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Forum: Multiple Sclerosis 08-07-2011, 02:55 PM
Replies: 12
Views: 4,685
Posted By newlyb12def
Maybe his 3 cats are biting through the wires...

Maybe his 3 cats are biting through the wires like my 3 cats do!

I haven't had any trouble here recently either <knock on wood>
Forum: Multiple Sclerosis 08-05-2011, 06:26 PM
Replies: 6
Views: 2,934
Posted By newlyb12def
It could be spasticity. Sometimes the spasms...

It could be spasticity. Sometimes the spasms themselves aren't visible.

Let your neuro know what's going on and see if he/she can offer you some relief from your pain. If he/she doesn't think it's...
Forum: Multiple Sclerosis 08-02-2011, 12:20 PM
Replies: 6
Views: 2,934
Posted By newlyb12def
Lyn, Do you have pain in areas other than...

Lyn,

Do you have pain in areas other than your arms and legs when this happens? Is the pain achy, sharp... dull, electric, stabbing...etc? Hw often is it happening?

Because of the severity of...
Forum: Multiple Sclerosis 07-30-2011, 02:42 PM
Replies: 18
Views: 4,674
Posted By newlyb12def
The day I told my sister I had MS, it became all...

The day I told my sister I had MS, it became all about her...

It took me years to get dx (denial again) and she was in a neuro's office within a week based on a family history of MS.

She was...
Forum: Multiple Sclerosis 07-27-2011, 02:49 PM
Replies: 18
Views: 4,674
Posted By newlyb12def
I'm glad that you've been diagnosed.... I...

I'm glad that you've been diagnosed....

I know that may sound strange, but you have had the symptoms for a while now and have been put through the ringer by other people's reactions. And I know...
Forum: Multiple Sclerosis 07-26-2011, 01:47 PM
Replies: 79
Views: 9,514
Posted By newlyb12def
Happy Birthday, Frog! Renee, I guess you are...

Happy Birthday, Frog!

Renee, I guess you are wise!!!
My mother always joked about her lack of wisdom teeth.

Lady, I feel much older than 31. Nothing as dramatic as my gait problems have...
Forum: Multiple Sclerosis 07-26-2011, 01:40 PM
Replies: 9
Views: 966
Posted By newlyb12def
Thank you, Cheri! I know I'm progressive,...

Thank you, Cheri!

I know I'm progressive, but I can't say what particular kind. The only possible relapse I may have had was when my gait disorder improved for a little while after IVSM, but came...
Forum: Multiple Sclerosis 07-25-2011, 06:27 PM
Replies: 9
Views: 966
Posted By newlyb12def
Cheri, I don't think ty was helping because...

Cheri,

I don't think ty was helping because I'm progressive... so I don't think I'll experience a wthdrawl... is one still possible?
Forum: Multiple Sclerosis 07-25-2011, 02:17 PM
Replies: 79
Views: 9,514
Posted By newlyb12def
I just wanted to write a belated thank you for...

I just wanted to write a belated thank you for all the birthday wishes!

I'm 31... woo-hoo!

Thanks again,
Kay
Forum: Multiple Sclerosis 07-25-2011, 02:14 PM
Replies: 8
Views: 2,967
Posted By newlyb12def
Welcome back Casey! I wasn't on back then, but...

Welcome back Casey! I wasn't on back then, but I'm happy to see you here all the same!

I'm glad that your MS has been fairly kind to you over the years!

I'm sorry to hear about your son's...
Forum: Multiple Sclerosis 07-25-2011, 01:57 PM
Replies: 7
Views: 1,331
Posted By newlyb12def
newone, I had the neuropsych testing done in...

newone,

I had the neuropsych testing done in May of 2010.

The neuropsychologist estimates your IQ and administers tests in different areas. All the tests get scores that have an "average"...
Forum: Multiple Sclerosis 07-25-2011, 01:37 PM
Replies: 11
Views: 1,321
Posted By newlyb12def
My PCP has a patient with the same name as me...

My PCP has a patient with the same name as me right down to the middle initial! It's strange because the spelling of my whole first name is unusual.

When I call about something and they ask for my...
Forum: Multiple Sclerosis 07-25-2011, 01:32 PM
Replies: 9
Views: 966
Posted By newlyb12def
Thank you! :) I had so much anxiety leading...

Thank you! :)

I had so much anxiety leading up to that 1st appointment... I was afraid she'd be just like the old neuro, who was dismissive and condescending.

I had tried to explain old...
Forum: Multiple Sclerosis 07-25-2011, 01:12 PM
Replies: 11
Views: 1,321
Posted By newlyb12def
Not too long ago I worked in a hospital where...

Not too long ago I worked in a hospital where they used "120- A bed, or 120B."

Now everywhere has wrist bands with the pts name and DOB- much better if everyone uses them.

Ann, they want to use...
Forum: Social Security Disability 07-22-2011, 12:24 AM
Replies: 1
Views: 2,129
Posted By newlyb12def
Sorry I'm a late-comer. I hope you're not...

Sorry I'm a late-comer.

I hope you're not still having to sweat this out.
Was your local SSA office able to help you?
Do you have to repay all that money?
Are you still receiving benefits?
...
Forum: Social Security Disability 07-22-2011, 12:20 AM
Replies: 1
Views: 2,186
Posted By newlyb12def
Lisa, Congrats on getting your book...

Lisa,

Congrats on getting your book published!

I really couldn't say how that kind of lump-sum payment would work....

You'll probably feel better if you just call your local SSA office and...
Forum: Social Security Disability 07-22-2011, 12:15 AM
Replies: 1
Views: 1,981
Posted By newlyb12def
Hi Laura! Congratulations on what you did win! ...

Hi Laura! Congratulations on what you did win!

I'm sorry I don't have an answer to your questions, but I just wanted to respond and let you know that we are here and listening!

Kay
Forum: Multiple Sclerosis 07-21-2011, 07:22 PM
Replies: 9
Views: 966
Posted By newlyb12def
New neuro

After continuing to get worse after being on tysabri for a year, I've made the decision to d/c treatment and opt for monitoring and symptom treatment.

After various problems with my neuro, I...
Forum: Multiple Sclerosis 07-21-2011, 07:07 PM
Replies: 11
Views: 1,321
Posted By newlyb12def
Agate, My neuro insists on putting together...

Agate,
My neuro insists on putting together medical records herself. So, she was doing the cherry picking.

I did drive to Boston to get more records... more cherry picking. She does mention my...
Forum: Multiple Sclerosis 07-15-2011, 04:09 PM
Replies: 11
Views: 1,321
Posted By newlyb12def
I'm fairly certain that we have a right to our...

I'm fairly certain that we have a right to our medical records in their entirety. I hope my PCP calls me back to help. I wonder what exactly federal (maybe insurance?) laws are.

I'm very concerned...
Forum: Multiple Sclerosis 07-15-2011, 01:12 PM
Replies: 11
Views: 1,321
Posted By newlyb12def
Getting Medical Records

I have an appointment with a new MS specialist on Wednesday. My PCP requested my medical records from the old MS ctr. in the middle of June...

I finally received my records yesterday...
8 pages?!...
Forum: Multiple Sclerosis 06-22-2011, 02:00 PM
Replies: 26
Views: 2,880
Posted By newlyb12def
Thanks Cheri. My husband's coming with me this...

Thanks Cheri. My husband's coming with me this time, so that should help.

I saw my PCP and he's convinced me once and for all to go though with the second opinion. He's said it sounds like my...
Forum: Multiple Sclerosis 06-17-2011, 05:13 PM
Replies: 26
Views: 2,880
Posted By newlyb12def
Agate, Thank you! I don't like this doctor, but...

Agate,
Thank you! I don't like this doctor, but I like the nursing staff. I'm resistant to change... lots of anxiety. When I see my PCP I think he'll push me in the right direction.

Cheri,...
Forum: Multiple Sclerosis 06-17-2011, 03:52 PM
Replies: 26
Views: 2,880
Posted By newlyb12def
At my appointment yesterday, my neuro didn't...

At my appointment yesterday, my neuro didn't examine me or ask me about the symptoms that brought me there. At one point she told the RNs that I was having "cramping." I'm having serious pain issues...
Forum: Multiple Sclerosis 06-17-2011, 03:38 PM
Replies: 9
Views: 956
Posted By newlyb12def
Dear 'Lissa, On the bright side: Once the...

Dear 'Lissa,

On the bright side:
Once the MRI is done, you may still find that you are doing okay. From what I've read a lot of pts have residual symptoms after flares. You can also be having...
Showing results 1 to 25 of 1465

 

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