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Forum: Child Neurology 08-10-2011, 10:16 PM
Replies: 0
Views: 2,652
Exclamation Today the day centre folk are being trained in suctioning.

G'day everyone.

Today the day centre folk are being trained in suctioning specifically for Grant.

Three years ago when Grant started at the day centre, training was given, but most of the staff...
Forum: Child Neurology 08-10-2011, 06:25 AM
Replies: 0
Views: 1,237
Talking Grant is not a mannequin and the suctioning equipment replacement

G'day neuro buddies and Grant fans.

I have been trying to resolve the issue with getting Grant's suctioning equipment serviced, without me having to take the equipment to the supplier 1 hour...
Forum: Child Neurology 08-09-2011, 09:35 PM
Replies: 0
Views: 1,256
Exclamation Ultrasound done in a wheelchair. What do you reckon ?

G'day neuro buddies and Grant fans.

Yesterday, we chucked Grant in the Grantmobile and took him to the local radiology centre for an ultrasound of his swollen right hip (muscle swelling?)

I had...
Forum: Child Neurology 08-09-2011, 09:15 PM
Replies: 4
Views: 1,363
Dear Donna. I agree with Lucinda, your...

Dear Donna.

I agree with Lucinda, your writing is incredible. You should write a book :)

We know that Nick will be fine in his new home. There will be a time of transition though, which will be...
Forum: Child Neurology 08-06-2011, 06:18 AM
Replies: 6
Views: 1,540
Hi Rose. We have probably lost the...

Hi Rose.

We have probably lost the opportunity for Patrick to write up a Doppler test, but I will keep that in mind and mention it to the family doc.

Seeya,

Paul, Alison and Grant the champ.
Forum: Child Neurology 08-06-2011, 06:14 AM
Replies: 4
Views: 1,658
Hi Rose. Thank you for your response.

Hi Rose.

Thank you for your response.
Forum: Child Neurology 08-05-2011, 10:46 AM
Replies: 6
Views: 1,540
Thank you. Paul.

Thank you.

Paul.
Forum: Child Neurology 08-05-2011, 09:35 AM
Replies: 2
Views: 1,375
Exclamation Geting the suction equipment serviced. How ridiculous is this! Crikey!

G'day neuro buddies.

Hmm.

Grant's portable suctioning equipment needs to be serviced.

I phoned the distributors and they said that to have the equipment serviced I would have to take the...
Forum: Child Neurology 08-05-2011, 06:41 AM
Replies: 6
Views: 1,540
Talking What the neuro said and new neurology test on the thigh :)

Hello neuro buddies and Grant fans.

6th August 2011.

We visited Grant's newish neurologist today at Grant's new hospital. This is the fourth time we have seen him.

I had booked a carer in...
Forum: Child Neurology 08-04-2011, 10:45 PM
Replies: 4
Views: 1,658
Hi Rose. Thank you for all your...

Hi Rose.

Thank you for all your obserfvations.



Last night, Grant needed a lot of suctioning! When we checked on him this morning he had a massive bowel movement. I wonder if because his...
Forum: Child Neurology 08-03-2011, 11:53 PM
Replies: 0
Views: 1,226
Talking OT: Who sent us 'The Princess Bride.' Was it you? :)

G'day neuro buddies and Grant fans.

Today we received in the mail the book

The Princess Bride by William Goldman.

The book came from overseas, but there is no sender address or anything like...
Forum: Child Neurology 08-03-2011, 09:35 PM
Replies: 4
Views: 1,658
Exclamation Tomorrow we see Neurologist. Grant champ mode, but suctioning

G'day neuro buddies and Grant fans ;)

Tomorrow 5 August 2011 Grant see his neurologist at the new hospital.

Grant at the moment is entering into record territory regarding seizures :):)

He...
Forum: Child Neurology 08-03-2011, 07:17 PM
Replies: 5
Views: 1,928
Thank you Tamie, Donna and funnylegs4 for your...

Thank you Tamie, Donna and funnylegs4 for your observations.

Rose,

Yes, it will be costing them a lot of money. But it would cost more money if a carer/parent changed the PEG and something went...
Forum: Child Neurology 08-01-2011, 10:12 PM
Replies: 5
Views: 1,928
Exclamation Grant had his Mickey button changed by a nurse. Why? Aha!

G'day neuro buddies and Grant fans :)

Grant has now had a Mickey Button for about 9 years.

We have been trained to replace the Mickey Button and have done so in the past.

HOWEVER

With his...
Forum: Child Neurology 08-01-2011, 09:56 PM
Replies: 9
Views: 1,474
Dear Lucinda. I am not sure I can advise...

Dear Lucinda.

I am not sure I can advise much.

The only operation Grant had to lessen the spasming of his legs, which is much different, was a nerve block in the legs when he was quite young....
Forum: Child Neurology 07-27-2011, 09:31 PM
Replies: 10
Views: 1,992
Three cheers for Tyler. Praise God. Now...

Three cheers for Tyler.

Praise God.

Now we know that Tyler is home.

How are you getting on Tamie?

Hope to hear from you soon.
Forum: Child Neurology 07-26-2011, 08:57 AM
Replies: 5
Views: 1,363
Dear Tamie. We are sorry to hear about...

Dear Tamie.

We are sorry to hear about Tyler.

Prayers for the antibiotices to kick in very quickly and for Tyler to be home very soon.

With love,

Paul, Alison and Grant the champ.
Forum: Child Neurology 07-21-2011, 11:55 PM
Replies: 1
Views: 1,454
Thank you Donna for a great article. But...

Thank you Donna for a great article.

But don't get me going on euthenasia, because I could write hundreds of paragraphs!

Best wishes as always and seeya,

Paul, Alison and Grant the champ.
Forum: Child Neurology 07-19-2011, 08:22 PM
Replies: 7
Views: 1,574
Hi Mary That sounds very promising. A change...

Hi Mary

That sounds very promising. A change in diet is a nice safe change and it looks as though Kathleen is doing well.

Keep up the great work and please keep us informed.

Best wishes and...
Forum: Child Neurology 07-09-2011, 09:51 AM
Replies: 5
Views: 1,630
Dear Lucinda, AFO's are somthing that Grant...

Dear Lucinda,

AFO's are somthing that Grant has almost never worn.

Personally I would go for plenty of stretching exercises daily; the more the better, as well as physical activities to help...
Forum: Child Neurology 07-09-2011, 09:48 AM
Replies: 6
Views: 1,503
Exclamation 8th July. Yesterday we visited the palliative care hospital

hello neuro buddies.

Yesterday we went to the short term palliative care hospital.

The hospital is only 4 years old. It is very roomy and it has a pleasant atmosphere. The hospital is quite...
Forum: Child Neurology 07-05-2011, 11:48 PM
Replies: 9
Views: 1,588
Dear Tamie. Thank you for the update. ...

Dear Tamie.

Thank you for the update.

Prayers that you get much better very soon.

With ALL our love,

Paul, Alison and Grant the champ.
Forum: Child Neurology 07-01-2011, 12:26 AM
Replies: 0
Views: 430
Exclamation Special neuro-physio out today regarding posture in bed

G'day Grant fans and neuro buddies :)

Today we had a visit from a specialist neuro-physiotherapist as well as Grant's OT from the day centre, to look at working out a way for Grant to lie...
Forum: Child Neurology 06-29-2011, 10:31 PM
Replies: 4
Views: 819
Exclamation Today we visit a palliative care clinic

G'day neuro buddies and Grant fans.

But wait, don't panic, don't panic, the header to this message is nothing to get worried about ;)

Today we visit a palliative care clinic, which incredibly...
Forum: Child Neurology 06-23-2011, 07:46 PM
Replies: 9
Views: 738
Hi Tamie. Prasie the Lord. God is good. we...

Hi Tamie.

Prasie the Lord. God is good. we sing and shout it. :D

Continued prayers for a complete recovery.

God bless and seeya.

Paul, Alison and Grant the champ.
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