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Forum: Stroke 08-11-2011, 06:55 AM
Replies: 3
Views: 1,719
Posted By mg12061
My daughter was 5 yrs old when she suffered her...

My daughter was 5 yrs old when she suffered her strokes. She's now 14 and still has issues with her gait, balance, endurance, extreme heat and cold, She also has no functional use of ehr elft hand...
Forum: Child Neurology 08-07-2011, 10:46 AM
Replies: 6
Views: 1,251
Posted By mg12061
So glad your appointment went well and your...

So glad your appointment went well and your moving forward. It was Kathleen's neurologist who ordered the test for celiac disease(even though it's out of his speciality) for her. I had asked at least...
Forum: Child Neurology 07-30-2011, 02:34 PM
Replies: 7
Views: 1,281
Posted By mg12061
I think Kathleen will be one of those people who...

I think Kathleen will be one of those people who have symptoms from jsut trace amounts of gluten. I've been carfefull but it seems some belly pain returned this week. It may be from the syprup I...
Forum: Gluten Sensitivity / Celiac Disease 07-19-2011, 08:07 PM
Replies: 1
Views: 1,209
Posted By mg12061
celiac update

Kathleen had her endoscopy and biopsy 2 weeks ago this Wednesday. The doc told us to put her on the diet right away since he could already see the damage to her intestines. This was confirmed when...
Forum: Child Neurology 07-19-2011, 08:06 PM
Replies: 7
Views: 1,281
Posted By mg12061
celiac update

Kathleen had her endoscopy and biopsy 2 weeks ago this Wednesday. The doc told us to put her on the diet right away since he could already see the damage to her intestines. This was confirmed when...
Forum: Child Neurology 07-09-2011, 03:29 PM
Replies: 6
Views: 1,274
Posted By mg12061
I admire all you do for Grant, including this...

I admire all you do for Grant, including this step. Grant is very lucky to have such a wonderful advocate watching out for all his needs present and future. It gives me renewed strength whenever I...
Forum: Gluten Sensitivity / Celiac Disease 07-06-2011, 03:04 PM
Replies: 2
Views: 1,328
Posted By mg12061
Jeanne, Thank you for your response. It seems to...

Jeanne, Thank you for your response. It seems to be getting easier to do Gluten Free. My brother has celiac also so he will be a great resource for us. Thank you for the advicce on the GF grains....
Forum: Stroke 07-03-2011, 12:28 PM
Replies: 4
Views: 908
Posted By mg12061
Mountainman I agree I hope that this forum...

Mountainman I agree I hope that this forum continues and grows. That would be a great tribute to Rowland and all the research he did information he posted and support he offered to this forum. He...
Forum: Child Neurology 07-03-2011, 12:26 PM
Replies: 2
Views: 1,189
Posted By mg12061
celiac diagnosis

Kathleen has been to the gastro Dr. and he is 99% sure she has celiac disease and this is what's been causing her health issues lately. He will do an endoscopy and biopsy on Tuesday to confirm it...
Forum: Gluten Sensitivity / Celiac Disease 07-03-2011, 12:17 PM
Replies: 2
Views: 1,328
Posted By mg12061
celiac diagnosis

My daughter saw the Gastro Dr. last week. He said he's 99% positive she ahs celiac but will do an edoscopy and biopsy on Tuesday to be 100% sure. He has set us up with a dietician to help start the...
Forum: Stroke 06-25-2011, 07:20 AM
Replies: 4
Views: 908
Posted By mg12061
I'm so shocked and sad to hear this. Rowland...

I'm so shocked and sad to hear this. Rowland never failed to offer his support and knowledge to every post I've added to the forum. He also celebrated Kathleen's accomplishemnts when I bragged about...
Forum: General Neurology and Rare Disorders 06-22-2011, 01:29 PM
Replies: 13
Views: 2,086
Posted By mg12061
Just wanted to mention again to check for celiac...

Just wanted to mention again to check for celiac disease. It has such a large list of symptoms and Dr.'s just don't consider it. The list can consitst of jusevery symptom you have (both barque and...
Forum: New Visitors Click Here! 06-20-2011, 09:48 AM
Replies: 4
Views: 988
Posted By mg12061
Somlin, welcome, so sorry for your for your...

Somlin, welcome, so sorry for your for your health issues but I do think you'll find some great support. My daughter suffered several strokes at 5 yrs old (caused by moyamoya disease). She's now 14...
Forum: General Neurology and Rare Disorders 06-19-2011, 07:56 AM
Replies: 13
Views: 2,086
Posted By mg12061
Has she been tested for Celiac disease. My...

Has she been tested for Celiac disease. My daughter who had someof these not all of these symptoms was just diagnosed. In general it can cause malnutrition so there is a long list of symptoms many of...
Forum: Child Neurology 06-07-2011, 07:15 PM
Replies: 6
Views: 474
Posted By mg12061
Kathleen has an appointment with a pediatric...

Kathleen has an appointment with a pediatric gastro. Dr. in a couple weeks. I was surprised to get in so quickly! Rose than you for mentioning the Gluten senstivity forum I've already posted and...
Forum: New Visitors Click Here! 06-05-2011, 10:26 AM
Replies: 1
Views: 377
Posted By mg12061
hello and welcome... I'm so sorry for all you and...

hello and welcome... I'm so sorry for all you and your daughter are going through. I can totally understand. My daughter was born with Down syndrome and at 5 yrs old suffered several strokes caused...
Forum: New Visitors Click Here! 06-05-2011, 10:18 AM
Replies: 2
Views: 417
Posted By mg12061
I'm so sorry to hear this... I'm 50 yrs old and...

I'm so sorry to hear this... I'm 50 yrs old and my dad died at 52 when a circle of Willis aneurysm burst. This type of aneurysm is hereditary and my siblings were tested for this type of aneurysm....
Forum: Gluten Sensitivity / Celiac Disease 06-05-2011, 08:12 AM
Replies: 7
Views: 1,430
Posted By mg12061
Kathleen has an appointment with a GI Dr. in 3...

Kathleen has an appointment with a GI Dr. in 3 weeks. I'm so glad we didn't have to wait too long. Any advice before our appt.?
Mary Grace
Forum: Child Neurology 06-05-2011, 08:10 AM
Replies: 2
Views: 434
Posted By mg12061
My daughter has been going through what seems to...

My daughter has been going through what seems to be GI issues for a few months now. She ahs Down syndrome, moyamoya disease and a history of strokes. She been hospitalised,and seen her PC Dr. a...
Forum: Child Neurology 06-02-2011, 01:54 PM
Replies: 11
Views: 840
Posted By mg12061
I'm fairly new to the site but I'd really miss...

I'm fairly new to the site but I'd really miss it. I think it's totally worth keeping it up and running. I don't do facebook, even if I did I would much rather post directly to this board with any...
Forum: New Visitors Click Here! 05-27-2011, 10:57 AM
Replies: 6
Views: 1,267
Posted By mg12061
Great advice! Please urge him to seek help. A...

Great advice! Please urge him to seek help. A TIA/MIA is usually a warning that this will continue until a full blown stroke occurs. There a many causes for this and it's immportant to find out. I...
Forum: Gluten Sensitivity / Celiac Disease 05-26-2011, 01:43 PM
Replies: 7
Views: 1,430
Posted By mg12061
Karen, Thank you so much for all that...

Karen, Thank you so much for all that information! I like the questions you mentioned to ask.These are exactly the things I need to know before our appt. with a gastro. Dr. Kathleen is 14 and was...
Forum: Child Neurology 05-26-2011, 10:10 AM
Replies: 2
Views: 488
Posted By mg12061
WOW! That place looks amazing!!! Great pictures...

WOW! That place looks amazing!!! Great pictures and video. It reminded me of Kathleens Make a Wish trip to Disney which included Sea World which was probably our favorite place.
Mary Grace
Forum: Gluten Sensitivity / Celiac Disease 05-25-2011, 08:50 PM
Replies: 7
Views: 1,430
Posted By mg12061
new to this forum...

Hello I'm new to this forum but have posted on both the child neurology and stroke forums. My daughter is 14 yrs old,she has Down syndrome, moyamoya disease and a history of strokes.
She's been...
Forum: Stroke 05-25-2011, 02:04 PM
Replies: 1
Views: 980
Posted By mg12061
OT... Celiac

Just wondering if anyone here has had any experience with Celiac disease. It looks like Kathleen may have this. She's been having some health issues for about 2 months now. 2 trips to the ER and a 4...
Showing results 1 to 25 of 134

 

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