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Forum: Epilepsy Forums 05-11-2009, 12:24 PM
Replies: 12
Views: 2,076
Posted By dow4
My adult son switched to generic keppra about 6...

My adult son switched to generic keppra about 6 or so months ago, we did not see any significant change. He still has about 4-6 CP seizures a month, so he is not completely controlled. Also takes...
Forum: Epilepsy Forums 08-04-2008, 09:55 PM
Replies: 8
Views: 757
Posted By dow4
Bay, you know it may just be panic attacks. Does...

Bay, you know it may just be panic attacks. Does this happen at home or is it just at work. Sometimes, I think, when we have time to think and worry we can make things worse. You said it doesn't...
Forum: Epilepsy Forums 08-04-2008, 11:03 AM
Replies: 3
Views: 665
Posted By dow4
Lor, that was a repeat episode. Greg Grunberg...

Lor, that was a repeat episode. Greg Grunberg has a son with E and was the spokesperson for the National Walk last winter in DC. My family and I went to the walk. It was very cold but a well run...
Forum: Epilepsy Forums 07-24-2008, 03:13 PM
Replies: 18
Views: 1,250
Posted By dow4
One thing about zonegran I believe it is a sulfa...

One thing about zonegran I believe it is a sulfa drug. A lot of people are allergic to the sulfa drugs, including my son. Hope things work out for you.
Forum: Epilepsy Forums 07-22-2008, 06:08 PM
Replies: 1
Views: 625
Posted By dow4
Thirty years ago I would have been excited about...

Thirty years ago I would have been excited about it Ted. But, I am no longer a Yankee fan nor a baseball fan. Sounds like a good program, thanks for the info.
Forum: Epilepsy Forums 07-03-2008, 01:57 PM
Replies: 3
Views: 672
Posted By dow4
My son had the VNS removed many years ago, he...

My son had the VNS removed many years ago, he still has the lead around the vagus nerve though. He has had MRIs since and brain surgeries so I don't think it is any problem. You just have to let...
Forum: Epilepsy Forums 06-30-2008, 01:55 PM
Replies: 38
Views: 4,537
Posted By dow4
Thanks for posting this Sandy. I have enjoyed...

Thanks for posting this Sandy. I have enjoyed looking at some of the old posts. A lot of memories, mostly good, and so many familiar names that are no longer here. Around 2000 when I first joined...
Forum: Epilepsy Forums 05-29-2008, 02:08 PM
Replies: 37
Views: 15,255
Posted By dow4
I agree with Todd, there is a lot of good info in...

I agree with Todd, there is a lot of good info in this thread. I mentioned my son carrying a card to give to strangers. Someone else with an aura may have time to do something like that. Most of...
Forum: Epilepsy Forums 05-29-2008, 10:35 AM
Replies: 37
Views: 15,255
Posted By dow4
Yes, good idea, my son has complex partial sz and...

Yes, good idea, my son has complex partial sz and raises his right arm, fist clenched, and his body turns to the left. If sitting he may also pull his legs up trying to sit indian style. We watch...
Forum: Epilepsy Forums 05-11-2008, 07:13 PM
Replies: 8
Views: 783
Posted By dow4
I posted a warning about it earlier, was...

I posted a warning about it earlier, was surprised there was nothing here about it. But, Mod 2 said it was taken care and to delete my message. with a name like FelicityFlo...., it was kind of...
Forum: Epilepsy Forums 05-06-2008, 12:03 PM
Replies: 18
Views: 1,494
Posted By dow4
My son was on dilantin for several years a long...

My son was on dilantin for several years a long time ago and I rememeber one of the side effects was related to the gums. Swelling, puffy and additional growth or something like that. My son did...
Forum: Epilepsy Forums 04-20-2008, 01:08 PM
Replies: 5
Views: 694
Posted By dow4
Interesting, my son had the VNS many years ago. ...

Interesting, my son had the VNS many years ago. I wonder did they research the VNS site and learn about possible side effects like affecting speech when the device is on. You mentioned telesales so...
Forum: Epilepsy Forums 04-15-2008, 07:36 PM
Replies: 21
Views: 1,975
Posted By dow4
Jeff, when Lexia mentioned thinking differently I...

Jeff, when Lexia mentioned thinking differently I thought of an article I read or saw a while ago about a chef who started a business cooking in peoples homes. don't know if that is possible at this...
Forum: Epilepsy Forums 04-08-2008, 06:06 PM
Replies: 7
Views: 1,342
Posted By dow4
Looks very interesting and hopeful, thank you for...

Looks very interesting and hopeful, thank you for posting that.
Forum: Epilepsy Forums 04-06-2008, 12:29 PM
Replies: 13
Views: 1,003
Posted By dow4
Dave, you are a dashing fellow, you remind me of...

Dave, you are a dashing fellow, you remind me of a guy I worked with for years. But, I don't know if you should put modest in your bio especially after your first four adjectives.
Forum: Epilepsy Forums 03-31-2008, 12:50 PM
Replies: 12
Views: 1,117
Posted By dow4
I will have a thread some time soon about our...

I will have a thread some time soon about our experience. My son WAS APPROVED the first time, I do not know why. We were shocked, shocked especially after hearing so often that the first time would...
Forum: Epilepsy Forums 03-31-2008, 12:44 PM
Replies: 1
Views: 451
Posted By dow4
National Epilepsy Walk Experience

Wanted to give a somewhat personal account of our experience last Saturday. My son, who has E, my daughter and I drove to DC on Friday. Stayed with my sister and husband that night in Silver...
Forum: Epilepsy Forums 03-22-2008, 03:18 PM
Replies: 7
Views: 1,108
Posted By dow4
My son has been transferring to the generic form...

My son has been transferring to the generic form for the last month or so. Still using some non-generic and some generic. There evidently are three generics approved. Here is a link he found: ...
Forum: Epilepsy Forums 03-18-2008, 11:44 AM
Replies: 1
Views: 611
Posted By dow4
Yes, you can split it. My son has been on keppra...

Yes, you can split it. My son has been on keppra for many years and has split them occasionally. Get a pill spliter from the pharmacy if you don't already have one they do a much better job.
Forum: Epilepsy Forums 03-17-2008, 09:59 AM
Replies: 8
Views: 969
Posted By dow4
Thanks Todd, good to see you more active lately. ...

Thanks Todd, good to see you more active lately. The link you put was close but more info at www.efa.org. Info about the walk at the bottom right.
Forum: Epilepsy Forums 03-16-2008, 05:41 PM
Replies: 8
Views: 969
Posted By dow4
I am going to the Walk in DC

I have not been here much in the last year or so but wanted to let everyone know we are going, especially some of you old timers. My son wanted to go last year but it did not work out. We will stay...
Forum: Epilepsy Forums 01-19-2008, 08:35 PM
Replies: 12
Views: 1,601
Posted By dow4
Yes, my son found out when he renewed his...

Yes, my son found out when he renewed his prescription last month. I hope it will work well for him, will save us a lot of money. He is also on keppra.
All the trileptal generic folks should post...
Forum: Epilepsy Forums 12-28-2007, 11:18 AM
Replies: 5
Views: 1,100
Posted By dow4
Yes, Lor, quite a few years ago many, many of us...

Yes, Lor, quite a few years ago many, many of us looked for a famous spokesperson as well as more attention in the media for E. some things were accomplished but the movement in the forum kind of...
Forum: Epilepsy Forums 12-12-2007, 11:19 PM
Replies: 3
Views: 1,121
Posted By dow4
I want to get in on this discussion, my son is in...

I want to get in on this discussion, my son is in the Neuropace trials.

Bernard you do a lot of good things, the discussion on your forum about the rns was very informative

Johnmax you can PM...
Forum: Epilepsy Forums 12-11-2007, 10:42 AM
Replies: 9
Views: 836
Posted By dow4
Lor, I agree with the others, you should...

Lor, I agree with the others, you should certainly check it out. Brain surgery is pretty high tech now. In most cases brain surgery would be covered and you would pay about 20% of the allowed charge....
Showing results 1 to 25 of 38

 

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