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Forum: Child Neurology 06-13-2011, 05:43 PM
Replies: 4
Views: 486
Posted By fireweed
warm wishes for a fast recovery tamie. ...

warm wishes for a fast recovery tamie.

Thank you for posting Paul -


fireweed
Forum: Child Neurology 03-09-2011, 06:03 PM
Replies: 7
Views: 828
Posted By fireweed
i do not fully understand the relationship - but...

i do not fully understand the relationship - but I believe stereotypies are the behavioral expressions of self-stimulation.

I always felt like self-stimulation was a garbage bag term, so the...
Forum: Child Neurology 02-28-2011, 08:28 PM
Replies: 7
Views: 828
Posted By fireweed
Tamie & Denae and all are the experts in...

Tamie & Denae and all are the experts in seizures.

our experience is that my son has a really severe movement disorder. and he's had a lot of eeg's to make sure he isn't having seizures because...
Forum: Child Neurology 02-21-2011, 06:56 PM
Replies: 3
Views: 603
Posted By fireweed
hey - some thoughts for you. if there is ANY...

hey - some thoughts for you.

if there is ANY WAY you can catch this on tape, even if it means hours and hours of wasted tape, try.

things to ask your self, because the doc will ask - does your...
Forum: Child Neurology 02-21-2011, 07:04 AM
Replies: 10
Views: 843
Posted By fireweed
rose you are amazing as always. I never ever...

rose you are amazing as always. I never ever ever read something you have written and do not learn. Or feel strenghthened to be the parent I want to be.

I will keep praying for Jon and hoping...
Forum: Child Neurology 02-21-2011, 06:39 AM
Replies: 23
Views: 1,549
Posted By fireweed
:-) :-) :-) best news. best. ...

:-) :-) :-)

best news. best. R-E-L-I-E-F.

fireweed
Forum: Child Neurology 01-28-2011, 03:50 PM
Replies: 15
Views: 1,136
Posted By fireweed
hoping tyler is doing well and resting...

hoping tyler is doing well and resting comfortably. It's been a long road, but I hope this helps find resolution for the bladdder issues. take care of yourself too in the ICU.

lots of wishes...
Forum: Child Neurology 01-28-2011, 03:47 PM
Replies: 14
Views: 1,284
Posted By fireweed
dear paul, i can not imagine the horrible...

dear paul,

i can not imagine the horrible pain of being a wonderful foster parent and not having power over the child you love and care for. I just cannot. your love for this young man is...
Forum: Epilepsy Forums 12-04-2010, 07:45 PM
Replies: 3
Views: 746
Posted By fireweed
hey there, I have heard of this happening...

hey there,

I have heard of this happening with two other implantable devices - intrathecal pumps and deep brain stimulators (where the placement is almost identical to the VNS.)

For pumps, they...
Forum: Epilepsy Forums 12-04-2010, 06:20 AM
Replies: 8
Views: 2,194
Posted By fireweed
my son's primary dx is a movement disorder. He...

my son's primary dx is a movement disorder. He took Neurontin once (more for pain than e). He developed myoclonus in one thumb that never ever went away. It's been more than half his life now...
Forum: Child Neurology 11-03-2010, 06:28 AM
Replies: 6
Views: 986
Posted By fireweed
i was rethinking what i wrote - progress in goals...

i was rethinking what i wrote - progress in goals is not the only reason to cut the service, but progress overall. decrease in need.

because the only reason for the service is not "goals". so...
Forum: Child Neurology 11-02-2010, 10:07 PM
Replies: 6
Views: 986
Posted By fireweed
thoughts: (as a parent in the middle of a...

thoughts:
(as a parent in the middle of a fight to prevent our district from gutting our child's IEP services.)

1) they should not cut services without an eval. Did they give you an eval? ...
Forum: Child Neurology 07-14-2010, 08:17 PM
Replies: 10
Views: 757
Posted By fireweed
Congratulations Wendy!

Congratulations Wendy!
Forum: Child Neurology 07-14-2010, 08:16 PM
Replies: 18
Views: 855
Posted By fireweed
Hey robin, If you do need to take on any...

Hey robin,

If you do need to take on any liquids for medical reasons - even water, you can. you just need to get a note from the doctor. If you needed more than one carry on for medical reasons...
Forum: Child Neurology 07-14-2010, 08:12 PM
Replies: 1
Views: 380
Posted By fireweed
hey tracy, Thank you for posting how Megs is...

hey tracy,

Thank you for posting how Megs is doing. I had been wondering - im' sure i'm not the only one.

glad too that the transition to the feeding assistance went well. You two are such a...
Forum: Child Neurology 07-14-2010, 08:10 PM
Replies: 2
Views: 385
Posted By fireweed
Hey there, Welcome back. I am so sorry you...

Hey there,

Welcome back. I am so sorry you miss Alize so much. I can only imagine. :-(

But congratulations on your newest lovely kids. You do know how to keep yourself busy. (a major...
Forum: Child Neurology 06-23-2010, 04:55 PM
Replies: 6
Views: 551
Posted By fireweed
i also think tegretol can sometimes make some...

i also think tegretol can sometimes make some types of seizures worse, even while making other types better for the same person. I guess they can all do that.....but it seems like some people...
Forum: Child Neurology 06-07-2010, 05:39 AM
Replies: 4
Views: 449
Posted By fireweed
I'm sorry Kelly that you are having such a tough...

I'm sorry Kelly that you are having such a tough time. :(

in general, medicaid waivers pay for things that normal medicaid does not.

what it does:
-The waiver is intended to help people...
Forum: Child Neurology 05-10-2010, 10:15 AM
Replies: 16
Views: 904
Posted By fireweed
I am maybe not the person to ask this of, as my...

I am maybe not the person to ask this of, as my guy's dystonia is maybe in a different place as far as treatment. A place I never thought or wanted to come to. (bed shaking, chairs groaning like...
Forum: Child Neurology 05-07-2010, 02:53 PM
Replies: 4
Views: 646
Posted By fireweed
tamie, I can feel your frustration. I hope...

tamie,

I can feel your frustration. I hope this month is as calm as it can be for tyler, and the pulmonologist gets hit by some sort of divine interventionary relevation. (or leaves and replaces...
Forum: Child Neurology 05-06-2010, 11:23 AM
Replies: 11
Views: 822
Posted By fireweed
there was a class action lawsuit against my...

there was a class action lawsuit against my district regaring ESY. This puts us in a better position to try and push the issue.

but things will not change until parents push issues - you have to...
Forum: Child Neurology 05-05-2010, 11:15 AM
Replies: 16
Views: 904
Posted By fireweed
sarah's mum - i think your input is really...

sarah's mum - i think your input is really valuable. i am amazed her recovery was so full, and really happy for you all. it's also good to hear that it can be successful even with dystonia. i...
Forum: Child Neurology 05-04-2010, 10:10 AM
Replies: 1
Views: 453
Posted By fireweed
http://www.fda.gov/AboutFDA/CentersOffices/CDER/uc...

http://www.fda.gov/AboutFDA/CentersOffices/CDER/ucm171059.htm


oops - broken link (and broken brain on my part - in the middle of fixing the link, an emergency came up and I then messed up...
Forum: Autism 05-04-2010, 10:08 AM
Replies: 2
Views: 497
Posted By fireweed
http://www.fda.gov/AboutFDA/CentersOffices/CDER/uc...

http://www.fda.gov/AboutFDA/CentersOffices/CDER/ucm171059.htm



sorry...
Forum: Autism 05-03-2010, 09:14 PM
Replies: 2
Views: 497
Posted By fireweed
miralax safety discussed by fda oversight

just thought some would find this good reading:

Drug Safety Oversight Board Meeting, June 18, 2009 (concerning Miralax among other drugs)

http://www.fda.gov/AboutFDA/CentersO.../ucm171059.htm
...
Showing results 1 to 25 of 470

 

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