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Search: Posts Made By: JoD
Forum: Child Neurology 08-19-2010, 12:11 PM
Replies: 18
Views: 812
Posted By JoD
No Queen of England attitude...just get you in...

No Queen of England attitude...just get you in trouble.
First rule is to give yourself extra time to get everything accomplished.

As you get out of the car at the airport there should be porter...
Forum: Child Neurology 07-25-2010, 06:47 AM
Replies: 18
Views: 812
Posted By JoD
Having just flown with my 15 year old son we had...

Having just flown with my 15 year old son we had a few experiences not mentioned.
He cannot swallow pills, so all of his medication is liquid. He takes welll over 3 ounces of liquid meds in a week...
Forum: Child Neurology 07-13-2010, 03:20 PM
Replies: 7
Views: 680
Posted By JoD
Have you checked out voice activated phones? You...

Have you checked out voice activated phones? You speak the number and it dials.
Forum: Child Neurology 07-07-2010, 12:04 AM
Replies: 20
Views: 1,612
Posted By JoD
with sympathy

I am sorry for your loss.
Forum: Child Neurology 04-14-2010, 01:42 AM
Replies: 9
Views: 510
Posted By JoD
I don't think you need fancy documentation, just...

I don't think you need fancy documentation, just current. Why can't you go through the University health clinic for it? The clinic could write out the modifications such as no running, standing...
Forum: Child Neurology 12-18-2009, 05:22 PM
Replies: 4
Views: 448
Posted By JoD
Check out parathyroid disease ...

Check out parathyroid disease

http://www.parathyroid.com/parathyroid-symptoms.htm
Low Vit D and high calcium and parathyroid hormone are the key blood markers.
Forum: Child Neurology 12-16-2009, 06:08 PM
Replies: 7
Views: 480
Posted By JoD
Many years ago when Alex had a Gtube placed and...

Many years ago when Alex had a Gtube placed and was still recovering with the PEG in place instead of a button. He decided to be like his older brothers and roll down the hill we call our front...
Forum: Child Neurology 11-07-2009, 09:05 PM
Replies: 15
Views: 793
Posted By JoD
I do have a history for Alex saved to my computer...

I do have a history for Alex saved to my computer and update it as needed.
It is two pages..has parent/contact information
Insurance
hospital number
PCP
all other doctors
history
surgeries and...
Forum: Child Neurology 10-28-2009, 07:46 AM
Replies: 7
Views: 546
Posted By JoD
I agree with Deborah. Alex has sub-clinical...

I agree with Deborah.
Alex has sub-clinical seizures according to his EEG 24/7. There is absolutely no outward sign of siezures. Was at the nuerologist yesterday and we decided to start him on...
Forum: Child Neurology 10-24-2009, 07:00 PM
Replies: 14
Views: 1,070
Posted By JoD
H1n1 Ymmv

Alex just got home from a 3 day hospital stay and tested positive for H1N1 2009. So far he has been ill for 7 days. He spiked fevers over 101 ( highest 104) for 4 days straight. He was admitted for...
Forum: Child Neurology 09-21-2009, 05:19 PM
Replies: 29
Views: 1,221
Posted By JoD
My has had one findo and it has partially undone....

My has had one findo and it has partially undone. He had his surgery and the gtube placed when he was 18 months old. He was the king of puke! His story is much like Jeanette explains. We finally went...
Forum: Child Neurology 08-30-2009, 02:53 PM
Replies: 12
Views: 756
Posted By JoD
Dyspraxia

You may want to look it up as motor dyspraxia ( just another way of saying the same thing)
http://www.listenandlearn.com.au/type/dyspraxia.htm

Alex has spastic quad CP and FSH Muscular dystrophy....
Forum: Child Neurology 08-29-2009, 10:00 PM
Replies: 3
Views: 501
Posted By JoD
Support lists

http://www.childrensdisabilities.info/speclists.html

Something for everyone :)

The Gtube list was a sanity saver for me when Alex first received his.


G Tube
Support for those using...
Forum: Child Neurology 08-06-2009, 08:55 PM
Replies: 7
Views: 4,997
Posted By JoD
Happy Browsing :)

http://www.dermnet.com/

Lots of dermatology pictures. Could it be acne...looking at the above site I never knew there were so many different types.
Forum: Child Neurology 07-07-2009, 07:17 PM
Replies: 4
Views: 508
Posted By JoD
I'm for the Vit D, calcium and PARATHYROID checks...

I'm for the Vit D, calcium and PARATHYROID checks as well as auto-immune.
http://www.parathyroid.com/parathyroid-symptoms.htm
Forum: Child Neurology 06-29-2009, 05:49 PM
Replies: 11
Views: 681
Posted By JoD
Getting them to eat

Alex always was willing to eat, even when the reflux had it hitting the ceiling and opposite walls. He stopped eating after he got the fundo and gtube.
It took 2 1/2 years but oral foods became his...
Forum: Child Neurology 06-23-2009, 06:02 AM
Replies: 4
Views: 643
Posted By JoD
FAS is actually a spectrum. It all depends on...

FAS is actually a spectrum. It all depends on when, as well as how much the mom drank during the pregnancy. Some people who have FAS have moms who are health conscious, received good prenatal care...
Forum: Child Neurology 06-21-2009, 06:24 AM
Replies: 14
Views: 1,065
Posted By JoD
I know this thread is several days old but I kept...

I know this thread is several days old but I kept going back and reading it over because I was sure I was misinterpreting what the doctor thought was the proper ways how to treat Ri's sleep issue.
I...
Forum: Child Neurology 06-14-2009, 07:52 AM
Replies: 16
Views: 754
Posted By JoD
Bottle Fairy

Nanny 911 did a show on giving up the bottle. When the child was in a good listening mood. she told him about the bottle fairy ( I think it is the same fairy for pacifiers and teeth too...) She had...
Forum: Child Neurology 06-09-2009, 06:44 PM
Replies: 8
Views: 2,149
Posted By JoD
At age 3 1/2 the ortho doc was making noise about...

At age 3 1/2 the ortho doc was making noise about hip surgery as well. He scissored something awful. Needed the jaws of life to change his diaper!
We choose to do SDR surgery instead. We tried...
Forum: Child Neurology 06-08-2009, 09:50 PM
Replies: 8
Views: 2,149
Posted By JoD
http://www.allardusa.com/ One of Alex's most...

http://www.allardusa.com/

One of Alex's most successful pieces of equipment was the swash brace.
It helped in the walking, sitting and standing. He would use is with a regular Kaye reverse...
Forum: Child Neurology 06-07-2009, 11:56 PM
Replies: 8
Views: 2,149
Posted By JoD
I agree with Jen's assessment. We used it for...

I agree with Jen's assessment. We used it for Alex for a while successfully but it was having it adjusted and finding someone who was familiar with the adjustment that was hard. Alex outgrew the...
Forum: Child Neurology 06-06-2009, 11:22 PM
Replies: 15
Views: 821
Posted By JoD
Very professional looking as well as homey.

Very professional looking as well as homey.
Forum: Child Neurology 06-01-2009, 06:34 PM
Replies: 12
Views: 940
Posted By JoD
I would think this would be an OCR/ADA complaint...

I would think this would be an OCR/ADA complaint since the university is public and takes federal money. Don't really care how difficult someone is to work with, the law is the law. They took your...
Forum: Child Neurology 05-21-2009, 08:06 PM
Replies: 9
Views: 542
Posted By JoD
Sounds like a wise decision. My thoughts were...

Sounds like a wise decision. My thoughts were that if your insurance would pay for the test, then go for it. I don't think kids will ever choose to have tests until they are mature enough to...
Showing results 1 to 25 of 155

 

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