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Forum: Trigeminal Neuralgia 06-22-2011, 01:01 PM
Replies: 1
Views: 1,639
Posted By crysopac
Kisses

Did you know that Rae has the softest most kissable cheeks in the world?! I recently found out. Look here. :)
Forum: Trigeminal Neuralgia 06-07-2011, 12:57 AM
Replies: 5
Views: 2,204
Posted By crysopac
Here are the links for youtube. The second one is...

Here are the links for youtube. The second one is the better one in my opinion.

http://www.youtube.com/watch?v=oYAAPi2hLWU

http://www.youtube.com/watch?v=ginLjg-M-gc
Forum: Trigeminal Neuralgia 06-03-2011, 09:36 PM
Replies: 5
Views: 2,204
Posted By crysopac
Kite Flying

It was a success! She was loving it! Her hair was wiping around and she was running and smiling. Rae kept yelling to me saying ""Look mommy! I am flying a kite and it doesn't hurt!" I was crying by...
Forum: Trigeminal Neuralgia 06-02-2011, 12:34 AM
Replies: 20
Views: 4,839
Posted By crysopac
Thank you all for the advice! Especially Bob. You...

Thank you all for the advice! Especially Bob. You made me cry! But in a good way.

The doctor is going to let Rae go off meds completely for the next few weeks. We have the meds here should the...
Forum: Trigeminal Neuralgia 05-28-2011, 05:10 PM
Replies: 0
Views: 1,937
Posted By crysopac
Soccer

Well Rae's last game of the season was today. It was cold, and windy. Thanks to the regression we had no issues. She played harder today than she has played all year! I am so proud of her. I have a...
Forum: Trigeminal Neuralgia 05-28-2011, 04:48 PM
Replies: 20
Views: 4,839
Posted By crysopac
Is this what regressions feel like?

I know I haven't been on much and I am sorry about that. Our internet connection has been less than reliable for quite some time. But I am here now so no need to get all uppidy. ;)

I believe that...
Forum: Trigeminal Neuralgia 03-11-2011, 12:46 AM
Replies: 12
Views: 1,443
Posted By crysopac
Praying for your sanity, and some relief! I...

Praying for your sanity, and some relief!

I am a caretaker of someone with TN so I only know what it looks like to deal with the pain from the outside. I hope the MRI shows them something that...
Forum: Trigeminal Neuralgia 03-11-2011, 12:41 AM
Replies: 4
Views: 588
Posted By crysopac
Sorry to update so late, but life has been...

Sorry to update so late, but life has been interesting around here. The appointment was rescheduled, but Rae seems to be having less pain lately. I hope that means remission! Her pneumonia is gone,...
Forum: Trigeminal Neuralgia 02-22-2011, 11:16 PM
Replies: 11
Views: 2,167
Posted By crysopac
The glasses were a success. They are really...

The glasses were a success. They are really lightweight and don't bother her at all! I am thankful that she had a break in that at least. Thank you all for checking in on her.
Forum: Trigeminal Neuralgia 02-22-2011, 11:14 PM
Replies: 10
Views: 979
Posted By crysopac
For us it was the emotional support. It is hard...

For us it was the emotional support. It is hard for me to find any of that though. Racheal on the other hand finds great peace knowing she is not alone. So I would say that emotional is far more...
Forum: Trigeminal Neuralgia 02-22-2011, 11:11 PM
Replies: 6
Views: 668
Posted By crysopac
Nice to meet you. I am glad you found this forum....

Nice to meet you. I am glad you found this forum. The people here are great! I don't post often, but I do read. I hope that you can find some relief soon.

{{{hugs}}}

Crystal
Forum: Trigeminal Neuralgia 02-22-2011, 11:08 PM
Replies: 30
Views: 2,447
Posted By crysopac
BOB!!! {{{hugs}}} How can we forget you? (And has...

BOB!!! {{{hugs}}} How can we forget you? (And has it really been that long? Oy!) I am so sorry that your pain is so hard right now. I will be praying for some relief, and hopefully complete...
Forum: Trigeminal Neuralgia 02-22-2011, 11:04 PM
Replies: 4
Views: 588
Posted By crysopac
Unhappy Pneumonia!

Well it is official Rae has pneumonia. Her coughing sent her into fits of pain like before she started her meds. She is resting now, thankfully. However, next week is her appointment to the...
Forum: Trigeminal Neuralgia 01-28-2011, 01:25 AM
Replies: 11
Views: 2,167
Posted By crysopac
Well we got her fitted with the lightest weight...

Well we got her fitted with the lightest weight glasses they had in the store. They are going to take extra time to make sure that they are set properly before she walks out of the store with them...
Forum: Trigeminal Neuralgia 01-25-2011, 05:13 PM
Replies: 11
Views: 2,167
Posted By crysopac
Glasses

Rae had her check up today and we found out that she needs glasses. So my question is this:

Does anyone here have glasses? And does wearing the glasses cause your TN to trigger?

crystal
Forum: Trigeminal Neuralgia 11-07-2010, 03:52 PM
Replies: 17
Views: 1,206
Posted By crysopac
Just sent you an invite Gracie Anne I am...

Just sent you an invite Gracie

Anne I am with Gracie get a FB :p

As for side effects; the meds are really hindering the learning processes. Thankfully she is really smart, so while we go a...
Forum: Trigeminal Neuralgia 11-06-2010, 11:26 AM
Replies: 17
Views: 1,206
Posted By crysopac
She is on Dilantin and they are now considering...

She is on Dilantin and they are now considering increasing the dosage. But first they have to make sure all the labs are back. Without my husband having a job it means that we have to use the county...
Forum: Trigeminal Neuralgia 11-06-2010, 10:30 AM
Replies: 17
Views: 1,206
Posted By crysopac
Facebook, Us, and you!

I hardly have time to log on here anymore, but my facebook is almost always open. Kids play the games, and I keep tabs on friends. However, I miss you all dearly! So I thought if any of you have...
Forum: Trigeminal Neuralgia 08-17-2010, 10:41 AM
Replies: 11
Views: 1,328
Posted By crysopac
We so understand this touching thing. One of...

We so understand this touching thing. One of Rae's previous doctors insisted on touching her face until it hurt in order to prove still had TN. (as if it just goes away. I mean for a time but not...
Forum: Trigeminal Neuralgia 08-11-2010, 08:17 AM
Replies: 5
Views: 720
Posted By crysopac
Talking Bubble Gum

This post is not what you think it is about :p

So my daughters, all 3 of them were discussing their future wedding plans. If my children were older. However, the oldest isn't even in high school...
Forum: Trigeminal Neuralgia 07-18-2010, 06:20 PM
Replies: 7
Views: 667
Posted By crysopac
sorry about the late reply :) Yes, she was...

sorry about the late reply :)

Yes, she was massaging it because of pain. She said that it didn't help the pain but made her feel better. So we broke her of chewing on herself, and now she comes...
Forum: Trigeminal Neuralgia 07-17-2010, 11:46 PM
Replies: 1
Oy!
Views: 464
Posted By crysopac
Unhappy Oy!

Well here we are again. We were doing so good! She was in pain this evening. I have no idea what set it off, but I do hope that it doesn't do it again! She took her drops and her extra meds and...
Forum: Trigeminal Neuralgia 07-17-2010, 09:15 AM
Replies: 9
Views: 497
Posted By crysopac
First I do have advice several bits actually. :) ...

First I do have advice several bits actually. :)

The first thing I would tell miss believer of church powers is has she ever read the bible. I mean really read it and study it? Probably not by...
Forum: Trigeminal Neuralgia 07-07-2010, 09:01 PM
Replies: 4
Views: 420
Posted By crysopac
Good news on the Parent Front

Rae just came to me today and told me the greatest news ever! She has decided that she is a big girl. And because she is a big girl she can no longer act little. So she is going to help out around...
Forum: Trigeminal Neuralgia 07-06-2010, 03:07 PM
Replies: 5
Views: 429
Posted By crysopac
The diet change has helped her lose some weight....

The diet change has helped her lose some weight. And she is on the same meds she has been on for years. So I am not sure what caused the weight gain. The diet is a whole foods diet. No yeast, sugar,...
Showing results 1 to 25 of 414

 

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