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Forum: Epilepsy Forums 07-25-2011, 12:14 AM
Replies: 15
Views: 1,916
Posted By Tattoo2
I rather doubt if asking a neurosurgeon about...

I rather doubt if asking a neurosurgeon about improvements in neurosurgery would give an objective answer. Seems like there would be a conflict of interest. What is he/she gonna say? I would however...
Forum: Epilepsy Forums 07-23-2011, 12:58 AM
Replies: 15
Views: 1,916
Posted By Tattoo2
I just wanted to clarify that it is not having...

I just wanted to clarify that it is not having surgery that I have reservations about in this case. I am thankful I had surgery and have not lost consciousness n 12 years. I am concerned about the...
Forum: Epilepsy Forums 07-21-2011, 05:36 PM
Replies: 15
Views: 1,916
Posted By Tattoo2
What the heck is an alternative specialist unit?...

What the heck is an alternative specialist unit? That alone gives me great pause! Jeepers! I was at a Comprehensive Center such as it was for my first VEEG and because the staff was not trained and...
Forum: Epilepsy Forums 07-14-2011, 10:45 AM
Replies: 17
Views: 1,963
Posted By Tattoo2
Travis, I wish you well and hope you get through...

Travis, I wish you well and hope you get through the phases with a green light. I would ask you to find out how many successful cases the neurosurgoen to do your resection has done. You want to do...
Forum: Epilepsy Forums 06-30-2011, 12:09 PM
Replies: 10
Views: 856
Posted By Tattoo2
Sue, isn't our health care system so frustrating?...

Sue, isn't our health care system so frustrating? I want Single Payer or Medicare for All sooo bad. You would not be having this problem if we had that and the cost would be so much less. can dream...
Forum: Epilepsy Forums 06-22-2011, 04:21 PM
Replies: 10
Views: 652
Posted By Tattoo2
Balance problems, running into walls, or just not...

Balance problems, running into walls, or just not making that corner well etc was one thing I would experience if my Tegretol level was too high. One of the signs that I was toxic. how is your...
Forum: Epilepsy Forums 06-01-2011, 04:44 PM
Replies: 2
Views: 366
Posted By Tattoo2
Were you on the regular Lamictal already? if not,...

Were you on the regular Lamictal already? if not, it is supposed to be started low and titrated very slowly as you may know. Did you and your doc (hopefully an Epileptologist) talk about that? I...
Forum: Epilepsy Forums 06-01-2011, 12:02 PM
Replies: 7
Views: 520
Posted By Tattoo2
Wonder why the spam is still here. Thought the...

Wonder why the spam is still here. Thought the mods or other powers that be who have some control would have removed it by now. The last batch was removed. I get spam in my email box just because I...
Forum: Epilepsy Forums 05-31-2011, 12:48 PM
Replies: 10
Views: 685
Posted By Tattoo2
Did you change med already? Doesn't see long...

Did you change med already? Doesn't see long enough for that kind of effect. Ever had a kidney stone? See medical doc. I doubt if anyone here could answer that since so many different effects can be...
Forum: Epilepsy Forums 05-27-2011, 11:04 AM
Replies: 10
Views: 685
Posted By Tattoo2
I am sorry you are still having seizures, but you...

I am sorry you are still having seizures, but you do have a choice, to seek the next level of care. You know what meds can and cannot do for you. I started trying to find a way to an real...
Forum: Epilepsy Forums 05-25-2011, 12:11 PM
Replies: 10
Views: 685
Posted By Tattoo2
Why the change, especially after soooo long? Is...

Why the change, especially after soooo long? Is tegretol stopping our seizures completely? Tegretol made me feel like I was living in a cloud. Missed a lot of life. Oxycarbamazepine is very similar,...
Forum: Epilepsy Forums 05-21-2011, 09:37 PM
Replies: 17
Views: 3,078
Posted By Tattoo2
Since you are in Wisconsin thought I'd post this....

Since you are in Wisconsin thought I'd post this. I know of one 16 year old who went here for her comprehensive care, and Dr Zupanc was her Epileptologist. She is doing great now! To continue to feed...
Forum: Epilepsy Forums 05-20-2011, 08:34 PM
Replies: 17
Views: 3,078
Posted By Tattoo2
For both Sweet1, kcbtke252, and all others too. I...

For both Sweet1, kcbtke252, and all others too. I found several links on google re Felbamate, and I remember reading of the harnful effects years ago. Also, I read a good article on the importance...
Forum: Epilepsy Forums 05-20-2011, 11:28 AM
Replies: 17
Views: 3,078
Posted By Tattoo2
kcbtke252, What state are you in? Please ask your...

kcbtke252, What state are you in? Please ask your PCP to refer you to a board certified Epileptologist at a Comprehensive Epilepsy Center. Best care out there for us who meds wil not stop our...
Forum: Epilepsy Forums 05-18-2011, 12:02 PM
Replies: 7
Views: 506
Posted By Tattoo2
I looked back at the CNN website to see if there...

I looked back at the CNN website to see if there were comments etc about the show. I did find that the drug was Keppra. It sure has been as a great med for me too so not surprised. I got a very...
Forum: Epilepsy Forums 05-17-2011, 06:37 PM
Replies: 7
Views: 506
Posted By Tattoo2
David and Susan Axelrod (CURE) tonight on CNN

I got an email that Susan and David Axelrod will be on CNN tonight, Tuesday 5/17/11, on a show that starts at 9:00pm EST. I forgot the man's name whose show it is. Supposedly, their daughter who has...
Forum: Epilepsy Forums 05-13-2011, 12:27 PM
Replies: 5
Views: 583
Posted By Tattoo2
You can ask for a copy of your records. They keep...

You can ask for a copy of your records. They keep the originals from my experience and send you a copy. I'd want a copy to be sent to my PCP too. Keppra can cause mood swings etc when starting it or...
Forum: Epilepsy Forums 05-12-2011, 12:20 PM
Replies: 4
Views: 500
Posted By Tattoo2
What med are you taking for your UTI? Some...

What med are you taking for your UTI? Some antibiotics do affect the blood level of your AEDs ( med) as well as how they are metabolized. Cipro is one of those. The infection/fever and the specific...
Forum: Epilepsy Forums 05-04-2011, 10:47 PM
Replies: 13
Views: 843
Posted By Tattoo2
I did the same Sue. As I have posted, I would...

I did the same Sue. As I have posted, I would wake up in different rooms too. I could have just a Simple, or go directly into Complex Partial which was usually the case as my epilepsy history...
Forum: Epilepsy Forums 05-04-2011, 10:37 PM
Replies: 3
Views: 412
Posted By Tattoo2
If someone gives you a horse, probably shouldn't...

If someone gives you a horse, probably shouldn't check his teeth to see if good enough. Be thankful instead. If it is a gift, it is good enough. I think that is what it means. Tattoo
Forum: Epilepsy Forums 05-03-2011, 12:29 AM
Replies: 28
Views: 1,640
Posted By Tattoo2
You might get more response if you started a...

You might get more response if you started a seperate thread, but I will post here and you can start a new one too. This thread is about family attitudes so your post will probably get lost. Are you...
Forum: Epilepsy Forums 05-01-2011, 10:56 PM
Replies: 13
Views: 843
Posted By Tattoo2
Sue, the 40 minutes is very concerning. Are you...

Sue, the 40 minutes is very concerning. Are you alone when these are occurring? We are taught as you know to call 911 is a sz lasts longer that 5 minutes. I hope your husband or other one present...
Forum: Epilepsy Forums 04-30-2011, 06:36 PM
Replies: 13
Views: 843
Posted By Tattoo2
I have always walked during many CPs including my...

I have always walked during many CPs including my first CP. That was not ever questioned. I have no idea of the length because I live alone. In many of my posts from the past, I mention waking up in...
Forum: Epilepsy Forums 04-20-2011, 11:57 PM
Replies: 66
Views: 3,984
Posted By Tattoo2
I need your thoughts. I finally got an emailed...

I need your thoughts. I finally got an emailed document from the OCR today. The statements made to me had been denied and also changed by the one who said them. The conclusion is that they had...
Forum: Epilepsy Forums 04-20-2011, 12:40 PM
Replies: 10
Views: 805
Posted By Tattoo2
Thanks from me too. I found one of my old posts...

Thanks from me too. I found one of my old posts but am sure there are more. How did you save these? Was here any part of the old posts that we completely lost due to the crash when MGH had it? The...
Showing results 1 to 25 of 412

 

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