirmed leaker - confirmed through many MRIs head/neck with meningeal enhancement + a positive ct myelogram showing more fluid leaking into my epidural space than was in my head (picture big...
Forum: Cerebrospinal Fluid (CSF) Leak 10-15-2009, 05:31 AM
Replies: 8
Views: 583
Posted By Concerned Gal
Great news!

Great news!
Forum: Cerebrospinal Fluid (CSF) Leak 10-10-2009, 05:39 AM
Replies: 5
Views: 489
Posted By Concerned Gal
Great news. Hoping for continued improvement.

Great news. Hoping for continued improvement.
Forum: Cerebrospinal Fluid (CSF) Leak 09-27-2009, 11:22 PM
Replies: 9
Views: 1,685
Posted By Concerned Gal
Aaah, I was wondering why Deb was having surgery...

Aaah, I was wondering why Deb was having surgery again and I was getting worried for a second. glad to see it was an old post.

*Waving* Hi Deb!!!!
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