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Forum: Trigeminal Neuralgia 07-19-2011, 08:04 PM
Replies: 20
Views: 4,839
Posted By RStapler
Anne, I find interesting that ‘Striking...

Anne,

I find interesting that ‘Striking Back’ calls it a “drug holiday” as I had thought I’d coined that phrase way back on the original Brain-Talk forum. Perhaps it is just a natural word...
Forum: Trigeminal Neuralgia 07-19-2011, 08:00 PM
Replies: 20
Views: 4,839
Posted By RStapler
Ellena, I thought yours a terrific comment...

Ellena,

I thought yours a terrific comment and a subject for serious discussion. I realize it is off topic for this post, but it is hard avoiding every unexpected turn in the road, and some are...
Forum: Trigeminal Neuralgia 07-10-2011, 10:27 PM
Replies: 34
Views: 6,297
Posted By RStapler
You’ve asked a lot of great questions and,...

You’ve asked a lot of great questions and, though, I realize these were posted many months ago and received some terrific answers, I feel they deserve whatever additional answer I can give them. ...
Forum: Trigeminal Neuralgia 06-12-2011, 05:06 PM
Replies: 1
Views: 1,734
Posted By RStapler
Contemplating Wallpaper - Take 2

I know I shouldn't mess with a half decent output, but I keep thinking of things I want to add or change. So rather than mess with the original, I decided to post my 'current' (hopefully last)...
Forum: Trigeminal Neuralgia 06-10-2011, 08:35 PM
Replies: 1
Views: 1,734
Posted By RStapler
Contemplating Wallpaper

As I sit, ever so quietly,
counting the seconds between my last and next,
contemplating wallpaper
as does not ignite
the one thing that hourly keeps me vexed

It comes to me that:
If I could...
Forum: Trigeminal Neuralgia 06-05-2011, 01:15 PM
Replies: 20
Views: 4,839
Posted By RStapler
Anne, I get the sense Ellena is talking...

Anne,

I get the sense Ellena is talking about something a little different, i.e., that there are cases where people restart a med only to find it no longer works for them. My sense is this is...
Forum: Trigeminal Neuralgia 06-05-2011, 01:04 PM
Replies: 4
Views: 2,107
Posted By RStapler
IntheDesert, Sorry your meds aren't working...

IntheDesert,

Sorry your meds aren't working for you. I had a similar problem with Trileptal recently when I resumed taking them after a long hiatus. I used Trileptal for many years with few...
Forum: Trigeminal Neuralgia 06-05-2011, 12:55 PM
Replies: 5
Views: 2,204
Posted By RStapler
Crystal & Rae, all I can say is: Awesome!

Crystal & Rae, all I can say is:

Awesome!
Forum: Trigeminal Neuralgia 06-05-2011, 12:39 PM
Replies: 20
Views: 4,839
Posted By RStapler
Ellena, I totally agree with you everything...

Ellena,

I totally agree with you everything we do with the meds (up or down) needs a doctor consult. The idea of our meds ceasing to work just because we stop taking them for a while, however,...
Forum: Trigeminal Neuralgia 06-05-2011, 12:20 PM
Replies: 20
Views: 4,839
Posted By RStapler
If my pain stopped today what are the three...

If my pain stopped today what are the three things I would do before it came back? That’s easy. The three things I would do right away if I got a remission are:


Smile – just because I...
Forum: Trigeminal Neuralgia 05-31-2011, 07:51 PM
Replies: 20
Views: 4,839
Posted By RStapler
Rae in Remission?

Crystalina and Rae,

I am hopefully confident this is a remission, and that Rae may soon get a break from the meds. My advice is to run (don’t walk) to her doctor for a consultation on this. ...
Forum: Trigeminal Neuralgia 05-30-2011, 08:49 PM
Replies: 5
Views: 3,270
Posted By RStapler
Report on Richmond 2011 TNA Conference

Preliminaries
The drive down from Baltimore took 4½ hours, so I was pretty tired by the time I arrived at 3:30pm in time to check-in, rest and refresh before the hospital reception. Traffic was...
Forum: Trigeminal Neuralgia 05-21-2011, 06:47 AM
Replies: 1
Views: 825
Posted By RStapler
Good seminar, Anne. Very general and not much...

Good seminar, Anne. Very general and not much that is new to us longtime TNers, but the presentation was concise, informative and effective. I would recommend this to new TNers and non-TNers...
Forum: Trigeminal Neuralgia 05-20-2011, 05:11 PM
Replies: 5
Views: 3,270
Posted By RStapler
Okay, I have arrived in Richmond for the TNA...

Okay, I have arrived in Richmond for the TNA Conference. I am a little tired from the long drive down from Baltimore, but glad to be here. Lots of construction, an accident and some kind of police...
Forum: Trigeminal Neuralgia 04-07-2011, 08:53 PM
Replies: 30
Views: 2,447
Posted By RStapler
I have been meaning to respond individually to...

I have been meaning to respond individually to everyone who has posted, but somehow time gets away from me to do that. So, here and now, let me say a big old Howdy! to: Ella, Anne, dBob, Gracie,...
Forum: Trigeminal Neuralgia 04-07-2011, 08:31 PM
Replies: 30
Views: 2,447
Posted By RStapler
Long Update

I considered writing an update covering the period since my doctor visit, but then thought it much easier just cutting/pasting from the daily journal I keep. I also thought it might be good to show...
Forum: Trigeminal Neuralgia 04-07-2011, 07:45 PM
Replies: 5
Views: 3,270
Posted By RStapler
TNA May 21 Richmond Conference

Is anyone planning to attend the Richmond VA conference on May 21. I am signed up for this, and plan to arrive at the Holiday Inn Koger Center the afternoon of May 20. If others are staying there...
Forum: Trigeminal Neuralgia 04-07-2011, 07:25 PM
Replies: 1
Views: 538
Posted By RStapler
My Meeting with Pain

Okay, so I am sitting in a crowded conference room with about two dozen others; most of whom are hastily downing coffees or noshing on bagels, texting away on Blackberry’s or PDAs, debating...
Forum: Trigeminal Neuralgia 03-13-2011, 09:50 PM
Replies: 30
Views: 2,447
Posted By RStapler
The doctor visit went okay. One thing very...

The doctor visit went okay.

One thing very different this time around was my wife accompanied me. She has been pressuring me for some time to be included in these sessions despite we are...
Forum: Trigeminal Neuralgia 03-13-2011, 07:37 PM
Replies: 8
Views: 2,713
Posted By RStapler
Lyn, While your question is a great one, I...

Lyn,

While your question is a great one, I must caution everyone we are not doctors or pharmacist as are knowledgeable regarding drug-pairing. All we can really tell you is what medications our...
Forum: Trigeminal Neuralgia 03-09-2011, 10:02 PM
Replies: 6
Views: 1,453
Posted By RStapler
Do we need a member register?

How do you folks feel about a new sticky for creating a member register?

The reason for one is we lose track of folks who haven’t posted lately or just can’t recall real names when posting...
Forum: Trigeminal Neuralgia 03-05-2011, 10:33 PM
Replies: 30
Views: 2,447
Posted By RStapler
The Lyrica is a disappointment as I have seen no...

The Lyrica is a disappointment as I have seen no noticeable effect since starting five days ago. Dr. Li warned me it would take longer for it to kick in than Trileptal, but I would have thought by...
Forum: Trigeminal Neuralgia 03-05-2011, 08:35 PM
Replies: 8
Views: 2,713
Posted By RStapler
Right now, my neurologist has me on 750mg/day...

Right now, my neurologist has me on 750mg/day Trileptal + 50mg/day Lyrica. So far the results are equivocal as I am still in considerable pain and uneven. Results were good the first few days, but...
Forum: Trigeminal Neuralgia 03-05-2011, 08:16 PM
Replies: 2
Views: 582
Posted By RStapler
A not-quite-a-poem

Faces of pain [a non-poem, eclectic poem-like rant]
(reader's note: if you print this out and hold it sideways it looks like a histographic timeline of pain trying real hard to settle down)
...
Forum: Trigeminal Neuralgia 03-02-2011, 08:20 PM
Replies: 4
Views: 1,007
Posted By RStapler
Alli, Thanks for the info on Lyrica as...

Alli,

Thanks for the info on Lyrica as I’ve just started taking that. Any other hints you may have what to watch out for will be appreciated. Currently, I am taking 750mg Trileptal and 50mg...
Showing results 1 to 25 of 202

 

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