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Forum: Cerebrospinal Fluid (CSF) Leak 07-09-2011, 12:06 AM
Replies: 0
Views: 2,692
Posted By guineapig
molecule which triggers pain discovered

http://www.bbc.co.uk/news/health-14047668?print=true


Clue to pain of sunburn discovered by UK researchers
A chemical in the body that triggers pain from sunburn has been pinpointed by UK...
Forum: Cerebrospinal Fluid (CSF) Leak 05-29-2011, 01:59 AM
Replies: 8
Views: 1,577
Posted By guineapig
lisalailey, my first patch to the lumbar...

lisalailey,

my first patch to the lumbar about 25 cc, there was absolutely no benefit. now i am a no brain sag leaker, which means i'm extra special bad. 2nd patch took about 4 days to notice a...
Forum: Cerebrospinal Fluid (CSF) Leak 02-28-2011, 07:10 PM
Replies: 4
Views: 1,373
Posted By guineapig
if you have a csf leak, and your symptom set is...

if you have a csf leak, and your symptom set is indicative of it (not meaning you do have one), you are not atypical in your situation. in fact, one of the symptoms of a csf leak gone chronic is...
Forum: Cerebrospinal Fluid (CSF) Leak 02-28-2011, 06:48 PM
Replies: 7
Views: 1,205
Posted By guineapig
hey Lady leaker, hmmmm, in whatever order......

hey Lady leaker,

hmmmm, in whatever order...

well, he's a guy, your a girl. god blessed (cursed) guys with a hormone of typically, at times, obsessive desire. be creative. something he doesn't...
Forum: Cerebrospinal Fluid (CSF) Leak 01-20-2011, 10:45 AM
Replies: 0
Views: 1,073
Posted By guineapig
BBC News Article: 'Rare disease means I may wake up unable to move'

15 January 2011 Last updated at 19:02 ET

http://www.bbc.co.uk/news/health-12182854

'Rare disease means I may wake up unable to move'
By Philippa Roxby
Health reporter, BBC News

Rhya's...
Forum: Cerebrospinal Fluid (CSF) Leak 01-18-2011, 04:40 PM
Replies: 6
Views: 1,068
Posted By guineapig
interesting Sky... my sensitivity to sound i...

interesting Sky...

my sensitivity to sound i think started after the bps; i think but am not sure. i believe this so because i "self-treated" as one or more of the morons said with loud music....
Forum: Cerebrospinal Fluid (CSF) Leak 01-17-2011, 04:14 PM
Replies: 6
Views: 1,068
Posted By guineapig
in 5 1/2 years spinal... throat nothing ...

in 5 1/2 years spinal...

throat nothing

nose nothing

ears: pain, tinnitus, sensitivity to sound (particularly high pitched noise), and there was something else i do not call right now, i...
Forum: Cerebrospinal Fluid (CSF) Leak 01-16-2011, 12:01 AM
Replies: 8
Views: 4,854
Posted By guineapig
greetings KatyMomma. well don't you know?...

greetings KatyMomma.

well don't you know? you are crazy. i didn't have brain sag nor meningeal enhancement either; yet my opening pressure could not be detected, it was below zero, the table had...
Forum: Cerebrospinal Fluid (CSF) Leak 01-15-2011, 11:52 PM
Replies: 9
Views: 1,213
Posted By guineapig
azul, if what you say is accurate, i have no...

azul,

if what you say is accurate, i have no reason to doubt, your neurosurgeon is an asss. which is not uncommon in so much that he is both human and a doctor.

my sincere sympathies for you....
Forum: Cerebrospinal Fluid (CSF) Leak 12-18-2010, 05:14 PM
Replies: 8
Views: 1,150
Posted By guineapig
weird? no, never weird Thia. never. relieving to...

weird? no, never weird Thia. never. relieving to have a diagnosis. life re-affirming and life keeping, the end to wondering if one should make an end to the pain.

peace like no one who hasn't had...
Forum: Cerebrospinal Fluid (CSF) Leak 12-18-2010, 04:58 PM
Replies: 1
Views: 1,110
Posted By guineapig
Brain surgery to relieve [cluster] headaches

interesting article

"They are living in agony - these are also known as suicide headaches because some people choose to end their lives rather than face the pain."


and then there are those...
Forum: Cerebrospinal Fluid (CSF) Leak 12-17-2010, 06:27 AM
Replies: 15
Views: 2,479
Posted By guineapig
well Marianne, i predict... you have... at...

well Marianne,

i predict... you have... at the very least.... another leak! about the size of a 23 gauge syringe.

what happened? did you spirt like a geyser or did they hear a giant sucking...
Forum: Ehlers Danlos Syndrome 12-12-2010, 04:34 AM
Replies: 4
Views: 6,331
Posted By guineapig
raw fats

raw, embryonic fats; non-mammalian w/out saying.

-almonds (and others, i eat pepitas -pumpkin-) the best i'm aware of
-eggs (chiken but i imagine that others work too)
-coconuts
-caviar...
Forum: Cerebrospinal Fluid (CSF) Leak 12-10-2010, 04:37 AM
Replies: 4
Views: 1,017
Posted By guineapig
on controlling and eliminating ICH headaches

diving into a pool of cs fluid...

for a while i exercised (pt) in a salt water pool. i thought about cranial leakers.

then there was king midas. everything he touched turned into gold. and i...
Forum: Cerebrospinal Fluid (CSF) Leak 12-10-2010, 03:58 AM
Replies: 15
Views: 2,479
Posted By guineapig
relief

hello Marianne,

i remember the first time a concrete diagnosis was proposed to me in the late summer of '05. i had been in pain for 4 months straight, non-stop ha's. i had been mistreated by...
Forum: Cerebrospinal Fluid (CSF) Leak 11-30-2010, 03:56 PM
Replies: 6
Views: 1,044
Posted By guineapig
Sky, you should consult w/...

Sky,

you should consult w/ horizontalhandmaiden. she is a dual, occult leaker. she has the philosophy similar. she had to learn not to try to be productive -she use to run her own business- i...
Forum: Cerebrospinal Fluid (CSF) Leak 11-30-2010, 04:57 AM
Replies: 14
Views: 7,042
Posted By guineapig
thanks for the write up, drippi. george...

thanks for the write up, drippi.

george clooney attributed his leak to gaining 40lbs for the movie, Syriana. his leak actually occurred cuz of the fall from the slap he received; you can see it in...
Forum: Cerebrospinal Fluid (CSF) Leak 11-30-2010, 02:10 AM
Replies: 3
Views: 932
Posted By guineapig
this is an apt traditional description of an...

this is an apt traditional description of an intracranial hypotension (ich) headache (ha). being able to replicate this affect is typically telling. i know very little about shunts. that the migrane...
Forum: Cerebrospinal Fluid (CSF) Leak 11-23-2010, 01:22 AM
Replies: 6
Views: 1,044
Posted By guineapig
is your symptom set mostly ha? i prescribe,...

is your symptom set mostly ha?

i prescribe, lachryma papaveris, ummm, opium. come by my medicine cabinet, err i mean my office for a decade's worth of Rx.

and lots of humor.
Forum: Cerebrospinal Fluid (CSF) Leak 11-23-2010, 01:18 AM
Replies: 32
Views: 3,592
Posted By guineapig
my first blood patch (c 25cc to the lumbar) did...

my first blood patch (c 25cc to the lumbar) did nothing. 10 days later had a double patch (totaling 60+cc to lumbar n thoracic) took so many days (4, 5, 6) and it finally kicked in. i recall, i awoke...
Forum: Cerebrospinal Fluid (CSF) Leak 11-16-2010, 01:59 AM
Replies: 12
Views: 1,806
Posted By guineapig
hey Qatar, sorry. appears you have joined...

hey Qatar,

sorry. appears you have joined the club, at least temporarily. let us hope Robbysmom5 is correct and you heal (from the perspective of us chronics) quickly. very, very few people get...
Forum: Cerebrospinal Fluid (CSF) Leak 11-16-2010, 01:26 AM
Replies: 32
Views: 3,592
Posted By guineapig
well Girl, it's like this: "I suddenly remembered...

well Girl, it's like this: "I suddenly remembered my Charlemagne. Let my armies be the rocks and the trees and the birds in the sky..."

...umm, no it's not like that, i just like that line. ...
Forum: Cerebrospinal Fluid (CSF) Leak 11-13-2010, 11:50 PM
Replies: 32
Views: 3,592
Posted By guineapig
hey The Leaker, don't be surprised or...

hey The Leaker,

don't be surprised or dejected if your symptoms retreat sporadically.

take seriously the advice about restrictions, particularly about sneezing. process these restrictions...
Forum: Ehlers Danlos Syndrome 11-20-2009, 11:06 PM
Replies: 4
Views: 6,331
Posted By guineapig
diet significantly affecting eds symptoms

recently discovered that eating raw salmon often enough, about every other day has completely eliminated one symptom of eds: the ventral side of my thumb would peel 2 or 3 layers of skin on...
Forum: Ehlers Danlos Syndrome 08-04-2009, 02:41 AM
Replies: 2
Views: 2,712
Posted By guineapig
Huey, i have categorically undefined eds. a...

Huey,

i have categorically undefined eds. a slight to moderate case. had mono in my early 20s when the eds was mostly asymptomatic. in my case i do not believe there was any connection. i think...
Showing results 1 to 25 of 455

 

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